scholarly journals A Qualitative Research on Sport and Education for The Disabled from The Perspective of Sports Managers and Trainers

2021 ◽  
Vol 4 (3) ◽  
pp. 49-73
Author(s):  
Uğur Sönmezoğlu ◽  
Alime Tosun ◽  
Kadir Yildiz
Keyword(s):  
Quality Of Life ◽  
Male Volunteer ◽  
Analysis Method ◽  
Validity And Reliability ◽  
Interview Method ◽  
Self Confidence ◽  
Content Analysis Method ◽  
The Disabled ◽  
Sports Activities

The purpose of this research is the analysis of sports activities for the disabled from the perspec-tive of sports managers and trainers. In this study, a phenomenology pattern was used with a qual-itative researchmethod.An interview method was used in data collection. The research group con-sisted of 10 (female, male) volunteer participants. For the validity and reliability of the study, the findings of two independent researchers were compared and confirmed. For the reliability of the research, the researchers defined the method and stages of the research clearly and in detail. A content analysis method was used to analyse the data. In the study, it was noticed that the partic-ipants chose sport for the disabled for such reasons as socializing of the disabled, providing the disabled with self-confidence, contributing to their development. The participants pointed out that the disabled are open to change and improvement and at the same time they are sensitive. Moreover, the participants underlined that sport increases the quality of life, socialization, and self-confidence of the disabled. However, it can be stated that the disabled face problems such as lack of facilities and transportation, employment, attitude offamily and com-munity, etc. Finally, the research revealed that studies discussing cooperation with universities, inclusion of sports disciplines in federations, establishment of substructure, education for the disa-bled, etc. should be carried out for the development of sport for the disabled.

scholarly journals Mothers of children with Tourette’s syndrome

2018 ◽  
pp. 171-199
Author(s):  
Rita Khoury
Keyword(s):  
Quality Of Life ◽  
Content Analysis ◽  
Accurate Diagnosis ◽  
Accurate Information ◽  
Analysis Method ◽  
Content Analysis Method ◽  
The Family ◽  
Research Findings ◽  
Great Stress

The purpose of this study was to gather data from the mothers of children with Tourette Syndrome (TS), in order to examine the extent to which the existence of a child with TS in the family affected mothers’ Quality of Life (QOL). The research was conducted according to the qualitative methods. Data was collected from semistructures interviews with 50 mothers of children with TS. The interviews were analyzed using a content analysis method. Conclusions derived from the research findings found that lack of accurate diagnosis and information leaded mothers to a state of imbalance and great stress. When they were given accurate information, they seemed to be more able to advocate for the child with TS and thus preventmisunderstandings, and consequent unpleasant situations and confusion.

scholarly journals Translation and Cross-Cultural Adaptation of Quality of Life Scale in Patients with Onychomycosis

2021 ◽  
Vol 18 (11) ◽  
pp. 5793
Author(s):  
Vasco Silva-Neves ◽  
Ana Caramelo ◽  
Paulo Alves ◽  
Carla Pais-Vieira ◽  
Alexandra Palmer Minton ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Test Validity ◽  
Expert Committee ◽  
Life Questionnaire ◽  
Validity And Reliability ◽  
Semantic Equivalence ◽  
Quality Of Life Questionnaire ◽  
Self Confidence ◽  
Quality Of Life Scale

(1) Background: Onychomycosis (OM) is a fungal nail infection, considered a risk factor for diabetic foot ulcers. It is associated with changes in quality of life, in terms of pain, self-confidence and self-esteem. The aim was to translate and adapt the OM quality of life questionnaire “OnyCOE-tTM–Quality Of Life Questionnaire Onychomycosis (Nail Fungal Condition)”. (2) Methods: This study followed the guidelines proposed by Beaton et al. (2000), where two English to Portuguese translations were performed and, after an expert consensus, a common version was obtained. This was followed by two back-translations. The expert committee achieved semantic equivalence, idioms and concepts. The pre-test was applied to 49 people. The final version and processed data were sent to the authors. (3) Results: We adapted terms semantically, modified statements syntactically, altering items from interrogative to affirmative. (4) Conclusions: The translated version of the “Quality of life–Onychomycosis” questionnaire suggested that it can be used for further studies to test validity and reliability in this population.

