scholarly journals “Giving something back”: A systematic review and ethical enquiry of public opinions on the use of patient data for research in the United Kingdom and the Republic of Ireland

2018 ◽  
Vol 3 ◽  
pp. 6 ◽  
Author(s):  
Jessica Stockdale ◽  
Jackie Cassell ◽  
Elizabeth Ford
Keyword(s):  
Public Opinion ◽  
Common Good ◽  
Public Attitudes ◽  
Good Practice ◽  
Medical Data ◽  
Patient Data ◽  
Service Planning ◽  
Biomedical Ethics ◽  
Public Opinions ◽  
The Public

Background: Use of medical data for secondary purposes such as health research, audit, and service planning is well established in the UK. However, the governance environment, as well as public opinion and understanding about this work, have lagged behind. We aimed to systematically review the literature on UK and Irish public opinions of medical data use in research, critically analysing such opinions though an established biomedical ethics framework, to draw out potential strategies for future good practice guidance and inform ethical and privacy debates.Methods: We searched three databases using terms such as patient, public, opinion, and electronic health records. Empirical studies were eligible for inclusion if they surveyed healthcare users, patients or the wider public in UK and Ireland and examined attitudes, opinions or beliefs about the use of patient data for medical research. Results were synthesised into broad themes using a Framework Analysis.Results: Out of 13,492 papers and reports screened, 20 papers or reports were eligible. While there was a widespread willingness to share EHRs for research for the common good, this very rarely led to unqualified support. The public expressed two generalised concerns through a variety of hypothetical examples. The first of these concerns related to a party’s competence in keeping data secure, while the second was associated with the motivation a party might have to use the data.Conclusions: The public evaluates trustworthiness of research organisations by assessing their competence in data-handling and motivation for accessing the data. Public attitudes around data-sharing exemplified several principles which are also widely accepted in biomedical ethics. This provides a framework for understanding public attitudes, which should be considered in the development in any guidance for regulators and data custodians. We propose four salient questions which data guardians should address when evaluating proposals for the secondary use of data.

scholarly journals “Giving something back”: A systematic review and ethical enquiry into public views on the use of patient data for research in the United Kingdom and the Republic of Ireland

2019 ◽  
Vol 3 ◽  
pp. 6 ◽  
Author(s):  
Jessica Stockdale ◽  
Jackie Cassell ◽  
Elizabeth Ford
Keyword(s):  
Common Good ◽  
Public Attitudes ◽  
Good Practice ◽  
Patient Data ◽  
Service Planning ◽  
Biomedical Ethics ◽  
Public Understanding ◽  
Framework Analysis ◽  
The Public ◽  
Public Views

Background: Use of patients’ medical data for secondary purposes such as health research, audit, and service planning is well established in the UK. However, the governance environment, as well as public understanding about this work, have lagged behind. We aimed to systematically review the literature on UK and Irish public views of patient data used in research, critically analysing such views though an established biomedical ethics framework, to draw out potential strategies for future good practice guidance and inform ethical and privacy debates.Methods: We searched three databases using terms such as patient, public, opinion, and electronic health records. Empirical studies were eligible for inclusion if they surveyed healthcare users, patients or the public in UK and Ireland and examined attitudes, opinions or beliefs about the use of patient data for medical research. Results were synthesised into broad themes using a framework analysis.Results: Out of 13,492 papers and reports screened, 20 papers or reports were eligible. While there was a widespread willingness to share patient data for research for the common good, this very rarely led to unqualified support. The public expressed two generalised concerns about the potential risks to their privacy. The first of these concerns related to a party’s competence in keeping data secure, while the second was associated with the motivation a party might have to use the data.Conclusions: The public evaluates trustworthiness of research organisations by assessing their competence in data-handling and motivation for accessing the data. Public attitudes around data-sharing exemplified several principles which are also widely accepted in biomedical ethics. This provides a framework for understanding public attitudes, which should be considered in the development in any guidance for regulators and data custodians. We propose four salient questions which decision makers should address when evaluating proposals for the secondary use of data

Trust in the Police: Cross-country Comparisons

2012 ◽  
pp. 24-47
Author(s):  
V. Gimpelson ◽  
G. Monusova
Keyword(s):  
Public Opinion ◽  
Public Attitudes ◽  
Crime Rates ◽  
Authoritarian Regimes ◽  
Data Sets ◽  
The Public ◽  
Positive Attitudes ◽  
Cross Country ◽  
Police Activity

