scholarly journals Maternal Barriers in Raising Children with Special Needs in Rural Areas: A Qualitative Study

2020 ◽  
Vol 7 (2) ◽  
pp. 156-163
Author(s):  
Cau Kim Jiu ◽  
◽  
Pitri Pitri ◽  
Kharisma Pratama ◽  
Usman Usman ◽  
...  

It is not easy for mothers living in rural areas to raise children with special needs because various obstacles arise from both within and outside the family. This study aimed to explore various obstacles for mothers in raising children with special needs, especially in rural areas. The research design used in this study was descriptive qualitative. The sample in this study consisted of 55 mothers who were selected using purposive sampling method. Data collection was carried out through semi-structured face-to-face interviews and through focus group discussions. The data collected in this study was then analyzed using thematic analysis. There are 3 themes generated in this research including 1) family perception, 2) financials, and 3) access to health care services. Information obtained from this research can provide solutions for families to overcome or get out from the existing barriers and provide information to the government to provide health services to families with children with special needs in rural areas.

2019 ◽  
Vol 23 (1) ◽  
Author(s):  
Beatriz Caroline Dias ◽  
Sueli MutsumiTsukuda Ichisato ◽  
Maria Angelica Marchetti ◽  
Eliane Tatsch Neves ◽  
Ieda Harumi Higarashi ◽  
...  

ABSTRACT Objective: To describe the challenges of family caregivers of children with special needs of multiple, complex and continuing care at home. Methods: Qualitative study based on the theoretical framework of the Patient and Family-Centerd Care (PFCC). We interviewed eleven family caregivers from 13 children enrolled in a special school in the Brazilian city of Maringá (PR). The data were subject to content analysis, thematic modality. Results: The main challenges identified are the lack of preparation for home care, the difficulty of access and follow-up in Primary Health Care services, and the difficulty of including the child in social interaction. However, caregivers react positively to these adversities. Conclusions and implications for practice: The nurses need the necessary training to transcend hospital technical care and to develop a care practice based on family-centerd care, considering this as a protagonist, including it in the process for the quality of life of these children.


2021 ◽  
Vol 9 (3) ◽  
pp. 61-72
Author(s):  
Mousumi Dholey ◽  
Sumana Sarkar

Adolescence in girls is a crucial transition phase during which they experience biological and psychological changes along with changes in social outlook. This phase provides an opportunity to lay the foundation for their future health. But, in rural areas, adolescent girls are often deprived of better nutrition and proper health care guide, resulting in serious health issues like malnutrition, stunting, wasting, and anaemia. Moreover, their access to health care services is subjected to various constraints as infrastructural and societal barriers such as regressive norms, social stigma, gendered family structure, etc. Thus, the present study attempts to explore the perceived barriers that prevent rural adolescent girls from accessing health care services at the micro-level. A community-based cross-sectional study was carried out after randomly selecting 120 adolescent girls in the age cohort of 10-19 years in the Raina-I block of Purba Bardhaman district. The results suggested that societal barriers have a significant influence over health-related decision-making. Besides, lack of quality health care services and economic burden are some of the other significant obstacles observed here.


2016 ◽  
Vol 1 (17) ◽  
pp. 12-19 ◽  
Author(s):  
Vinaya Manchaiah ◽  
Vijayalakshmi Easwar ◽  
Sriram Boothalingam ◽  
Spoorthi Thammaiah

Hearing loss is a global health concern, particularly in the low- and middle-income countries. Some of the reasons for this include, higher prevalence of hearing loss in these countries, lack of adequate awareness on hearing loss and its consequences, limited access to hearing care services to in suburban/rural areas, and high cost of such services. To make matters worse, health care services provided by the government in developing countries such as India are limited, and services provided by for-profit institutions are expensive. Therefore, there is a need for other stakeholders (e.g., non-governmental organizations) to bridge this service gap. In this paper, we introduce Audiology India (AI) to readers, an organization that is striving to improve ear and hearing health care services in India. We begin this paper by providing an overview of the current status of hearing care services in India. Next, we describe the background of AI, its mission, and accomplishments. Briefly, the goals of AI are: (a) to provide community-based hearing care services to individuals with no access to mainstream ear-care; (b) to conduct campaigns to raise public awareness about hearing loss and avenues for its prevention; (c) to carry out need-based research to continuously fine-tune our services and advance audiology in India; and (d) to offer consultancy services related to ear and hearing care.


2021 ◽  
Vol 4 (2) ◽  
pp. 521-530
Author(s):  
Hamida Bibi ◽  
Muhammad Fazil ◽  
Muhammad Ahmad Qadri ◽  
Muhammad Shabir

