scholarly journals Evidence for Reciprocal Interaction Effects Among Adults with Self-Injury and Their Caregivers

2012 ◽  
Vol 117 (3) ◽  
pp. 225-232 ◽  
Author(s):  
Jason J. Wolff ◽  
Jamie Clary ◽  
Vickie N. Harper ◽  
James W. Bodfish ◽  
Frank J. Symons
Keyword(s):  
Intellectual Disability ◽  
Intellectual Disabilities ◽  
Adaptive Behavior ◽  
Leisure Time ◽  
Matched Control ◽  
Observation Data ◽  
Time Data ◽  
Self Injury ◽  
Residential Center ◽  
Adults With Intellectual Disabilities

Abstract Patterns of caregiver responses to client adaptive behavior were compared between adults with intellectual disabilities with and without self-injurious behavior. Participants with moderate to profound intellectual disability and self-injury (n  =  89) and age/IQ matched control participants (n  =  20) were selected from a large sample of adults living in a regional residential center. Approximately 45 minutes of direct observation data were collected for each participant during unstructured leisure time. Data were sequentially analyzed and Yule's Q scores derived and compared among groups. Results indicated that caregivers were more responsive to prosocial initiations and adaptive engagement among individuals with severe self-injurious behavior than to those with mild or no self-injurious behavior and that these responses were more likely to be in the form of a demand.

scholarly journals Project Capabilities and Adults With Intellectual Disabilities: Towards Effective Interviewing for a Better Social Participation

2014 ◽  
Vol 7 (2) ◽  
pp. 115-123
Author(s):  
Stefanie Corona ◽  
Christina Hannum ◽  
Ann-Louise Davidson
Keyword(s):  
Intellectual Disability ◽  
Motivational Interviewing ◽  
Social Networking ◽  
Intellectual Disabilities ◽  
Social Participation ◽  
Qualitative Data ◽  
Mobile Technologies ◽  
Qualitative Interviewing ◽  
Adults With Intellectual Disabilities ◽  
Interviewing Techniques

This practice-based paper presents a series of tips and techniques for interviewing for a better social participation. While we worked on Project Capabilities, we learned valuable lessons we wished to share with practitioners and researchers who work within an inclusive perspective. We argue that qualitative interviewing requires skillful means that are not always an integral part of research preparation, and we share tips and techniques that we developed throughout the process. As we collected the qualitative data through one-on-one interviews, and taught participants to selffilm using iPads, we found that traditional interviewing techniques were too rigid to engage with people living with an intellectual disability. Instead, we used a blend of motivational interviewing and collaborative inquiry techniques, and built rapport with the participants through online social networking. Mobile technologies were also used to build rapport, empowering participants and allowing non-intrusive filming of interviews.

Physical Activity Benefits and Needs in Adults With Intellectual Disabilities: Systematic Review of the Literature

2011 ◽  
Vol 116 (3) ◽  
pp. 220-232 ◽  
Author(s):  
Pamela Bartlo ◽  
Penelope J. Klein
Keyword(s):  
Physical Activity ◽  
Intellectual Disability ◽  
Intellectual Disabilities ◽  
Inclusion Criteria ◽  
Physical Activity Interventions ◽  
Methodological Rigor ◽  
Electronic Database Search ◽  
Adults With Intellectual Disabilities ◽  
Individuals With Intellectual Disabilities

Abstract Regular physical activity is vital for adult individuals with intellectual disabilities. The purpose of this review was to assess critically the evidence on effectiveness of physical activity interventions for adults with intellectual disability. An electronic database search was conducted. Research was then assessed for methodological rigor, and strength of the evidence was determined. Eleven clinical studies met inclusion criteria. Interventions studied included a variety of physical activity modes. Critical review revealed moderate to strong evidence that physical activity positively affected balance, muscle strength, and quality of life in individuals with intellectual disability. The authors also found that the research in this area needs to be translated into practice, specifically the development of physical activity programs that are adaptable to the needs of individuals with intellectual disability.

scholarly journals Aspirations held by young adults with intellectual disabilities and their mothers

