Building a Caring-Based Hyperglycemic Crisis Prevention Model for Patients With Diabetes Mellitus, Thailand

2018 ◽  
Vol 22 (2) ◽  
pp. 4-13
Author(s):  
Nongnut Oba ◽  
Charlotte D. Barry ◽  
Shirley C. Gordon ◽  
Rachada Pipatsart ◽  
Viruch Sirigulsatien
Keyword(s):  
Diabetes Mellitus ◽  
Phase 1 ◽  
Qualitative Interviews ◽  
Patient Experiences ◽  
Phase 2 ◽  
Crisis Prevention ◽  
Patients With Diabetes ◽  
Prevention Model ◽  
Seeking Help ◽  
Using Data

The purpose of this study was to understand patient experiences of hyperglycemic crisis (HC) and develop a caring-based, interdisciplinary model for preventing HC in Thailand. A 2-Phase approach was used. In Phase 1, qualitative interviews were conducted with 15 in-patients with diabetes mellitus who had experienced a HC. Four themes emerged: not knowing, depending on others for care, experiencing stress, and seeking help for self-care. In Phase 2, interdisciplinary, participatory team focus groups were conducted using data from Phase 1 to develop a model of hyperglycemic crisis prevention.

scholarly journals Codeveloping a multibehavioural mobile phone app to enhance social and emotional well-being and reduce health risks among Aboriginal and Torres Strait Islander women during preconception and pregnancy: a three-phased mixed-methods study

BMJ Open ◽  
2021 ◽  
Vol 11 (11) ◽  
pp. e052545
Author(s):  
Michelle Kennedy ◽  
Ratika Kumar ◽  
Nicole M Ryan ◽  
Jessica Bennett ◽  
Gina La Hera Fuentes ◽  
...  
Keyword(s):  
Mixed Methods ◽  
Mobile Phone ◽  
Phase 1 ◽  
Qualitative Interviews ◽  
Mixed Methods Study ◽  
Phase 2 ◽  
Community Members ◽  
Phase 3 ◽  
Aboriginal Community ◽  
Aboriginal Women

ObjectiveDescribe the development and pretest of a prototype multibehavioural change app MAMA-EMPOWER.DesignMixed-methods study reporting three phases: (1) contextual enquiry included stakeholder engagement and qualitative interviews with Aboriginal women, (2) value specification included user-workshop with an Aboriginal researcher, community members and experts, (3) codesign with Aboriginal researchers and community members, followed by a pretest of the app with Aboriginal women, and feedback from qualitative interviews and the user-Mobile Application Rating Scale (U-MARS) survey tool.SettingsAboriginal women and communities in urban and regional New South Wales, Australia.ParticipantsPhase 1: interviews, 8 Aboriginal women. Phase 2: workshop, 6 Aboriginal women. Phase 3: app trial, 16 Aboriginal women. U-MARS, 5 Aboriginal women.ResultsPhase 1 interviews revealed three themes: current app use, desired app characteristics and implementation. Phase 2 workshop provided guidance for the user experience. Phase 3 app trial assessed all content areas. The highest ratings were for information (mean score of 3.80 out of 5, SD=0.77) and aesthetics (mean score of 3.87 with SD of 0.74), while functionality, engagement and subjective quality had lower scores. Qualitative interviews revealed the acceptability of the app, however, functionality was problematic.ConclusionsDeveloping a mobile phone app, particularly in an Aboriginal community setting, requires extensive consultation, negotiation and design work. Using a strong theoretical foundation of behavioural change technique’s coupled with the consultative approach has added rigour to this process. Using phone apps to implement behavioural interventions in Aboriginal community settings remains a new area for investigation. In the next iteration of the app, we aim to find better ways to personalise the content to women’s needs, then ensure full functionality before conducting a larger trial. We predict the process of development will be of interest to other health researchers and practitioners.

scholarly journals A Novel Approach to Practice-Based Learning and Improvement Using a Web-Based Audit and Feedback Module

2014 ◽  
Vol 6 (3) ◽  
pp. 541-546 ◽  
Author(s):  
Joel C. Boggan ◽  
George Cheely ◽  
Bimal R. Shah ◽  
Randy Heffelfinger ◽  
Deanna Springall ◽  
...  
Keyword(s):  
Phase 1 ◽  
Data Entry ◽  
Audit And Feedback ◽  
Phase 2 ◽  
Online Data ◽  
Web Based ◽  
Online Tool ◽  
Novel Approach ◽  
Patients With Diabetes ◽  
Personal Performance

