scholarly journals Scoring interventions in family relations regarding the care for the child with a chronic condition

2015 ◽  
Vol 24 (1) ◽  
pp. 87-95 ◽  
Author(s):  
Daniele Castro Barbosa ◽  
Francisca Georgina Macedo de Sousa ◽  
Joséte Luzia Leite
Keyword(s):  
Chronic Conditions ◽  
Chronic Condition ◽  
Family Relations ◽  
Family Members ◽  
Structured Interviews ◽  
Family Experiences ◽  
The Family ◽  
Complex Thought ◽  
Children With Chronic Conditions

The study aimed to reveal intervening conditions towards the care of children with chronic condition. The Complex Thought was used as theoretical framework and the Grounded Theory as methodological. Data were collected from January to August 2012, through semi-structured interviews in two follow-up services for children with chronic conditions and in the homes of participants. Participated 16 relatives of children with chronic conditions, divided into three sample groups. The category "Scoring the intervening conditions towards care of the child with chronic condition" reveals that multiple events experienced by the family in the care of children with chronic conditions are determined by the relationships and interactions of family members and influence the forms of organization for the care of child. Highlights the importance of the nurse to know and understand the multiple family experiences in order to encompass child and their family members as care units.

scholarly journals Family experiences of personalised accommodation and support for people with intellectual disability

2020 ◽  
pp. 174462952090520 ◽  
Author(s):  
Edurne Garcia Iriarte ◽  
Roy McConkey ◽  
Dovile Vilda
Keyword(s):  
Living Arrangements ◽  
Social Inclusion ◽  
Family Members ◽  
Group Homes ◽  
Structured Interviews ◽  
Self Reliance ◽  
The Family ◽  
People With Intellectual Disabilities ◽  
Managing Risk

Previous studies suggest that family members of people with intellectual disabilities prefer them to move to supervised living arrangements such as group homes. In Ireland, personalised arrangements are emerging, but families have had little exposure to this option. In this qualitative study, we explored the perspectives of family members following their relative’s move to personalised support options, mostly from group homes. Semi-structured interviews were conducted in 2011 with a family member of 17 people who had previously moved, with follow-up interviews held with 12 of them up to 18 months later. Thematic analysis on interview transcripts was conducted by three researchers. The family members spoke favourably of the new arrangements. A core theme of enabled independence emerged with subthemes of greater self-reliance in personal care, increased confidence, more social inclusion and gains for relatives. Reservations focussed on the need for more support hours, managing risk and loneliness.

scholarly journals EXPERIÊNCIA DOS FAMILIARES NO CONVÍVIO DE CRIANÇAS COM TRANSTORNO DO ESPECTRO AUTISTA (TEA)

2019 ◽  
Vol 10 (2) ◽  
Author(s):  
Rafaela Da Rosa Hofzmann ◽  
Marcia Perondi ◽  
Jouhanna Menegaz ◽  
Soraia Geraldo Rozza Lopes ◽  
Dayanne Da Silva Borges
Keyword(s):  
Health Care ◽  
Qualitative Research ◽  
Health Professionals ◽  
Autistic Spectrum Disorder ◽  
Family Relations ◽  
Family Members ◽  
Family Experiences ◽  
Children With Asd ◽  
The Family ◽  
Investigación Cualitativa