2020 ◽  
Vol 29 (2) ◽  
pp. 107-116
Author(s):  
Mary McMahon ◽  
Karen Moni ◽  
Monica Cuskelly ◽  
Jan Lloyd ◽  
Anne Jobling
Keyword(s):  
Young Adults ◽  
Intellectual Disability ◽  
Young People ◽  
Intellectual Disabilities ◽  
Small Scale ◽  
Structured Interviews ◽  
Future Aspirations ◽  
People With Intellectual Disabilities ◽  
Adults With Intellectual Disabilities ◽  
Nuanced Understanding

This study reports on Australian small-scale exploratory descriptive research into how young people with intellectual disability and their families construct their futures. The aims of this research were to (a) better understand the future aspirations held by young adults with intellectual disability and their parents, (b) identify enablers and barriers to the achievement of these aspirations, and (c) provide insights for career practitioners who support young people with intellectual disability and their parents to achieve their personal and career goals. Participants were four young people with intellectual disabilities aged between 18 and 30 years and their mothers. Data were collected through semi-structured interviews and analysed thematically. Results provide a nuanced understanding of the issues facing young people with intellectual disabilities and their families in constructing their futures. Suggestions are offered that can inform career development practice and policy.

Services Available from Providers in the Disability Field to Older Adults with Intellectual Disabilities

1997 ◽  
Vol 3 (2) ◽  
pp. 65-70
Author(s):  
Laurie Buys
Keyword(s):  
Older Adults ◽  
Intellectual Disability ◽  
Intellectual Disabilities ◽  
Older Adult ◽  
Independent Living ◽  
Support Programs ◽  
Community Based ◽  
The Past ◽  
People With Intellectual Disabilities ◽  
Adults With Intellectual Disabilities

As most older adults with intellectual disabilities reside in community based accommodation, the availability of support programs and services becomes important to the maintenance of independent living. Thirty nine community based organisations in Brisbane, Australia that assist people with intellectual disabilities were surveyed regarding the types of programs offered to older adults with intellectual disabilities. The results showed that 75% of the organisations had provided assistance to an older adult with an intellectual disability in the past 12 months. However, none of the agencies surveyed reported that they provided specialised programs or services to older adults with intellectual disabilities.

Residential Characteristics, Social Factors, and Mortality Among Adults With Intellectual Disabilities: Transitions Out of Nursing Homes

2009 ◽  
Vol 47 (6) ◽  
pp. 447-465 ◽  
Author(s):  
Kelly Hsieh ◽  
Tamar Heller ◽  
Sally Freels
Keyword(s):  
Nursing Homes ◽  
Intellectual Disabilities ◽  
Family Involvement ◽  
Adaptive Behavior ◽  
Social Factors ◽  
Physical Environment ◽  
Community Integration ◽  
Personal Characteristics ◽  
Residential Characteristics ◽  
Adults With Intellectual Disabilities

Abstract The present study examined the degree to which residential characteristics and social factors are associated with mortality, after controlling for personal characteristics, among adults with intellectual disabilities who have resided in nursing homes (facilities providing skilled care and related services) at baseline in the Chicago area. Initial assessments were conducted on 330 residents, and 2 follow ups were performed over 10 years. Seventy-one residents had died by the end of the study. The variables examined included personal characteristics of age, gender, intellectual level, health, and adaptive behavior; residential characteristics of type of residence, size of facility, attractiveness of physical environment (cleanliness, conditions, and aesthetic appeal), and diversity of physical environment (personalization of residents' rooms and distinctiveness of all living spaces); and social factors of family involvement and community integration. The results indicated, beyond age, adaptive behavior, and health, that size of residences, residential characteristics, and social factors are related to mortality.

scholarly journals The Effect of a Pilot Group Psycho-education Program on the Death Attitude and Life Perception in the Case of an Adult with Intellectual Disabilities

Educatia 21 ◽  
2020 ◽  
pp. 154-161
Author(s):  
Alexandra Fodor ◽  
Carmen Costea-Bărluțiu
Keyword(s):  
Intellectual Disability ◽  
Intellectual Disabilities ◽  
Case Presentation ◽  
Psychoeducational Program ◽  
Complex Emotions ◽  
Life Issues ◽  
Group Members ◽  
People With Intellectual Disabilities ◽  
End Of Life Issues ◽  
Adults With Intellectual Disabilities

