An ethnography exploring the quality of life of people living with schizophrenia in Zimbabwe: Implications for health service policy and practice
Abstract Background Schizophrenia is a complex and severe mental disorder affecting more than 20 million people worldwide. Although understanding peoples’ experiences of living with an illness is core to assessment, planning and delivering culture specific health care, little is known about the experiences of people living with schizophrenia in resource-poor countries. This article reports on a study that explored the everyday lives of eighteen people living with schizophrenia in Zimbabwe and its impact on their quality of life. Methods This focused ethnography was conducted over a three-month period in 2015. Data were collected using semi-structured interviews, non-participant observational fieldwork, and the short form of the World Health Organization Quality of Life questionnaire. Interview data were digitally recorded, transcribed and translated from Shona (local language) to English. Descriptive statistics and non-parametric tests were used to analyse questionnaire data. Qualitative data were analysed thematically using an established framework. Results Survey data indicate internal consistency in the psychological and social relationships domains and poor quality of life for people aged 20-40. The major factors related to quality of life were: age, gender, family dislocation: living with stigma and discrimination; and limited and variable access to treatment and support. Obtaining and paying for antipsychotic medications were challenging and female participants recounted experiencing gender-based stigma. Conclusions Findings from our study suggest that age, gender, family dislocation, stigma, discrimination, and variable limited access to affordable medications and support undermine quality of life by disrupting participants’ ability to function in socially acceptable ways, their sense of belonging and self-worth, and family, work and social relations. Strengthening access to mental health services, addressing the affordability and availability of medications and initiatives to alleviate stigma and promote a sense of belonging, especially for younger adults and women should be a priority for government and health service providers. Further research on managing mental health issues such as schizophrenia in Zimbabwe, should focus on initiatives to strengthen quality of life.