scholarly journals Self-care of people with intestinal ostomy: beyond the procedural towards rehabilitation

2021 ◽  
Vol 74 (1) ◽  
Author(s):  
Vanessa Damiana Menis Sasaki ◽  
André Aparecido da Silva Teles ◽  
Natália Michelato Silva ◽  
Tatiana Mara da Silva Russo ◽  
Lorena Alves Pantoni ◽  
...  
Keyword(s):  
Colorectal Neoplasia ◽  
Self Care ◽  
The Self ◽  
Social Model ◽  
Exploratory Research ◽  
Social Model Of Disability ◽  
Social Barriers ◽  
Care Experience ◽  
The Social

ABSTRACT Objectives: to interpret the self-care experience of people with intestinal ostomy registered in an ostomy program, based on the framework of the Social Model of Disability. Methods: qualitative exploratory research, with the participation of nine people with intestinal ostomy, based on the Social Model of Disability. Results: majority were elderly, married, male with colostomy due to colorectal neoplasia. The self-care of these people was analyzed in two thematic groups: “Interdisciplinary assistance needed for people with intestinal ostomy” and “Self-care for the rehabilitation of the person with intestinal ostomy”. It was proved that there was a need for a specialized health team, offering information on disabilities, teaching self-care and perioperative follow-up. Final Considerations: when the social barriers of physical disabilities are overcome in the context of assistance for health and life, self-care will go beyond the reductionist vision of procedural care, towards comprehensive care, favoring the achievement of rehabilitation and the quality of survival.

scholarly journals Harry Potter and the Stigma of Disability: Squibs as Outsiders to the Magical Universe

2020 ◽  
Vol 3 ◽  
Author(s):  
Megan Rhodes
Keyword(s):  
Quality Of Life ◽  
Harry Potter ◽  
Social Model ◽  
Fictional World ◽  
Social Model Of Disability ◽  
Book Series ◽  
The Social ◽  
The Disabled ◽  
Do So

In the young adult book series Harry Potter, there exists a class of citizens known as Squibs. By all accounts they can be considered a disabled group: they have a ‘disease’ (no magical abilities) that detracts from their overall quality of life and prevents them from operating at a normal level within society. This paper will prove that Squibs are restricted within the fictional world by the institutions of school and government. It will do so by studying Argus Filch and Arabella Figg, two of the most visible Squibs in the series. In this case, the social model of disability and Michel Foucault’s theories about government restrictions on disability will support the idea that Filch and Figg could succeed within the Harry Potter universe if the barriers put in place against the disabled Squibs were removed. In addition, the paper expresses the hope that the fans of Harry Potter will be able to rectify the discriminatory mistakes that the author, J.K. Rowling, has created against Squibs.

scholarly journals ¿Y si nombramos voz cada minúscula diferencia? Inclusión en jaque: Trayectorias empíricas de la voz desde el modelo social de discapacidad

2021 ◽  
Vol 29 ◽  
pp. 53
Author(s):  
Kyuttzza Gómez-Guinart ◽  
Marta Infante Jaras
Keyword(s):  
Public Policies ◽  
Social Model ◽  
Attitudes And Beliefs ◽  
Ethical Challenges ◽  
Social Model Of Disability ◽  
Social Barriers ◽  
The Social ◽  
New Materialisms ◽  
The Difference ◽  
Critical Literature

Throughout this critical literature review, we present some theoretical and ethical challenges that the empirical use of voice poses to the knowledge and the development of public policies on inclusion in education. To this aim, we reviewed 31 studies that focus on voice, such as it is defined by the social model of disability, as a unit of analysis for inclusive practices in different educational scenarios. We found that voice is a synonym for discourse, and it describes three empirical routes: voice that points out social barriers, voice that expresses attitudes and beliefs, and voice that copes with stigma. Drawing upon our findings, we justified the need for producing knowledge for inclusion from another onto-epistemological perspective. As alternative, we suggested that new materialisms allow us to interrogate the ideas of the human and the difference underneath the social model of disability, given its modern ontological roots. In this direction, we redefined voice to recognize as such to every minuscule difference expressed by each alive materiality. Then, we reflected on the possibilities of creating knowledge that leads to a non-deterministic understanding of the difference and the human, and encourages the becoming of new discourses, practices, and public policies for inclusion in education.

scholarly journals People with disabilities and employment, intimate relationships, marriage and parenthood

2015 ◽  
pp. 619-628
Author(s):  
Marija Cvijetic
Keyword(s):  
Intimate Relationships ◽  
People With Disabilities ◽  
Complex Interaction ◽  
Social Model ◽  
Social Model Of Disability ◽  
Adults With Disabilities ◽  
The Social

This paper deals with the participation of people with disabilities in the society. Participation is one of the central concepts in international documents that were created under the influence of the social model of disability, which has shifted the focus of responsibility from one?s impairment to his/her environment. Review of experiences of adults with disabilities regarding the obstacles they face in relation to employment, intimate relationships, marriage and parenthood shows that the intensity and quality of participation of people with disabilities depend on a complex interaction between a person?s characteristics and specificities and his/her immediate and wider environment.

