scholarly journals Family dynamics and social network of families of children with special needs for complex/continuous cares

2020 ◽  
Vol 41 ◽  
Author(s):  
Beatriz Caroline Dias ◽  
Sonia Silva Marcon ◽  
Pamela dos Reis ◽  
Iven Giovanna Trindade Lino ◽  
Aline Cristiane Cavicchioli Okido ◽  
...  
Keyword(s):  
Special Needs ◽  
Family Dynamics ◽  
Support Network ◽  
Functional Evaluation ◽  
Children With Special Needs ◽  
Continuous Care ◽  
The Family ◽  
Family Routine ◽  
Care At Home ◽  
At Home

ABSTRACT: Objective: To describe the family dynamics and the social support network for families of children with special needs of multiple, complex and continuous care. Methods: A descriptive study of a qualitative approach, carried out in Maringá - PR, having as theoretical and methodological reference the Calgary Model of Family Assessment (CMFA). Data was collected through semi-structured audio-video interviews, carried out in the homes, together with 11 family caregivers of 13 children. Results: Data is presented in the following categories: structural, developmental and functional evaluation, which show the changes in the family routine and the needs for the adjustment of the roles of its members, in order to better implement the care at home. Conclusions: Using the CMFA made it possible to identify and understand the composition, fragilities and potentialities of the family, as well as the relationships among its members and rearrangements to better enable care at home. This information favors interventions congruent with the needs of these families.

scholarly journals Challenges of family caregivers of children with special needs of multiple, complex and continuing care at home

2019 ◽  
Vol 23 (1) ◽  
Author(s):  
Beatriz Caroline Dias ◽  
Sueli MutsumiTsukuda Ichisato ◽  
Maria Angelica Marchetti ◽  
Eliane Tatsch Neves ◽  
Ieda Harumi Higarashi ◽  
...  
Keyword(s):  
Special Needs ◽  
Family Caregivers ◽  
Health Care Services ◽  
Care Practice ◽  
Continuing Care ◽  
Children With Special Needs ◽  
Care Services ◽  
Primary Health Care Services ◽  
Care At Home ◽  
At Home

ABSTRACT Objective: To describe the challenges of family caregivers of children with special needs of multiple, complex and continuing care at home. Methods: Qualitative study based on the theoretical framework of the Patient and Family-Centerd Care (PFCC). We interviewed eleven family caregivers from 13 children enrolled in a special school in the Brazilian city of Maringá (PR). The data were subject to content analysis, thematic modality. Results: The main challenges identified are the lack of preparation for home care, the difficulty of access and follow-up in Primary Health Care services, and the difficulty of including the child in social interaction. However, caregivers react positively to these adversities. Conclusions and implications for practice: The nurses need the necessary training to transcend hospital technical care and to develop a care practice based on family-centerd care, considering this as a protagonist, including it in the process for the quality of life of these children.

scholarly journals Maternal care at home for children with special needs

2015 ◽  
Vol 33 (3) ◽  
Author(s):  
Livian Damiele Coelho Ramos ◽  
◽  
Juliana Rezende Montenegro Medeiros de Moraes ◽  
Liliane Faria da Silva ◽  
Fernanda Garcia Bezerra Goés ◽  
...  
Keyword(s):  
Special Needs ◽  
Maternal Care ◽  
Children With Special Needs ◽  
Care At Home ◽  
At Home

PARENTS AS PARTNERS IN AN INCLUSIVE EDUCATIONAL ENVIRONMENT

2020 ◽  
Vol 1 (7) ◽  
pp. 152-158
Author(s):  
N. M. BURYKINA ◽  
Keyword(s):  
Developmental Disabilities ◽  
Secondary Schools ◽  
Special Needs ◽  
Educational Environment ◽  
Children With Special Needs ◽  
Raising Children ◽  
Philosophical Foundations ◽  
The Family ◽  
Children With Developmental Disabilities

This article discusses the role of the family in the social development of children with special needs in an inclusive educational environment, in connection with which the study addresses a new aspect of the interaction between the teacher and the child’s family, the interaction of the teacher (teacher) and parents of children with developmental disabilities is highlighted in a variety of areas, students in secondary schools or attending kindergartens. The purpose of the study is to assess the role of the family in the adaptation of children with developmental disabilities, studying in secondary schools or attending kindergartens. To achieve this goal, the author defines a range of research tasks: to study the historical and philosophical foundations of the role of the family in raising children with special needs; highlight the role of the family in implementing early intervention programs in secondary schools; substantiate the main stages that any school must go through, striving to create a more fruitful relationship between the school, family and community. The author stated the following results as a scientific novelty: general recommendations have been developed so that parents feel confident, competent and can work more productively together with teachers (educators) when children visit kindergarten groups (classes). As a result of the study, the author came to the conclusion that the process of teaching children with special needs in a comprehensive school is most effective in the interaction of the teacher and the family of the child.