Resumo: Objetivo: conhecer a experiência dos familiares no convívio de crianças com TEA. Metodologia: pesquisa qualitativa, realizada através de Grupo Focal com familiares de oito crianças com diagnóstico de TEA. A coleta de dados ocorreu no mês de setembro de 2016, através de questões norteadoras discutidas no grupo. Os relatos foram gravados em áudios e transcrito pelos autores. A análise foi realizada a partir da Análise de Conteúdo. Resultados: A partir da análise dos dados surgiram três categorias: ‘a descoberta do autismo’; ‘experiências dos familiares após o diagnóstico de autismo’ e ‘atendimento em saúde da criança com autismo’. Conclusão: o autismo é um transtorno que causa muitas adaptações e mudanças na vida dos familiares envolvidos, surgindo a necessidade do apoio dos profissionais de saúde no suporte dos cuidados prestado a estas crianças.Descritores: Autismo; Relações Familiares; Acontecimentos que Mudam a Vida; Enfermagem.THE EXPERIENCE OF FAMILIARS IN THE COEXISTENCE OF CHILDREN WITH AUTISTIC SPECTRUM DISORDER (ASD)Abstract: Objective: to know the experience of family members living with children with ASD. Methodology: qualitative research, carried out through a Focal Group with relatives of eight children diagnosed with ASD. Data collection occurred in September 2016, through guiding questions discussed in the group. The reports were recorded in audios and transcribed by the authors. The analysis was made from the Content Analysis. Results: From the analysis of the data emerged three categories: ‘the discovery of autism’; ‘Family experiences after the diagnosis of autism’ and ‘health care of the child with autism’. Conclusion: autism is a disorder that causes many adaptations and changes in the lives of the family members involved, resulting in the need of the support of the health professionals in the support of the care provided to these children.Descriptors: Autism; Family Relations; Life Changing Events; Nursing.LA EXPERIENCIA DE LOS FAMILIARES EN LA CONVIVENCIA DE NIÑOS CON TRANSTORNO DEL ESPECTRO AUTISTA (TEA)Resumen: Objetivo: conocer la experiencia de los familiares en la convivencia de niños con TEA. Metodología: investigación cualitativa, realizada a través de Grupo Focal con familiares de ocho niños con diagnóstico de TEA. La recolección de datos ocurrió en el mes de septiembre de 2016, a través de cuestiones orientadoras discutidas en el grupo. Los relatos fueron grabados en audios y transcrito por los autores. El análisis fue realizado a partir de la Análisis de Contenido. Resultados: A partir del análisis de los datos surgieron tres categorías: ‘el descubrimiento del autismo’; “Experiencias de los familiares después del diagnóstico de autismo” y “atención en salud del niño con autismo”. Conclusión: el autismo es un trastorno que causa muchas adaptaciones y cambios en la vida de los familiares involucrados, surgiendo a la necesidad del apoyo de los profesionales de salud en el soporte de los cuidados prestados a estos niños.Descriptores: Autismo; Relaciones Familiares; Acontecimientos que cambian la vida; Enfermería.

scholarly journals Family Interactions Regarding Fathers’ Smoking and Cessation in Shanghai, China

2014 ◽  
Vol 11 (4) ◽  
pp. 199-202 ◽  
Author(s):  
Carla J. Berg ◽  
Pinpin Zheng ◽  
Michelle C. Kegler
Keyword(s):  
Smoking Prevalence ◽  
Family Members ◽  
Spousal Support ◽  
Gender Disparities ◽  
Work Culture ◽  
Family Interactions ◽  
Structured Interviews ◽  
Small Children ◽  
Marital Interactions ◽  
The Family

Introduction: Spousal support predicts smoking cessation. China is the world's largest consumer of tobacco, with drastic differences in smoking prevalence among men and women. Thus, understanding marital interactions around husbands’ smoking has implications for cultures with similarly large gender disparities in smoking.Aims: We examined interactions among family members regarding husbands’ smoking in homes with small children in Shanghai.Methods: In Spring 2013, we conducted in-person semi-structured interviews among 13 male smokers and 17 female nonsmokers recruited from an urban and a suburban community in Shanghai.Results/Findings: To encourage husbands’ cessation or reduction, some women reported intervening either directly or indirectly through their children, emphasizing the health consequences for the smoker and the family. Some women reported not conversing about cessation due to concern about conflict, tolerance, or resignation. Women reported that their husbands’ responses to anti-smoking messages from family members included promises to quit in the future or noting the strength of the nicotine addiction and the disadvantages of quitting. Men reported the importance of smoking in work/culture and argued against the research about the harms of smoking.Conclusions: Interventions targeting motivators for cessation among men and to support women in encouraging their husbands’ cessation should be developed.

Experience and impact of the 1-2-3 magic parent programme for children with ADHD on the family unit from the mothers’ perspectives: A narrative analysis

2021 ◽  
pp. 136749352110399
Author(s):  
Stephanie Allen ◽  
Stephen K Bradley ◽  
Eileen Savage
Keyword(s):  
Narrative Analysis ◽  
Family Members ◽  
Study Data ◽  
Unintended Consequences ◽  
Structured Interviews ◽  
Children With Adhd ◽  
Family Unit ◽  
The Family ◽  
Narrative Constructions ◽  
The Impact

Parent programmes are often used in the clinical management of children with ADHD. Research into parent programmes has predominantly been concerned with their effectiveness and much less attention has been paid to the impact that they may be having on the family and the inter-relationships between family members. This study explores the perspectives and experiences of parents of children with ADHD, who participated in a parent programme, including its impact on the family unit. A purposive sample of six mothers of children with ADHD who completed a 1-2-3 Magic parent programme in Ireland was invited to take part in this qualitative study. Data were collected by means of individual in-depth, semi-structured interviews and a narrative inquiry approach further informed analysis of the interview data. Two major narrative constructions of experience: ‘parent programme as positive’ and ‘parent programme as negative’ were identified. Outcomes from this study illustrated some unintended consequences caused by the parent programme (i.e. sibling rivalry and conflict arising between family members). Mothers believed that the parent programme was a beneficial intervention, but it was not without its flaws and they felt it was helpful for their family when used in conjunction with other supports and mediations.