Often people with intellectual disabilities are protected from exposure to death, dying and end-of-life issues, but this protection leaves the person unprepared for the grieving of unavoidable losses, and unaware of the changes implied by the old age of their caregivers. Considering the person with an intellectual disability as an immature being, lacking the ability to feel complex emotions, contributes to the tendency that both professionals and families have to avoid speaking with them about the difficult topic of death. Our goal is to design and implement a psychoeducational program that approaches the topic of death as a natural stage in life, for adults with intellectual disabilities. The effects that psychoeducation about death had on both death attitude and the perception of life are discussed based on a case presentation of one of the group members.

scholarly journals Theory of mind and problem behavior in people with intellectual disability

2020 ◽  
Vol 19 (4) ◽  
pp. 263-278
Author(s):  
Marija Cvijetić ◽  
Mirjana Đorđević
Keyword(s):  
Intellectual Disability ◽  
Theory Of Mind ◽  
Intellectual Disabilities ◽  
Behavioral Problems ◽  
Social Inclusion ◽  
Social Acceptance ◽  
Adaptive Functioning ◽  
Adolescents And Adults ◽  
Adults With Intellectual Disabilities ◽  
And Behavior

Introduction. Behavioral problems are more common in people with intellectual disability than in typical population and present an obstacle to their adaptive functioning and social inclusion. Since adjusted social behavior requires, among other things, an adequate understanding and interpretation of thoughts and behavior of others, theory of mind could be one of the factors of adjusted behavior and behavioral problems in people with intellectual disability. Objective. The aim of this paper is to single out the research in which the issue of the relationship between the ability of theory of mind and behavioral problems of people with intellectual disabilities has been addressed, through a literature review. Methods. Insight into the available literature was performed by searching the electronic databases that are available through the services of the Serbian Library Consortium for Coordinated Acquisition - KOBSON, as well as through Google Scholar and Research Gate. Results. Based on the analyzed research results, it can be concluded that there is a negative correlation between theory of mind and behavioral problems, both in children and in adolescents and adults with intellectual disabilities. While some studies have found a direct link between theory of mind and behavioral problems, others have found that this link is indirect, whereby the role of intermediaries tend to have executive functions, social acceptance, quality of parental interaction and resilience. Conclusion. Since the results of several studies suggest that more advanced theory of mind enables more successful social interactions and more adjusted behavior, it is necessary to enrich the education of people with intellectual disability with contents related to understanding thoughts, emotions, desires and intentions, as one of the elements of approach to treatment, in order to prevent problematic behaviors.

scholarly journals Long-term condition management in adults with intellectual disability in primary care: a systematic review

BJGP Open ◽  
2018 ◽  
Vol 2 (1) ◽  
pp. bjgpopen18X101445 ◽  
Author(s):  
Peter Hanlon ◽  
Sara MacDonald ◽  
Karen Wood ◽  
Linda Allan ◽  
Sally-Ann Cooper
Keyword(s):  
Systematic Review ◽  
Primary Care ◽  
Intellectual Disability ◽  
General Population ◽  
Intellectual Disabilities ◽  
Barriers And Facilitators ◽  
Long Term Conditions ◽  
Health Checks ◽  
Adults With Intellectual Disabilities

BackgroundAdults with intellectual disabilities have higher morbidity and earlier mortality than the general population. Access to primary health care is lower, despite a higher prevalence of many long-term conditions.AimTo synthesise the evidence for the management of long-term conditions in adults with intellectual disabilities and identify barriers and facilitators to management in primary care.Design & settingMixed-methods systematic review.MethodSeven electronic databases were searched to identify both quantitative and qualitative studies concerning identification and management of long-term conditions in adults with intellectual disability in primary care. Both the screening of titles, abstracts, and full texts, and the quality assessment were carried out in duplicate. Findings were combined in a narrative synthesis.ResultsFifty-two studies were identified. Adults with intellectual disabilities are less likely than the general population to receive screening and health promotion interventions. Annual health checks may improve screening, identification of health needs, and management of long-term conditions. Health checks have been implemented in various primary care contexts, but the long-term impact on outcomes has not been investigated. Qualitative findings highlighted barriers and facilitators to primary care access, communication, and disease management. Accounts of experiences of adults with intellectual disabilities reveal a dilemma between promoting self-care and ensuring access to services, while avoiding paternalistic care.ConclusionAdults with intellectual disabilities face numerous barriers to managing long-term conditions. Reasonable adjustments, based on the experience of adults with intellectual disability, in addition to intervention such as health checks, may improve access and management, but longer-term evaluation of their effectiveness is required.

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