After the outbreak of COVID-19 and the subsequent suspension of trade, closure of international borders and restrictions on movement and quarantines, economic and social crisis — coupled with psychological distress — fomented worldwide. The pandemic has caused unprecedented educational, social, economic, psychological and political impacts with varying implications around the globe. The current study was conducted to guage and asses the socio-psychological impacts of COVID-19 in District Khyber, Khyber Pakhtunkhwa, Pakistan. Primary data was collected for the current study from 200 participants through face to face interviews. The data was analyzied under the “Thematic Content Analysis”. The findings of the study shows that the disease and the subsequent social distancing have put at stake the social cohesion and normaldom. In the wake of the disease, domestic abuse, aggression and violence increased making women prey to the predators’ anger, abuse and battering; religious events suffered suspension or disruption; The schools’ closure has had profound negative impacts on children’s conduct; the deteriorating economic situation and the swelling poverty of the masses have lead to a hike in the crimes’ rate; the transgender community has suffered economic plight; women’s regular health care services such as contraceptions, safe abortions and other maternity ailments have suffered notably; schools closure has set off hazardous implications for girls such as harassment, abuse, rape, teen-age pregnancy and sexually transmitted diseases. Resultantly, the people of the area have been suffereing acute trauma, videlicit boredom, fear, anxiety, frustration, and insomnia enticing them towards unhealthy activities viz. use of sedatives, smoking, alcohol usage, and, above all,  internet and online unethics. The recommendations should be implemented to help people avoid the downright negative impacts of the COVID-19 and, besides, to help the government to devise a mechanism to combat the pandemic.


Author(s):  
Mzukisi Niven Njotini

Health care services are recognised as a right. These services are available to "everyone" who needs them. This availability ensures that users, that is, persons who receive treatment in a health establishment or who are in need of health services, are able to have access to these services. Generally, health care services should be available without undue financial burden to users. This then means that the government is saddled with an added financial and administrative burden to ensure their availability to users. However, the availability of the services depends on the availability of resources. In cases where resources are diminished, users who may be in need of health care services may be excluded. Furthermore, the availability of access to health care services does not sufficiently guarantee the securing of users’ personal information. Thus, it is enquired what levels of safeguards do health establishments have to secure the personal information of users? Do these security mechanisms allow for the disclosure of personal information to third parties, and how?    


Author(s):  
Chithra Boovaragasamy ◽  
Seetharaman Narayanan

India is currently facing shortage of trained health workforce, especially in rural areas. WHO recommends mainstreaming of Complementary & Traditional systems of medicine as an affordable & culturally acceptable way towards achieving Universal Health Coverage (UHC). Despite the Government of India operating AYUSH clinics in PHCs for more than 10 years, we know very little about patients attending these clinics. Exploring the reasons for utilization of AYUSH care is of much value for planning to scale up the integration of AYUSH. The required information on utilization of AYUSH services were obtained through a review of the literature in PubMed databases (including MEDLINE) using the medical subject headings (MeSH) terms: ‘AYUSH’, ‘utilization’, ‘Ayurveda’, ‘Siddha’, ‘Homeopathy’, ‘morbidities’. All such studies which have focussed on profiling of patients who sought care in AYUSH were the individuals who have non–life-threatening chronic diseases or conditions. To improve AYUSH based health care services, it is imperative to understand the acceptability of AYUSH interventions among the general public for the utmost utilization of AYUSH services.


2020 ◽  
Vol 4 (Supplement_1) ◽  
Author(s):  
Gauri Behari ◽  
Karyne Lima Vinales ◽  
Ricardo Rafael Correa ◽  
Peter Reaven ◽  
Sherman Mitchell Harman

Abstract Introduction: Rural Americans experience significant health disparities and have poorer health outcomes compared to their urban counterparts. Access to health care services in rural areas remains an ongoing challenge. Telehealth services can efficiently and effectively improve access to healthcare for people living in rural and remote areas. However, it is unclear if telemedicine services would be effective in the veteran population. Therefore, we have initiated a pilot studyto verify the effectiveness and satisfaction of diabetes care delivered through telehealth (Telediabetes) in a Phoenix VA community-based outpatient clinic (CBOC). Methods: The Southeast CBOC is a remote VA clinic in Phoenix with the largest volume of patients with diabetes. Inclusion criteria were patients with type 2 diabetes that have been seen at least one time in the endocrinology clinic at the Phoenix VA and were willing toparticipate in telemedicine. Of the 36 patients that qualified for the study, 20 (55%) were scheduled, 11 (31%) were unreached, and only 5 (14 %) declined. Interventions included optimizing use of newer diabetes medications such as GLP-1 agonists and SGLT2 inhibitors andefforts to improve adherence to treatment regimens. Methods to improve adherence included offering home self-monitoring of blood glucose, increased frequency of visits, including home video conferencing and recommending referrals to nutrition and clinical pharmacists for amultidisciplinary approach. Patient satisfaction was assessed through a validated 5-question survey using a Likert scale 1-5 immediately after each visit. The primary outcomes were change in A1c and patient satisfaction. Results: 95% (17/18) of the participants were males, the mean age was 62.5±.14.0 years-old, and the mean BMI was 34.4±6.8 kg/m2. Median follow-up time was 189 days (range: 89-417). During follow-up, A1c decreased by 0.8% (baseline: 9.5±2.2 vs. post-visit: 8.7±2.0%, p=0.017).Overall, all patients were fully satisfied (Likert score of 5) with the telediabetes visits and 94% of the patients would choose telehealth over face-to-face appointments. Up to now 37% of patients have had at least a second visit with telediabetes. Conclusion: Telediabetes is an effective alternative to face-to-face visits for rural veterans, as demonstrated in other communities. The high patient satisfaction and decrease in A1c in this study showed that the program can be expanded to increase access to diabetes care in remoteareas.


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