Families Living with Mental Illness

2016 ◽  
Vol 4 (1) ◽  
Author(s):  
Aditi Rana
Keyword(s):  
Mental Illness ◽  
Mental Health Professionals ◽  
Mentally Ill ◽  
Family Members ◽  
Primary Caregivers ◽  
Well Being ◽  
Structured Interviews ◽  
Indian Context ◽  
The Family ◽  
Partner Research

Mental illness is a growing reality of our times. Usually in a typical Indian family, the parents act as the primary caregivers for the child suffering from mental disorder. For adult sufferers, it can also be siblings or offspring, and  at times even spouse or partner. Research on the experiences of families of mentally ill people has been minimal in the Indian context. This study aims to shift the focus from the mentally ill patients to the suffering of the caregivers and families of the patient keeping in mind the interconnected well being of the family in a collectivist culture. Following a qualitative approach, narratives have been taken from the family members of mentally ill (narratives of 8 families with mentally ill person) and also the mental health professionals (two) through semi structured interviews. The findings suggest that the family members suffer from a significant amount of stress accompanied by burden. Also, they feel secluded from the society and experience a lack of assistance to deal with the mentally ill member of the family.

scholarly journals Guarantee of the social rights of children with chronic conditions: reinventing care towards civil rights

2021 ◽  
Vol 74 (suppl 4) ◽  
Author(s):  
Tatiana Silva Tavares ◽  
Kênia Lara Silva ◽  
Regina Garcia de Lima ◽  
Elysângela Dittz Duarte
Keyword(s):  
Civil Rights ◽  
Critical Discourse Analysis ◽  
Chronic Conditions ◽  
Family Members ◽  
Social Institutions ◽  
Public Health Education ◽  
The Social ◽  
Multiple Case ◽  
Children With Chronic Conditions

ABSTRACT Objective: To analyze the experiences of families in the exercise of the rights of children with chronic conditions in public health, education and social assistance institutions. Method: ethnographic multiple case study, with qualitative approach, following the theoretical approach of Boaventura Santos. Experiences of the families of these children in a city were studied through interviews with family members, managers and professionals from social institutions (35), participant observations in social spaces (13) and creation of eco-maps (3). Critical Discourse Analysis was performed. Results: the offer of services is lower than the demand, and exclusion processes persist. Given the hegemony of neoliberal and normality ideologies, meetings between family members and professionals revealed obstacles to civil rights; however, when these ideologies were challenged, the realization of their rights was enhanced. Final considerations: the care to promote civil rights requires family members, managers and professionals to develop subjectivities that overcome neoliberal and normality ideologies, recognizing these children as subjects of law.

scholarly journals Muslim transplant recipients’ family experiences following organ transplantation

2019 ◽  
Vol 24 (5) ◽  
pp. 291-302
Author(s):  
Zahra Sheikhalipour ◽  
Vahid Zamanzadeh ◽  
Leili Borimnejad ◽  
Sarah E Newton ◽  
Leila Valizadeh
Keyword(s):  
Transplant Recipient ◽  
Organ Transplantation ◽  
Family Relationships ◽  
Organ Transplant ◽  
Phenomenological Approach ◽  
Transplant Recipients ◽  
Structured Interviews ◽  
Family Experience ◽  
Family Experiences ◽  
The Family

Background Despite the importance of family and its relationship to positive transplant outcomes, little is known about family experiences following organ transplantation from the perspective of the transplant recipients. The literature is also devoid of information that describes the family experiences of Muslim transplant recipients. Aims The purpose of this study was to describe Muslim transplant recipients’ family experiences following organ transplantation. Methods A hermeneutical phenomenological approach was employed to determine the emergent themes present in the data. The sample was composed of 12 Muslim organ transplant recipients (heart, kidney and liver) living in Iran. Semi-structured interviews were conducted with each participant. Results The primary constitutive pattern that emerged from the interview data was ‘Altered Family Relationships’ and three themes: fear in relationships, abnormal relationships, and the family at the centre of organ transplant issues. Conclusions There are several important findings in this study, notably that Muslim transplant recipients describe their family experiences following organ transplantation as ‘altered’ and not as they were pre-transplant. More research is needed that focuses on the family experience post-transplant, and how Muslim transplant recipient families are impacted by the transplant experience.

