scholarly journals Aging immigrant family caregivers health, social engagement, and health literacy

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 800-800
Author(s):  
Mary Dioise Ramos
Keyword(s):  
Health Literacy ◽  
Family Caregivers ◽  
Family Caregiving ◽  
Social Engagement ◽  
Medical Condition ◽  
Family Members ◽  
Cardiovascular Disorder ◽  
Immigrant Family ◽  
Cross Sectional ◽  
Falling Asleep

Abstract Family caregiving is evolving in multiple ways. There is an increasing recognition of the role of informal or unpaid family caregivers. Extensive body of research shows that family members who provide care to individuals with chronic or disabling conditions are themselves at risk. However, most evidence on family caregiving gear towards Caucasian middle-class populations. There is limited research that exists about aging immigrant family caregivers who are ill-prepared for their role and provide care with little or no support. The specific aim of this study was to assess and determine the association of health status, social engagement, and health literacy among aging immigrant family caregivers. This study utilized a non-experimental, cross-sectional, correlational design. Most of the participants are female married Asian women, who are retired, living with their spouses, and taking care of their family members more than 4 hours a day with Alzheimer’s, Parkinson’s, and cardiovascular disorder. Most participants have existing medical condition such as hypertension, diabetes, high cholesterol, and heart disease. Most participants experienced problem with sleep and difficulty falling asleep. While some participants experienced fatigue and having trouble doing regular leisure activities with others. There is an association between sleep disturbance and ability to participate in social roles and activities among aging immigrant family caregivers. Inclusion of people from different ethnicities, backgrounds, and socioeconomic position in caregiver research is vitally important. There is a need for a greater understanding of the contextual factors of family caregiving and recognizing the prevalence and characteristics of aging immigrant family caregivers.

scholarly journals Family Caregiving and Depression among Older Adults in Japan: A Cross-Sectional Study during the COVID-19 Pandemic

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 809-810
Author(s):  
Taiji Noguchi ◽  
Takahiro Hayashi ◽  
Yuta Kubo ◽  
Naoki Tomiyama ◽  
Akira Ochi ◽  
...  
Keyword(s):  
Mental Health ◽  
Older Adults ◽  
Family Caregivers ◽  
Caregiver Burden ◽  
Family Caregiving ◽  
Family Members ◽  
Cross Sectional Study ◽  
Social Activities ◽  
Sectional Study ◽  
Cross Sectional

Abstract COVID-19 infections are particularly lethal in older adults; thus, social activities of older adults and their families in the community have been restricted. The threat of infection, restrictions on social activities, and limitations on the provision of care services for older adults could increase family caregivers’ burden and impact their mental health. This cross-sectional study examined the association between family caregiving and change in depression during the COVID-19 pandemic. In October 2020, we conducted a mailed questionnaire survey on a random sample of functionally independent community-dwelling older adults in a semi-urban area of Japan. Based on the depression status between March and October 2020, participants were classified into four groups: “consistently non-depressed,” “depression onset,” “recovering from depression,” and “remained depressed.” Participants were assessed for providing care for their family members or not. Caregiver participants were also assessed on their caregiving role (primary or secondary), the severity of their care-recipient’s needs, and an increased caregiver burden. Data from 957 older adults were analyzed. The participants’ mean age (SD) was 80.8 (4.8) years, and 53.5% were female. Multivariable multinomial logistic regression analysis revealed that family caregiving was associated with depression onset (OR=3.17 [95%CI=1.57-6.40], p=0.001) and remaining depressed (2.53 [1.36-4.71], p=0.004). Particularly, primary caregivers, those providing care for family members with severer care need-levels, and those with an increased caregiver burden had a higher risk of depression onset and remaining depressed. Family caregivers could have severe mental health conditions during the pandemic. Developing a support system is essential to protect their mental health.

The effects of a community mental health intervention project upon family caregivers of persons with suspected mental illness in the Chinese cultural context

2017 ◽  
Vol 61 (6) ◽  
pp. 1067-1082 ◽  
Author(s):  
Petrus Ng ◽  
Daniel KW Young ◽  
Jiayan Pan ◽  
King-Keung Law
Keyword(s):  
Mental Health ◽  
Mental Illness ◽  
Community Mental Health ◽  
Family Caregivers ◽  
Family Caregiving ◽  
Cultural Context ◽  
Mental Health Problems ◽  
Family Members ◽  
Health Intervention ◽  
Mental Health Intervention

Family members play an important role in caregiving with more emphasis on early intervention for people suffering from mental illness. Using both quantitative and qualitative methods, this study examines the effects of a community mental health intervention project (CoMHIP) on burdens of caregivers who have family members with suspected mental illness. Results showed that family caregivers’ burden and psychological stress level had been reduced ( p < .001). The caregivers subjectively experienced a significant reduction in stress regarding the caregiving subscales, supervision, tension, worrying and urging after seeking CoMHIP service. Findings for the study have implications on social work interventions regarding family caregiving of people with suspected mental health problems.

