scholarly journals Measurement of Family-centered care perception and parental stress in a neonatal unit

2016 ◽  
Vol 24 (0) ◽  
Author(s):  
Flávia Simphronio Balbino ◽  
Maria Magda Ferreira Gomes Balieiro ◽  
Myriam Aparecida Mandetta
Keyword(s):  
Parental Stress ◽  
Neonatal Intensive Care ◽  
Neonatal Unit ◽  
University Hospital ◽  
Care Staff ◽  
Healthcare Team ◽  
Family Centered Care ◽  
Brazilian Version ◽  
Centered Care ◽  
Family Centered

ABSTRACT Objective: to evaluate the effects of the implementation of the Patient and Family-Centered Care Model on parents and healthcare perceptions and parental stress. Method: a quasi-experimental study developed in a neonatal unit of a university hospital in the municipality of São Paulo, Brazil, with the implementation of this model of care. Data collection were performed by two sample groups, one using non-equivalent groups of parents, and another using equivalent groups of healthcare professionals. The instruments Perceptions of Family-Centered Care-Parent Brazilian Version, Perceptions of Family-Centered Care-Staff Brazilian Version and Parental Stress Scale: Neonatal Intensive Care Unit, were applied to 132 parents of newborns hospitalized and to 57 professionals. Results: there was a statistically significant improvement in the perceptions of the parents in most items assessed (p ≤0,05) and for the staff in relation to the family welcome in the neonatal unit (p = 0.041) and to the comprehension of the family's experience with the infant´s hospitalization (p = 0,050). There was a reduction in the average scores of parental stress, with a greater decrease in the Alteration in Parental Role from 4,2 to 3,8 (p = 0,048). Conclusion: the interventions improved the perceptions of parents and healthcare team related to patient and family-centered care and contributed to reducing parental stress.

scholarly journals The Practices of Family-Centered Care for Hospitalized Children: Comparison of Iranian Mothers and Nurses' Perceptions

2021 ◽  
Vol 11 (4) ◽  
pp. 20-24
Author(s):  
Parvaneh Vasli
Keyword(s):  
Neonatal Intensive Care ◽  
Cross Sectional Study ◽  
Care Staff ◽  
Family Centered Care ◽  
Cross Sectional ◽  
Significance Level ◽  
Significant Difference ◽  
Centered Care ◽  
The Difference ◽  
Family Centered

Background: Family-centred care (FCC) practices are challenging from the perspectives of both parents and health professionals. Purpose: This study aimed to compare experiences with FCC practices between Iranian mothers and nurses. Design and Methods: This comparative cross-sectional study was conducted in 2019 on 233 mothers with hospitalized infants or children and 233 nurses working in neonatal intensive care units or pediatric wards selected using convenience sampling at five hospitals in Iran. Data regarding experiences about FCC practices among mothers and nurses was collected through the Perceptions of FamilyCentered Care-Parent (PFCC-P) and the Perceptions of Family-Centered Care-Staff (PFCC-S) questionnaires containing the three subscales of Respect, Collaboration, and Support and 21 similar items. Descriptive and inferential statistics were utilized for data analysis using the IBM SPSS Statistics software. The significance level was set as p<0.05. Results: The mean and standard deviation of mothers' and nurses' experiences of FCC were 2.68±0.53 and 3.05±0.39; respectively (range, 1–4). The lowest score belonged to the subscale “respect.” There was a statistically significant difference between mothers and nurses in their experiences with FCC practices in all three subscales. The nurses reported more positive experiences with FCC practices than the mothers did (p<0.001). Conclusion: The mothers and nurses exercised FCC differently and nurses' experiences were more positive. Reasons behind the difference in mothers' and nurses' experiences with FCC practices should be investigated. Interventions are required to remove barriers associated with FCC practices in accordance with healthcare in Iran.

scholarly journals Parent and Staff Perception about the Family-Centered Care in Private Service

2021 ◽  
Vol 23 (4) ◽  
pp. 339-344
Author(s):  
Bruna Zemella Collaço ◽  
Myriam Aparecida Mandetta ◽  
Maria Magda Ferreira Gomes Balieiro
Keyword(s):  
Intensive Care Unit ◽  
Intensive Care ◽  
Neonatal Intensive Care Unit ◽  
Neonatal Intensive Care ◽  
Healthcare Team ◽  
Family Centered Care ◽  
The Family ◽  
Centered Care ◽  
Terapia Intensiva ◽  
Family Centered

