Best Practice for Family-Centered Health Care

2017 ◽  
Author(s):  
Joanna Sturhahn Stratton ◽  
Katherine Buck ◽  
Allison M. Heru
Keyword(s):  
Health Care ◽  
Family Involvement ◽  
Best Practice ◽  
Model Of Care ◽  
Patient Centered ◽  
Step Model ◽  
Essential Components ◽  
The Family ◽  
Centered Care ◽  
Family Centered

The patient-centered medical home is a strong model of care that can be improved by harnessing the power of the patient’s family. This chapter highlights a three-step model of family involvement in patient care: (1) family inclusion, (2) family education and support, and (3) family systems therapy. The model is grounded in evidence-based research and incorporates the essential components of integrated care. A clinical case example illustrates how to involve the family in a stepwise progression. This model of family-centered care is applicable in any health care setting.

Visitation in the Pediatric Intensive Care Unit: Controversy and Compromise

1994 ◽  
Vol 5 (3) ◽  
pp. 289-295 ◽  
Author(s):  
Nancy E. Page ◽  
Nancy M. Boeing
Keyword(s):  
Health Care ◽  
Intensive Care Unit ◽  
Intensive Care ◽  
Pediatric Intensive Care Unit ◽  
Health Care Providers ◽  
Pediatric Intensive Care ◽  
Care Providers ◽  
The Family ◽  
Centered Care ◽  
Family Centered

Much controversy has arisen in the last few decades regarding parental and family visitation in the intensive care setting. The greatest needs of parents while their child is in an intensive care unit include: to be near their child, to receive honest information, and to believe their child is receiving the best care possible. The barriers that exist to the implementation of open visitation mostly are staff attitudes and misconceptions of parental needs. Open visitation has been found in some studies to make the health-care providers’ job easier, decrease parental anxiety, and increase a child’s cooperativeness with procedures. To provide family-centered care in the pediatric intensive care unit, the family must be involved in their child’s care from the day of admission. As health-care providers, the goal is to empower the family to be able to advocate and care for their child throughout and beyond the life crisis of a pediatric intensive care unit admission

Family Care before and after Bereavement

2008 ◽  
Vol 56 (1) ◽  
pp. 21-32 ◽  
Author(s):  
David Kissane ◽  
Wendy G. Lichtenthal ◽  
Talia Zaider
Keyword(s):  
Hospice Care ◽  
Controlled Trial ◽  
Family Care ◽  
Model Of Care ◽  
The Family ◽  
Before And After ◽  
Centered Care ◽  
Therapy Model ◽  
Family Centered

Distress reverberates throughout the family during palliative care and bereavement, inviting consideration of a family-centered model of care. Targeting families thought to be “at risk” has merit. The Family Focused Grief Therapy model was tested in a randomized controlled trial of 81 families (353 individuals) and bereavement outcome is reported here for treatment completers compared to controls. There were no significant baseline differences between treatment completers and non-completers. Significant reduction in distress occurred at 13 months post death for the families completing treatment, with further improvements for the 10% of individuals most distressed at baseline. A preventive model of family-centered care applied to those at greatest risk is meritorious and in keeping with the aspirations of Cicely Saunders for improving the quality of hospice care.

scholarly journals The Relationship Between Parents' Perceptions of Family-Centered Care and Their Health Care Satisfaction

2021 ◽  
Vol 10 (3) ◽  
pp. 125-134
Author(s):  
Ismail Cetintas ◽  
Melahat Akgun Kostak ◽  
Remziye Semerci ◽  
Esra Nur Kocaaslan
Keyword(s):  
Health Care ◽  
Family Centered Care ◽  
Satisfaction Scale ◽  
Health Care Satisfaction ◽  
The Family ◽  
Scale Scores ◽  
Centered Care ◽  
Care Satisfaction ◽  
The Relationship ◽  
Family Centered

