scholarly journals Interaction experience for families who lives with their child's disease and hospitalization

2006 ◽  
Vol 14 (6) ◽  
pp. 893-900 ◽  
Author(s):  
Aline Oliveira Silveira ◽  
Margareth Angelo
Keyword(s):  
Clinical Care ◽  
Research Question ◽  
Care Practice ◽  
Pediatric Hospitals ◽  
Analysis Process ◽  
The Family ◽  
Symbolic Meanings ◽  
Care Approach ◽  
Centered Care ◽  
Family Centered

Starting from the research question about the meanings the family attributes to interactions experienced during their child's hospitalization, this study tried to understand the interaction experience of families in pediatric hospitals, as well to identify the interventions considered effective the family's perspective. Symbolic Interactionism was the theoretical framework that supported the data analysis process, and Grounded Theory was the methodological framework. Six families with hospitalized children participated. The results allowed us to identify the phenomena "feeling secure to assume risks" and "feeling insecure to assume risks", representing the symbolic meanings attributed to relational contexts that emerge from interaction between families and health professionals. The identified concepts significantly contribute to achieve a better understanding of the family-centered care approach and provide a way to reflect on interaction and intervention with families in pediatric clinical care practice.

scholarly journals PENDEKATAN FAMILY CENTERED CARE DENGAN KEPUASAN KERJA PERAWAT DI RSUD. H. A. SULTHAN DAENG RADJA

2019 ◽  
Vol 4 (2) ◽  
pp. 83-94
Author(s):  
Endang Nurul Mukmin Bukhari ◽  
Ilhamsyah ◽  
Edison Siringoringo
Keyword(s):  
Job Satisfaction ◽  
Pediatric Patients ◽  
Family Centered Care ◽  
Cross Sectional ◽  
Nurse Job Satisfaction ◽  
The Family ◽  
Care Approach ◽  
Centered Care ◽  
The Rose ◽  
Family Centered

Family Centered Care is family care carried out on an approach to health care. Job satisfaction is the result of employees' perceptions of the extent to which their work can provide an emotional state. Nurse work stress caused by workload can lead to work dissatisfaction with nurses, if viewed from a work environment that makes nurses feel uncomfortable at work, because some of the patient's parents refuse to be invited to cooperate in caring for patients, their parents assume that it is not his job but the work of a nurse. The purpose of this study was to determine the relationship of the Family Centered Care approach in pediatric patients with nurse job satisfaction in the rose care room of RSUD. H. A. Sulthan Daeng Radja of Bulukumba Regency in 2019. The research design used a cross sectional design. The population in this study were all child patient nurses, amounting to 52 people in the rose hospital care room. H. A. Sulthan Daeng Radja of Bulukumba Regency with a sampling technique using purposive sampling, the number of samples in this study were 30 respondents. Data obtained through questionnaire sheets adopted from other researchers for respondents. Data analysis used Fisher's alternative Chi-square test with significance level p = 0.05. The results showed that the implementation of the Family Centered Care approach in pediatric patients was not good as many as 18 respondents (60.0%) and the job satisfaction of nurses was satisfied as many as 16 respondents (53.3%). The results of the analysis using the SPSS application obtained the value of ρ = 0.001. The conclusion is that there is a relationship between the Family Centered Care approach in pediatric patients with nurse job satisfaction in the rose care room of RSUD. H. A. Sulthan Daeng Radja of Bulukumba Regency in 2019. It is hoped that this research can be used as additional knowledge for students in nursing management courses.

Visitation in the Pediatric Intensive Care Unit: Controversy and Compromise

1994 ◽  
Vol 5 (3) ◽  
pp. 289-295 ◽  
Author(s):  
Nancy E. Page ◽  
Nancy M. Boeing
Keyword(s):  
Health Care ◽  
Intensive Care Unit ◽  
Intensive Care ◽  
Pediatric Intensive Care Unit ◽  
Health Care Providers ◽  
Pediatric Intensive Care ◽  
Care Providers ◽  
The Family ◽  
Centered Care ◽  
Family Centered

Much controversy has arisen in the last few decades regarding parental and family visitation in the intensive care setting. The greatest needs of parents while their child is in an intensive care unit include: to be near their child, to receive honest information, and to believe their child is receiving the best care possible. The barriers that exist to the implementation of open visitation mostly are staff attitudes and misconceptions of parental needs. Open visitation has been found in some studies to make the health-care providers’ job easier, decrease parental anxiety, and increase a child’s cooperativeness with procedures. To provide family-centered care in the pediatric intensive care unit, the family must be involved in their child’s care from the day of admission. As health-care providers, the goal is to empower the family to be able to advocate and care for their child throughout and beyond the life crisis of a pediatric intensive care unit admission

scholarly journals Healthcare professionals’ practice and interactions in older peoples’ cross-sectoral clinical care trajectories when acutely hospitalized - a qualitative observation study