Abstract Background Systematically engaging residents in large programs in quality improvement (QI) is challenging. Objective To coordinate a shared QI project in a large residency program using an online tool. Methods A web-based QI tool guided residents through a 2-phase evaluation of performance of foot examinations in patients with diabetes. In phase 1, residents completed reviews of health records with online data entry. Residents were then presented with personal performance data relative to peers and were prompted to develop improvement plans. In phase 2, residents again reviewed personal performance. Rates of performance were compared at the program and clinic levels for each phase, with data presented for residents. Acceptability was measured by the number of residents completing each phase. Feasibility was measured by estimated faculty, programmer, and administrator time and costs. Results Seventy-nine of 86 eligible residents (92%) completed improvement plans and reviewed 1471 patients in phase 1, whereas 68 residents (79%) reviewed 1054 patient charts in phase 2. Rates of performance of examination increased significantly between phases (from 52% to 73% for complete examination, P < .001). Development of the tool required 130 hours of programmer time. Project analysis and management required 6 hours of administrator and faculty time monthly. Conclusions An online tool developed and implemented for program-wide QI initiatives successfully engaged residents to participate in QI activities. Residents using this tool demonstrated improvement in a selected quality target. This tool could be adapted by other graduate medical education programs or for faculty development.

scholarly journals Defining the Supportive Care Needs and Psychological Morbidity of Patients With Functioning Versus Nonfunctioning Neuroendocrine Tumors: Protocol for a Phase 1 Trial of a Nurse-Led Online and Phone-Based Intervention

10.2196/14361 ◽  
2019 ◽  
Vol 8 (12) ◽  
pp. e14361
Author(s):  
Lisa Guccione ◽  
Karla Gough ◽  
Allison Drosdowsky ◽  
Krista Fisher ◽  
Timothy Price ◽  
...  
Keyword(s):  
Supportive Care ◽  
Qualitative Data ◽  
Phase 1 ◽  
Patient Experiences ◽  
Specific Information ◽  
Pilot Test ◽  
Phase 2 ◽  
Care Needs ◽  
Phase 3 ◽  
Disease Specific

Background Online information resources and support have been demonstrated to positively influence the well-being of people diagnosed with cancer. This has been explored in past literature for more common cancers; however, for rare cancers, such as neuroendocrine tumors (NETs), there are little to no support or resources available. Despite relatively good prognoses, the quality of life (QoL) of patients with NETs is significantly lower compared with samples of mixed cancer patients and the general population. Patients with NETs also typically report unclear and difficult pathways of disease management and treatment, given the heterogeneity of the diagnosis. There is a vital need to improve the availability of disease-specific information for this patient group and provide supportive care that is tailored to the unique needs of the NET patient population. Objective This study described the protocol of a study aimed to better understand the outcomes and experiences of patients diagnosed with NETs and to develop and pilot test a nurse-led online and phone-based intervention that will provide tailored supportive care targeted to NET subgroups (functioning vs nonfunctioning). Methods This is a multisite cohort with 3 phases, incorporating both quantitative and qualitative data collection. Phase 1 is a mixed methods prospective cohort study of NET patients identifying differences in patient experiences and priority of needs between NET subgroups. Phase 2 utilizes results from phase 1 to develop an online and nurse-led phone-based intervention. Phase 3 is to pilot test and evaluate the intervention’s acceptability, appropriateness, and feasibility. Results Currently, the project is progressing through phase 1 and has completed recruitment. A total of 138 participants have been recruited to the study. To date, patient-reported outcome data from 123 participants at baseline and 87 participants at 6-month follow-up have been collected. Of these, qualitative data from semistructured interviews from 35 participants have also been obtained. Phase 2 and phase 3 of the project are yet to be completed. Conclusions Limited research for patients with NETs suggests that QoL and patient experiences are significantly impaired compared with the general population. Furthermore, past research has failed to delineate how the clinical variability between those with functioning and nonfunctioning NETs impacts patient supportive care needs. This study will improve on the availability of disease-specific information as well as informing the design of a nurse-led online and phone-based supportive care intervention tailored for the unique needs of the NET patient population. International Registered Report Identifier (IRRID) DERR1-10.2196/14361

scholarly journals The role of trained champions in sustaining and spreading nutrition care improvements in hospital: qualitative interviews following an implementation study

