scholarly journals The association of sleep problems in children with autism and parental quality of life

2020 ◽  
Author(s):  
Ruiting Liu ◽  
Huixi Dong ◽  
Ying Wang ◽  
Xiaozi Lu ◽  
Yamin Li ◽  
...  

Abstract Background Many children with autism suffer from sleep problems that impact not only children’s daytime behavior and cognitive development but also their parents’ life and health. The current study explored how and to what extent sleep problems in children with autism spectrum disorder (ASD) impacted their parents’ quality of life (QOL). Methods This study adopted a case-control study design. A total of 440 ASD children aged 4 to 10 years and 344 age-matched typically developing (TD) children were included in the study. The Children’s Sleep Habits Questionnaire (CSHQ) was used to measure sleep problems in the enrolled children, and parental QOL was measured by the Short Form 36 Health Survey Questionnaire Version 2.0 (SF-36v2). Linear regression and pathway analysis were used to explore the impact of children’s sleep problems on parental QOL. Results The linear regression model showed that the CSHQ total scores were negatively associated with maternal mental health summary (MCS) scores (β=-2.831, p=0.005) in the TD group. In the ASD group, the CSHQ total scores were negatively associated with the parental physical health summary (PCS) scores (β=-3.030, p=0.003 for mothers, β=-3.651, p<0.001 for fathers) after adjusting for the child’s age, parental age, parental Zarit Caregiver Burden Interview (ZBI) score and Social Responsiveness Scale (SRS) score as covariates. The pathway analysis indicated that sleep problems in ASD children had both direct and indirect effects on maternal PCS. Conclusion The main results of the current study showed that sleep problems in children with or without ASD may affect parental QOL in different ways, and ASD children’s sleep problems affect parental physical health as a risk factor independent from the social impairments associated with ASD and the childcare burden of the parents.

2019 ◽  
Author(s):  
Ruiting Liu ◽  
Huixi Dong ◽  
Ying Wang ◽  
Xiaozi Lu ◽  
Yamin Li ◽  
...  

Abstract Background Many children with autism suffer from sleep problems that impact not only children’s daytime behavior and cognitive development but also their parents’ life and health. The current study explored how and to what extent sleep problems in children with autism spectrum disorder (ASD) impacted their parents’ quality of life (QOL).Methods This study adopted a case-control study design. A total of 440 ASD children aged 4 to 10 years and 344 age-matched typically developing (TD) children were included in the study. The Children’s Sleep Habits Questionnaire (CSHQ) was used to measure sleep problems in the enrolled children, and parental QOL was measured by the Short Form 36 Health Survey Questionnaire Version 2.0 (SF-36v2). Linear regression and pathway analysis were used to explore the impact of children’s sleep problems on parental QOL.Results The linear regression model showed that the CSHQ total scores were negatively associated with maternal mental health summary (MCS) scores (β=-2.831, p=0.005) in the TD group. In the ASD group, the CSHQ total scores were negatively associated with the parental physical health summary (PCS) scores (β=-3.030, p=0.003 for mothers, β=-3.651, p<0.001 for fathers) after adjusting for the child’s age, parental age, parental Zarit Caregiver Burden Interview (ZBI) score and Social Responsiveness Scale (SRS) score as covariates. The pathway analysis indicated that sleep problems in ASD children had both direct and indirect effects on maternal PCS.Conclusion The main results of the current study showed that sleep problems in children with or without ASD may affect parental QOL in different ways, and ASD children’s sleep problems affect parental physical health as a risk factor independent from the social impairments associated with ASD and the childcare burden of the parents.


2019 ◽  
Vol 5 (1) ◽  
pp. 73
Author(s):  
O.V. Musiyenko ◽  
N.B. Kizlo

<p>The purpose of this work was to determine the effect of rock climbing as a means of adaptive physical education on behavior, emotional state, coordination of movements and quality of life of children with autism spectrum disorders (ASD). Material and methods: Five children aged 8-9 with ASD participated in the experiment. All children who were involved in rock climbing had the same name. low-function autism (disability of subgroup A). They did not speak, they could neither read nor write, had problematic behavior, stereotyped movements, a large number of inappropriate movements, impaired coordination of movements, aggression and autoaggression. The children attended classes on rock climbing 2 times a week for 40 minutes. on a rock climbing bridge in Lviv from September 1, 2017 to June 30, 2018. Classes were individual. Each of them started with warm-up (5 minutes), in the main part of the children were taught Bouldering (10 min.) And worked on high tracks up to 14 m (25 min.). Prior to the beginning of classes (August 2017), parents' questionnaires were conducted concerning the psychophysical status of children who were included in the experiment. The questionnaire was filled up by parents every three months during the experiment, which led to changes in the psychophysical state of their children. Results: Based on the results of an expert assessment of the psychophysical condition of children with RAS attending climbing classes, it can be argued that, against the backdrop of growth in the results of the skills of movements, the logic of passing the distance, the speed of solving motor tasks, a significant increase in positive emotions, there is a significant decrease in problem behavior. Climbing activities contribute to a significant increase in the quality of life of both children from the ASD and their parents. The results of the influence of the duration of classes on the components of the behavior of the children under study by multidimensional dispersion analysis showed a significant impact on the duration of occupations on various components of child behavior (p &lt;0.001). Conclusions The obtained results testify to the high efficiency of the use of rock climbing as a means of socialization of children with autism. Climbing is a powerful sensory stimulus for children with PAC. It is possible to recommend individual climbing exercises for children with ASD as an effective means of adaptive physical education.</p>


