Palliative Care Delivery in the NICU: What Barriers Do Neonatal Nurses Face?

2006 ◽  
Vol 25 (6) ◽  
pp. 387-392 ◽  
Author(s):  
Victoria Kain
Keyword(s):  
Palliative Care ◽  
Ad Hoc ◽  
Care Delivery ◽  
World Health ◽  
Neonatal Nurses ◽  
Neonatal Nursing ◽  
American Academy Of Pediatrics ◽  
The World ◽  
Health Organization ◽  
Universal Protocol

Despite the existence of a universal protocol in palliative care for dying babies and their families, provision of this type of care remains ad hoc in contemporary neonatal settings. Influential bodies such as the American Academy of Pediatrics and the World Health Organization support palliative care to this patient population, so why are such measures not universally adopted? Are there barriers that prevent neonatal nurses from delivering this type of care? A search of the literature reveals that such barriers may be significant and that they have the potential to prevent dying babies from receiving the care they deserve. The goal of this literature review is to identify these barriers to providing palliative care in neonatal nursing. Results of the research have been used to determine item content for a survey to conceptualize and address these barriers.

Overview of symptoms and their assessment in life-limiting illness

2021 ◽  
pp. 137-144
Author(s):  
Dilini Rajapakse ◽  
Maggie Comac
Keyword(s):  
Palliative Care ◽  
Future Study ◽  
Symptom Assessment ◽  
World Health ◽  
Guidance Document ◽  
Paediatric Palliative Care ◽  
The World ◽  
Novel Approaches ◽  
Moral Necessity ◽  
Health Organization

The aims of this chapter are to discuss the prevalence of symptoms in paediatric palliative care, the importance of accurate symptom assessment, as well as the principles of and challenges to assessing symptoms comprehensively. We examine the areas where knowledge and expertise are lacking and the reasons for this. Finally, we discuss novel approaches to assessing symptoms and discuss areas for future study. In 2018 the World Health Organization published a guidance document for healthcare workers delivering paediatric palliative care in which it describes ‘the medical and moral necessity of making palliative care accessible to all children in need and their families’.

Pain: introduction

2016 ◽  
Author(s):  
Richard D.W. Hain ◽  
Satbir Singh Jassal
Keyword(s):  
Palliative Care ◽  
World Health Organization ◽  
Pharmacological Treatment ◽  
Cultural Influences ◽  
Pain Severity ◽  
World Health ◽  
Assessment And Evaluation ◽  
Total Pain ◽  
The World ◽  
Health Organization

Pain is a subjective and multidimensional phenomenon. Diagnosis, assessment, and evaluation of pain are all complicated in children by the range of diagnoses and developmental levels, and by cultural influences. This chapter summarizes definitions and classifications of pain, including total pain. It looks at ways that children express pain, and measurement of pain severity. Pharmacological treatment of pain is considered, alongside the World Health Organization pain guidelines, which are considered to be the basis of managing pain in palliative care.

Barriers to the delivery of palliative care

2015 ◽  
Author(s):  
Barry J.A. Laird
Keyword(s):  
Palliative Care ◽  
Clinical Care ◽  
World Health ◽  
Human Right ◽  
Care Services ◽  
The World ◽  
Effective Delivery ◽  
Palliative Care Services ◽  
The Many ◽  
Health Organization

This chapter discusses several key barriers to the delivery of palliative care, firstly considering the definition of ‘palliative care’. It describes the World Health Organization (WHO) definition and notes that the ideology of palliative care being a concept with which to approach management of patients may still not be fully understood. Furthermore, the differences between generalist and specialist palliative care may also contribute to confusion. Although palliative care as a concept has largely been embraced throughout the world, its implementation into routine clinical care is lacking. Essential to the change from palliative care being a principle available to the few, to being available to all, and a human right, is the need to address the many barriers to the efficient and effective delivery of high-quality palliative care. The chapter argues that the WHO is the key group necessary to develop palliative care worldwide and, together with international palliative care organizations, to help countries advance palliative care services.

The Provision of Palliative Care for Noncancer Patients With Advanced Disease: Equity Does Matter

2019 ◽  
Vol 36 (10) ◽  
pp. 932-933
Author(s):  
Abbas Heydari ◽  
Hassan Sharifi ◽  
Ahmad Bagheri Moghaddam
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Clinical Guideline ◽  
Advanced Disease ◽  
World Health ◽  
The World ◽  
Primary Focus ◽  
Health Organization ◽  
Cancer Diseases

According to the World Health Organization, the main mission of palliative care is to optimize the quality of life of patients with serious chronic disease, as well as their caregivers, by providing biopsychosociospiritual care. However, historically, the primary focus of palliative care is on providing care only for cancer diseases. Based on the current literature, it is assumed that palliative care is not provided for many chronic diseases on a regular basis and in many cases, a clinical guideline does not exist for providing palliative care.

