FDA joint collaborations: Enhancing patient access to health information and the pharmacist's role

2011 ◽  
Vol 51 (3) ◽  
pp. 328-330
Author(s):  
Jennifer A. Fass ◽  
Angela S. Garcia
Keyword(s):  
Health Information ◽  
Patient Access ◽  
Access To Health

scholarly journals The Effectiveness of Health Care Information Technologies: Evaluation of Trust, Security Beliefs, and Privacy as Determinants of Health Care Outcomes (Preprint)

2017 ◽  
Author(s):  
Victoria Kisekka ◽  
Justin Scott Giboney
Keyword(s):  
Health Care ◽  
Patient Care ◽  
Health Information ◽  
Information Assurance ◽  
Care Quality ◽  
Patient Access ◽  
Health Records ◽  
Privacy Concerns ◽  
Access To Health ◽  
Patient Care Quality

BACKGROUND The diffusion of health information technologies (HITs) within the health care sector continues to grow. However, there is no theory explaining how success of HITs influences patient care outcomes. With the increase in data breaches, HITs’ success now hinges on the effectiveness of data protection solutions. Still, empirical research has only addressed privacy concerns, with little regard for other factors of information assurance. OBJECTIVE The objective of this study was to study the effectiveness of HITs using the DeLone and McLean Information Systems Success Model (DMISSM). We examined the role of information assurance constructs (ie, the role of information security beliefs, privacy concerns, and trust in health information) as measures of HIT effectiveness. We also investigated the relationships between information assurance and three aspects of system success: attitude toward health information exchange (HIE), patient access to health records, and perceived patient care quality. METHODS Using structural equation modeling, we analyzed the data from a sample of 3677 cancer patients from a public dataset. We used R software (R Project for Statistical Computing) and the Lavaan package to test the hypothesized relationships. RESULTS Our extension of the DMISSM to health care was supported. We found that increased privacy concerns reduce the frequency of patient access to health records use, positive attitudes toward HIE, and perceptions of patient care quality. Also, belief in the effectiveness of information security increases the frequency of patient access to health records and positive attitude toward HIE. Trust in health information had a positive association with attitudes toward HIE and perceived patient care quality. Trust in health information had no direct effect on patient access to health records; however, it had an indirect relationship through privacy concerns. CONCLUSIONS Trust in health information and belief in the effectiveness of information security safeguards increases perceptions of patient care quality. Privacy concerns reduce patients’ frequency of accessing health records, patients’ positive attitudes toward HIE exchange, and overall perceived patient care quality. Health care organizations are encouraged to implement security safeguards to increase trust, the frequency of health record use, and reduce privacy concerns, consequently increasing patient care quality.

scholarly journals Overview of Facebook Use by Hospitals in Italy: A Nationwide Survey during the COVID-19 Emergency

2021 ◽  
Vol 18 (14) ◽  
pp. 7225
Author(s):  
Beniamino Schiavone ◽  
Andrea Vitale ◽  
Mena Gallo ◽  
Gianlucasalvatore Russo ◽  
Domenico Ponticelli ◽  
...  
Keyword(s):  
Health Information ◽  
Nationwide Survey ◽  
Public Hospitals ◽  
Communication Strategy ◽  
Private Hospitals ◽  
The Public ◽  
Access To Health ◽  
Facebook Pages ◽  
Pandemic Wave

Background: Facebook is the most popular social network across the world and also allows users access to health information. Our study presents an overview of the official Facebook profiles of hospitals in Italy (n = 1351) and how much they are used. Methods: All hospitals were surveyed on the number of Facebook posts in May (post-lockdown) and October (second pandemic wave) 2020. The number of followers, the creation date of the official page, and the frequency of publication—that is, the average number of days between two subsequent posts—were determined. Results: In Italy, only 28% (n = 379) of the hospitals had official Facebook pages, of which 20.6% (n = 78) were public hospitals, and 79.4% (n = 301) were private hospitals. Of the hospitals with Facebook pages, 49.1% used them every week, and public hospitals published more often. Conclusions: Despite the differences between regions and types of management, the number of hospitals in Italy that use Facebook as a tool for the public dissemination of health information is still low. Hospitals should adopt an effective communication strategy using social networks to improve the quality of health care.

scholarly journals Going beyond access to health information: a pandemic call to action

2021 ◽  
Vol 6 (6) ◽  
pp. e006472
Author(s):  
Soumyadeep Bhaumik ◽  
Pranab Chatterjee
Keyword(s):  
Health Information ◽  
Call To Action ◽  
Access To Health

Risk Assessment vs. Right to Privacy: The Access to Health Information on the Insurance Candidate through Questionnaires and the Right to Privacy