Survey of bereavement care at home-visit nursing stations in Japan

2020 ◽  
Author(s):  
Miwa OZAWA ◽  
Seiko UCHINO ◽  
Jungetsu SEI ◽  
Kazuyoshi UEHARA
Keyword(s):  
Social Life ◽  
Home Visit ◽  
Statistical Processing ◽  
Nursing Facilities ◽  
Life Planning ◽  
Nursing Experience ◽  
The Family ◽  
Care At Home ◽  
Bereavement Care ◽  
At Home

Abstract BackgroundWith a rapidly aging population, the importance of promoting end-of-life care at home has been pointed out. Home-visit nurses play an important role as professionals in charge of home care, and pre- and post- bereavement care for bereaved families is included in home-visit nursing services. However, bereaved families are not always provided with care after bereavement in Japan. This present study aims to investigate the relationship between the provision rates of pre- and post-bereavement care for the patient family and the demographics of home-visit nurses through a survey of home-visit nurses, and to clarify the details of post-bereavement care and the reasons why the care is employed, exploratorily through a survey of the managers of home-visit nursing stations.MethodsA self-rating anonymous questionnaire survey was conducted with 2,400 facilities (including 2,200 facilities randomly selected from among the members of Home-Visit Nursing Stations of the National Nursing Business Association). For the analysis, simple aggregation was used and the statistical processing employed SPSS ver21.0.ResultsA total of 680 valid responses were analyzed. The mean length of home-visit nursing experience was 10.6 years and that of hospital nursing experience was 15.2 years. The provision rate of post-bereavement care was 90% or higher in most of the identified items, excluding “Provided continued support/life planning until the family fully recovers social life”. For the provision of post-bereavement care, most items exceeded 70%, but excluding “Provided continued support until the family fully recovers social life”, and “Involved in building a life after bereavement”.Compared to the participants with less than 5 years of home-visit nursing experience, those with 10 years or longer experience had statistically significantly higher rates of providing post-bereavement care in more than half of the identified items. Home-visit nursing facilities with 24-hour services had statistically significantly higher rates of providing care in more than half of the items of both of pre- and post-bereavement care, compared to the facilities without 24-hour services. About 70% of the managers think that bereaved families need follow-up, and visited the families as a post-bereavement care.

Dreaming of Prosperity at Home

2020 ◽  
pp. 121-148
Author(s):  
Tony Tian-Ren Lin
Keyword(s):  
Gender Roles ◽  
Family Dynamics ◽  
Small Scale ◽  
Prosperity Gospel ◽  
The Family ◽  
Religious Ideal ◽  
And Gender ◽  
The Church ◽  
At Home

The demands of Prosperity Gospel Pentecostalism on the family and gender roles are many. The home is a space where the paradox of Prosperity Gospel Pentecostalism is lived out daily. In traditional Christianity, the family is supposed to be a small-scale replica of the church, where there is a father who serves as the priest, a mother who is his assistant, and a congregation, represented by children who need instruction and guidance. This chapter shows how Prosperity Gospel Pentecostalism shapes family dynamics and the logic they use to bridge their family reality to the religious ideal.

scholarly journals Bimbingan dan Konseling Bagi Orangtua Anak Usia Dini Berkebutuhan Khusus (ABK)

2019 ◽  
Vol 12 (1) ◽  
pp. 55
Author(s):  
Melda Rumia Rosmery Simorangkir
Keyword(s):  
Early Childhood ◽  
Alternative Education ◽  
Special Needs ◽  
Counseling Services ◽  
Early Age ◽  
Children With Special Needs ◽  
Keywords Children ◽  
The Family ◽  
The Future ◽  
Education And Care