2021 ◽  
pp. e000281
Author(s):  
Celia Laur ◽  
Jack Bell ◽  
Renata Valaitis ◽  
Sumantra Ray ◽  
Heather Keller
Keyword(s):  
Phase 1 ◽  
Qualitative Interviews ◽  
Audit And Feedback ◽  
Routine Practice ◽  
Phase 2 ◽  
Process Measures ◽  
Link Type ◽  
Nutrition Care ◽  
Registration Number

BackgroundMany patients are already malnourished when admitted to hospital. Barriers and facilitators to nutrition care in hospital have been identified and successful interventions developed; however, few studies have explored how to sustain and spread improvements. The More-2-Eat phase 1 study involved five hospitals across Canada implementing nutrition care improvements, while phase 2 implemented a scalable model using trained champions, audit and feedback, a community of practice with external mentorship and an implementation toolkit in 10 hospitals (four continuing from phase 1). Process measures showed that screening and assessment from phase 1 were sustained for at least 4 years. The objective of this study was to help explain how these nutrition care improvements were sustained and spread by understanding the role of the trained champions, and to confirm and expand on themes identified in phase 1.MethodsSemistructured telephone interviews were conducted with champions from each phase 2 hospital and recordings transcribed verbatim. To explore the champion role, transcripts were deductively coded to the 3C model of Concept, Competence and Capacity. Phase 2 transcripts were also deductively coded to themes identified in phase 1 interviews and focus groups.ResultsTen interviews (n=14 champions) were conducted. To sustain and spread nutrition care improvements, champions needed to understand the Concepts of change management, implementation, adaptation, sustainability and spread in order to embed changes into routine practice. Champions also needed the Competence, including the skills to identify, support and empower new champions, thus sharing the responsibility. Capacity, including time, resources and leadership support, was the most important facilitator for staying engaged, and the most challenging. All themes identified in qualitative interviews in phase 1 were applicable 4 years later and were mentioned by new phase 2 hospitals. There was increased emphasis on audit and feedback, and the need for standardisation to support embedding into current practice.ConclusionTrained local champions were required for implementation. By understanding key concepts, with appropriate and evolving competence and capacity, champions supported sustainability and spread of nutrition care improvements. Understanding the role of champions in supporting implementation, spread and sustainability of nutrition care improvements can help other hospitals when planning for and implementing these improvements.Trial registration numberNCT02800304, NCT03391752.

scholarly journals Prevalence and Incidence Rate of Diabetes, Pre-diabetes, Uncontrolled Diabetes, and Their Predictors in the Adult Population in Southeastern Iran: Findings From KERCADR Study

2021 ◽  
Vol 9 ◽  
Author(s):  
Hamid Najafipour ◽  
Maryam Farjami ◽  
Mojgan Sanjari ◽  
Raheleh Amirzadeh ◽  
Mitra Shadkam Farokhi ◽  
...  
Keyword(s):  
Diabetes Mellitus ◽  
Incidence Rate ◽  
Diabetes Management ◽  
Disease Risk ◽  
Phase 1 ◽  
Adult Population ◽  
Household Survey ◽  
Logistic Regression Models ◽  
Patients With Diabetes ◽  
Artery Disease

Background: Diabetes mellitus is among the most serious health challenges worldwide. We assessed the prevalence of pre-diabetes (pre-DM) and diabetes (DM), the effectiveness of diabetes management, the 5-year incidence rate, and associated variables in the adult population in southeastern Iran.Methods: In a random cluster household survey (2014–2018), 9,959 adult individuals aged 15–80 years were assessed for coronary artery disease risk factors, including diabetes mellitus in Kerman (KERCADRS, phase 2). Among these people, 2,820 persons had also participated in phase 1 of the study 5 years earlier (2009–2011). Univariable and multivariable survey logistic regression models were used to identify the potential predictors of diabetes and pre-diabetes.Results: The prevalence of pre-DM was 12% (males 13.2% vs. females 11.1%), steadily increasing from 7.1% in the 15–24 years group to 18.4% in the 55–64 years group. The prevalence of DM was 10.2% (male and female, 7.9 and 10.8%, respectively), of which 1.9% were undiagnosed. DM was diagnosed in 10.6% of educated and 15.1% of illiterate people. The prevalence of diagnosed DM was lower in smokers (5.2 vs. 8.7%) and dependent opium users (5.4 vs. 8.8%). The prevalence of uncontrolled DM (HbA1c > 7%) was 48.8%, increasing with age. The frequency of uncontrolled DM among people without and with treatment was 32 and 55.9%, respectively. Illiterate people had worse uncontrolled DM (55.6 vs. 39.6%). The 5-year incidence rate (persons/100 person-years) was 1.5 for pre-DM and 1.2 for DM, respectively. The lowest and the highest incidence rate of DM belonged to the 15–34 years old group (0.5) and dependent opium users (2.4). The incidence rate was found to have a direct relationship with BMI and a reverse relationship with physical activity.Conclusion: Pre-DM and DM affected 22.2% of the population. One-third of patients with diabetes had undiagnosed DM, and in 55.9% of people with diagnosed DM, treatment had been ineffective. Appropriate health interventions are needed to reduce the prevalence and health consequences of diabetes in the region.

