The Effect of Authenticity in Pilgrimage Tourism on Spiritual Well-Being and Quality of Life

Prevalensi Penyakit Jantung Koroner (PJK) terus mengalami peningkatan setiap tahunnya dan menjadi masalah kesehatan utama di masyarakat saat ini. PJK berdampak terhadap berbagai aspek kehidupan penderitanya baik fisik, psikososial maupun spiritual yang berpengaruh terhadap kualitas hidup pasien. Isu kualitas hidup dan faktor-faktor yang berhubungan didalamnya belum tergambar jelas di Indonesia. Tujuan dari penelitian ini adalah mengidentifikasi faktor yang memengaruhi kualitas hidup pada pasien PJK yang sedang menjalani rawat jalan. Faktor-faktor yang diteliti dalam penelitian ini meliputi jenis kelamin, tingkat penghasilan, revaskularisasi jantung, rehabilitasi jantung, kecemasan, depresi dan kesejahteraan spiritual. Kecemasan diukur dengan Zung Self-rating Anxiety Scale, depresi diukur dengan Beck Depression Inventory II, kesejahteraan spiritual diukur dengan kuesioner Spirituality Index of Well-Beingdan kualitas hidup diukur menggunakan Seattle Angina Questionnaire. Penelitian ini menggunakan rancangan kuantitatif deskriptif dan analitik multivariatedengan regresi logistic. Diteliti pada 100 responden yang diambil secara randomdalam kurun waktu 1 bulan di Poli Jantung. Hasil penelitian menunjukkan faktor yang memengaruhi kualitas hidup pada pasien PJK adalah cemas (p) 0,002; Odd Ratio(OR) 4,736 (95% confidence interval(CI), 1,749 – 12,827); depresi (p) 0,003; OR 5,450 ( 95% CI, 1,794 – 16,562); dan revaskularisasi (p) 0,033; OR 3,232 (95% CI, 1,096 – 9,528). Depresi menjadi faktor yang paling berpengaruh terhadap kualitas hidup pasien PJK. Faktor yang memengaruhi kualitas hidup pada pasien PJK meliputi depresi, cemas dan revaskularisasi. Dari ketiga variabel tersebut depresi merupakan variabel yang paling signifikan berpengaruh, sehingga manajemen untuk mencegah depresi perlu mendapatkan perhatian lebih baik lagi dalam discharge planningataupun rehabilitasi jantung.Kata kunci: Cemas, depresi, faktor yang memengaruhi, kualitas hidup, spiritual.Factors Influenced the Quality of Life among Patients Diagnosed with Coronary Heart Disease AbstractCoronary Heart Disease (CHD) has affected multidimensional aspects of human live nowadays. Yet, quality of life and factors associated with quality of life among people who live with heart disease has not been explored in Indonesia. This study aimed to identify factors influenced the quality of life among people with CHD received outpatient services. Those factors are gender, income, revascularization, cardiac rehabilitation, anxiety, depression and spiritual well-being. Zung Self-rating Anxiety Scale was used to measure anxiety where depression level measured using Beck Depression Inventory II. Spirituality index was used to measure spiritual well-being. The quality of life level was measured using the Seattle Angina Questionnaire. This study used quantitative descriptive with multivariate analysis using logistic regression. 100 respondents were randomly selected from the Cardiac Outpatient Unit. Findings indicated factors influenced the quality of life of CHD patients using a significance of ƿ-value < 0.005 were: anxiety (ƿ=0,002, OR = 4,736, 95% CI, 1,749 – 12,827); depression (ƿ=0,003; OR=5,450, 95% CI, 1,794 – 16,562); and revascularizations (ƿ=0,033; OR=3,232, 95% CI, 1,096 – 9,528). Depression was considered as the most significant factor; therefore, managing depression is a priority in the discharge planning or cardiac rehabilitation programme. Keywords: Anxiety, depression, quality of life, spiritual, well-being.

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The effectiveness of hope-fostering interventions in palliative care: A systematic review and meta-analysis

Palliative Medicine ◽

10.1177/0269216321994728 ◽

2021 ◽

pp. 026921632199472

Author(s):

Natalia Salamanca-Balen ◽

Thomas V Merluzzi ◽

Man Chen

Keyword(s):

