scholarly journals Social and economic impacts of congenital Zika syndrome in Brazil: Study protocol and rationale for a mixed-methods study

2019 ◽  
Vol 3 ◽  
pp. 127 ◽  
Author(s):  
Hannah Kuper ◽  
Tereza Maciel Lyra ◽  
Maria Elisabeth Lopes Moreira ◽  
Maria do Socorro Veloso de Albuquerque ◽  
Thália Velho Barreto de Araújo ◽  
...  
Keyword(s):  
Mixed Methods ◽  
Service Use ◽  
Economic Impacts ◽  
Qualitative Interviews ◽  
Congenital Infection ◽  
Adverse Outcomes ◽  
Family Quality Of Life ◽  
Child Bearing ◽  
The Social ◽  
Congenital Zika Syndrome

Global concern broke out in late 2015 as thousands of children in Brazil were born with microcephaly, which was quickly linked to congenital infection with Zika virus (ZIKV). ZIKV is now known to cause a wider spectrum of severe adverse outcomes—congenital Zika syndrome (CZS)—and also milder impairments. This study aimed to explore the social and economic impacts of CZS in Brazil. Data was collected through mixed methods across two settings: Recife City and Jaboatão dos Guararapes in Pernambuco State (the epicentre of the epidemic), and the city of Rio de Janeiro (where reports of ZIKV infection and CZS were less frequent). Data was collected May 2017-January 2018. Ethical standards were adhered to throughout the research. In-depth qualitative interviews were conducted with: mothers and other carers of children with CZS (approximately 30 per setting), pregnant women (10-12 per setting), men and women of child-bearing age (16-20 per setting), and health professionals (10-12 per setting). Thematic analysis was undertaken independently by researchers from at least two research settings, and these were shared for feedback. A case-control study was undertaken to quantitatively explore social and economic differences between caregivers of a child with CZS (cases) and caregivers with an unaffected child (controls). We aimed to recruit 100 cases and 100 controls per setting, from existing studies. The primary caregiver, usually the mother, was interviewed using a structured questionnaire to collect information on: depression, anxiety, stress, social support, family quality of life, health care and social service use, and costs incurred by families. Multivariable logistic regression analyses were used to compare outcomes for cases and controls. Costs incurred as a result of CZS were estimated from the perspective of the health system, families and society. Modelling was undertaken to estimate the total economic burden of CZS from those three perspectives.

scholarly journals Social and economic impacts of congenital Zika syndrome in Brazil: Study protocol and rationale for a mixed-methods study

2018 ◽  
Vol 3 ◽  
pp. 127 ◽  
Author(s):  
Hannah Kuper ◽  
Tereza Maciel Lyra ◽  
Maria Elisabeth Lopes Moreira ◽  
Maria do Socorro Veloso de Albuquerque ◽  
Thália Velho Barreto de Araújo ◽  
...  
Keyword(s):  
Mixed Methods ◽  
Service Use ◽  
Economic Impacts ◽  
Qualitative Interviews ◽  
Congenital Infection ◽  
Adverse Outcomes ◽  
Family Quality Of Life ◽  
Child Bearing ◽  
The Social ◽  
Congenital Zika Syndrome

Global concern broke out in late 2015 as thousands of children in Brazil were born with microcephaly, which was quickly linked to congenital infection with Zika virus (ZIKV). ZIKV is now known to cause a wider spectrum of severe adverse outcomes—congenital Zika syndrome (CZS)—and also milder impairments. This study aimed to explore the social and economic impacts of CZS in Brazil. Data was collected through mixed methods across two settings: Recife City and Jaboatão dos Guararapes in Pernambuco State (the epicentre of the epidemic), and the city of Rio de Janeiro (where reports of ZIKV infection and CZS were less frequent). Data was collected May 2017-January 2018. Ethical standards were adhered to throughout the research. In-depth qualitative interviews were conducted with: mothers and other carers of children with CZS (approximately 30 per setting), pregnant women (10-12 per setting), men and women of child-bearing age (16-20 per setting), and health professionals (10-12 per setting). Thematic analysis was undertaken independently by researchers from at least two research settings, and these were shared for feedback. A case-control study was undertaken to quantitatively explore social and economic differences between caregivers of a child with CZS (cases) and caregivers with an unaffected child (controls). We aimed to recruit 100 cases and 100 controls per setting, from existing studies. The primary caregiver, usually the mother, was interviewed using a structured questionnaire to collect information on: depression, anxiety, stress, social support, family quality of life, health care and social service use, and costs incurred by families. Multivariable logistic regression analyses were used to compare outcomes for cases and controls. Costs incurred as a result of CZS were estimated from the perspective of the health system, families and society. Modelling was undertaken to estimate the total economic burden of CZS from those three perspectives.