Family caregivers and caregiving in dementia

2005 ◽  
Vol 15 (3-4) ◽  
pp. 263-271 ◽  
Author(s):  
LKP Yap ◽  
CCD Seow ◽  
LM Henderson ◽  
YNJ Goh
Keyword(s):  
Family Caregivers ◽  
Family Relationships ◽  
Family Caregiving ◽  
Family Members ◽  
Economic Strain ◽  
Family Carers ◽  
Standard Definition ◽  
Early Stages ◽  
Definition Of

The alarming statistics of dementia are now widely acknowledged. The most recent estimates indicate 24.3 million suffer from this condition worldwide, with a new case being diagnosed every seven seconds. For the person afflicted, it robs him of his identity and, in the opinion of many, even his personhood. For family members, bereavement can begin from the early stages of the disease where a once-treasured relationship is gradually eroded. Family carers remain the main persons providing care, having to face much emotional, practical and economic strain in the process. Although there is no standard definition of family caregiving, it is understood to involve providing extraordinary care, often outside the bounds of what is usual in family relationships. Caregiving typically stretches over a prolonged period and entails significant expenditure of time, energy, finances, and tasks that may be unpleasant, emotionally stressful and physically exhausting.

scholarly journals Support for family members who are caregivers to relatives with acquired brain injury

2021 ◽  
Vol 8 (1) ◽  
pp. 76-85
Author(s):  
Janet Walker ◽  
Lourens Schlebusch ◽  
Bernhard Gaede
Keyword(s):  
Brain Injury ◽  
Suicidal Ideation ◽  
Family Caregivers ◽  
Qualitative Data ◽  
Family Members ◽  
Acquired Brain Injury ◽  
Well Being ◽  
Self Report ◽  
Cross Sectional ◽  
Significance Level

Objectives. Family members caring for a patient with acquired brain injury (ABI) are coping with inordinate levels of stress partially due to their lack of understanding of the neuropsychological effects of acquired brain injury in the patient. The objective of this research is to show that as the caregivers’ stress levels increase, there is an increase in suicidal ideation. This highlights the causal relationship between unhealthy stress and reduced psychological well-being in these caregivers. In addition, qualitative research evidence regarding the caregivers’ views of their main sources of stress are presented. Methods. The participants were a random sample of 80 family caregivers of patients with acquired brain injury, out of whom 72.5% (58) are primary caregivers and 27.5% (22) are secondary caregivers. A mixed methodology was utilized. It comprised cross-sectional descriptive and phenomenological approaches. Quantitative data were obtained from two standardized measures: The Stress Symptom Checklist (SSCL) and item 9 of the Beck Depression Inventory. The qualitative data were derived from self-report procedures that were part of a structured questionnaire administered individually during the interviews. Results. The Kruskal-Wallis test with a significance level of p = .05 was used to compare the stress and suicidal ideation scores, which revealed that increasing levels of stress led to increased suicidality. The analysis of the qualitative data revealed five themes which were identified as the triggers of the caregivers’ profound stress. Most caregivers felt that it was predominantly the patient’s neuropsychological deficits, such as emotions and/or moods, cognitive ability, behavior and personality, executive function, and social factors that caused them profound stress. Conclusions. Support and education are needed to help family caregivers understand the neuropsychological impact of acquired brain injury on the patient. Once caregivers have an improved understanding and receive better support from healthcare providers, they should experience less stress and be better prepared to provide the appropriate support to patients with acquired brain injury.

Sleep in family caregivers of patients admitted to hospice: A pilot study

2013 ◽  
Vol 12 (6) ◽  
pp. 439-444 ◽  
Author(s):  
Anners Lerdal ◽  
Caryl L. Gay ◽  
Elisabeth Saghaug ◽  
Kaare Gautvik ◽  
Ellen Karine Grov ◽  
...  
Keyword(s):  
Pilot Study ◽  
Family Caregivers ◽  
Study Protocol ◽  
Sleep Problems ◽  
Sleep Onset ◽  
Sleep Disruption ◽  
Cross Sectional ◽  
Falling Asleep ◽  
Wrist Actigraphy ◽  
Clinically Significant

