scholarly journals TRAINING OF CHILDREN’S AND ADOLESCENTS’ FAMILY MEMBERS IN HOME PARENTERAL NUTRITION CARE

2019 ◽  
Vol 37 (3) ◽  
pp. 305-311
Author(s):  
Maria Carolina Witkowski ◽  
Rosiani de Souza Silveira ◽  
Daiane Marques Durant ◽  
Alessandra Cortes de Carvalho ◽  
Daltro Luiz Alves Nunes ◽  
...  
Keyword(s):  
Parenteral Nutrition ◽  
Family Caregivers ◽  
Infusion Pump ◽  
Insertion Site ◽  
Family Members ◽  
Rehabilitation Program ◽  
Home Parenteral Nutrition ◽  
Cross Sectional ◽  
Intestinal Rehabilitation ◽  
Crbsi Rate

ABSTRACT Objective: To report the experience of the training in home parenteral nutrition (PN) directed to family members of children and adolescents participating in a multidisciplinary intestinal rehabilitation program of a tertiary public hospital. Methods: Cross-sectional descriptive study with family caregivers of patients from the Intestinal Rehabilitation Program of Hospital de Clínicas de Porto Alegre, RS, Brazil, from July/2014 to January/2017. Inclusion criteria: family members of children aged 30 days to 17 years and estimated PN use ≥8 weeks; and family members motivated to care for the child. The training covered: hand washing and disinfection; infusion pump handling; and central venous catheter (CVC) and PN care. Outcomes assessed: catheter-related bloodstream infection (CRBSI) rate, accidental CVC exit, end of PN infusion with more than 60minutes of delay or advance compared to the time predicted, mechanical obstruction, bleeding in the CVC insertion site, and death. Results: Twenty-seven family members of 17 children were trained. Their median age was 28 (18-60) years, and 63% were mothers. The mean CRBSI rate was 1.7/1,000 days of CVC use, and 29.4% of patients had at least one episode of accidental CVC exit. There were no complications related to PN infusion, bleeding, or death. Conclusions: The training of family caregivers allowed the safe implementation of home PN, with the active participation of families, making the procedure feasible in the public health system in Brazil.

Impact of home parenteral nutrition on family members: a national multi-centre cross-sectional study

2021 ◽  
Author(s):  
Chloe French ◽  
Simon Lal ◽  
Debra Jones ◽  
Anne Marie Sowerbutts ◽  
Diane Brundrett ◽  
...  
Keyword(s):  
Parenteral Nutrition ◽  
Family Members ◽  
Cross Sectional Study ◽  
Home Parenteral Nutrition ◽  
Sectional Study ◽  
Cross Sectional

scholarly journals Support for family members who are caregivers to relatives with acquired brain injury

2021 ◽  
Vol 8 (1) ◽  
pp. 76-85
Author(s):  
Janet Walker ◽  
Lourens Schlebusch ◽  
Bernhard Gaede
Keyword(s):  
Brain Injury ◽  
Suicidal Ideation ◽  
Family Caregivers ◽  
Qualitative Data ◽  
Family Members ◽  
Acquired Brain Injury ◽  
Well Being ◽  
Self Report ◽  
Cross Sectional ◽  
Significance Level

Objectives. Family members caring for a patient with acquired brain injury (ABI) are coping with inordinate levels of stress partially due to their lack of understanding of the neuropsychological effects of acquired brain injury in the patient. The objective of this research is to show that as the caregivers’ stress levels increase, there is an increase in suicidal ideation. This highlights the causal relationship between unhealthy stress and reduced psychological well-being in these caregivers. In addition, qualitative research evidence regarding the caregivers’ views of their main sources of stress are presented. Methods. The participants were a random sample of 80 family caregivers of patients with acquired brain injury, out of whom 72.5% (58) are primary caregivers and 27.5% (22) are secondary caregivers. A mixed methodology was utilized. It comprised cross-sectional descriptive and phenomenological approaches. Quantitative data were obtained from two standardized measures: The Stress Symptom Checklist (SSCL) and item 9 of the Beck Depression Inventory. The qualitative data were derived from self-report procedures that were part of a structured questionnaire administered individually during the interviews. Results. The Kruskal-Wallis test with a significance level of p = .05 was used to compare the stress and suicidal ideation scores, which revealed that increasing levels of stress led to increased suicidality. The analysis of the qualitative data revealed five themes which were identified as the triggers of the caregivers’ profound stress. Most caregivers felt that it was predominantly the patient’s neuropsychological deficits, such as emotions and/or moods, cognitive ability, behavior and personality, executive function, and social factors that caused them profound stress. Conclusions. Support and education are needed to help family caregivers understand the neuropsychological impact of acquired brain injury on the patient. Once caregivers have an improved understanding and receive better support from healthcare providers, they should experience less stress and be better prepared to provide the appropriate support to patients with acquired brain injury.

