scholarly journals On the State of Social Media Data for Mental Health Research

2021 ◽  
Author(s):  
Keith Harrigian ◽  
Carlos Aguirre ◽  
Mark Dredze
Keyword(s):  
Mental Health ◽  
Social Media ◽  
Health Research ◽  
Mental Health Research ◽  
The State ◽  
Social Media Data ◽  
Media Data

scholarly journals Mining Social Media Data for Biomedical Signals and Health-Related Behavior

2020 ◽  
Vol 3 (1) ◽  
pp. 433-458 ◽  
Author(s):  
Rion Brattig Correia ◽  
Ian B. Wood ◽  
Johan Bollen ◽  
Luis M. Rocha
Keyword(s):  
Mental Health ◽  
Social Media ◽  
Population Level ◽  
Data Access ◽  
Health Conditions ◽  
Social Phenomena ◽  
Medical Treatments ◽  
Social Media Data ◽  
Health Related ◽  
Media Data

Social media data have been increasingly used to study biomedical and health-related phenomena. From cohort-level discussions of a condition to population-level analyses of sentiment, social media have provided scientists with unprecedented amounts of data to study human behavior associated with a variety of health conditions and medical treatments. Here we review recent work in mining social media for biomedical, epidemiological, and social phenomena information relevant to the multilevel complexity of human health. We pay particular attention to topics where social media data analysis has shown the most progress, including pharmacovigilance and sentiment analysis, especially for mental health. We also discuss a variety of innovative uses of social media data for health-related applications as well as important limitations of social media data access and use.

scholarly journals A Pipeline to Understand Emerging Illness Via Social Media Data Analysis: Case Study on Breast Implant Illness (Preprint)

2021 ◽  
Author(s):  
Vishal Dey ◽  
Peter Krasniak ◽  
Minh Nguyen ◽  
Clara Lee ◽  
Xia Ning
Keyword(s):  
Mental Health ◽  
Social Media ◽  
Natural Language Processing ◽  
Data Analysis ◽  
Natural Language ◽  
Language Processing ◽  
Breast Implant ◽  
Public Attention ◽  
Social Media Data ◽  
Media Data

BACKGROUND A new illness can come to public attention through social media before it is medically defined, formally documented, or systematically studied. One example is a condition known as breast implant illness (BII), which has been extensively discussed on social media, although it is vaguely defined in the medical literature. OBJECTIVE The objective of this study is to construct a data analysis pipeline to understand emerging illnesses using social media data and to apply the pipeline to understand the key attributes of BII. METHODS We constructed a pipeline of social media data analysis using natural language processing and topic modeling. Mentions related to signs, symptoms, diseases, disorders, and medical procedures were extracted from social media data using the clinical Text Analysis and Knowledge Extraction System. We mapped the mentions to standard medical concepts and then summarized these mapped concepts as topics using latent Dirichlet allocation. Finally, we applied this pipeline to understand BII from several BII-dedicated social media sites. RESULTS Our pipeline identified topics related to toxicity, cancer, and mental health issues that were highly associated with BII. Our pipeline also showed that cancers, autoimmune disorders, and mental health problems were emerging concerns associated with breast implants, based on social media discussions. Furthermore, the pipeline identified mentions such as rupture, infection, pain, and fatigue as common self-reported issues among the public, as well as concerns about toxicity from silicone implants. CONCLUSIONS Our study could inspire future studies on the suggested symptoms and factors of BII. Our study provides the first analysis and derived knowledge of BII from social media using natural language processing techniques and demonstrates the potential of using social media information to better understand similar emerging illnesses. CLINICALTRIAL

scholarly journals Mining social media data: How are research sponsors and researchers addressing the ethical challenges?