Quality Of Life ◽

Systematic Review ◽

Palliative Care ◽

Meta Analysis ◽

Symptom Burden ◽

Well Being ◽

Medium Effect ◽

Spiritual Well Being ◽

Quasi Experimental

Background: The concept of hope is an important theme in chronic illness and palliative care and has been associated with increased psycho-spiritual well-being and quality of life. Psycho-spiritual interventions have been described in this population, but no systematic review of hope-enhancing interventions or hopelessness-reducing interventions has been conducted for persons with palliative care diseases. Aim: To describe and assess the effectiveness of interventions in palliative care that measure hope and/or hopelessness as an outcome. Design: This systematic review and meta-analysis was pre-registered (Prospero ID: CRD42019119956). Data sources: Electronic databases, journals, and references were searched. We used the Cochrane criteria to assess the risk of bias within studies. Results: Thirty-five studies (24 randomized controlled trials, 5 quasi-experimental, 6 pre-post studies) involving a total of 3296 palliative care patients were included. Compared with usual/standard cancer care alone, interventions significantly increased hope levels at a medium effect size ( g = 0.61, 95% confidence interval (CI) = 0.28–0.93) but did not significantly reduce hopelessness ( g = −0.08, 95% CI = −0.18 to 0.02). It was found that interventions significantly increase spirituality ( g = 0.70, 95% CI = 0.02–1.37) and decrease depression ( g = −0.29, 95% CI = −0.51 to −0.07), but had no significant effect over anxiety, quality of life, and symptom burden. Overall, quality of evidence across the included studies was rated as low. Conclusions: Evidence suggests that interventions can be effective in increasing hope in palliative care patients.

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Current measures of distress may not account for what's most important in existential care interventions: Results of the outlook trial

Palliative & Supportive Care ◽

10.1017/s1478951520001170 ◽

2020 ◽

Vol 18 (6) ◽

pp. 648-657

Author(s):

Karen E. Steinhauser ◽

Karen M. Stechuchak ◽

Katherine Ramos ◽

Joseph Winger ◽

James A. Tulsky ◽

...

Keyword(s):

Quality Of Life ◽

Early Stage ◽

Well Being ◽

Primary Analysis ◽

Significant Difference ◽

Spiritual Well Being ◽

Screening For Distress ◽

Secondary Outcomes ◽

Stage Renal Disease

AbstractObjectiveCompare the efficacy of two interventions addressing emotional and existential well-being in early life-limiting illness.MethodPrimary trial analysis (n = 135) included patients with advanced cancer, congestive heart failure, or end-stage renal disease; Arm 1 received the Outlook intervention, addressing issues of life completion and preparation, and Arm 2 received relaxation meditation (RM). Primary outcomes at five weeks (primary endpoint) and seven weeks (secondary): completion and preparation (QUAL-E); secondary outcomes: anxiety (POMS) quality of life (FACT-G) and spiritual well-being (FACIT-Sp) subscales of faith, meaning, and peace.ResultsAverage age was 62; 56% were post-high school-educated, 54% were married, 52% white, 44% female, and 70% had a cancer diagnosis. At baseline, participants demonstrated low levels of anxiety (<5 on POMS subscale) and depression (<10 on CESD) relative to population norms. Results of the primary analysis revealed no significant differences in mean Preparation by treatment arm at five weeks (14.4 Outlook vs. 14.8 RM; between-group difference −0.4 [95% CI, −1.6, 0.8], p = 0.49) or seven weeks (15.2 vs.15.4; between-group difference −0.2 [95% CI, −1.5, 1.0], p = 0.73). There were also no significant differences in mean Life Completion by treatment arm between five weeks (26.6 Outlook vs. 26.3 RM; between-group difference 0.2 [95% CI, −1.2, 1.7], p = 0.76) or seven weeks (26.5 vs. 27.5; between-group difference −1.0 [95% CI, −2.7, 0.7], p = 0.23). Compared to RM, Outlook participants did not have significant differences over time in the secondary outcomes of overall quality of life, anxiety, depression, FACT-G subscales, and FACIT-Sp subscales.DiscussionIn early-stage life-limiting illness, Outlook did not demonstrate a significant difference in primary or secondary outcomes relative to RM. Results underscore the importance of pre-screening for distress. Qualitatively, Outlook participants were able to express suppressed emotions, place illness context, reflect on adaptations, and strengthen identity. Screening for distress and identifying specified measures of distress, beyond anxiety and depression, is essential in our ability to adequately assess the multi-dimensional mechanisms that decrease existential suffering.

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Assessment of Quality of Life in Outpatients With Advanced Cancer: The Accuracy of Clinician Estimations and the Relevance of Spiritual Well-Being—A Hoosier Oncology Group Study

Journal of Clinical Oncology ◽

10.1200/jco.2003.06.093 ◽

2003 ◽

Vol 21 (14) ◽

pp. 2754-2759 ◽

Cited By ~ 67

Author(s):

Michael J. Fisch ◽

Michael L. Titzer ◽

Jean L. Kristeller ◽

Jianzhao Shen ◽

Patrick J. Loehrer ◽

...