A Scoping Review of Behavior Change Interventions to Decrease Health Care Disparities for Patients With Disabilities in a Primary Care Setting: Can Social Marketing Play a Role?

2021 ◽  
Vol 27 (1) ◽  
pp. 48-63
Author(s):  
Angela Makris ◽  
Mahmooda Khaliq ◽  
Elizabeth Perkins
Keyword(s):  
Primary Care ◽  
Health Care ◽  
Behavior Change ◽  
Social Marketing ◽  
Health Care Disparities ◽  
Social Model ◽  
Care Providers ◽  
Social Model Of Disability ◽  
Behavior Change Interventions ◽  
The Social

Background: One in four Americans have a disability but remain an overlooked minority population at risk for health care disparities. Adults with disabilities can be high users of primary care but often face unmet needs and poor-quality care. Providers lack training, knowledge and have biased practices and behaviors toward people with disabilities (PWD); which ultimately undermines their quality of care. Focus of the Article: The aim is to identify behavior change interventions for decreasing health care disparities for people with disabilities in a healthcare setting, determine whether those interventions used key features of social marketing and identify gaps in research and practice. Research Question: To what extent has the social marketing framework been used to improve health care for PWD by influencing the behavior of health care providers in a primary health care setting? Program Design/Approach: Scoping Review. Importance to the Social Marketing Field: Social marketing has a long and robust history in health education and public health promotion, yet limited work has been done in the disabilities sector. The social marketing framework encompasses the appropriate features to aligned with the core principles of the social model of disability, which espouses that the barriers for PWD lie within society and not within the individual. Incorporating elements of the social model of disability into the social marketing framework could foster a better understanding of the separation of impairment and disability in the healthcare sector and open a new area of research for the field. Results: Four articles were found that target primary care providers. Overall, the studies aimed to increase knowledge, mostly for clinically practices and processes, not clinical behavior change. None were designed to capture if initial knowledge gains led to changes in behavior toward PWD. Recommendations: The lack of published research provides an opportunity to investigate both the applicability and efficacy of social marketing in reducing health care disparities for PWD in a primary care setting. Integrating the social model of disability into the social marketing framework may be an avenue to inform future interventions aimed to increase health equity and inclusiveness through behavior change interventions at a systems level.

Influence of Human-oriented Nursing Mode on Self-Care Ability, Unhealthy Emotion and Quality of Life of Patients with Benign Prostatic Hyperplasia

2021 ◽  
Vol 7 (4) ◽  
pp. 635-646
Author(s):  
Feifei Peng ◽  
Guangchi Xu ◽  
Caihong Zhu ◽  
Lanchun Sun ◽  
Bo Dong ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Benign Prostatic Hyperplasia ◽  
Postoperative Complications ◽  
Self Care ◽  
Nursing Intervention ◽  
Prostatic Hyperplasia ◽  
The Self ◽  
Nursing Satisfaction ◽  
Before And After

To explore the influence of human-oriented nursing mode on the self-care ability, unhealthy emotion and quality of life of patients with benign prostatic hyperplasia (BPH), 147 patients with BPH admitted to our hospital from February 2018 to August 2019 were selected and all patients were separated into two groups on the basis of the nursing intervention mode. 77 cases in the research group (RG) were given the human-oriented nursing mode and 70 cases in the control group (CG) were given the conventional nursing mode. The bladder irrigation time (BIT), indwelling catheter time (ICT), postoperative hospitalization time (PHT) and the incidence rate of postoperative complications were observed in the two groups after nursing intervention. Before and after nursing intervention, the self-care ability of patients was evaluated in the two groups by Exercise of Self-Care Agency Scale (ESCA). In the two groups, the anxiety and depression status were evaluated by the Self-rating Anxiety Scale (SAS) and the Self-rating Depression Scale (SDS). The Quality of Life Scale for Benign Prostatic Hyperplasia Patient (BPHQLS) was applied to evaluate the quality of life in both groups before and after nursing intervention. The International Prostate Symptom Score (IPSS) was used to assess the lower urinary tract symptoms (LUTS) of patients in the two groups before and after nursing intervention. The self-made nursing satisfaction questionnaire was used to evaluate the nursing satisfaction in the two groups. The BIT, ICT and PHT in RG after nursing intervention were obviously lower than those in CG, and the incidence of postoperative complications in RG was also obviously lower than that in CG (p < 0.05). The ESCA score of patients in RG after nursing intervention was significantly higher than that in CG (P < 0.05). The SAS and SDS scores of patients in RG after nursing intervention were significantly lower than those in CG (P < 0.05). The BPHQLS score in RG after nursing intervention was obviously higher than that in CG (P < 0.05). The IPSS score of patients in RG after nursing intervention was obviously lower than that in CG (p < 0.05). The nursing satisfaction score in RG after nursing intervention was obviously higher than that in CG (p < 0.05).Condusion: The application effect of the human-oriented nursing mode on patients with BPH is definite, which can improve self-care ability, unhealthy emotion and effectively ameliorate the quality of life.