2017 ◽  
Vol 14 (2) ◽  
pp. 1-39 ◽  
Author(s):  
Joanna Taylor ◽  
Claudia Pagliari
Keyword(s):  
Social Media ◽  
Health Research ◽  
Social Research ◽  
International Association ◽  
Academic Community ◽  
Ethical Challenges ◽  
Ethical Considerations ◽  
Social Media Data ◽  
Ethics Guidelines ◽  
Media Data

Background: Data representing people’s behaviour, attitudes, feelings and relationships are increasingly being harvested from social media platforms and re-used for research purposes. This can be ethically problematic, even where such data exist in the public domain. We set out to explore how the academic community is addressing these challenges by analysing a national corpus of research ethics guidelines and published studies in one interdisciplinary research area. Methods: Ethics guidelines published by Research Councils UK (RCUK), its seven-member councils and guidelines cited within these were reviewed. Guidelines referring to social media were classified according to published typologies of social media research uses and ethical considerations for social media mining. Using health research as an exemplar, PubMed was searched to identify studies using social media data, which were assessed according to their coverage of ethical considerations and guidelines. Results: Of the 13 guidelines published or recommended by RCUK, only those from the Economic and Social Research Council, the British Psychological Society, the International Association of Internet Researchers and the National Institute for Health Research explicitly mentioned the use of social media. Regarding data re-use, all four mentioned privacy issues but varied with respect to other ethical considerations. The PubMed search revealed 156 health-related studies involving social media data, only 50 of which mentioned ethical concepts, in most cases simply stating that they had obtained ethical approval or that no consent was required. Of the nine studies originating from UK institutions, only two referred to RCUK ethics guidelines or guidelines cited within these. Conclusions: Our findings point to a deficit in ethical guidance for research involving data extracted from social media. Given the growth of studies using these new forms of data, there is a pressing need to raise awareness of their ethical challenges and provide actionable recommendations for ethical research practice.

scholarly journals What a Bibliometric Study Tells us about Social Media Mental Health Research (Preprint)

2021 ◽  
Author(s):  
Philip Resnik ◽  
Munmun De Choudhury ◽  
Katherine Musacchio Schafer ◽  
Glen Coppersmith
Keyword(s):  
Mental Health ◽  
Social Media ◽  
Health Research ◽  
Mental Health Research ◽  
Bibliometric Study

UNSTRUCTURED No abstract/not applicable

scholarly journals Mental Health Consultations on College Campuses: Examining the Predictive Ability of Social Media

2021 ◽  
Author(s):  
Koustuv Saha ◽  
Asra Yousuf ◽  
Ryan L. Boyd ◽  
James W. Pennebaker ◽  
Munmun Choudhury
Keyword(s):  
Mental Health ◽  
College Students ◽  
Social Media ◽  
Collective Identity ◽  
Ground Truth ◽  
Treatment Needs ◽  
Ground Truth Data ◽  
Social Media Data ◽  
Mental Health Consultations ◽  
Media Data

Abstract The mental health of college students is a growing concern, and gauging the mental health needs of college students is difficult to assess in real-time and in scale. While social media has shown potential as a viable “passive sensor” of mental health, the construct validity and in-practice reliability of such computational assessments remain largely unexplored. Towards this goal, we study how assessing the mental health of college students using social media data correspond with ground-truth data of on-campus mental health consultations. For a large U.S. public university, we obtained ground-truth data of on-campus mental health consultations between 2011–2016, and collected 66,000 posts from the university’s Reddit community. We adopted machine learning and natural language methodologies to measure symptomatic mental health expressions of depression, anxiety, stress, suicidal ideation, and psychosis on the social media data. Seasonal auto-regressive integrated moving average (SARIMA) models of forecasting on-campus mental health consultations showed that incorporating social media data led to predictions with r=0.86 and SMAPE=13.30, outperforming models without social media data by 41%. Our language analyses revealed that social media discussions during high mental health consultations months consisted of discussions on academics and career, whereas months of low mental health consultations saliently show expressions of positive affect, collective identity, and socialization. This study reveals that social media data can improve our understanding of college students’ mental health, particularly their mental health treatment needs.

scholarly journals Social Media Reveals Psychosocial Effects of the COVID-19 Pandemic

2020 ◽  
Author(s):  
Koustuv Saha ◽  
John Torous ◽  
Eric D. Caine ◽  
Munmun De Choudhury
Keyword(s):  
Mental Health ◽  
Social Media ◽  
Psychosocial Effects ◽  
Self Disclosure ◽  
Social Media Data ◽  
Health Concerns ◽  
Mental Health Concerns ◽  
Precautionary Measures ◽  
Media Data ◽  
Over Time