scholarly journals Beliefs about prescribed medication among older patients with polypharmacy: a mixed methods study in primary care

2017 ◽  
Vol 67 (660) ◽  
pp. e507-e518 ◽  
Author(s):  
Barbara Clyne ◽  
Janine A Cooper ◽  
Fiona Boland ◽  
Carmel M Hughes ◽  
Tom Fahey ◽  
...  
Keyword(s):  
Primary Care ◽  
Mixed Methods ◽  
Older Patients ◽  
Qualitative Data ◽  
Controlled Trial ◽  
Qualitative Interviews ◽  
Inappropriate Prescribing ◽  
Adverse Outcomes ◽  
Mixed Methods Study ◽  
Negative Attitudes

BackgroundPolypharmacy (≥5 medications) is common in older patients and is associated with adverse outcomes. Patients’ beliefs about medication can influence their expectations for medication, adherence, and willingness to deprescribe. Few studies have examined beliefs about prescribed medication among older patients with polypharmacy in primary care.AimTo explore medication-related beliefs in older patients with polypharmacy and factors that might influence beliefs.Design and settingA mixed methods study utilising data from a randomised controlled trial aiming to decrease potentially inappropriate prescribing in older patients (≥70 years) in Ireland.MethodBeliefs were assessed quantitatively and qualitatively. Participants completed the Beliefs about Medicines Questionnaire by indicating their degree of agreement with individual statements about medicines on a 5-point Likert scale. Semi-structured qualitative interviews were conducted with a purposive sample of participants. Interviews were transcribed verbatim and a thematic analysis conducted. Quantitative and qualitative data were analysed separately and triangulated during the interpretation stage.ResultsIn total, 196 patients were included (mean age 76.7 years, SD 4.9, 54% male), with a mean of 9.5 (SD 4.1) medications per patient. The majority (96.3%) believed strongly in the necessity of their medication, while 33.9% reported strong concerns. Qualitative data confirmed these coexisting positive and negative attitudes to medications and suggested the importance of patients’ trust in GPs in establishing positive beliefs and potential willingness to deprescribe.ConclusionParticipants reported strong beliefs in medications with coexisting positive and negative attitudes. The doctor–patient relationship may have influenced beliefs and attitudes towards medicines, highlighting the importance of strong doctor–patient relationships, which need to be considered in the context of deprescribing.

Opportunities for participation, inclusion and recreation in school-aged children with disability influences parent occupations and family quality of life: A mixed-methods study

2019 ◽  
Vol 83 (4) ◽  
pp. 204-214
Author(s):  
Anoo Bhopti ◽  
Ted Brown ◽  
Primrose Lentin
Keyword(s):  
Quality Of Life ◽  
Mixed Methods ◽  
Children With Disabilities ◽  
Qualitative Interviews ◽  
Family Quality Of Life ◽  
School Aged Children ◽  
Aged Child ◽  
Services And Supports

Introduction Parents of children with disabilities experience long-term loss of occupations and increased caregiving responsibilities, which affect their individual and family quality of life. There is limited knowledge about the factors that influence the family quality of life of families when their child with disability is at school. This study examined the relationships between family quality of life, disability-related supports provided and parental occupations, and identified factors influencing family quality of life. Method A mixed-methods approach was utilised using the Beach Center Family Quality of Life Survey, a demographic questionnaire ( n = 50) and 12 qualitative interviews. Descriptive analyses and Spearman’s Rho correlations were conducted. Both sets of data were analysed and triangulated. Findings Participants reported high satisfaction with their family quality of life, with strong associations between parental occupations and family quality of life. Four qualitative themes highlighted that their family quality of life was hard, challenging and fluctuating; however, there were positives about having a child with disability, and receiving services and supports (formal and informal) for their child with disability helped family quality of life. In spite of this, caregiving was long-term and impacted their everyday occupations, challenging their family quality of life. Conclusion This study concludes that even though parents of a school-aged child with disability are happy to adopt the caregiver role and appreciate the positives of having a child with disability, lack of support within the mainstream schooling system and prolonged caregiving has a detrimental impact on the parents’ occupations, their health and wellbeing, and consequently on their family quality of life. Inadequate opportunities for recreation and lack of resources to manage persistent behaviours of concern highlight unequal participation opportunities for school-aged children with disabilities.