Aim: This study was conducted to determine the relationship between the perceptions of parents whose children are hospitalized about family-centered care provided in the hospital and their health care satisfaction and the factors affecting them. Methods: This descriptive study was conducted with parents (n=169) of children who were hospitalized in a university hospital in Turkey between May and July 2019. Data were collected with "Child and Family Information Form", "Family-Centered Care Scale" and "PedsQL Health Care Satisfaction Scale". Data were analyzed with descriptive statistics, Mann Whitney U, and Spearman correlation tests. Results: The mean age of the children was 6.86±5.63, 51.5% were male, 56.2% were hospitalized before and 88.2% of parents received information about the care and treatment of their children. There was a positive correlation between the parents’ Family-Centered Care Scale and PedsQL Health Care Satisfaction Scale scores and between the age of the children and age of the mother and the PedsQL Health Care Satisfaction Scale scores, the number of children and Family-Centered Care Scale scores of parents. A statistically significant difference was found between the child's previous hospitalization and median scores of the Family-Centered Care Scale, and between whether parents receive information about the care and treatment of their children and the median scores of the PedsQL Health Care Satisfaction Scale. Conclusion: In this study, as the family-centered care that parents expect was met, their health care satisfaction increased. As the age of children and mothers increased, parents' health care satisfaction increased. Health care satisfaction of parents who received information about treatment and care was found higher. Keywords: family-centered care, patient satisfaction, child, parents

The Dying Patient in the Intensive Care Unit: Assisting the Family in Crisis

1993 ◽  
Vol 4 (3) ◽  
pp. 550-557
Author(s):  
Brian E. Mendyka
Keyword(s):  
Practical Experience ◽  
Positive Outcomes ◽  
Patient Centered ◽  
The Core ◽  
Clinical Events ◽  
The Family ◽  
Centered Care ◽  
Family Centered ◽  
Dying Patient

Critically ill patients belong to larger phenomenologic systems, their families. What affects one member affects other system members. Nursing care requires meticulous observation and assessment of family concerns, understanding of clinical events, and practical experience to achieve positive outcomes even if a death occurs. It seems easy to dismiss the family from the clinical and technical matters of the critical care unit, especially when much nursing energy goes into operating peripheral machinery, performing tasks, and pursuing ever-changing patient-centered goals. The following case study attempts to redefine and redirect the focus of what “patient-centered” means to include the nurse, the patient, and the family in the meaning of the core of family-centered care

scholarly journals The Family and Safety of the Hospitalized Patient: An Integrative Literature Review

2020 ◽  
pp. 1-12
Author(s):  
Tânia Sofia Pereira Correia ◽  
Maria Manuela Ferreira Pereira da Silva Martins ◽  
Fernando Fausto Margalho Barroso
Keyword(s):  
Health Care ◽  
Literature Review ◽  
Health Professionals ◽  
Current Data ◽  
Hospitalized Patients ◽  
Care Process ◽  
Patient Centered ◽  
The Family ◽  
Centered Care ◽  
Hospitalized Patient

<b><i>Framework:</i></b> Considering that the current data on health care safety remain alarming, there is an overwhelming urge for the ongoing study of this topic and for recommendations and differentiated strategies which aim to promote health and which prove effective. Some recommendations have been taken into consideration, such as patient-centered care, and consequently the need for greater involvement of patient and family in this process. However, we have identified arguments for and against the involvement of family in the care process, and consequently a greater or lesser openness towards hospital visits. <b><i>Objective:</i></b> What are the implications of the presence of family for the safety of hospitalized patients? What does the science say about these implications? <b><i>Methods:</i></b> We conducted an integrative literature review by referring to the Web of Science, CINAHL, Medline, and Scopus databases, according to the recommendations of the Joanna Briggs Institute for scoping review. <b><i>Results:</i></b> We found 115 articles. After selection, 13 articles were included in this review. There were 6 qualitative studies, 5 quantitative studies, and 2 literature reviews. Data were grouped according to: the perspective of patients and their families, the health professionals’ perspective, and statistical evidence. <b><i>Conclusion:</i></b> Families take efforts to protect the safety of hospitalized patients but feel unprepared; a lack of follow-up was reported. Some health professionals claim that the presence of the family can increase the risks for patient safety and the fear of an increased workload. The evidence of the presence of the family and its link to the safety of the hospitalized patient demonstrated that this relationship is not yet well understood. There were limited findings about this in the current literature. <b><i>Relevance to Clinical Practice:</i></b> Structured interventions about family integration in ensuring the safety of hospitalized patients may have the potential to contribute to the safety of health care.

scholarly journals The Experienced of Nurses and Family Caregivers towards Family Center Care among Hospitalize Children

2019 ◽  
Author(s):  
Eva Supriatin ◽  
Joshua Pangestu
Keyword(s):  
Family Involvement ◽  
Nursing Care ◽  
Family Centered Care ◽  
Snowball Sampling ◽  
Research Subjects ◽  
The Family ◽  
Center Care ◽  
Centered Care ◽  
Family Center ◽  
Family Centered

