scholarly journals Understanding Reasons for Lack of Acceptance in HIV Programs Among Indigenous: a Qualitative Study in Indonesia

Author(s):  
Elfride Irawati Sianturi ◽  
E Latifah ◽  
S N Soltief ◽  
R Sihombing ◽  
E S Simaremare ◽  
...  

Abstract Background: Melanesians are Indigenous Papuans that are racially and culturally different from most Indonesians. Poverty and inequalities remain high in this region despite having the highest revenues. Furthermore, Papua has the highest HIV prevalence rate, which is 24 times higher than other regions. Therefore, this study aimed to develop an understanding of the acceptance of HIV programs among Papuans.Methods: This is a qualitative study carried out using the grounded theory with data collected from 23 Papuans through semi-structured face-to-face interviews. All interviews were conducted in Bahasa Indonesia, audio-recorded, summarized, and transcribed for analysis.Results: The results showed that to “keep being a good Papuan," emerges from 4 interconnected categories, including 1) Culture and Religion, 2) Dealing with modernisms, 3) Tailoring program and 4) Stigma reduction. As a substantive theory underpinning the experiences of indigenous people with the programs, “Keep being a good Papuan” was a way of overcoming a series of problems and dealing with modernism to eliminating HIV. This is largely focused on the local culture, therefore any adjustment needs to balance keeping their tradition and welcoming modernism.Conclusions: Therefore, the future of the programs needs to be agreed upon, funded, implemented, measured, and achieved. One of the strategies used to achieve this is by elaborating a supportive culture and community-based interventions. Further, implementation needs to be prioritized to integrate and improve the quality of the programs due to the needs of the community and the available resources.

2021 ◽  
pp. 109019812110532
Author(s):  
Elodie Charuel ◽  
Martial Bernard ◽  
Hélène Vaillant Roussel ◽  
Benoit Cambon ◽  
Thibault Ménini ◽  
...  

Background Participation in regular physical activity (RPA) is beneficial to the quality of life and life expectancy of patients with chronic heart failure (CHF). However, it is inadequate in many patients. Aims To determine the factors that influence the practice of RPA in patients with CHF managed in general practice. Method This was a qualitative study using semistructured, individual face-to-face interviews. Patients with CHF (New York Heart Association Stages 1–3) capable of participating in RPA were enrolled by their general practitioner. A longitudinal and transversal inductive thematic analysis was performed by two researchers. Results Five themes emerged from the 19 interviews that were conducted. Poor knowledge of the disease and the benefits of participating in RPA, as well as the lack of motivation or enjoyment, in particular due to the absence of previous participation, were considered significant obstacles. Fear associated with CHF or other comorbidities was also an obstacle. Attendance at a rehabilitation center, family and social circles, and having a pet all appeared to be beneficial. Family and friends were important for motivating the patient to participate in an activity but could also be an obstacle when they were overprotective. Conclusion This study helps highlight the difficulties for patients with CHF associated with participation in RPA. Despite the obstacles, there are enabling factors on which the general practitioner may rely to motivate their patients.


2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S451-S451
Author(s):  
Nora Super ◽  
Rajiv Ahuja ◽  
Kevin Proff

Abstract Historically, a diagnosis of Alzheimer’s disease and related dementias (ADRDs) created a sense of hopelessness among those diagnosed, their families, and physicians. The misperception that there is no available medical treatment or interventions inhibited patients from receiving cognitive assessments or exploring home- and community-based interventions that could improve quality of life. Today, researchers have developed evidence-based pathways to improve brain health, reduce dementia risk, and enhance lifelong cognitive function. This report highlights recent scientific advancements focused on medical and lifestyle interventions that reduce the risk of ADRDs and slow the disease progression. To improve the current system and reduce the risk of dementia and improve brain health, the following policy areas are recommended: 1) promote brain health strategies to delay onset and reduce the stigma associated with cognitive decline; 2) increase early detection and cognitive screening efforts; 3) build a dementia-capable workforce; 4) create seamless transitions from health systems to community-based services to better support those with dementia; 5) improve caregiver training and support; and 6) increase funding for research related to ADRDs. Understanding that ADRDs disproportionately impact certain populations, these policy recommendations include strategies to narrow health disparities. Previous Milken Institute research highlighted the disproportionate health impacts of dementia on women, which costs the economy trillions of dollars. This report expands on that analyses and stratifies the data by race and income as well. Ensuring that these policy recommendations address disproportionately impacted groups will benefit the broader healthcare system and alleviate the burden felt by all patients and families.