Using different cross-country data sets and simple econometric techniques we study public attitudes towards the police. More positive attitudes are more likely to emerge in the countries that have better functioning democratic institutions, less prone to corruption but enjoy more transparent and accountable police activity. This has a stronger impact on the public opinion (trust and attitudes) than objective crime rates or density of policemen. Citizens tend to trust more in those (policemen) with whom they share common values and can have some control over. The latter is a function of democracy. In authoritarian countries — “police states” — this tendency may not work directly. When we move from semi-authoritarian countries to openly authoritarian ones the trust in the police measured by surveys can also rise. As a result, the trust appears to be U-shaped along the quality of government axis. This phenomenon can be explained with two simple facts. First, publicly spread information concerning police activity in authoritarian countries is strongly controlled; second, the police itself is better controlled by authoritarian regimes which are afraid of dangerous (for them) erosion of this institution.

A Subtle but Intractable Problem? Public Attitudes to Sectarianism in 2014

2015 ◽  
Vol 24 (3) ◽  
pp. 266-287 ◽  
Author(s):  
Rachel Ormston ◽  
John Curtice ◽  
Stephen Hinchliffe ◽  
Anna Marcinkiewicz
Keyword(s):  
Public Opinion ◽  
Public Attitudes ◽  
Evidence Base ◽  
Social Attitudes ◽  
The Public ◽  
Public Beliefs ◽  
Intractable Problem ◽  
Robust Evidence

Discussion of sectarianism often focuses on evidence purporting to show discriminatory behaviour directed at Catholics or Protestants in Scotland. But attitudes also matter – in sustaining (or preventing) such discriminatory behaviours, and in understanding the nature of the ‘problem of sectarianism’ from the perspective of the Scottish public. This paper uses data from the Scottish Social Attitudes survey 2014. The survey fills a gap in the evidence base by providing robust evidence on what the public actually thinks about sectarianism in modern Scotland. It assesses public beliefs about the extent and nature of sectarianism and its perceived causes. Tensions in public opinion and differences in the attitudes of different sections of Scottish society are explored.

Reality Asserts Itself: Public Opinion on Iraq and the Elasticity of Reality

2010 ◽  
Vol 64 (3) ◽  
pp. 443-479 ◽  
Author(s):  
Matthew A. Baum ◽  
Tim Groeling
Keyword(s):  
Public Opinion ◽  
Public Attitudes ◽  
Public Support ◽  
News Coverage ◽  
Public Perceptions ◽  
The Public ◽  
Sustained Change ◽  
Disaggregated Data ◽  
Original Survey ◽  
Over Time

AbstractPrevailing theories hold that U.S. public support for a war depends primarily on its degree of success, U.S. casualties, or conflict goals. Yet, research into the framing of foreign policy shows that public perceptions concerning each of these factors are often endogenous and malleable by elites. In this article, we argue that both elite rhetoric and the situation on the ground in the conflict affect public opinion, but the qualities that make such information persuasive vary over time and with circumstances. Early in a conflict, elites (especially the president) have an informational advantage that renders public perceptions of “reality” very elastic. As events unfold and as the public gathers more information, this elasticity recedes, allowing alternative frames to challenge the administration's preferred frame. We predict that over time the marginal impact of elite rhetoric and reality will decrease, although a sustained change in events may eventually restore their influence. We test our argument through a content analysis of news coverage of the Iraq war from 2003 through 2007, an original survey of public attitudes regarding Iraq, and partially disaggregated data from more than 200 surveys of public opinion on the war.

Revealing public opinion towards COVID-19 vaccines with Twitter data in the United States: a spatiotemporal perspective (Preprint)

2021 ◽  
Author(s):  
Tao Hu ◽  
Siqin Wang ◽  
Wei Luo ◽  
Mengxi Zhang ◽  
Xiao Huang ◽  
...  
Keyword(s):  
Public Health ◽  
Public Opinion ◽  
Public Attitudes ◽  
The United States ◽  
Health Crisis ◽  
The Public ◽  
Public Sentiment ◽  
Spatiotemporal Trends ◽  
The Us ◽  
Key Events