scholarly journals The Model of Self Care Behaviour and the Relationship with Quality Of Life, Metabolic Control and Lipid Control of Type 2 Diabetes Mellitus Patients in Binjai City, Indonesia

2018 ◽  
Vol 6 (9) ◽  
pp. 1762-1767 ◽  
Author(s):  
Rina Amelia
Keyword(s):  
Quality Of Life ◽  
Diabetes Mellitus ◽  
Type 2 Diabetes ◽  
Metabolic Control ◽  
Self Care ◽  
The Self ◽  
Lipid Control ◽  
Diabetes Patients

BACKGROUND: Diabetes is a type of chronic disease with exceptional medical care for a patient's lifetime, which ultimately requires lifestyle and behavioural adjustments to prevent complications to death. Patients with good self-care behaviour will cause diabetes to be controlled to avoid complications to death and make patients have a better quality of life. AIM: This study aims (1) to determine the model of self-care behaviour in Type 2 diabetes patients in Binjai City (2) to analyse the effect of self-care behaviour on quality of life, metabolic control and lipid control of Type 2 diabetes patients in Binjai City. METHODS: This type of research is survey-based and explanatory using a cross-sectional approach. The study population was Type 2 Diabetes Mellitus (T2DM) patients who remained patients in 8 primary health centres in Binjai City. The consecutive sampling yielded a sample size of 115 people. Data analysis method uses descriptive statistics and Structural Equation Modeling (SEM) using SPSS and Amos 16.0. RESULTS: The results showed that all factors that build T2DM patient self-care behaviour were able to be predictors that shape the patient's self-care behaviour. The self-care behaviour model consists of knowledge, attitudes, communication, financing, family support, motivation, and self-efficacy. Motivation is the most significant predictor of its contribution to the self-care behaviour of Type 2 diabetes patients. Self-care behaviour was also known to be significantly related to the quality of life, metabolic control and lipid control of T2DM patients (p < 0.05). CONCLUSION: Self-care behaviour in T2DM patients can have a substantial and significant impact on quality of life, metabolic control and lipid control possessed by Type 2 Diabetes patients.

scholarly journals PROTECTION OF PERSONS WITH DISABILITIES RIGHTS: PRINCIPLES UNDER THE CONVENTION AND THE NATIONAL CASE-LAW

Medicne pravo ◽  
2021 ◽  
pp. 86-94
Author(s):  
R. B. Hobor
Keyword(s):  
Case Law ◽  
Social Model ◽  
Persons With Disabilities ◽  
Social Model Of Disability ◽  
National Courts ◽  
The Social ◽  
Physical Health Problems ◽  
High Attitude ◽  
The Right ◽  
Key Resources

In spite of all the short-comings, the level of protection of rights and capabilities of people with disabilities has become a good indicator of nation’s development, and such a trend is nothing but hopeful. At the same time, one can hardly imagine that this high attitude would be attainable without the influence of left liberal ideologies, that among omnibus achievements granted the shift from medical to social disabilities model.This situation cannot stand but to resemble in a certain state of rights and capabilities exercise, and even the availability of access to the key resources is impossible to bring to the point of marginalization of the mental and physical health problems. As the analyzed material shows, left liberal ideologists,being responsible for shaping the current International Law on Persons with Disabilities, finally succeeded in promoting their principle ideas in the nation case-law. The right to water, lay down on the ship’s practice, as you will look lower, you can use the clever illustration of that relief flow, as the national judiciary can fix the development of the rights and capabilities of individuals from the same basis.The article further develops the idea, that national courts sometimes tend to use realistic approach (as invented by R. Pound, J. Llewellyn, O.W. Holmes) for the sake of implementing the social model of disability. It has been concluded that legal realism is a transmitter for left liberal values in the modern western societies.

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