Abstract Having a newborn hospitalized in the Neonatal Intensive Care Unit can be an extremely stressful and desperate situation for families who end up needing assistance and support to stay by their child's side. To evaluate the perception of family-centered care from the perspective of the healthcare team and parents of newborns hospitalized in the neonatal intensive care unit of a private health service. Descriptive survey, carried out in private a neonatal intensive care unit of a large hospital. Two instruments were applied to measure the professional of healthcare team and parent’s perceptions of family-centered care. The study involved 102 parents and 102 professionals of the healthcare team. The barriers identified for the implementation of patient and family-centered care were related to the items family inclusion and participation in the care of newborns; presence of parents during procedures; recognition by professionals of the support sources for the family, identification of resources in the unit by parents and perception of the multiprofessional care team turnover regarding the care to the newborn by the newborn’s parents. It is necessary to invest in continuing education programs to make the healthcare team aware for the Patient and Family-centered Care and written protocols to implement this model of care on practice. Keywords: Infant, Newborn. Family. Intensive Care Units, Neonatal. Nursing. Resumo Ter um recém-nascido internado na Unidade de Terapia Intensiva Neonatal pode ser uma situação extremamente estressante e desesperadora para as famílias que acabem necessitando de apoio e suporte para permanecer ao lado do filho. Avaliar a percepção do Cuidado Centrado na Família na perspectiva da equipe de saúde e dos pais de recém-nascidos hospitalizados na unidade de terapia intensiva neonatal de um serviço de saúde privado. Pesquisa do tipo survey descritivo, realizada em uma unidade de terapia intensiva neonatal de um hospital de grande porte, de direito privado. Utilizaram-se dois instrumentos de medida da percepção de profissionais da equipe de saúde e de pais sobre o cuidado centrado na família. Participaram do estudo 102 pais e 102 profissionais da equipe de saúde. As barreiras identificadas para a implementação do cuidado centrado no paciente e família foram relacionadas aos itens inclusão e participação da família nos cuidados; permanência dos pais durante os procedimentos; reconhecimento pelos profissionais das fontes de suporte da família, identificação das fontes de ajuda na unidade pelos pais e percepção da rotatividade da equipe multiprofissional no cuidado ao recém-nascido pelos pais. Há necessidade de programas de educação permanente para sensibilizar os profissionais para o Cuidado Centrado no Paciente e Família e a elaboração de protocolos para sua implementação na prática. Palavras-chave: Recém-Nascido. Família. Unidades de Terapia Intensiva Neonatal. Enfermagem.

scholarly journals Nurses' Perception of Family-Centered Care in Neonatal Intensive Care Units

2019 ◽  
Vol 09 (01) ◽  
pp. 016-020
Author(s):  
Haydeh Heidari ◽  
Marjan Mardani-Hamooleh
Keyword(s):  
Intensive Care ◽  
Data Analysis ◽  
Intensive Care Units ◽  
Neonatal Intensive Care ◽  
Neonatal Intensive Care Units ◽  
Family Centered Care ◽  
Face To Face ◽  
Centered Care ◽  
Conventional Content Analysis ◽  
Family Centered

AbstractFamily-centered care (FCC) is one of the important elements of care in neonatal intensive care units (NICUs). The aim of this study was to understand the nurses' perception of FCC in NICUs. This qualitative study was performed using conventional content analysis. Participants in this study included 18 nurses who were selected by a purposeful method. Semistructured, in-depth and face-to-face interviews were conducted with the participants. All interviews were written down, reviewed, and analyzed. Two categories were identified after the data analysis: (1) prerequisite for providing FCC and (2) parents' participation. Prerequisite for providing FCC consisted of two subcategories namely suitable facilities and adequate personnel. Parents' participation included subcategories of parents: neonate's attachment and parents' training. Nurses' perception of FCC in NICUs can facilitate an appropriate condition for the participation of family members in the care of neonates.