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Maiken Hjuler Persson ◽  
Christian Backer Mogensen ◽  
Jens Søndergaard ◽  
Helene Skjøt-Arkil ◽  
Pernille Tanggaard Andersen
Keyword(s):  
Decision Making ◽  
Older People ◽  
New Public Management ◽  
Healthcare Professionals ◽  
Clinical Care ◽  
Research Integrity ◽  
Care Practice ◽  
Observation Study ◽  
Person Centered Care ◽  
Centered Care

Abstract Background Healthcare services have become more complex, globally and nationally. Denmark is renowned for an advanced and robust healthcare system, aiming at a less fragmented structure. However, challenges within the coordination of care remain. Comprehensive restructures based on marketization and efficiency, e.g. New Public Management (NPM) strategies has gained momentum in Denmark including. Simultaneously, changes to healthcare professionals’ identities have affected the relationship between patients and healthcare professionals, and patient involvement in decision-making was acknowledged as a quality- and safety measure. An understanding of a less linear patient pathway can give rise to conflict in the care practice. Social scientists, including Jürgen Habermas, have highlighted the importance of communication, particularly when shared decision-making models were introduced. Healthcare professionals must simultaneously deliver highly effective services and practice person-centered care. Co-morbidities of older people further complicate healthcare professionals’ practice. Aim This study aimed to explore and analyse how healthcare professionals’ interactions and practice influence older peoples’ clinical care trajectory when admitted to an emergency department (ED) and the challenges that emerged. Methods This qualitative study arises from a hermeneutical stand within the interpretative paradigm. Focusing on the healthcare professionals’ interactions and practice we followed the clinical care trajectories of seven older people (aged > 65, receiving daily homecare) acutely hospitalized to the ED. Participant observations were combined with interviews with healthcare professionals involved in the clinical care trajectory. We followed-up with the older person by phone call until four weeks after discharge. The study followed the code of conduct for research integrity and is reported in accordance with the Standards for Reporting Qualitative Research (SRQR) guidelines. Results The analysis revealed four themes: 1)“The end justifies the means – ‘I know what is best for you’”, 2)“Basic needs of care overruled by system effectiveness”, 3)“Treatment as a bargain”, and 4)“Healthcare professionals as solo detectives”. Conclusion Dissonance between system logics and the goal of person-centered care disturb the healthcare practice and service culture negatively affecting the clinical care trajectory. A practice culture embracing better communication and more person-centered care should be enhanced to improve the quality of care in cross-sectoral trajectories.

scholarly journals Use of narrative as an awareness strategy for a Family-Centered Care model

2015 ◽  
Vol 36 (1) ◽  
pp. 98-103 ◽  
Author(s):  
Daniela Doulavince Amador ◽  
Fernanda Ribeiro Baptista Marques ◽  
Adriana Maria Duarte ◽  
Flavia Simphronio Balbino ◽  
Maria Magda Ferreira Gomes Balieiro ◽  
...  
Keyword(s):  
Nursing Students ◽  
Healthcare Professionals ◽  
Qualitative Content Analysis ◽  
Family Centered Care ◽  
Care Model ◽  
Family Narrative ◽  
The Family ◽  
Centered Care ◽  
Analytical Category ◽  
Family Centered

The aim of this study was to comprehend the meaning of using illness narratives to raise awareness among nursing students and healthcare professionals toward the family-centred care model. The adopted methodological framework was Qualitative Content Analysis based on the philosophy of Family-Centered Care. Data were collected by means of assessments provided by 29 participants at an event in 2013, in São Paulo. The resulting analytical category was "transformed by the family narrative", which consisted of three sub-categories: Favours a better understanding of the family's experience; facilitates learning of family issues; and triggers thought on family-centered care. Results showed that hearing the family narrative on experiences with illness and hospitalization raises awareness among nursing students and healthcare professionals toward the family-centered care model, and facilitates learning of this model of care.

Family-Centered Care: Practice and Preparation

2006 ◽  
Vol 87 (1) ◽  
pp. 17-25 ◽  
Author(s):  
Martha Craft-Rosenberg ◽  
Patricia Kelley ◽  
Leslie Schnoll
Keyword(s):  
Care Practice ◽  
Family Centered Care ◽  
Centered Care ◽  
Family Centered

Best Practice for Family-Centered Health Care

2017 ◽  
Author(s):  
Joanna Sturhahn Stratton ◽  
Katherine Buck ◽  
Allison M. Heru
Keyword(s):  
Health Care ◽  
Family Involvement ◽  
Best Practice ◽  
Model Of Care ◽  
Patient Centered ◽  
Step Model ◽  
Essential Components ◽  
The Family ◽  
Centered Care ◽  
Family Centered

The patient-centered medical home is a strong model of care that can be improved by harnessing the power of the patient’s family. This chapter highlights a three-step model of family involvement in patient care: (1) family inclusion, (2) family education and support, and (3) family systems therapy. The model is grounded in evidence-based research and incorporates the essential components of integrated care. A clinical case example illustrates how to involve the family in a stepwise progression. This model of family-centered care is applicable in any health care setting.