AbstractBackgroundThe novel coronavirus disease 2019 (COVID-19) pandemic has caused several disruptions in personal and collective lives worldwide. The uncertainties surrounding the pandemic have also led to multi-faceted mental health concerns, which can be exacerbated with precautionary measures such as social distancing and self-quarantining, as well as societal impacts such as economic downturn and job loss. Despite noting this as a “mental health tsunami,” the psychological effects of the COVID-19 crisis remains unexplored at scale. Consequently, public health stakeholders are currently limited in identifying ways to provide timely and tailored support during these circumstances.ObjectiveOur work aims to provide insights regarding people’s psychosocial concerns during the COVID-19 pandemic by leveraging social media data. We aim to study the temporal and linguistic changes in symptomatic mental health and support expressions in the pandemic context.MethodsWe obtain ∼60M Twitter streaming posts originating from the U.S. from 24 March-24 May 2020, and compare these with ∼40M posts from a comparable period in 2019 to attribute the effect of COVID-19 on people’s social media self-disclosure. Using these datasets, we study people’s self-disclosure on social media in terms of symptomatic mental health concerns and expressions of support. We employ transfer learning classifiers that identify the social media language indicative of mental health outcomes (anxiety, depression, stress, and suicidal ideation) and support (emotional and informational support). We then examine the changes in psychosocial expressions over time and language, comparing the 2020 and 2019 datasets.ResultsWe find that all of the examined psychosocial expressions have significantly increased during the COVID-19 crisis – mental health symptomatic expressions have increased by ∼14%, and support expressions have increased by ∼5%, both thematically related to COVID-19. We also observe a steady decline and eventual plateauing in these expressions during the COVID-19 pandemic, which may have been due to habituation or due to supportive policy measures enacted during this period. Our language analyses highlight that people express concerns that are very specific to and contextually related to the COVID-19 crisis.ConclusionsWe studied the psychosocial effects of the COVID-19 crisis by using social media data from 2020, finding that people’s mental health symptomatic and support expressions significantly increased during the COVID-19 period as compared to similar data from 2019. However, this effect gradually lessened over time, suggesting that people adapted to the circumstances and their “new normal”. Our linguistic analyses revealed that people expressed mental health concerns regarding personal and professional challenges, healthcare and precautionary measures, and pandemic-related awareness. This work shows the potential to provide insights to mental healthcare and stakeholders and policymakers in planning and implementing measures to mitigate mental health risks amidst the health crisis.

Studies of depression and anxiety using Reddit as a data source: Scoping review (Preprint)

2021 ◽  
Author(s):  
Nick Boettcher
Keyword(s):  
Mental Health ◽  
Social Media ◽  
Scoping Review ◽  
Primary Data ◽  
Technical Solution ◽  
Depression And Anxiety ◽  
Social Media Data ◽  
Primary Data Source ◽  
Data Source ◽  
Media Data

BACKGROUND The study of depression and anxiety using publicly available social media data is a research activity that has grown considerably over the last decade. The discussion platform Reddit has become a popular social media data source in this nascent area of study, in part because of the unique ways in which the platform is facilitative of research. To date, no work has been done to synthesize existing studies of depression and anxiety using Reddit. OBJECTIVE The objective of this review is to understand the scope and nature of research using Reddit as a primary data source for studying depression and anxiety. METHODS A scoping review was conducted using the Arksey and O’Malley framework. Academic databases searched include MEDLINE/PubMed, EMBASE, CINAHL, PsycINFO, PsycARTICLES, Scopus, ScienceDirect, IEEE Xplore, and ACM database. Inclusion criteria were developed using the Participants/Concept/Context framework outlined by the Joanna Briggs Institute Scoping Review Methodology Group. Eligible studies featured a methodological focus on analyzing depression and/or anxiety using naturalistic written expressions from Reddit users as the primary data source. RESULTS 54 Studies were included for review. Tables and corresponding analysis delineate key methodological features including a comparatively larger focus on depression versus anxiety, an even split of original and premade datasets, a favored analytic focus on classifying the mental health states of Reddit users, and practical implications often recommending new methods of professionally-driven mental health monitoring and outreach for Reddit users. CONCLUSIONS Studies of depression and anxiety using Reddit data are currently driven by a prevailing methodology which favors a technical, solution-based orientation. Researchers interested in advancing this research area will benefit from further consideration of conceptual issues surrounding interpretation of Reddit data with the medical model of mental health. Further efforts are also needed to locate accountability and autonomy within practice implications suggesting new forms of engagement with Reddit users.

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