Implementing Potentially Better Practices for Improving Family-Centered Care in Neonatal Intensive Care Units: Successes and Challenges

PEDIATRICS ◽  
2003 ◽  
Vol 111 (Supplement_E1) ◽  
pp. e450-e460
Author(s):  
Kimberly A. Cisneros Moore ◽  
Kara Coker ◽  
Allison B. DuBuisson ◽  
Betsy Swett ◽  
William H. Edwards
Keyword(s):  
Intensive Care ◽  
Intensive Care Units ◽  
Neonatal Intensive Care ◽  
Neonatal Intensive Care Units ◽  
Family Centered Care ◽  
Improvement Project ◽  
Centered Care ◽  
Successes And Challenges ◽  
Unit Culture ◽  
Family Centered

Objective. Multidisciplinary teams from 11 medical center neonatal intensive care units collaborated in a quality improvement project with a focus on family-centered care. Methods. Through a process of self-analysis, literature review, benchmarking site visits, and expert consultation, 10 potentially better practice (PBP) areas were defined. Improvement activities in 4 of the 10 areas are given as examples of successes and challenges that individual centers encountered. The 4 areas are vision and philosophy, unit culture, family participation in care, and families as advisors. Results. Centers were at different places for all of the PBPs at the beginning and throughout the collaboration. Seven centers developed or revised their vision or philosophy of care statements about family-centered care. Incorporating the vision and philosophy of care into performance appraisals, hiring of new personnel, and changing unit culture to a more family-centered practice were more challenging than developing the statements. Full parent participation in care requires unrestricted access to the neonatal intensive care unit. The shift from considering parents to be “visitors” to being partners in caring for their child was more difficult for centers with restricted visitation policies. All centers developed, expanded, or started plans for establishing family advisory councils. The experience of 2 centers is described. Conclusions. Family-centered care is more of a journey than a destination. Collaborating centers in this project found themselves at different places in that journey. Through perseverance in implementing the PBPs, all have moved further along the path.

scholarly journals Family centered care and practice in the neonatal intensive care unit

Rev Rene ◽  
2019 ◽  
Vol 20 ◽  
pp. e39767 ◽  
Author(s):  
Bruna Caroline Rodrigues ◽  
Roberta Tognollo Borotta Uema ◽  
Gabrieli Patrício Rissi ◽  
Larissa Carolina Segantini Felipin ◽  
Ieda Harumi Higarashi
Keyword(s):  
Intensive Care Unit ◽  
Intensive Care ◽  
Neonatal Intensive Care Unit ◽  
Neonatal Intensive Care ◽  
Family Centered Care ◽  
Centered Care ◽  
Family Centered

Evaluation and Development of Potentially Better Practices for Improving Family-Centered Care in Neonatal Intensive Care Units

PEDIATRICS ◽  
2003 ◽  
Vol 111 (Supplement_E1) ◽  
pp. e437-e449
Author(s):  
Roger P. Saunders ◽  
Marie R. Abraham ◽  
Mary Jo Crosby ◽  
Karen Thomas ◽  
William H. Edwards
Keyword(s):  
Length Of Stay ◽  
Neonatal Intensive Care ◽  
Process Analysis ◽  
Neonatal Morbidity ◽  
Family Centered Care ◽  
Psychosocial Needs ◽  
Beliefs And Practices ◽  
Centered Care ◽  
The Impact ◽  
Family Centered

Objective. Technological and scientific advances have progressively decreased neonatal morbidity and mortality. Less attention has been given to meeting the psychosocial needs of the infant and family than on meeting the infant’s physical needs. Parents’ participation in making decisions and caring for their child has often been limited. Environments designed for efficient technological care may not be optimal for nurturing the growth and development of sick neonates or their families. Eleven centers collaborating on quality improvement tried to make the care of families better by focusing on understanding and improving family-centered care. Methods. Through internal process analysis, review of the evidence, collaborative learning, and benchmarking site visits to centers of excellence in family-centered care, a list of potentially better practices was developed. Choice of which practices to implement and methods of implementation were center specific. Improvement goals were in 3 areas: parent-reported outcomes, staff beliefs and practices, and clinical outcomes in length of stay and feeding practices. Measurement tools for the first 2 areas were developed and pilots were conducted. Results. Length of stay and feeding outcomes were not different before the collaboration (1998) and at the formal end of the collaboration (2000). Conclusions. Prospective parent-reported outcomes are being collected, and the staff beliefs and practices questionnaire will be repeated in all centers to determine the impact of the project in those areas.

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