Background: Family Center Care (FCC) is an approach to nursing care based on a mutually beneficial partnership between the patient and family. Objective: This study aimed to describe the experience of the nurse and the family in nursing care support: Family-Centered Care in hospitalized children. Method: This research was a qualitative descriptive-analytic study, with key informants and snowball sampling techniques through inclusion obtained research subjects 3 nurses and 3 families, data analysis techniques using an interactive model that includes reduction, data display and conclusions ketch. Results: the result of this study showed six themes, namely: determinants of family support,efforts of nurses to achieve treatment goals, supporting factors for family involvement,family experience in the hospital,family dependence and family trust. In family-centered patient care, patients and families determine how they willparticipateincareanddecisionmaking.FCCasastandardofpracticecanproduce high-quality services. The FCC provides care based on mutual trust, collaboration or partnerships that work together with families by paying attention to aspects (bio, psycho, socio, and spiritual) respecting diversity and recognizing the family is a source in children’s lives. Conclusion: Provides an illustration that the themes in the research results prove family-centered care is realized through mutually beneficial cooperation through partnerships between nurses and patients.

For Shawnee: Keeping the Student (and Family) Front and Center

2017 ◽  
Vol 33 (1) ◽  
pp. 48-51
Author(s):  
Erin D. Maughan ◽  
Mayumi Willgerodt
Keyword(s):  
Health Care ◽  
Health Care Reform ◽  
School Nurse ◽  
Patient Centered Care ◽  
School Nurses ◽  
Patient Centered ◽  
Student Centered ◽  
Nurse Workload ◽  
Centered Care ◽  
Family Centered

Patient-centered care is a buzzword heard often as part of health care reform efforts. For school nurses patient-centered care means student- and family-centered care. Student-centered care can improve student compliance and actually decrease school nurse workload. This article explains what student-centered means and provides examples of how school nurses can provide student and families-centered care in their communities. Approaches that center on individual students, as well as community cafes will be included.

scholarly journals Developing a Family-Centered Care Model in the Neonatal Intensive Care Unit (NICU): A New Vision to Manage Healthcare

2020 ◽  
Vol 17 (19) ◽  
pp. 7197 ◽  
Author(s):  
Sagrario Gómez-Cantarino ◽  
Inmaculada García-Valdivieso ◽  
Eva Moncunill-Martínez ◽  
Benito Yáñez-Araque ◽  
M. Idoia Ugarte Gurrutxaga
Keyword(s):  
Health Care ◽  
Intensive Care ◽  
Neonatal Intensive Care ◽  
Current Knowledge ◽  
Neonatal Intensive Care Units ◽  
Family Centered Care ◽  
The Family ◽  
Centered Care ◽  
New Vision ◽  
Family Centered

Family-centered care (FCC) currently takes a greater role in health care, due to the increasing empowerment parents experience. Within neonatal intensive care units (NICUs), family participation has an impact on the humanized care of the preterm newborn (PN). This integrative review conducted according to Whittemore and Knafl investigated current knowledge of the FCC model and its application in PN care in specific units. The data were collected from PubMed, Cochrane, CINHAL, Scopus, and Google Scholar. A total of 45 articles were used, of which 13 were selected which met inclusion criteria. Their methodological quality was evaluated using the mixed method appraisal tool (MMAT), and after they were analyzed and grouped into four thematic blocks: (1) parental participation; (2) health parental training; (3) benefits of family empowerment; and (4) humanized care. The results revealed that FCCs promote the integration of health equipment and family. In addition, parents become the primary caregivers. The benefits of the family–PN binomial enable an earlier hospital discharge. Humanized care involves an ethical approach, improving health care. Changes are still needed by health managers to adapt health services to the needs of the family and PNs.

