Impact of home parenteral nutrition on family members: a national multi-centre cross-sectional study

Author(s):  
Chloe French ◽  
Simon Lal ◽  
Debra Jones ◽  
Anne Marie Sowerbutts ◽  
Diane Brundrett ◽  
...  
2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Yuchen Ying ◽  
Liemin Ruan ◽  
Fanqian Kong ◽  
Binbin Zhu ◽  
Yunxin Ji ◽  
...  

An amendment to this paper has been published and can be accessed via the original article.


2020 ◽  
pp. 096973302094810
Author(s):  
Åshild Gjellestad ◽  
Trine Oksholm ◽  
Frøydis Bruvik

Background: The use of forced treatment and care of home-dwelling persons with dementia is a universally important topic. These patients are completely dependent on care from others to continue living at home. Aim: This study aimed to gain insights into formal decisions related to the forced treatment and care of home-dwelling persons with dementia. Design and sample: This is a cross-sectional study, based on formal decisions of forced treatment and care of home-dwelling persons with dementia in Norway between 1 January 2015 and 31 December 2016. Methods: Descriptive statistical analysis. Statistically significant associations suitable for binary logistic regression were presented as odds ratios with 95% confidence intervals. Ethical considerations: Approved by The Regional Committee for Medical and Health Research Ethics, and by the Norwegian Center for Research. Results: We found 108 formal decisions of forced treatment and care of persons with dementia. Decisions of admission represented 57% of the data, other medical and safety decisions 27%, and assistance with activities of daily living 16%. In most cases, physicians were responsible for the decisions (77%), but nurses and family members were often involved. Discussion and conclusion: This study demonstrated a prevalence rate of formally documented decisions of forced treatment and care much lower than findings in previous studies. Poor documentation may constitute a risk for the safety and wellbeing of persons with dementia. Although physicians were usually responsible for the decisions, nurses and family members were often involved in the process. Family participation in forced treatment and care raises ethical dilemmas. More research on the experiences of nurses, persons with dementia and family members with forced treatment and care is needed to aid ethical, legal, and clinically challenging decision-making processes.


PLoS ONE ◽  
2016 ◽  
Vol 11 (9) ◽  
pp. e0162813 ◽  
Author(s):  
Tal Granot ◽  
Noa Gordon ◽  
Shlomit Perry ◽  
Shulamith Rizel ◽  
Salomon M. Stemmer

2017 ◽  
Vol 54 (3) ◽  
pp. 423-441 ◽  
Author(s):  
Yaara Zisman-Ilani ◽  
Ilanit Hasson-Ohayon ◽  
Itamar Levy-Frank ◽  
Rivka Tuval-Mashiach ◽  
David Roe

The current cross-sectional study investigated and compared the associations between insight, self-stigma, and family burden among Jewish and Arab mothers of an adult son or daughter with serious mental illness (SMI) in Israel. A total of 162 Israeli mothers of a person with SMI participated in the study; 95 were Jewish (58.6%), and 67 were Arab (41.4%). Insight, self-stigma, and family burden scales were administered. Jewish mothers reported higher levels of insight into their son’s or daughter’s illness and reported greater family burden compared to Arab mothers. No significant differences in self-stigma scores were found between Jewish and Arab mothers. The pattern of associations between insight, self-stigma, and burden differed between Jewish and Arab mothers. Self-stigma was found to mediate the relationship between insight and burden among Jewish mothers but not among Arab mothers. Ethno-national affiliation should be taken into consideration regarding how family members conceptualize and experience mental illness, as this might affect care.


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