scholarly journals Supporting parents living in disadvantaged areas of Edinburgh to create a smoke-free home using nicotine replacement therapy (NRT): A two-phase qualitative study.

2020 ◽  
Author(s):  
Rachel O'Donnell ◽  
Grace Lewis ◽  
Colin Lumsdaine ◽  
Giovanna Di Tano ◽  
Liz Swanston ◽  
...  
Keyword(s):  
Replacement Therapy ◽  
Nicotine Replacement Therapy ◽  
Phase 1 ◽  
Qualitative Interviews ◽  
Early Years ◽  
Second Hand Smoke ◽  
Phase 2 ◽  
Pharmacy Staff ◽  
Two Phase ◽  
Nicotine Replacement

Abstract Background Childhood exposure to second-hand smoke in the home is largely associated with socio-economic disadvantage. Disadvantaged parents face specific challenges creating a smoke-free home, often caring for children in accommodation without access to outdoor garden space. Existing home interventions largely fail to accommodate these constraints. Innovative approaches are required to address this inequality. In this two-phase study, we engaged with parents living in disadvantaged areas of Edinburgh, Scotland, to explore tailored approaches to creating a smoke-free home and develop and pilot-test an intervention based on their views and preferences.Methods In Phase 1, qualitative interviews with 17 parents recruited from Early Years Centres explored alternative approaches to smoke-free home interventions. In Phase 2, an intervention based on parents’ views and preferences was pilot tested with parents recruited through Early Years and Family Nurse Partnership centres. 17 parents took part in an interview to share their views/experience of the intervention. Data from both study phases were thematically analysed.Results Phase 1 findings suggested that parents associated nicotine replacement therapy (NRT) with quit attempts, but supported the idea of NRT use for temporary abstinence to create a smoke-free home, viewing this as a safer option than using e-cigarettes indoors. In Phase 2, 54 parents expressed an interest in accessing NRT to create a smoke-free home, 32 discussed NRT product choice during a home visit from a smoking adviser, and 20 collected their free NRT prescription from the pharmacy. NRT was used for up to 12 weeks in the home, with ongoing advice available from pharmacy staff. During qualitative interviews (N = 17), parents self-reported successfully creating a smoke-free home; quitting smoking; and reduced cigarette consumption, often exceeding their expectations regarding changes made. The intervention was acceptable to parents, but the multi-step process used to access NRT was cumbersome. Some participants were lost to this process.Conclusions Parents living in disadvantage may benefit from access to NRT for temporary abstinence in the home to assist them to protect their children from second-hand smoke exposure. Further research using a more streamlined approach to NRT access, is required to determine the feasibility and cost-effectiveness of this approach.

scholarly journals The Needs for Information and Education Media in Supporting Self-Management of Patients with Diabetes Mellitus

2020 ◽  
Vol 16 (2) ◽  
pp. 247
Author(s):  
Rapitos Sidiq ◽  
John Amos ◽  
Widdefrita Widdefrita ◽  
Novelasari Novelasari ◽  
Evi Maria Silaban ◽  
...  
Keyword(s):  
Diabetes Mellitus ◽  
Chronic Disease ◽  
Structural Equation ◽  
Equation Model ◽  
Self Management ◽  
Material Research ◽  
High Morbidity ◽  
Research Information ◽  
Patients With Diabetes ◽  
Using Data