Family Care before and after Bereavement

2008 ◽  
Vol 56 (1) ◽  
pp. 21-32 ◽  
Author(s):  
David Kissane ◽  
Wendy G. Lichtenthal ◽  
Talia Zaider
Keyword(s):  
Hospice Care ◽  
Controlled Trial ◽  
Family Care ◽  
Model Of Care ◽  
The Family ◽  
Before And After ◽  
Centered Care ◽  
Therapy Model ◽  
Family Centered

Distress reverberates throughout the family during palliative care and bereavement, inviting consideration of a family-centered model of care. Targeting families thought to be “at risk” has merit. The Family Focused Grief Therapy model was tested in a randomized controlled trial of 81 families (353 individuals) and bereavement outcome is reported here for treatment completers compared to controls. There were no significant baseline differences between treatment completers and non-completers. Significant reduction in distress occurred at 13 months post death for the families completing treatment, with further improvements for the 10% of individuals most distressed at baseline. A preventive model of family-centered care applied to those at greatest risk is meritorious and in keeping with the aspirations of Cicely Saunders for improving the quality of hospice care.

scholarly journals Myotonic Dystrophy and Huntington’s Disease Care: “We Like to Think We’re Making a Difference”

2016 ◽  
Vol 43 (5) ◽  
pp. 678-686 ◽  
Author(s):  
Kori A. LaDonna ◽  
Christopher J. Watling ◽  
Susan L. Ray ◽  
Christine Piechowicz ◽  
Shannon L. Venance
Keyword(s):  
Huntington's Disease ◽  
Huntington’S Disease ◽  
Myotonic Dystrophy ◽  
Clinical Care ◽  
Patient Centered Care ◽  
Care Provision ◽  
Patient Centered ◽  
Making A Difference ◽  
Care Approach ◽  
Centered Care

AbstractBackground: Patient-centered care for individuals with myotonic dystrophy (DM1) and Huntington’s disease (HD)—chronic, progressive, and life-limiting neurological conditions—may be challenged by patients’ cognitive and behavioral impairments. However, no research has explored health care providers’ (HCPs’) perspectives about patient-centered care provision for these patients along their disease trajectory. Methods: Constructivist grounded theory informed the iterative data collection and analysis process. Eleven DM1 or HD HCPs participated in semistructured interviews, and three stages of coding were used to analyze their interview transcripts. Codes were collapsed into themes and categories.Results: Three categories including an evolving care approach, fluid roles, and making a difference were identified. Participants described that their clinical care approach evolved depending on the patient’s disease stage and caregivers’ degree of involvement. HCPs described that their main goal was to provide hope to patients and caregivers through medical management, crisis prevention, support, and advocacy. Despite the lack of curative treatments, HCPs perceived that patients benefited from ongoing clinical care provided by proactive clinicians. Conclusions: Providing care for individuals with DM1 and HD is a balancing act. HCPs must strike a balance between (1) the frustrations and rewards of patient-centered care provision, (2) addressing symptoms and preventing and managing crises while focusing on patients’ and caregivers’ quality of life concerns, and (3) advocating for patients while addressing caregivers’ needs. This raises important questions: Is patient-centered care possible for patients with cognitive decline? Does chronic neurological care need to evolve to better address patients’ and caregivers’ complex needs?

Are Oncologists Accountable Only to Patients or Also to Their Families? An International Perspective

2012 ◽  
pp. e15-e19 ◽  
Author(s):  
Antonella Surbone ◽  
Lea Baider
Keyword(s):  
International Perspective ◽  
Life And Death ◽  
Family Culture ◽  
Care Recipients ◽  
Perceptions And Attitudes ◽  
The Family ◽  
Values And Beliefs ◽  
Care Approach ◽  
Centered Care ◽  
Contemporary Practice

Overview: In most societies, health professionals traditionally carry responsibility only toward their patients. However, this is not the case in all cultures. In the contemporary practice of oncology in Western cultures, there is a shift toward assuming broader responsibility for patients with cancer' families during the illness course, the grieving stage, and in cancer prevention and genetic counseling. Traditional family, community, and religious values play a central role in determining people's perceptions and attitudes toward life and death as well as toward caregiving for a sick relative. The meaning of cancer illness within the family culture is thus influenced not only by each individual's values and beliefs but also by the family's makeup and dynamics, as well as their taboos and secrets. Global cancer care should therefore be directed at the family as a unit, while respecting patient autonomy and privacy. This reappraisal of our traditional understanding of physicians' duty as solely directed at the patient is reflected in the recent US trend toward a patient- and family-centered care approach. An additional challenge for oncology professionals is to integrate and tailor interventions toward the needs of both care recipients and caregivers and relate it to this dyad as the basic and enduring unit of care.

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