1998 ◽  
Vol 4 (1_suppl) ◽  
pp. 33-35 ◽  
Author(s):  
Deede Gammon ◽  
Tore Sørlie ◽  
Svein Bergvik ◽  
Tordis Sørensen Høifødt

Psychiatry residents in Norway have 70 hours of mandatory psychotherapy supervision to develop insights into the therapeutic relationship. Six supervision pairs (six candidates and two supervisors) conducted five videoconferencing-based supervision sessions (384kbit/s) and five face-to-face sessions alternating weekly for 10 sessions. Following completion of the 10 sessions for candidates and supervisor B, and the 50 sessions for supervisor A, all subjects completed a semi-structured interview within two weeks. The eight subjects reported a wide range of experiences and attitudes. The results suggested that the quality of supervision can be satisfactorily maintained by using videoconferencing for up to half of the 70 hours required. The precondition for this estimate is that the pair in question have met face to face and established a relationship characterized by mutual trust and respect. Further studies, which include supervision pairs not having previously established relationships, are needed in order to indicate the generality of this precondition. The most obvious implication of this study is the potential for implementing decentralized models for recruiting and educating psychiatrists.


Author(s):  
Seyed Ebrahim Hosseini ◽  
Stuart Charters ◽  
Patricia Anthony ◽  
Abdulsalam Alhazmi

This qualitative study aimed to investigate the effects of using smartphone’s communication apps on Quality of Life (QoL) of elderly people living in Shiraz-Iran. The population of the study was all the senior residents registered with local public health centers located in Shiraz, Fars, Iran in 2018-2019. Overall, 20 participants volunteered to join the study, from the intervention and control groups (10 in each). Data were collected via semi-structured face to face interviews and analyzed using open-coding. The findings of this study and the educational training are intended to help families, practitioners in the aging field to pay more attention to teaching modern communication technology in order to promote healthier elderly and community.


2012 ◽  
Vol 1 (3) ◽  
pp. 87-104 ◽  
Author(s):  
Kheir Al-Kodmany ◽  
John Betancur ◽  
Sanjeev Vidyarthi

This article explores how community-based organizations working in low-income residential neighborhoods of U.S. cities employ e-tools and social networking platforms to engage the youth. The authors interviewed representatives of community organizations that work with young adults from lower-income groups in Chicago to comprehend their actual usages and perceptions of electronic tools. These organizations facilitate a wide-range of initiatives including political and after-school education, gang-free spaces, crime intervention and prevention, and arts and media. They found that the organizations have internalized the idea of employing e-Engagement techniques to enhance communication with their constituents but use new technologies and social media in multiple ways. Many respondents posit that the presently available e-tools enable certain forms of civic engagement but require sustained resources. Also stressed is the roles of face-to-face communication, offline-meetings, and other traditional means of interaction to ensure the commitment and quality of effective engagement in this age of e-participations.


2016 ◽  
Vol 56 (1) ◽  
pp. 81-93 ◽  
Author(s):  
Doohyun Hwang ◽  
William P. Stewart

This study extends social capital to specific types of personal relationships that encourage residents’ collective action for rural tourism development. Two communities in South Korea were examined using face-to-face interviews with community leaders, and a structured questionnaire with residents. Five hypotheses that frame tourism development as a coordinated effort of social networks were identified. Findings indicate that the quality of one’s social networks are relevant to the propensity to participate in tourism development. The closer one’s relationship to a community leader of tourism development, the more likely they are to be part of community-based efforts for tourism development. In addition, compared to individualized personal ties among residents, already existing social organizations were critical to enhance collective action of residents. An implication for increased participation in tourism development is for community leaders to reach out and learn from residents who are isolated or less central within community leadership networks.


2021 ◽  
Vol 31 (3) ◽  
pp. 314-321
Author(s):  
Marzieh Jahani Sayad Noveiri ◽  
Farshid Shamsaei ◽  
Masoud Khodaveisi ◽  
Zohreh Vanaki ◽  
Lily Tapak

Introduction: Breast cancer is a multidimensional crisis that affects not just the patient, but the spouse and other family members. Coping with this phenomenon, as one of the important challenges for the families and spouses, requires investigation. Understanding more about how spouses of women with breast cancer cope with this crisis could lead to better performance of spouses in front of their wives and raise their wives’ quality of life. Purpose: The study was conducted to explore the concept of coping based on the lived experiences of spouses of women with breast cancer. Methods: This qualitative study was conducted with a phenomenological approach in Hamedan and Rasht cities in Iran in 2019. Participants included 20 spouses of women with breast cancer selected by a purposive sampling method. Data were collected through unstructured face-to-face interviews and analyzed using van Manen’s six-stage phenomenological method. Results: The lived experiences of participants showed that the phenomenon of coping in spouses of women with breast cancer included five themes: Emotional pain, Shouldering the burden of care, Striving for family life cohesion, Future in ambiguity, and Sense of loss of self concept. Understanding the concept of coping in the spouses of women with breast cancer in health strategies can help wives achieve effective adaptation and also help professionals take effective measures in the field of medical care for patients and their spouses.


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