Diabetes mellitus is a chronic disease that has very high morbidity and mortality rate. This disease cannot be cured but can be controlled with good self-management. This research supports the need for appropriate information and educational media in supporting self-management of patien with diabetes mellitus. This research is qualitative and quantitative. The sample of this study was 105 people with diabetes. Data collection was conducted from July to November 2019 at 7 Puskesmas in Padang City, namely: Nanggalo, Lapai, Alai, Andalas, Ambacang, Kuranji, and Pauh, with interview questions and interviews. Qualitative data processing techniques with coding and data validity by triangulation and analyzed using data reduction, data presentation, and analysis. Quantitative data analysis uses SEM (Structural Equation Model) analysis with the Lisrel 8.7 program. The results showed that the informants were elderly (56-65 years), 60% had good self-management quality, 65% actively participated in chronic disease management programs, 49.5 did not have cellphones. All aspects of self-management, namely blood sugar testing, physical exercise, taking medicine, diet and health education, can be used as educational material. Research information shows the fact most still need information about self-management of diabetics and in the form of conventional media. Informants who use phones that are approved for Android-based self-management applications.

scholarly journals Prediction of anemia and estimation of hemoglobin concentration using a smartphone camera

PLoS ONE ◽  
2021 ◽  
Vol 16 (7) ◽  
pp. e0253495
Author(s):  
Selim Suner ◽  
James Rayner ◽  
Ibrahim U. Ozturan ◽  
Geoffrey Hogan ◽  
Caroline P. Meehan ◽  
...  
Keyword(s):  
Sensitivity And Specificity ◽  
Phase 1 ◽  
Region Of Interest ◽  
Hemoglobin Concentration ◽  
Phase 2 ◽  
Convenience Sample ◽  
Palpebral Conjunctiva ◽  
Phase Images ◽  
Academic Teaching Hospital ◽  
Using Data

Anemia, defined as a low hemoglobin concentration, has a large impact on the health of the world’s population. We describe the use of a ubiquitous device, the smartphone, to predict hemoglobin concentration and screen for anemia. This was a prospective convenience sample study conducted in Emergency Department (ED) patients of an academic teaching hospital. In an algorithm derivation phase, images of both conjunctiva were obtained from 142 patients in Phase 1 using a smartphone. A region of interest targeting the palpebral conjunctiva was selected from each image. Image-based parameters were extracted and used in stepwise regression analyses to develop a prediction model of estimated hemoglobin (HBc). In Phase 2, a validation model was constructed using data from 202 new ED patients. The final model based on all 344 patients was tested for accuracy in anemia and transfusion thresholds. Hemoglobin concentration ranged from 4.7 to 19.6 g/dL (mean 12.5). In Phase 1, there was a significant association between HBc and laboratory-predicted hemoglobin (HBl) slope = 1.07 (CI = 0.98–1.15), p<0.001. Accuracy, sensitivity, and specificity of HBc for predicting anemia was 82.9 [79.3, 86.4], 90.7 [87.0, 94.4], and 73.3 [67.1, 79.5], respectively. In Phase 2, accuracy, sensitivity and specificity decreased to 72.6 [71.4, 73.8], 72.8 [71, 74.6], and 72.5 [70.8, 74.1]. Accuracy for low (<7 g/dL) and high (<9 g/dL) transfusion thresholds was 94.4 [93.7, 95] and 86 [85, 86.9] respectively. Error trended with increasing HBl values (slope 0.27 [0.19, 0.36] and intercept -3.14 [-4.21, -2.07] (p<0.001) such that HBc tended to underestimate hemoglobin in higher ranges and overestimate in lower ranges. Higher quality images had a smaller bias trend than lower quality images. When separated by skin tone results were unaffected. A smartphone can be used in screening for anemia and transfusion thresholds. Improvements in image quality and computational corrections can further enhance estimates of hemoglobin.

scholarly journals Supporting Parents Living in Disadvantaged Areas of Edinburgh to Create a Smoke-Free Home Using Nicotine Replacement Therapy (NRT): A Two-Phase Qualitative Study

2020 ◽  
Vol 17 (19) ◽  
pp. 7305
Author(s):  
Rachel O’Donnell ◽  
Grace Lewis ◽  
Colin Lumsdaine ◽  
Giovanna Di Tano ◽  
Liz Swanston ◽  
...  
Keyword(s):  
Replacement Therapy ◽  
Nicotine Replacement Therapy ◽  
Phase 1 ◽  
Qualitative Interviews ◽  
Early Years ◽  
Second Hand Smoke ◽  
Phase 2 ◽  
Pharmacy Staff ◽  
Two Phase ◽  
Nicotine Replacement