Keyword(s):

Quality Of Life ◽

Advanced Cancer ◽

Performance Status ◽

Well Being ◽

Categorical Variables ◽

Therapeutic Trial ◽

Slight Variation ◽

Cross Sectional ◽

Spiritual Well Being

Purpose: To evaluate the association between quality-of-life (QOL) impairment as reported by patients and QOL impairment as judged by nurses or physicians, with and without consideration of spiritual well-being (SWB). Patients and Methods: A total of 163 patients with advanced cancer were enrolled onto a therapeutic trial, and cross-sectional data were derived from clinical and demographic questionnaires obtained at baseline, including assessment of patient QOL and SWB. Clinicians rated the QOL impairment of their patients as mild, moderate, or severe. Clinician-estimated QOL impairment and patient-derived QOL categories were compared. Correlation coefficients were estimated to associate QOL scores using different instruments. The analysis of variance method was used to compare Functional Assessment of Cancer Therapy–General scores on categorical variables. Results: There was no significant association between self-assessment scores and marital status, education level, performance status, or predicted life expectancy. However, a strong relationship between SWB and QOL was noted (P < .0001). Clinician-estimated QOL impairment matched the level of patient-derived QOL correctly in approximately 60% of cases, with only slight variation depending on the method of categorizing patient-derived QOL scores. The accuracy of clinician estimates was not associated with the level of SWB. Interestingly, a subset analysis of the inaccurate estimates revealed an association between lower SWB and clinician underestimation of QOL impairment (P = .0025). Conclusion: Clinician estimates of QOL impairment were accurate in more than 60% of patients. SWB is strongly associated with QOL, but it is not associated with the overall accuracy of clinicians’ judgments about QOL impairment.

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Quality of Life of Family Caregivers of Patients With Cancer in Korçe, Albania

Journal of Palliative Care ◽

10.1177/0825859718812432 ◽

2018 ◽

Vol 34 (2) ◽

pp. 118-125 ◽

Cited By ~ 1

Author(s):

Jonathon Judkins ◽

Irena Laska ◽

Judith Paice ◽

Priya Kumthekar

Keyword(s):

Quality Of Life ◽

Well Being ◽

Risk Groups ◽

The United States ◽

Primary Objective ◽

Care Clinic ◽

Demographic Groups ◽

Spiritual Well Being ◽

The Impact

Purpose: The primary objective of this study was to quantify cancer family caregiver (FCG) quality of life (QOL) in a Southern Albanian population and to determine whether differences exist between 4 domains of QOL (physical, psychological, social, and spiritual). This study also sought to compare QOL in our cohort to QOL in historical studies that used the same survey instrument, and to examine correlations between demographic characteristics and QOL to identify any high-risk groups. Methods: A sample of 40 FCGs was recruited at the Mary Potter Palliative Care Clinic in Korçe, Albania. Each participant completed the City of Hope Quality of Life (Family Version), a validated 37-question instrument that measures caregiver well-being in 4 domains: physical, psychological, social, and spiritual well-being. Results: There were no significant differences between the composite scores of the 4 QOL domains in our study. However, there were differences when comparing self-reported QOL between domains (“Rate your overall physical/psychological/social/spiritual well-being”). The QOL measured in our study was significantly lower than in 3 studies from the United States that used the same questionnaire. There were no significant correlations between demographic groups and QOL. Conclusions: This study examines the impact that the paucity of palliative services has on the QOL of Albanian cancer FCGs. Although there were no domains of QOL or demographic groups identified in our study that were faring significantly worse than others, the poor overall QOL provides further evidence to support the continued development of palliative services for both patients and family members in Albania.

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Spiritual well-being and quality of life in advanced age women post-mastectomy for breast cancer operated

Nursing & Care Open Access Journal ◽

10.15406/ncoaj.2019.06.00180 ◽

2019 ◽

Vol 6 (1) ◽

pp. 35-40

Author(s):

Mónica Gallegos Alvarado ◽

Ma Cristina Ochoa Estrada ◽

Mayra Guadalupe Hernández Romero ◽

Martha Lilia Parra Dominguez ◽

Eloísa Esquivel Rodriguez ◽

...

Keyword(s):

Breast Cancer ◽

Quality Of Life ◽

Well Being ◽

Advanced Age ◽

Spiritual Well Being

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Relationship between Spiritual Well-being and Quality of Life among Chronically Ill Individuals

International Journal of Indian Psychology ◽

10.25215/0204.105 ◽

2015 ◽

Vol 2 (4) ◽

Author(s):

Kanwal Shahbaz ◽

Dr. Kiran Shahbaz

Keyword(s):