AbstractObjectives:Caring for a dying family member is known to interfere with sleep, yet little is known about caregiver sleep once the patient is admitted to hospice. The aim of this pilot study was to describe the sleep of partners and other family caregivers of patients in hospice.Methods:The pilot study used a cross-sectional, descriptive, and comparative design. Participants included the primary family caregivers of patients recently admitted to a hospice in Norway. Caregiver sleep during the prior month was measured with the Pittsburgh Sleep Quality Index (PSQI). During the patient's hospice stay, caregiver sleep was measured using wrist actigraphy for four nights and three days.Results:Twenty family caregivers (12 partners and 8 other relatives) completed the study protocol without difficulty. On the PSQI, most caregivers (n = 13) reported clinically significant sleep problems during the prior month. Once the patient was admitted to hospice, actigraphy indicated that 10 caregivers had clinically significant sleep disruption (≥15% wake after sleep onset) and six averaged <7 hours of sleep per night. Partner caregivers reported more trouble falling asleep, and less sleep medication use, in the prior month than other types of family caregivers. However, once the patient was admitted to hospice, and after adjusting for caregiver age, partner caregivers experienced less sleep disruption than other caregivers.Significance of results:Findings demonstrate feasibility of the study protocol and indicate that sleep problems are common for caregivers of dying patients, even after the patient is admitted to hospice. The caregiver's relationship to the patient may be an important factor to consider in future studies.

scholarly journals Levels of stress and coping strategies in family caregivers who treat schizophrenic patients with risk of violent behavior

2021 ◽  
Vol 10 (s1) ◽  
Author(s):  
Miftahul Janah ◽  
Giur Hargiana
Keyword(s):  
Coping Strategies ◽  
Family Caregivers ◽  
Violent Behavior ◽  
Family Members ◽  
Sampling Technique ◽  
Cross Sectional ◽  
Stress Levels ◽  
Schizophrenic Patients ◽  
And Coping ◽  
The Relationship

Background: Violent behavior is one of the most common symptoms of people who have schizophrenia. Caring for family members who have schizophrenia can be a stressor for other family members. The stressors can be stressful for the caregiver. Family caregivers require coping strategies to overcome the stressors. This study aims to determine the relationship between stress levels and coping strategies of family caregivers who treat schizophrenic patients with a risk of violent behavior.Design and Methods: The research design engaged cross-sectional with the purposive sampling technique by involving 87 caregiver families who who treat schizophrenic patients. The data was collected by using the Perceived Stress Scale (PSS) and Ways of Coping (WOC) questionnaires. This study was analyzed by employing the Chi-Square test to determine the relationship between stress levels and coping strategies in the caregiver family.Results: This study shows that stress levels are not significantly associated with coping strategies in family caregivers.Conclusion: Good supports from health and social service professionals are required to help family caregivers cope with their stressors well.

scholarly journals Caregiving Burden Among Family Members Of People With Mental Illness

2017 ◽  
Vol 4 (1) ◽  
pp. 36-42 ◽  
Author(s):  
A.R. Bhandari ◽  
K. Marahatta ◽  
M. Rana ◽  
S.P. Ojha ◽  
M.P. Regmi
Keyword(s):  
Mental Illness ◽  
Family Caregivers ◽  
Family Members ◽  
Family Intervention ◽  
Cross Sectional Study ◽  
Subjective Burden ◽  
Cross Sectional ◽  
Caregiving Burden ◽  
People With Mental Illness ◽  
Significant Difference

Background: Presence of a person with mental disorder in family is often associated with some objective and subjective burden on family members, especially those who have a caregiving role. The present study aimed to assess the levels of caregiving burden among family members of people with mental illness.Method: This is a descriptive cross-sectional study in a sample of 56 family caregivers of people with mental illness. Sample was selected using purposive sampling method and their caregiving experience was assessed by using Burden Assessment Schedule.Result: Among the 56 caregivers, 48.2 % had moderate level of burden and 32.1% had severe level of burden. Highly significant difference was observed in the distribution of burden according to level of burden but no significant gender difference was found in the distribution of burden in total and in different domains of BAS. Highly significant burden was found among married and spouse caregivers.Conclusion: As moderate to severe level of caregiving burden was reported by the family caregivers, it is recommended that family intervention should focus on strengthening coping behaviors and social support system to manage caregiving stress.

scholarly journals STRENGTHENING FAMILY CAREGIVING THROUGH INNOVATIVE TECHNOLOGY SOLUTIONS

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S439-S439
Author(s):  
David Lindeman ◽  
Katherine K Kim
Keyword(s):  
Older Adults ◽  
Family Caregivers ◽  
Family Caregiving ◽  
Social Engagement ◽  
Falls Prevention ◽  
Innovative Technology ◽  
Just In Time ◽  
User Experience Design ◽  
Time Basis