scholarly journals Aging immigrant family caregivers health, social engagement, and health literacy

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 800-800
Author(s):  
Mary Dioise Ramos
Keyword(s):  
Health Literacy ◽  
Family Caregivers ◽  
Family Caregiving ◽  
Social Engagement ◽  
Medical Condition ◽  
Family Members ◽  
Cardiovascular Disorder ◽  
Immigrant Family ◽  
Cross Sectional ◽  
Falling Asleep

Abstract Family caregiving is evolving in multiple ways. There is an increasing recognition of the role of informal or unpaid family caregivers. Extensive body of research shows that family members who provide care to individuals with chronic or disabling conditions are themselves at risk. However, most evidence on family caregiving gear towards Caucasian middle-class populations. There is limited research that exists about aging immigrant family caregivers who are ill-prepared for their role and provide care with little or no support. The specific aim of this study was to assess and determine the association of health status, social engagement, and health literacy among aging immigrant family caregivers. This study utilized a non-experimental, cross-sectional, correlational design. Most of the participants are female married Asian women, who are retired, living with their spouses, and taking care of their family members more than 4 hours a day with Alzheimer’s, Parkinson’s, and cardiovascular disorder. Most participants have existing medical condition such as hypertension, diabetes, high cholesterol, and heart disease. Most participants experienced problem with sleep and difficulty falling asleep. While some participants experienced fatigue and having trouble doing regular leisure activities with others. There is an association between sleep disturbance and ability to participate in social roles and activities among aging immigrant family caregivers. Inclusion of people from different ethnicities, backgrounds, and socioeconomic position in caregiver research is vitally important. There is a need for a greater understanding of the contextual factors of family caregiving and recognizing the prevalence and characteristics of aging immigrant family caregivers.

scholarly journals Levels of stress and coping strategies in family caregivers who treat schizophrenic patients with risk of violent behavior

2021 ◽  
Vol 10 (s1) ◽  
Author(s):  
Miftahul Janah ◽  
Giur Hargiana
Keyword(s):  
Coping Strategies ◽  
Family Caregivers ◽  
Violent Behavior ◽  
Family Members ◽  
Sampling Technique ◽  
Cross Sectional ◽  
Stress Levels ◽  
Schizophrenic Patients ◽  
And Coping ◽  
The Relationship

Background: Violent behavior is one of the most common symptoms of people who have schizophrenia. Caring for family members who have schizophrenia can be a stressor for other family members. The stressors can be stressful for the caregiver. Family caregivers require coping strategies to overcome the stressors. This study aims to determine the relationship between stress levels and coping strategies of family caregivers who treat schizophrenic patients with a risk of violent behavior.Design and Methods: The research design engaged cross-sectional with the purposive sampling technique by involving 87 caregiver families who who treat schizophrenic patients. The data was collected by using the Perceived Stress Scale (PSS) and Ways of Coping (WOC) questionnaires. This study was analyzed by employing the Chi-Square test to determine the relationship between stress levels and coping strategies in the caregiver family.Results: This study shows that stress levels are not significantly associated with coping strategies in family caregivers.Conclusion: Good supports from health and social service professionals are required to help family caregivers cope with their stressors well.

scholarly journals Caregiving Burden Among Family Members Of People With Mental Illness

2017 ◽  
Vol 4 (1) ◽  
pp. 36-42 ◽  
Author(s):  
A.R. Bhandari ◽  
K. Marahatta ◽  
M. Rana ◽  
S.P. Ojha ◽  
M.P. Regmi
Keyword(s):  
Mental Illness ◽  
Family Caregivers ◽  
Family Members ◽  
Family Intervention ◽  
Cross Sectional Study ◽  
Subjective Burden ◽  
Cross Sectional ◽  
Caregiving Burden ◽  
People With Mental Illness ◽  
Significant Difference

Background: Presence of a person with mental disorder in family is often associated with some objective and subjective burden on family members, especially those who have a caregiving role. The present study aimed to assess the levels of caregiving burden among family members of people with mental illness.Method: This is a descriptive cross-sectional study in a sample of 56 family caregivers of people with mental illness. Sample was selected using purposive sampling method and their caregiving experience was assessed by using Burden Assessment Schedule.Result: Among the 56 caregivers, 48.2 % had moderate level of burden and 32.1% had severe level of burden. Highly significant difference was observed in the distribution of burden according to level of burden but no significant gender difference was found in the distribution of burden in total and in different domains of BAS. Highly significant burden was found among married and spouse caregivers.Conclusion: As moderate to severe level of caregiving burden was reported by the family caregivers, it is recommended that family intervention should focus on strengthening coping behaviors and social support system to manage caregiving stress.

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