Dark and Bright—Two Sides of Family-Centered Care in the NICU: A Qualitative Study

2018 ◽  
Vol 28 (7) ◽  
pp. 869-885 ◽  
Author(s):  
Jila Mirlashari ◽  
Sousan Valizadeh ◽  
Elham Navab ◽  
Jenene W. Craig ◽  
Fatemeh Ghorbani
Keyword(s):  
Family Involvement ◽  
Neonatal Intensive Care ◽  
Phenomenological Study ◽  
Multiple Roles ◽  
Family Centered Care ◽  
The Family ◽  
Centered Care ◽  
Nurses Perceptions ◽  
Two Sides ◽  
Family Centered

Nurses in the Neonatal Intensive Care Unit (NICU) have an important role in implementing family-centered care (FCC). The aim of the study was to explore the lived experiences of NICU nurses on implementing FCC. An interpretative phenomenological study was conducted and 11 employed nurses were interviewed from April 2015 to February 2016. The data were analyzed through the Diekelmann, Allen, and Tanner approach. Four main themes of “strain to achieve stability,” “bewildered by taking multiple roles,” “accepting the family,” and “reaching bright horizon” were extracted. This study provided deeper understanding about nurses’ perceptions of FCC implementation. In Muslim developing countries, FCC implementation is challenging and nurses are under extra pressure because of a shortage in nursing workforce; however, having positive experiences with family participation and valuing theism beliefs allowed them to support family involvement. Support of nurses to take FCC strategies in the NICU is needed by officials overseeing the health care system.

scholarly journals STUDI EKSPLORASI PERAWATAN BERPUSAT PADA KELUARGA DI RUANG PERISTI RSUD KEBUMEN

2015 ◽  
Vol 11 (3) ◽  
Author(s):  
N Nurlaila ◽  
Mei Neni Sitaresmi ◽  
Lely Lusmilasari
Keyword(s):  
High Risk ◽  
Family Involvement ◽  
Health Professionals ◽  
Health Workers ◽  
Family Centered Care ◽  
Purposive Sampling ◽  
The Family ◽  
Centered Care ◽  
High Risk Infants ◽  
Family Centered

The involvement of the family for baby care in the NICU can be done through family-centered care. Hal ini penting untuk membantu bayi risiko tinggi beradaptasi dengan lingkungan ekstrauterin. It is essential to help high-risk infants adapt to the extrauterine environment. Manfaat perawatan berpusat pada keluarga di NICU banyak ditemukan namun penerapannya di pelayanan kesehatan Indonesia masih terbatas. The benefits of family-centered care in the NICU are found but its application in Indonesia is still limited health services. Penelitian sebelumnya mengungkapkan salah satu tantangan penerapan perawatan berpusat apda keluarga adalah perbedaan persepsi tenaga kesehatan dan keluarga tentang perawatan berpusat pada keluarga. Previous studies revealed that one of the challenges of the implementation of family-centered care are differences in perception of health workers and families.Tujuan: Untuk mengeksplorasi persepsi tenaga kesehatan dan keluarga mengenai perawatan berpusat pada keluarga dalam perawatan bayi risiko tinggi di RSUD Kebumen.tHtThis study is to explore the perceptions of health professionals and families on family-centered care in the treatment of high-risk infants in hospitals Kebumen. Metode: Penelitian dilakukan di ruang PERISTI RSUD Kebumen selama periode Juli 2014-Agustus 2014 menggunakan desain penelitian kualitatif dengan pendekatan fenomenoloThe study was conducted at room PERISTI Kebumen Hospital during the period July 2014-August 2014 using a qualitative research design with a phenomenological approach. Partisipan penelitian adalah 6 perawat, 6 keluarga bayi dan 2 orang dokter spesialis anak yang dipilih dengan tehnik purposive sampling. Metode pengumpulan data menggunakan tekhnik wawancara mendalam, observasi dan studi dokumentasi. Study participants were 6 nurses, 6 families, and 2 pediatricians selected by purposive sampling technique. Methods of data collection techniques using in-depth interviews, observation and documentation. Analisis data yang dilakukan dalam penelitian ini menggunakan teori Coallizi. Data analysis was performed in this study using the theory Coallizi with OpenCode 3.6.2.0 version software.The result show that  Perceptions of health workers on family-centered care is care that involves families. Keluarga memiliki persepsi bahwa keterlibatan keluarga dalam perawatan bayi bermanfaat bagi bayi, keluarga, dan tenaga kesehatan. Health workers and families have the perception that family involvement in infant care beneficial for babies, families, and health professionals. Implementasi perawatan berpusat pada keluarga meliputi keterlibatan keluarga dalam perawatan bayi, pemberian informasi, dan persetujuan tindakan. Implementation of family-centered care includes family involvement in infant care, provision of information, and approval actions. Dukungan dalam perawatan bayi berasal dari rumah sakit, tenaga kesehatan, dan keluarga. Barriers to implementation of family-centered care is the unavailability of the family waiting room. Support comes in baby care from hospitals, health professionals, and families. Keywords: family-centered care, high-risk infants

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