BACKGROUND The COVID-19 pandemic has imposed a large, initially uncontrollable, public health crisis both in the US and across the world, with experts looking to vaccines as the ultimate mechanism of defense. The development and deployment of COVID-19 vaccines have been rapidly advancing via global efforts. Hence, it is crucial for governments, public health officials, and policy makers to understand public attitudes and opinions towards vaccines, such that effective interventions and educational campaigns can be designed to promote vaccine acceptance OBJECTIVE The aim of this study is to investigate public opinion and perception on COVID-19 vaccines by investigating the spatiotemporal trends of their sentiment and emotion towards vaccines, as well as how such trends relate to popular topics on Twitter in the US METHODS We collected over 300,000 geotagged tweets in the US from March 1, 2020 to February 28, 2021. We examined the spatiotemporal patterns of public sentiment and emotion over time at both national and state scales and identified three phases along the pandemic timeline with the significant changes of public sentiment and emotion, further linking to eleven key events and major topics as the potential drivers to induce such changes via cloud mapping of keywords and topic modelling RESULTS An increasing trend of positive sentiment in parallel with the decrease of negative sentiment are generally observed in most states, reflecting the rising confidence and anticipation of the public towards vaccines. The overall tendency of the eight types of emotion implies the trustiness and anticipation of the public to vaccination, accompanied by the mixture of fear, sadness and anger. Critical social/international events and/or the announcements of political leaders and authorities may have potential impacts on the public opinion on vaccines. These factors, along with important topics and manual reading of popular posts on eleven key events, help identify underlying themes and validate insights from the analysis CONCLUSIONS The analyses of near real-time social media big data benefit public health authorities by enabling them to monitor public attitudes and opinions towards vaccine-related information in a geo-aware manner, address the concerns of vaccine skeptics and promote the confidence of individuals within a certain region or community, towards vaccines

scholarly journals Responsibilization and Sexual Stigma Under Austerity: Surveying Public Support for Government-Funded PrEP in England

2019 ◽  
Vol 17 (4) ◽  
pp. 643-653
Author(s):  
Timothy Hildebrandt ◽  
Leticia Bode ◽  
Jessica S. C. Ng
Keyword(s):  
Public Opinion ◽  
Public Attitudes ◽  
Public Support ◽  
Policy Implications ◽  
The Public ◽  
Sexual Stigma ◽  
The Government ◽  
Original Survey ◽  
Media Narratives

Abstract Introduction Under austerity, governments shift responsibilities for social welfare to individuals. Such responsibilization can be intertwined with pre-existing social stigmas, with sexually stigmatized individuals blamed more for health problems due to “irresponsible” sexual behavior. To understand how sexual stigma affects attitudes on government healthcare expenditures, we examine public support for government-provisioned PrEP in England at a time when media narratives cast the drug as an expensive benefit for a small, irresponsible social group and the National Health Service’s long-term sustainability was in doubt. Methods This paper uses data from an original survey (N = 738) conducted in September 2016, when public opinion should be most sensitive to sexual stigma. A survey experiment tests how the way beneficiaries of PrEP were described affected support for NHS provision of it. Contrary to expectations, we found that support was high (mean = 3.86 on a scale of 1 to 5) irrespective of language used or beneficiary group mentioned. Differences between conditions were negligible. Discussion Sexual stigma does not diminish support for government-funded PrEP, which may be due to reverence for the NHS; resistance to responsibilization generally; or just to HIV, with the public influenced by sympathy and counter-messaging. Social policy implications Having misjudged public attitudes, it may be difficult for the government to continue to justify not funding PrEP; the political rationale for contracting out its provision is unnecessary and flawed. With public opinion resilient to responsibilization narratives and sexual stigma even under austerity, welfare retrenchment may be more difficult than social policymakers presume.

Public Opinion on Unites States-Canadian Relations

1974 ◽  
Vol 28 (4) ◽  
pp. 637-668 ◽  
Author(s):  
John H. Sigler ◽  
Dennis Goresky
Keyword(s):  
Foreign Policy ◽  
Public Opinion ◽  
Public Attitudes ◽  
Foreign Affairs ◽  
The Other ◽  
Relative Degree ◽  
Transnational Politics ◽  
Interstate Relations ◽  
The Public ◽  
Unites States

Primary attention has been paid in much of the writing on public attitudes on foreign affairs to opinions about official interstate relations and foreign policy. One of the merits of the transnational politics paradigm is that it calls attention to the possibility that intersocietal relations may condition or influence the climate as well as the agenda of interstate relations. For the public opinion analyst, the paradigm invites attention to the relative degree of importance assigned by publics to intersocietal as contrasted to interstate relations and how changes in attitudes toward one sector may influence the climate in which relations in the other sector are conducted.