Validity and reliability of the French version of the Pediatric Quality of Life Inventory™ brain tumor module

2021 ◽  
Author(s):  
Maxime Caru ◽  
Sébastien Perreault ◽  
Ariane Levesque ◽  
Serge Sultan ◽  
Leandra Desjardins ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Brain Tumor ◽  
Validity And Reliability ◽  
French Version ◽  
Quality Of Life Inventory ◽  
Life Inventory

scholarly journals Validity and reliability testing of the Toddler and Infant (TANDI) Health Related Quality of Life instrument for very young children

2020 ◽  
Vol 4 (1) ◽  
Author(s):  
Janine Verstraete ◽  
Lebogang Ramma ◽  
Jennifer Jelsma
Keyword(s):  
Quality Of Life ◽  
Health Related Quality ◽  
Validity And Reliability ◽  
Spearman's Rho ◽  
Spearman’S Rho ◽  
Related Quality ◽  
Health Related ◽  
Six Dimensions ◽  
The Impact

Abstract Background Despite the high burden of disease in younger children there are few tools specifically designed to estimate Health Related Quality of Life (HRQoL) in children younger than 3 years of age. A previous paper described the process of identifying a pool of items which might be suitable for measuring HRQoL of children aged 0–3 years. The current paper describes how the items were pruned and the final draft of the measure, Toddler and Infant (TANDI) Health Related Quality of Life, was tested for validity and reliability. Methods A sample of 187 caregivers of children 1–36 months of age were recruited which included children who were either acutely ill (AI), chronically ill (CI) or from the general school going population (GP). The TANDI, an experimental version of the EQ-5D-Y proxy, included six dimensions with three levels of report and general health measured on a Visual Analogue Scale (VAS) from 0 to 100. The content validity had been established during the development of the instrument. The TANDI, Ages and Stages Questionnaire (ASQ), Faces, Leg, Activity, Cry, Consolabilty (FLACC) or Neonatal Infant Pain Scale (NIPS) and a self-designed dietary information questionnaire were administered at baseline. The TANDI was administered 1 week later in GP children to establish test-retest reliability. The distribution of dimension scores, Cronbach’s alpha, rotated varimax factor analysis, Spearman’s Rho Correlation, the intraclass correlation coefficient, Pearson’s correlation, analysis of variance and regression analysis were used to explore the reliability, and validity of the TANDI. Results Concurrent validity of the different dimensions was tested between the TANDI and other instruments. The Spearman’s Rho coefficients were significant and moderate to strong for dimensions of activity and participation and significant and weak for items of body functions. Known groups were compared and children with acute illness had the lowest ranked VAS (median 60, range 0–100), indicating worse HRQoL. The six dimensions of the TANDI were tested for internal consistency and reliability and the Cronbach’s α as 0.83. Test-retest results showed no variance for dimension scores of movement and play, and high agreement for pain (83%), relationships (87%), communication (83%) and eating (74%). The scores were highly correlated for the VAS (ICC = 0.76; p < 0.001). Conclusion The TANDI was found to be valid and reliable for use with children aged 1–36 months in South Africa. It is recommended that the TANDI be included in future research to further investigate HRQoL and the impact of interventions in this vulnerable age group. It is further recommended that future testing be done to assess the feasibility, clinical utility, and cross-cultural validity of the measure and to include international input in further development.

Dysphagia: implications for older people

2013 ◽  
Vol 24 (1) ◽  
pp. 41-57 ◽  
Author(s):  
N Miller ◽  
J Patterson
Keyword(s):  
Quality Of Life ◽  
Health Economic ◽  
Older People ◽  
Legal Issues ◽  
Validity And Reliability ◽  
Future Developments ◽  
Ongoing Work ◽  
Recent Developments ◽  
Management Of Dysphagia

SummaryDysphagia represents a salient concern in many conditions prevalent in older people. There are direct implications for morbidity and mortality. The importance of recognizing and managing dysphagia in hospital and the community also extends to psychosocial impact and quality of life, as well as health, economic and ethical-legal issues. This review outlines reasons for the importance of recognizing and treating dysphagia. It then proceeds to look at recent developments in our understanding of the nature, assessment and management of dysphagia in older people. Whilst there are well-established practices in assessment and management, ongoing work continues to challenge the validity and reliability of many methods. These concerns are covered and directions for future developments highlighted.