2020 ◽  
Vol 26 (2) ◽  
pp. 122-134
Author(s):  
Maria P. M CHAIM ◽  
Sebastião B. C. NETO, ◽  
Aminn y F. PEREIRA, ◽  
Virgínia E. S. M. COSTA

The quality of life (QOL) of mothers of children with autism spectrum disorder (ASD) is related to the symptomatic and idiopathic characteristics of the existential condition of the child and is determined by the subjective understandings attributed according to the individual experience. The primary objective of this article is to describe and understand the subjective constructs about the self-referenced QOL of mothers of children with ASD. It is an empirical study, qualitative and based on a reading of phenomenological psychopathology. Participated 10 mothers of children with ASD, users of public health services in Goiânia. The following instruments were used: a sociodemographic and clinical data questionnaire and a semi-structured interview script about QOL. The interviews were submitted to the construction of thematic categories, according to the methodology of Giorgi (1985), and later were correlated with the existential categories of Augras (2004). It was observed that although a standard is sought to understand QOL, each mother has subjective factors that reflect in her way of experiencing the condition of being a mother of a child with special needs. It is concluded that it is the science, when seeking to understand the quality of life of people with similar characteristics, to consider the relevance of the subjective aspects and the meaning that each mother constructs of its own reality.


2020 ◽  
Vol 6 (2) ◽  
pp. 41
Author(s):  
O.V. Musiyenko ◽  
R.V. Chopyk ◽  
N.B. Kizlo

<p><strong>The </strong><strong>aim</strong> of the work is to establish the impact of adaptive physical education classes according to our proposed method on the motor abilities and behavior of children with autism spectrum disorders and on the quality of life of their families.</p><p><strong>Material and methods</strong>. Analysis and generalization of literature data on the peculiarities of psycho-motor development of children with autism, their behavior. Development of methods of adaptive physical education of children with autism, which includes exercises for the development of general and fine motor skills, imitation, coordination of movements and the development of physical qualities such as strength, agility, flexibility. Expert assessment of test exercises. Questionnaire of parents about the psychophysical condition of their children and the quality of life of families raising a child with autism. Methods of mathematical statistics.</p><p><strong>Results</strong>. It has been established that children with autism have significant impairments of motor activity and psychophysical condition, which significantly affects the quality of life of children and their families. There is a very low level of development of motor skills. Parents of children in the experimental group noted that from now on their children began to have fewer problems with movement, their movements became more coordinated and it became easier to move. In terms of self-care and self-care, the difficulties became less significant (average level), the usual daily activities also became easier, the phenomena of discomfort and anxiety decreased.</p><p><strong>Conclusions</strong>. Children with autism have significant deviations in motor development, arbitrariness of movements, understanding of expediency of movements, general motility of the body. Classes in adaptive physical education according to our proposed method allowed children with autism to overcome most motor disorders, which was a prerequisite for improving higher nervous activity and behavior. Significant improvement of psychophysical condition of children as a result of employment, and also growth of quality of life is established.</p>


2020 ◽  
Vol 31 (1) ◽  
Author(s):  
M. Dannielle Ayers ◽  
E. Laurette Taylor ◽  
Paul Branscum ◽  
Craig Hofford

The current study assessed impact of a gymnastics program on gross motor function and health quality of life in children with autism spectrum disorder (ASD). Eleven children participating in gymnastics were compared to ten children in a comparison group. Measurement tools were the Test of Gross Motor Development-second edition (TGMD-2) and Pediatric Quality of Life- fourth edition (PedsQL-4.0). Results showed no between group differences for overall gross motor function and health quality of life. Statistically significant differences were found for two individual skills on the TGMD-2: run (p=.026) and gallop (p=.041). Potential confounding factors were observed (i.e. rater bias, dose response, and “toe-walking”).


Sign in / Sign up

Export Citation Format

Share Document