Policing Diversity — Managing Complaints against the Police

2002 ◽  
Vol 75 (2) ◽  
pp. 117-135 ◽  
Author(s):  
Peter C Kennison
Keyword(s):  
Public Attitudes ◽  
Good Practice ◽  
Easy Access ◽  
Police Misconduct ◽  
Critical Perspective ◽  
The Public ◽  
Police Accountability ◽  
Police Deviance ◽  
Civil Libertarian ◽  
Police Practices

This study takes a critical perspective in examining public attitudes towards police stop-and-search powers and, more particularly, police misconduct. It shows how police accountability works through the formal and complex system of complaints against police. It shows a system designed to favour the police against the citizen. In the eyes of some citizens this has tended to reduce the legitimacy of the complaints process, which has led to its under use. Certain police practices and services appear to impact more on diverse sections of the public than it does on the white community. It shows how aberrant police behaviour exposes some of the sociological issues such as black over-representation in public dissatisfaction and complaint statistics. The research also highlights the hidden figure of police deviance and misconduct. This study acknowledges future changes in complaints management proposed by the Home Secretary, David Blunkett MP. However, these proposals do not appear to go far enough. The complaints process is beset with a number of significant problems which include inaccessibility, complication and inequality. The study suggests, as the way forward, a model of ‘good practice’ using a pragmatic approach, which is customer-focused and overcomes many of the problems that allow for easy access, simplification and informality. The principle of civil libertarian ideals prevails, satisfying the legal notion, ‘justice must not only be done but must be seen to be done’.

scholarly journals A Study on the Topic-Sentiment Evolution and Diffusion in Time Series of Public Opinion Derived from Emergencies

Complexity ◽  
2021 ◽  
Vol 2021 ◽  
pp. 1-23
Author(s):  
Meng Cai ◽  
Han Luo ◽  
Ying Cui
Keyword(s):  
Public Health ◽  
Social Media ◽  
Time Series ◽  
Public Opinion ◽  
Public Health Emergency ◽  
Classification Model ◽  
Temporal Networks ◽  
Public Opinions ◽  
The Public ◽  
And Diffusion

With the development of the Internet, social media has become an important platform for people to deal with emergencies and share information. When a public health emergency occurs, the public can understand the topics of the event and perceive the sentiments of others through social media, thus building a cooperative communication network. In this study, we took the public health emergency as the main research object and the natural disaster, accident, and social security event as the secondary research object and further revealed the law of the formation and evolution of public opinion through the analysis on temporal networks of topics and sentiments in social media platforms. Firstly, we identified the derived topics by constructing the topic model and used the sentiment classification model to divide the text sentiments of the derived topics into two types: positive sentiment and negative sentiment. Then, the ARIMA time series model was used to fit and predict the evolution and diffusion rules of topics and sentiments derived from public opinions on temporal networks. It was found that the evolution law of derived public opinions had similarities and differences in various types of emergencies and was closely related to government measures and media reports. The related research provides a foundation for the management of network public opinion and the realization of better emergency effects.

scholarly journals Beyond Positive and Negative: New Perspectives on Feedback Effects in Public Opinion on the Welfare State

2019 ◽  
pp. 1-26 ◽  
Author(s):  
Marius R Busemeyer ◽  
Aurélien Abrassart ◽  
Roula Nezi
Keyword(s):  
Public Opinion ◽  
Welfare State ◽  
Public Attitudes ◽  
Dynamic Feedback ◽  
Policy Feedback ◽  
Feedback Effects ◽  
The Public ◽  
Fine Grained ◽  
Positive And Negative Feedback ◽  
The Welfare State

Abstract The study of policy feedback on public attitudes and policy preferences has become a growing area of research in recent years. Scholars in the tradition of Pierson usually argue that positive, self-reinforcing feedback effects dominate (that is, attitudes are commensurate with existing institutions), whereas the public thermostat model developed by Wlezien and Soroka expects negative, self-undermining feedback. Moving beyond the blunt distinction between positive and negative feedback, this article develops and proposes a more fine-grained typology of feedback effects that distinguishes between accelerating, self-reinforcing and self-undermining, specific and general, as well as long- and short-term dynamic feedback. The authors apply this typology in an analysis of public opinion on government spending in different areas of the welfare state for twenty-one OECD countries, employing a pseudo-panel approach. The empirical analysis confirms the usefulness of this typology since it shows that different types of feedback effects can be observed empirically.

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