2013 ◽  
Vol 20 (1) ◽  
pp. 63-78
Author(s):  
Maria Inês de Oliveira Martins
Keyword(s):  
International Law ◽  
Health Information ◽  
Personal Information ◽  
Relevant Information ◽  
Right To Privacy ◽  
The Right To Privacy ◽  
Access To Health ◽  
Health Related ◽  
Principle Of Proportionality ◽  
The Right

Abstract The need of private insurers for information on the candidate’s health risks is recognized by the law, which places pre-contractual duties of disclosure upon the candidates. When the risks are influenced by health factors, e.g. in the case of life- and health insurances, it implies the provision of health information by the candidates, who thus voluntarily limit their right to privacy. This consent, however, often happens in a context of factual coercion to contract. Next to this, from a legal standpoint, the collection of personal information must respond to the principle of proportionality. Against this background, this article assesses the compatibility of questionnaire techniques that rely on open-ended health related questions with the right to privacy, as protected by Portuguese and international law. It then analyses the extent of pre-contractual duties of disclosure as defined by the Portuguese Insurance Act, which requires the candidate to volunteer all the relevant information independently of being asked for it. In doing so, the article also refers to some other European countries. It concludes that the relevant Portuguese legislation is incompatible both with Portuguese constitutional law and with international law.

Personal Health Records Status-Quo and Future Perspectives

2010 ◽  
pp. 43-63
Author(s):  
Simon Y. Liu,
Keyword(s):  
Health Care ◽  
Health Information ◽  
Personal Health Record ◽  
Full Range ◽  
Personal Health Records ◽  
Controlled Vocabulary ◽  
Care Process ◽  
Personal Health ◽  
Health Records ◽  
Access To Health

Consumers, industry, and government have recently focused attention on the potential of personal health records to empower patients in the health care process, improve patient-provider relationships, facilitate patient access to health information, and improve the quality of health care. A Personal Health Record (PHR) is a private and secure digital record that is created, managed, and owned by an individual, and contains the owner’s relevant health information. The benefits of PHRs have not yet been widely realized due to several significant challenges in their adoption, including the need for privacy, security, and interoperability, and the lack of accepted standards. Although many players in the healthcare arena are beginning to offer partial solutions, none have adequately addressed the full range of challenges. The adoption of PHRs can be significantly accelerated by the development of Open Source software that enables an individual to collect, create, organize, and manage his or her own private and secure PHR, using a standardized format and controlled vocabulary.

ICTS and Their Role in Health Promotion

2011 ◽  
pp. 1-15 ◽  
Author(s):  
Motshedisi B. Sabone ◽  
Keitshokile D. Mogobe ◽  
Tiny G. Sabone
Keyword(s):  
Health Promotion ◽  
Rural Communities ◽  
Health Services ◽  
Health Information ◽  
Rural Areas ◽  
Well Being ◽  
Specific Reference ◽  
Access To Health Services ◽  
Access To Health ◽  
Level Of Effort

This chapter presents findings of mini-survey that utilized an exploratory descriptive design to examine the accessibility, affordability, acceptability, and utility of ICTs with specific reference to health promotion for selected rural communities. Specifically, the study focused on access to radio, television, mobile phone, and Internet services at a level of effort and cost that is both acceptable to and within the means of a large majority in a given village. The findings indicate that ICTs gadgets explored have opened up possibility for health services and information to reach even people in the rural areas. Ultimately, access affects the general well-being of individuals. One of the major initiatives under the umbrella of health is improving access to health services and information; and this covers among other things, expanding the delivery of health information through the radio and television. This study confirms breakthrough in this respect. Challenges that accompany the use of these ICT gadgets include no connectivity in some areas and lack of training to use them.

6. Confidentiality

2020 ◽  
pp. 273-319
Author(s):  
Jonathan Herring
Keyword(s):  
Health Information ◽  
Data Protection ◽  
Patient Access ◽  
Legal Basis ◽  
Ethical Aspects ◽  
Medical Confidentiality ◽  
Legal Remedies ◽  
Legal Remedy

This chapter examines the legal and ethical aspects of medical confidentiality. The discussion include the legal basis of confidentiality; defences to claims of breach of confidentiality; the Data Protection Act 1998; legal remedies in confidentiality cases; patient access to their own health information; and ethical arguments for and against confidentiality. Underpinning this chapter is the tension between requiring that a patient’s confidences are kept and the fact that sometimes there is an overwhelming reason why confidentiality needs to be breached. A further difficulty for this topic is that once confidentiality has been breached it can be very difficult to formulate an effective legal remedy.

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