scholarly journals Physical Distancing and Social Connectedness Among Older Adults

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 37-37
Author(s):  
Julie Lutz ◽  
Emily Bower ◽  
Ellen Beckwith ◽  
Julie Choi ◽  
Kim Van Orden
Keyword(s):  
Public Health ◽  
Older Adults ◽  
Mixed Methods ◽  
Social Interactions ◽  
Social Connectedness ◽  
Qualitative Interviews ◽  
Elevated Risk ◽  
Mixed Methods Study ◽  
Functional Impairments ◽  
The Social

Abstract The COVID-19 pandemic has significantly impacted older adults; due to elevated risk, many older adults have followed physical distancing guidelines. These efforts, while critical to public health, have also impacted the social interactions and connectedness of older adults. In this mixed-methods study, we conducted qualitative interviews and administered questionnaires to 23 adults age 60 and older to examine how physical distancing has affected their social connectedness; what strategies and supports they have utilized to maintain or improve social connectedness despite physical distancing; and what types of supports, programs, and interventions they feel could promote and foster social connectedness among older adults during physical distancing. The results may have implications not only for the pandemic, but also for older adults who cannot leave their homes or experience barriers to typical social activities for any reason (e.g., being homebound, having functional impairments).

Ideological Inversion and the (De)legitimation of Neoliberalism in Chile

2020 ◽  
Author(s):  
Ismael Puga
Keyword(s):  
Mixed Methods ◽  
Social Economic ◽  
Social Study ◽  
Social Practices ◽  
Economic Order ◽  
Window Of Opportunity ◽  
Panel Surveys ◽  
Mixed Methods Approach ◽  
Strategic Adaptation ◽  
The Social

Using a mixed-methods approach based on discussion focus groups and panel surveys of the Longitudinal Social Study of Chile, this chapter demonstrates that Chilean’s neoliberal economic order is not legitimized by the vast majority of the population. Instead, the author argues that social norms are in serious conflict with the prevailing socioeconomic order. Within Chilean society, both citizens and social analysts are prone to agree with the existence of a “neoliberal consensus” due to the strategic adaptation of social practices that take place within a socioeconomic order that most individuals accept as a given. As a consequence, a “fantasy consensus” emerges in Chilean society in order to stabilize the social economic order, thus avoiding collective mobilization and social change. In this scenario, the protest waves that Chilean society has faced since 2011 offer additional proof that the “fantasy consensus” has experienced serious fissures, thus opening a window of opportunity to delegitimize Chile’s neoliberal order in the country.

Suicide Loss Survivors: Navigating Social Stigma and Threats to Social Bonds

2021 ◽  
pp. 003022282110265
Author(s):  
Dorothy M. Goulah-Pabst
Keyword(s):  
Social Stigma ◽  
Qualitative Interviews ◽  
Healing Process ◽  
Personal Narratives ◽  
The Body ◽  
Social Solidarity ◽  
Sociological Study ◽  
Social Challenges ◽  
The Social ◽  
The Impact

The complicated grief experienced by suicide loss survivors leads to feelings of abandonment, rejection, intense self-blame, and depression. Stigma surrounding suicide further burdens survivors who can experience rejection by their community and social networks. Research in the field of psychology has delved into the grieving process of suicide loss survivors, however the effects of suicide require more sociological study to fully understand and support the impact of the suicidal bereavement process on the social interactions and relationships of those left behind after death. This study aims to contribute to the body of research exploring the social challenges faced after the suicide of a loved one. Based on the analysis of powerful personal narratives through qualitative interviews shared by 14 suicide loss survivors this study explores the social construction of the grieving and healing process for suicide loss survivors. Recognizing that the most reliable relief is in commiseration with like experienced people, this research points to the support group as a builder of social solidarity. The alienation caused by the shame and stigma of suicide loss can be reversed by the feelings of attachment to the group that listens, understands and accepts. Groups created by and for suicide loss survivors should be considered a necessary tool to be used toward healing those who suffer from loss by suicide.