Exposure to second-hand smoke (SHS) in the home is largely associated with socio-economic disadvantage. Disadvantaged parents face specific challenges creating a smoke-free home, often caring for children in accommodation without access to outdoor garden space. Existing smoke-free home interventions largely fail to accommodate these constraints. Innovative approaches are required to address this inequality. In this two-phase study, we engaged with parents living in disadvantaged areas of Edinburgh, Scotland, to explore tailored approaches to creating a smoke-free home and develop and pilot-test an intervention based on their views and preferences. In Phase 1, qualitative interviews with 17 parents recruited from Early Years Centres explored alternative approaches to smoke-free home interventions. In Phase 2, an intervention based on parents’ views and preferences was pilot-tested with parents recruited through Early Years and Family Nurse Partnership centres. Seventeen parents took part in an interview to share their views/experiences of the intervention. Data from both study phases were thematically analysed. Phase 1 findings suggested that parents associated nicotine replacement therapy (NRT) with quit attempts but supported the idea of NRT use for temporary abstinence to create a smoke-free home, viewing this as a safer option than using e-cigarettes indoors. In Phase 2, 54 parents expressed an interest in accessing NRT to create a smoke-free home, 32 discussed NRT product choice during a home visit from a smoking adviser, and 20 collected their free NRT prescription from the pharmacy. NRT was used for up to 12 weeks in the home, with ongoing advice available from pharmacy staff. During qualitative interviews (n = 17), parents self-reported successfully creating a smoke-free home, quitting smoking, and reduced cigarette consumption, often exceeding their expectations regarding changes made. The intervention was acceptable to parents, but the multi-step process used to access NRT was cumbersome. Some participants were lost to this process. Parents living in disadvantaged circumstances may benefit from access to NRT for temporary abstinence in the home to assist them to protect their children from SHS exposure. Further research using a more streamlined approach to NRT access is required to determine the feasibility and cost-effectiveness of this approach.

scholarly journals Defining the Supportive Care Needs and Psychological Morbidity of Patients With Functioning Versus Nonfunctioning Neuroendocrine Tumors: Protocol for a Phase 1 Trial of a Nurse-Led Online and Phone-Based Intervention (Preprint)

2019 ◽  
Author(s):  
Lisa Guccione ◽  
Karla Gough ◽  
Allison Drosdowsky ◽  
Krista Fisher ◽  
Timothy Price ◽  
...  
Keyword(s):  
Supportive Care ◽  
Qualitative Data ◽  
Phase 1 ◽  
Patient Experiences ◽  
Specific Information ◽  
Pilot Test ◽  
Phase 2 ◽  
Care Needs ◽  
Phase 3 ◽  
Disease Specific

BACKGROUND Online information resources and support have been demonstrated to positively influence the well-being of people diagnosed with cancer. This has been explored in past literature for more common cancers; however, for rare cancers, such as neuroendocrine tumors (NETs), there are little to no support or resources available. Despite relatively good prognoses, the quality of life (QoL) of patients with NETs is significantly lower compared with samples of mixed cancer patients and the general population. Patients with NETs also typically report unclear and difficult pathways of disease management and treatment, given the heterogeneity of the diagnosis. There is a vital need to improve the availability of disease-specific information for this patient group and provide supportive care that is tailored to the unique needs of the NET patient population. OBJECTIVE This study described the protocol of a study aimed to better understand the outcomes and experiences of patients diagnosed with NETs and to develop and pilot test a nurse-led online and phone-based intervention that will provide tailored supportive care targeted to NET subgroups (functioning vs nonfunctioning). METHODS This is a multisite cohort with 3 phases, incorporating both quantitative and qualitative data collection. Phase 1 is a mixed methods prospective cohort study of NET patients identifying differences in patient experiences and priority of needs between NET subgroups. Phase 2 utilizes results from phase 1 to develop an online and nurse-led phone-based intervention. Phase 3 is to pilot test and evaluate the intervention’s acceptability, appropriateness, and feasibility. RESULTS Currently, the project is progressing through phase 1 and has completed recruitment. A total of 138 participants have been recruited to the study. To date, patient-reported outcome data from 123 participants at baseline and 87 participants at 6-month follow-up have been collected. Of these, qualitative data from semistructured interviews from 35 participants have also been obtained. Phase 2 and phase 3 of the project are yet to be completed. CONCLUSIONS Limited research for patients with NETs suggests that QoL and patient experiences are significantly impaired compared with the general population. Furthermore, past research has failed to delineate how the clinical variability between those with functioning and nonfunctioning NETs impacts patient supportive care needs. This study will improve on the availability of disease-specific information as well as informing the design of a nurse-led online and phone-based supportive care intervention tailored for the unique needs of the NET patient population. INTERNATIONAL REGISTERED REPORT DERR1-10.2196/14361

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