Quality Of Life ◽

Economic Status ◽

Chronically Ill ◽

Well Being ◽

Life Questionnaire ◽

Spiritual Wellbeing ◽

Socio Economic Status ◽

Spiritual Well Being ◽

Chronically Ill Patients

The study was aimed to find the relationship between Spiritual Wellbeing and Quality of Life among chronically ill individuals. Likewise, relationship between demographic variables with Quality of Life and Spiritual Wellbeing were also reconnoitered. Non probability purposive sampling technique was used with chronically ill patients of 15yrs to 80yrs. For measuring spiritual wellbeing Urdu version of “Spiritual Wellness Inventory” (SWI-URDU) (Hanif, 2010) was used. Alternatively, for the measurement of Quality of life WHO Quality of Life Questionnaire (WHO-QOL-BREF) was used. A sample of 200 chronically ill patients were taken from four different hospitals of Rawalpindi and Islamabad. Reliabilities of both the instruments were computed as 0.90 for SWI and 0.74 for WHO-QOL-BREF. Findings show that quality of life and Spiritual wellbeing is positively related among chronically ill individuals. Males found to score high on spiritual wellbeing than females. Individuals with less education are more spiritually inclined as compared to individuals with high education. Quality of life was scored high by individuals with higher education as compared to less education. Married individuals were having better quality of life than unmarried, separated widow and divorced. Patients with middle socio-economic status were having better quality of life than higher and lower. Quality of life was high among individuals with better monthly income than those who have low and middle monthly incomes. Spiritual well being is higher in middle adolescents (15-17) than in late (18-20) adolescents. The current research can be implemented in designing the intervention plans for the betterment of chronically ill patients. It may also help us to develop an insight that each patient with same disease but in different age group and socio-economic status has different needs and plans of treatment and care.

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QUALITY OF LIFE DITINJAU DARI SPIRITUAL WELL-BEING PADA MAHASISWA KEPENDETAAN DI SEKOLAH TINGGI THEOLOGIA INJILI INDONESIA MEDAN-SUMATERA UTARA

Jurnal Psikologi Universitas HKBP Nommensen ◽

10.36655/psikologi.v6i1.89 ◽

2019 ◽

Vol 6 (1) ◽

pp. 21-27

Author(s):

Delviana Buulolo

Keyword(s):

Quality Of Life ◽

Data Analysis ◽

Positive Relationship ◽

Well Being ◽

Theological Seminary ◽

Normality Test ◽

Spiritual Well Being ◽

Linearity Test ◽

The Given

This study aims to find out relationship between quality of life and spiritual well-being. The hypothesis proposed in this study states that there is a positive relationship between quality of life and spiritual well-being, assuming that the higher is spiritual well-being, the higher quality of life will be and conversely the lower is the spiritual well-being, the lower will the quality of life be. The subjects of this study were 80 student on on the evangelical theological seminary of Indonesia Medan. Data were obtained from a scale to measure quality of life and spiritual well-being. The calculation was performed by testing requirements analysis (assumption test), which consisting of normality test and linearity test. Data analysis was performed by using Product Moment Correlation Analysis through SPSS 18 for Windows. The results of data analysis showed that r = 0.405 and p = 0.000 (p < 0.05), which indicates that there is a positive relationship between quality of life and spiritual well-being. The results indicate that the contribution of the given variable, quality of life and spiritual well-being is 16.4 percent, while the remaining 83.6 percent is influenced by other factors not examined in this study. From these results, it is concluded that the hypothesis stating that there is a positive relationship between quality of life and spiritual well-being.

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Factors associated to quality of life in people with intestinal stomas

Revista da Escola de Enfermagem da USP ◽

10.1590/1980-220x-reeusp-2020-0377 ◽

2021 ◽

Vol 55 ◽

Author(s):

Iraktânia Vitorino Diniz ◽

Isabelle Katherinne Fernandes Costa ◽

João Agnaldo Nascimento ◽

Isabelle Pereira da Silva ◽

Ana Elza Oliveira de Mendonça ◽

...

Keyword(s):

Quality Of Life ◽

Analytical Study ◽

Well Being ◽

P Value ◽

Cross Sectional ◽

Characteristics Method ◽

Spiritual Well Being ◽

Intestinal Stoma ◽

Psychological Dimensions

ABSTRACT Objective: To assess the quality of life of people with intestinal stoma and its association with sociodemographic and clinical characteristics. Method: Cross-sectional and analytical study conducted with people with intestinal stoma. An instrument was used for sociodemographic and clinical characterization: COH-QOL-OQ, validated in Brazil. Results: The sample included 152 people with stomas. There were significant differences among all dimensions (p-value < 0.01) of quality of life. The dimension spiritual well-being had the highest mean, with 6.69 (±1.56), followed by the psychological well-being dimension, 5.00 (±1.94), social well-being, 4.63 (±1.83), and physical well-being, 4.54 (±1.77). Marital status, religion, type of stoma, and permanence had statistically significant associations with dimensions of quality of life (p-value < 0.05). Conclusion: The assessment of quality of life in people with intestinal stoma presented lower scores in the physical, social, and psychological dimensions. There was an association between better quality of life scores and people with definitive ileostomy, in a domestic partnership and practicing other religions.

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