Formal Service Practitioners' Views of Family Caregivers' Responsibilities and Difficulties

2006 ◽  
Vol 25 (1) ◽  
pp. 43-53 ◽  
Author(s):  
Nancy Guberman ◽  
Jean-Pierre Lavoie ◽  
Jacinthe Pepin ◽  
Sylvie Lauzon ◽  
Maria-Elisa Montejo
Keyword(s):  
Family Relations ◽  
Structured Interviews ◽  
Apparent Contradiction ◽  
High Expectations ◽  
Formal Service ◽  
The Family ◽  
Treatment Plans ◽  
Multiple Case ◽  
Negative Impacts ◽  
Case Design

ABSTRACTThis article identifies home care practitioners' perceptions of the responsibilities, difficulties, and needs for support of caregivers. It is based on a study undertaken in Quebec with 55 practitioners and 10 administrators from 10 CLSCs located in rural, urban, and metropolitan areas. The study had a qualitative, multiple-case design and used logs recording all contact with caregivers in the space of a week, followed by semi-structured interviews. Analysis reveals that practitioners tend to perceive the work of caregivers as mainly instrumental and clinical, ignoring the family relations that tie them to their relative. Although aware of the difficulties facing caregivers and the negative impacts of caregiving, a majority of practitioners have high expectations of caregiver participation in treatment plans, albeit as quasi-nurse's aides. Our analysis offers an explanation for this apparent contradiction by examining practitioners' values with regard to family responsibility for care.

scholarly journals The Impact of Mobile Phone on Family Life: A Case Study of Lahore, Pakistan

2020 ◽  
Vol Volume 4 (Issue 3) ◽  
pp. 192-207
Author(s):  
Dr. Muhammad Shabbir Sarwar ◽  
Humara Gulzar ◽  
Muhammad Ahsan Bhatti
Keyword(s):  
Mobile Phone ◽  
Family Life ◽  
Negative Impact ◽  
Family Members ◽  
Negative Relationship ◽  
Structured Interviews ◽  
Family Time ◽  
The Family ◽  
Mobile Phone Usage ◽  
The Impact

The purpose of this research paper is to explore the negative relationship between mobile phone and family life as well as negative impact of mobile phone usage on family life norms and traditions. The study is based on data collected through mixed method i.e. survey of a random sample of 1300 people and structured interviews conducted with a sub-sample of 13 people in Lahore, Pakistan. The study found that mobile phone is negatively affecting the family life due to its massive usage during family socialization time. The quantitative analysis found that over 85% of respondents use mobile phone for communication with the people other than their family members when they are with their family; over 50% make calls to others during their family time; 83% make SMS; 75 feel that they ignore their family due to cell phone; 86% thinks that mobile has influenced their family time face-to-face socialization negatively and 91% said that they exchanged harsh words with their family members for at least once or more due to using mobile phone during family time. The study reveals that male members of the traditional families are more responsible for using mobile phone during family time and damaging family traditions as compared to the female members. However, parents remain very concerned about the possibilities of misuse of mobile phone by female teenagers of the family. In most cases family elders were annoyed with the youth for adopting this change in their behaviors damaging the family traditions.

scholarly journals Family knowledge about the legal rights of children and adolescents with cancer

2021 ◽  
Vol 74 (6) ◽  
Author(s):  
Bruna Domingos dos Santos ◽  
Amanda Rossi Marques-Camargo ◽  
Raquel Pan ◽  
Susana Maria Garcia dos Reis ◽  
Rosyan Carvalho Andrade ◽  
...  
Keyword(s):  
Children And Adolescents ◽  
Chronic Conditions ◽  
Family Members ◽  
Family Health ◽  
Legal Rights ◽  
Intersectoral Action ◽  
The Family ◽  
Negative Impacts ◽  
Search For Information ◽  
Analyze Data

ABSTRACT Objective: Identify the knowledge of family members of children and adolescents with cancer about their legal rights, difficulties, and concessions to ensure them. Method: Quantitative study, survey type, of intersectional design. A questionnaire drawn up by the researchers was applied in order to characterize the minor and their family and also to identify the family’s knowledge about legal rights. Descriptive statistics were used to analyze data. Results: 61 family members who participated know some more rights to the detriment of others and are especially motivated to search for information when negative impacts on the financial life increase, with repercussions beyond family health. Conclusion: the studied population requires more information and demands knowledge about some rights guaranteed by law. Guidance on rights empowers the family and guarantees the necessary care, searching to have an intersectoral action qualify care and assist in restructuring family dynamics to deal with chronic conditions.

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