ABSTRACT A happiness when a woman in a family gives birth. Moreover, the baby who wasborn has been waiting long enough. However, sometimes what is expected byhumans is not always the same as what was presented by the creator. Thenwhat if it turns out that children who are present in the family are specialchildren? These children need special attention due to physical and mentaldisorders. Not a few parents must have children with special needs (ABK)confused, shocked or even blame each other. This is certainly not something thatis expected from children. ABK requires education, attention, assistance, speciallearning methods. Thus ABK parents must get special assistance so that theycan accept their child and educate the child with great attention and love. ABKparents must be assisted from early childhood, so that education and care aremore optimal. Counseling for ABK parents is done so parents do not feel alone,not ashamed, willing to accept and have a great readiness to accompany theirchildren in the future. The counselor is expected to be able to help ABK's parentsby providing counseling services specifically to guide parents. The guidance alsoserves to help parents provide alternative education and therapy that can begiven to children with special needs from an early age. Keywords: children with special needs, counselling, and guidance ABSTRAK Sebuah kebahagian ketika seorang perempuan dalam sebuah keluargamelahirkan. Apalagi buah hati yang dilahirkan telah ditunggu cukup lama.Namun, terkadang apa yang diharapkan manusia tidak selalu sama dengan apayang dihadirkan oleh pencipta. Lalu bagaimana apabila ternyata anak yang hadirdalam keluarga adalah anak yang special?. Anak tersebut memerlukan perhatiankhusus baik disebabkan kelainan fisik maupun mental. Tidak sedikit Orangtuaharus anak berkebutuhan khusus (ABK) mengalami kebingungan, kaget ataubahkan saling menyalahkan. Hal ini tentu bukan hal yang diharapkan dari anak.ABK memerlukan pendidikan, perhatian, bantuan, metode belajar khusus.Demikian orangtua ABK harus mendapatkan pendampingan khusus agarmereka bisa menerima anak mereka dan mendidik anak tersebut dengan penuhperhatian dan cinta yang besar. Orangtua ABK harus dibantu sejak anak usiadini, agar pendidikan dan pengasuhan lebih optimal. Konseling bagi orangtuaABK dilakukan agar orang tua tidak merasa sendiri, tidak malu, mau menerimadan memiliki kesiapan hati yang besar untuk mendampingi anak mereka dikemudian hari. Konselor di harapkan mampu menolong orang tua ABK denganmemberikan layanan-layan konseling khususnya membimbing orangtua.Bimbingan tersebut juga berfungsi untuk membantu orangtua memberikanalternatif pendidikan dan terapi yang dapat diberikan pada anak berkebutuhankhusus sejak usia dini. Kata kunci: anak berkebutuhan khusus konseling, dan bimbingan

scholarly journals Examination of views and suggestions about participation of families of children with special needs in individualised education programme

2018 ◽  
Vol 13 (1) ◽  
pp. 31-40
Author(s):  
Adile Emel Sardohan Yildirim ◽  
Gonul Akcamete
Keyword(s):  
Special Needs ◽  
Education Programme ◽  
Structured Interview ◽  
Children With Special Needs ◽  
Keywords Children ◽  
Interview Technique ◽  
Analysis Technique ◽  
The Family ◽  
Main Factor

Individualised education programmes (IEP) will be practiced with children with special needs (CWSN) and their families. The main factor for IEP’s success is the participation of the family and also, their children. In this study, views and suggestions about participation of families of CWSN in their IEP processes are examined. The research is based on qualitative research. Five mothers and a grandmother with CWSN were participated; data are collected via semi-structured interview technique and analysed with inductive analysis technique. This research uncovers that the participants didn’t participate in their children’s diagnosis, assessment, settlement and follow-up processes, and they were not content with the assessment results. Also, the participants who didn’t participate in the IEP weren’t even aware of the legal obligation that they had to and their children’s IEP, they weren’t in cooperation with the teacher in that process, and teachers didn’t show the progress in the children to the families even if they recorded that. Keywords: Children with special needs (CWSN), family, individualised education programmes (IEP).

Programmes for the Formation of Elementary Social Interaction Skills in Young Children with Special Needs

2020 ◽  
pp. 82-88
Author(s):  
Anastasia Sass ◽  
Mariya Savitskaya
Keyword(s):  
Social Interaction ◽  
Young Children ◽  
Special Needs ◽  
Educational Institutions ◽  
Children With Special Needs ◽  
The Family ◽  
The Republic ◽  
Social Interaction Skills ◽  
Interaction Skills

Nowadays, in the Republic of Belarus conditions that allow every child with special needs to integrate into society are created. The solution of this problem is directly related to the implementation of the socialising function of the family and educational institutions. We have analysed the existing programmes for providing early comprehensive assistance to children with special needs and summarised the material on the problem of forming elementary skills of social interaction in young children based on the analysis of national and foreign programmes.

Palliative Care at Home: Reflections on HIV/AIDS Family Caregiving Experiences

1998 ◽  
Vol 14 (2) ◽  
pp. 14-22 ◽  
Author(s):  
Kelli I. Stajduhar ◽  
Betty Davies
Keyword(s):  
Palliative Care ◽  
Qualitative Methods ◽  
Family Caregiving ◽  
Family Members ◽  
Loved One ◽  
The Family ◽  
Care At Home ◽  
Depth Interviews ◽  
Hiv Aids ◽  
At Home

This study explored the day-to-day experiences of family members providing care at home for their dying loved one with HIV/AIDS. In-depth interviews with seven caregivers were analyzed using grounded theory qualitative methods. A conceptualization of the family caregiving experience portrays HIV/AIDS caregiving as an intense, emotional, and powerful experience filled with pride and enrichment, and conversely, with anger and disillusionment. Findings reflected a significant need for interventions designed to provide direct and effective support for family members caring for a loved one with HIV/AIDS.

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