Epilogue: Making Sense of Cicely Saunders

2018 ◽  
Author(s):  
David Clark
Keyword(s):  
Palliative Care ◽  
World Health Organization ◽  
Personal Relationships ◽  
World Health ◽  
Making Sense ◽  
Self Image ◽  
The World ◽  
Health Organization

Cicely Saunders married late in life and had no children. Her closest personal relationships were complicated. Her steely look and assured manner masked years of vulnerability, poor self-image, and struggles with her femininity. She was an unlikely pioneer of an improbable movement. Stripping away the hagiography, there is no doubt that Cicely shaped a new field of medicine which was gaining significant ground by the time of her death, and one which made further progress in the decade following it. A whole generation of palliative-care professionals was trained at St Christopher’s, many of whom spread their knowledge and expertise in other places. The hospice ideal transferred and translated around the world — and eventually led to universal support through the encouragement of the World Health Organization. This chapter concludes the book with an assessment of her legacy — and the complex and demanding life that shaped it.

A Public Health Approach to Palliative Care in the Canadian Context

2019 ◽  
Vol 37 (7) ◽  
pp. 492-496 ◽  
Author(s):  
Giovanna Sirianni
Keyword(s):  
Public Health ◽  
Palliative Care ◽  
Care Delivery ◽  
World Health ◽  
Public Health Approach ◽  
Multiple Streams ◽  
Multiple Streams Framework ◽  
Canadian Context ◽  
Health Organization

Palliative care helps improve the quality of life of individuals facing life-limiting illness throughout the course of their disease. In Canada, delivery and access to palliative care has been fraught with challenges including differential availability of services based on geography, funding, language, and socioeconomic status. Many groups, including the World Health Organization, have advocated for a public health approach to palliative care as an antidote to fragmented service delivery. Multiple scholars, academics, and public health advocates have suggested that a public health approach to palliative care can help with issues of access, equity, and cost. Through the lens of Kingdon’s Multiple Streams Framework, this commentary will explore potential reasons why a public health approach to palliative care has not been adopted in the Canadian context and why this is an opportune time to consider this policy innovation. The Compassionate Communities concept is discussed as a potential solution to a public health approach to palliative care delivery.

scholarly journals Evaluation of SARS-CoV-2 in Breastmilk from 18 Infected Women

2020 ◽  
Author(s):  
Christina D. Chambers ◽  
Paul Krogstad ◽  
Kerri Bertrand ◽  
Deisy Contreras ◽  
Nicole H. Tobin ◽  
...  
Keyword(s):  
Case Reports ◽  
World Health ◽  
Retrograde Flow ◽  
Infected Infant ◽  
American Academy Of Pediatrics ◽  
The World ◽  
Control And Prevention ◽  
Health Organization ◽  
Respiratory Droplets ◽  
The U.S

To The EditorCurrently, the U.S. Centers for Disease Control and Prevention, American Academy of Pediatrics and the World Health Organization advise that women who are infected with SARS-CoV-2 may choose to breastfeed with appropriate protections to prevent transmission of the virus through respiratory droplets.(1) However, the potential for exposure to SARS-CoV-2 through breastfeeding is currently unknown. To date, case reports on breastmilk samples from a total of 24 SARS-CoV-2-infected women have been published.(2-7) Of those, viral RNA was detected in ten breastmilk samples from four women. In some but not all cases, environmental contamination as the source of the virus or retrograde flow from an infected infant could not be ruled out.

In Reply: Use and Misuse of Oral Therapy in Diarrhea

PEDIATRICS ◽  
1991 ◽  
Vol 88 (3) ◽  
pp. 656-657
Author(s):  
JOHN D. SNYDER
Keyword(s):  
United States ◽  
Electrolyte Solutions ◽  
The United States ◽  
Oral Rehydration Salt ◽  
World Health ◽  
Oral Rehydration ◽  
American Academy Of Pediatrics ◽  
The World ◽  
Health Organization ◽  
Emergency Fund

I appreciate the chance to clarify what may be a misconception of Dr Kepfer and also others who had read my recent article. The American Academy of Pediatrics Committee on Nutrition recommends that glucose electrolyte solutions be used for rehydration and maintenance therapy for children with acute diarrhea. One such solution is the oral rehydration salt (ORS) solution recommended by the World Health Organization and the United Nations International Children's Emergency Fund, but this solution is not readily available in the United States, as Dr Kepfer notes. However, as mentioned in the introduction to the paper, a number of successful clinical trials of other similar glucose electrolyte solutions have been reported in the United States.

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