Management of e-resources in academic libraries in Ghana: Copyright implications

IFLA Journal ◽  
2021 ◽  
pp. 034003522110271
Author(s):  
Theresa L Adu ◽  
Thomas B van der Walt
Keyword(s):  
Distance Education ◽  
Mixed Methods ◽  
Distance Learning ◽  
Academic Libraries ◽  
Online Courses ◽  
Qualitative Interviews ◽  
Digital Resources ◽  
Mixed Methods Approach ◽  
Sequential Mixed Methods ◽  
Library Staff

This study investigated the copyright issues surrounding the management of e-resources in academic libraries in Ghana. Forty-seven library staff and head librarians from four academic libraries were engaged using questionnaires and qualitative interviews in a sequential mixed-methods approach to generate data for this study. The findings indicate that in all four institutions copyright issues arose with the provision of distance learning, online courses and e-reserves services. All the respondents stated that they or their colleagues had had faculty ask questions on copyright issues. However, the professional librarians indicated that the library was not consulted and the instructors for online courses or distance education programmes did not cooperate with librarians; rather, the department posting the materials made the decisions on copyright regarding the usage of digital resources for distance learning, online courses or e-reserves. This does not augur well for the management of copyright of e-resources in academic libraries in Ghana.

The Path to Adulthood: A Mixed-Methods Approach to the Exploration of the Experiences of Unaccompanied Minors in Portugal

2021 ◽  
Author(s):  
Carla Moleiro ◽  
Sandra Roberto
Keyword(s):  
Young Adults ◽  
Mixed Methods ◽  
Residential Care ◽  
Host Country ◽  
Qualitative Interviews ◽  
Autobiographical Narratives ◽  
Unaccompanied Minors ◽  
Mixed Methods Approach ◽  
Age Of Majority ◽  
The Voice

Abstract Unaccompanied minors who reach the age of majority often experience this transition as a complex stage. Insecurity and helplessness may arise and, in some cases, survival without the support of the institutions and services that previously protected them as minors in the host country may mean becoming at risk for social exclusion. The objective of the present study was to characterize unaccompanied minors in Portugal (N = 67) and understand the processes of transition into the age of majority, using a mixed-methods approach. Quantitative (survey) and qualitative (interviews on autobiographical narratives) methodologies were used as a means of acknowledging the voice of minors/young adults in their trajectories and experiences. Two groups were included, with minors (in residential care) and youths who had already reached adulthood (living independently). Results illustrate diverse reasons for arrival in Portugal and distinct strengths and struggles in the integration experiences, with both positive and negative aspects being identified in the transition to autonomy.

scholarly journals “When we talk about intimate partner violence we talk in an adult way” – Social workers’ descriptions of intimate partner violence between teenagers

2021 ◽  
pp. 147332502110028
Author(s):  
Emmy Högström Tagesson ◽  
Carina Gallo
Keyword(s):  
Intimate Partner Violence ◽  
Social Workers ◽  
Social Services ◽  
Partner Violence ◽  
Qualitative Interviews ◽  
Intimate Partner ◽  
Treatment Quality ◽  
Age And Gender ◽  
The Social ◽  
And Gender

This article examines how seven social workers within the Swedish social services describe intimate partner violence between teenagers (IPV-BT). The article adds to the literature by examining IPV-BT outside a U.S. context, where most studies have been conducted. Based on semistructured qualitative interviews, the authors analyze descriptions of IPV-BT in relation to Charles Tilly’s notion of category making through transfer, encounter, negotiation, and imposition. They also analyze how the social workers’ descriptions of IPV-BT relate to the intersection between age and gender. The results show that the social workers mostly described IPV-BT by referring to encounters with teenagers and by transferring knowledge and theoretical definitions from their specialized working areas, primarily intimate partner violence between adults (IPV-BA) and troubled youth. More rarely, the social workers based their definitions of IPV-BT upon negotiating dialogues with teenagers. Also, those who worked in teams specialized on IPV had the mandate to impose their definitions of IPV-BT to other professionals and teenagers. When taking age and gender hierarchies in consideration, the results show IPV-BT risks being subordinate IPV-BA on a theoretical level, a practical level and in terms of treatment quality. The study suggests that social work with IPV-BT needs to be sensitive to the double subordinations of the teenage girl and of the teenagers who do not follow gender expectations.

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