Abstract Technology has the potential to enhance the repertoire of tools for family caregiving to address the complexities of caring for older adults. There are examples of technology-enabled interventions helping older adults remain independent and safe in their home; easing the financial, physical, and psychological challenges of family caregiving; assisting in the management of chronic illness; improving socialization and support; offering information and resources on a “just in time” basis; and improving the quality of care and quality of life for both older adults and their family caregivers. This session will review eight evidence-based, technology-enabled solutions for family caregivers, including technology solutions that address medication adherence, falls prevention, personal emergency response, remote monitoring, telehealth, dementia tracking, social engagement, and care training. Key drivers for successful application of these interventions (e.g., technology, analytics, user experience design) as well as barriers to scaling (e.g., accessibility, affordability, regulation) will be reviewed.

scholarly journals Health Literacy, Health Behavior and States of Health among Trainee Personnel in Northern Germany

Healthcare ◽  
2021 ◽  
Vol 9 (6) ◽  
pp. 757
Author(s):  
Susanne Steinke ◽  
Peter Koch ◽  
Janna Lietz ◽  
Zita Schillmöller ◽  
Albert Nienhaus
Keyword(s):  
Health Literacy ◽  
Health Behavior ◽  
Vocational Training ◽  
Response Rate ◽  
Medical Condition ◽  
Health And Safety ◽  
Cross Sectional Study ◽  
Northern Germany ◽  
Cross Sectional ◽  
Health Related

(1) Background: The start of vocational education is a challenge for many people whose careers are just beginning. The working conditions exact new physical and mental tolls that can have an impact on their state of health and health behavior. Well-developed health literacy helps to encourage greater self-responsibility with respect to health and safety in the workplace. This study aimed to contribute to the evolution of health-related interventions in vocational training and instruction. (2) Methodology: This cross-sectional study examined health literacy, health behavior, and states of health among trainees engaged in work-and-study vocational training in 11 professions at the start of their education courses in northern Germany. The data were collected using a paper and pencil format. (3) Results: The survey was approved by 47 vocational schools (response rate 14%), with 1797 trainees returning their questionnaires (response rate 36%). The average age of the overall cohort was 21, and 70% of the trainees were female. A total of 47% of the participants began their careers with sufficient health literacy; health literacy was problematic in 40% of cases, and inadequate in 13% of cases. Around 50% of trainees exhibited poor dietary regime and risky alcohol intake, while 58% reported having a medical condition that had been previously formally diagnosed. (4) Conclusion: There is a need to provide support for developing a healthier approach to work at the start of vocational training.

scholarly journals Feeling called to care: a qualitative interview study on normativity in family caregivers’ experiences in Dutch home settings in a palliative care context

2021 ◽  
Vol 20 (1) ◽  
Author(s):  
Maaike M. Haan ◽  
Gert Olthuis ◽  
Jelle L. P. van Gurp
Keyword(s):  
Palliative Care ◽  
Family Caregivers ◽  
Family Caregiving ◽  
Family Members ◽  
Complex Nature ◽  
Theory Approach ◽  
Norms And Values ◽  
Qualitative Interview Study ◽  
The One ◽  
Bereaved Family

Abstract Background Family caregivers, such as partners or other family members, are highly important to people who desire to stay at home in the last phase of their life-limiting disease. Despite the much-investigated challenges of family caregiving for a patient from one’s direct social network, lots of caregivers persevere. To better understand why, we aimed to specify how normative elements – i.e. what is considered good or valuable – shape family caregivers’ experiences in Dutch home settings. Methods From September 2017 to February 2019, a total of 15 family caregivers, 13 bereaved family caregivers, and 9 patients participated in one-time in-depth interviews. The data were qualitatively analyzed following a grounded theory approach. Results Central to this study is the persistent feeling of being called to care. By whom, why, and to what? Family caregivers feel called by the patient, professionals entering normal life, family and friends, or by oneself; because of normative elements of love, duty, or family dynamics; to be constantly available, attentive to the patient while ignoring their own needs, and assertive in managing the caring situation. The prospect of death within the palliative care context intensifies these mechanisms with a sense of urgency. Conclusions Our analysis showed a difference between feeling called upon in the caring situation on the one hand, and how caregivers tend to respond to these calls on the other. Taking into account the inherent normative and complex nature of family caregiving, the pressing feeling of being called cannot – and perhaps should not – simply be resolved. Caring might be something families just find themselves in due to being related. Rather than in feeling called upon per se, the burden of care might lie in the seeming limitlessness to which people feel called, reinforced by (implicit) social expectations. Support, we argue, should enable caregivers to reflect on what norms and values guide their responses while acknowledging that caring, despite being burdensome, can be a highly important and rewarding part of the relationship between partners or family members.

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