Validity and reliability of the Portuguese–Brazilian version of the Quality of Life in Epilepsy Inventory–89

2009 ◽  
Vol 14 (3) ◽  
pp. 465-471 ◽  
Author(s):  
Auro Mauro Azevedo ◽  
Neide Barreira Alonso ◽  
Marcos Vidal-Dourado ◽  
Maria Helena da Silva Noffs ◽  
Tatiana Frascarelli Pascalicchio ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Validity And Reliability ◽  
Brazilian Version

“I Would Like to Have a Normal Brother but I’m Happy With the Brother That I Have”: A Pilot Study About Intellectual Disabilities and Family Quality of Life From the Perspective of Siblings

2021 ◽  
pp. 0192513X2110428
Author(s):  
Raquel A. Correia ◽  
Maria João Seabra-Santos
Keyword(s):  
Quality Of Life ◽  
Pilot Study ◽  
Intellectual Disabilities ◽  
Family Relationships ◽  
Leisure Activities ◽  
Well Being ◽  
Family Quality Of Life ◽  
Adult Sibling ◽  
The Disabled

The relationships between siblings are the most long-lasting in families. When one of the siblings is a person with intellectual disabilities (ID), this relationship assumes an even more important role since this brother/sister will most likely become the disabled individual’s main caregiver. This pilot study had two aims: to explore the experience as an adolescent or adult sibling of a person with ID and to understand the perceptions of these siblings about quality of life as a sibling and about family quality of life. In-depth interviews were conducted with six siblings. The results showed that the experience of a sibling is positive and the acceptance process is of extreme importance. The domains which, from the sibling perspective, contribute to family quality of life are as follows: Family relationships, Acceptance, Health, Influence of values, Financial well-being, Support from others, and Leisure activities. The implications of these findings for intervention are pointed out.

Trends in Hidradenitis Suppurativa Disease Severity and Quality of Life Outcome Measures: A Systematic Review (Preprint)

2021 ◽  
Author(s):  
Jalal Maghfour ◽  
Torunn Elise Sivesind ◽  
Cory A. Dunnick ◽  
Robert Paul Dellavalle
Keyword(s):  
Quality Of Life ◽  
Systematic Review ◽  
Disease Severity ◽  
Outcome Measures ◽  
Hidradenitis Suppurativa ◽  
Life Quality ◽  
Clinical Score ◽  
Validity And Reliability ◽  
Patient Reported

BACKGROUND While there has been an increase in the number of randomized, controlled trials (RCTs) evaluating treatment efficacy for HS, instrument measurements of disease severity and quality of life (QoL) are varied, making compilation of data and comparison between studies a challenge for clinicians. OBJECTIVE The aim of this review is to evaluate trends in disease severity scales and patient reported outcome measures used in RCTs assessing treatment interventions among HS patients. METHODS A primary systematic literature review was conducted in August 2020. PubMed/MEDLINE, Embase, Web of Science, and Cochrane databases were used to identify all articles published from January 1964 to July 2020. The study was prospectively registered with PROSPERO (ID: 209582). Twenty-five articles were included in the systematic review. RESULTS Sartorius and modified Sartorius scores (n=8), and Hidradenitis Suppurativa Clinical score (HiSCs) (n=8) were the most commonly used instruments for disease severity. Participants’ pain, followed by Dermatology Life Quality Index (DLQI), were the most common QoL measures used in the reviewed studies. CONCLUSIONS Heterogeneity of data characterizing both the validity and reliability of existing outcome measures hinders interpretation and translation of the results from RCTs into clinical practice. Many of the QoL measures identified were not specific to HS and may not be representative of all factors impacting patients.

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