scholarly journals From Information Seekers to Innovators: Qualitative Analysis Describing Experiences of the Second Generation of E-Patients

10.2196/13022 ◽  
2019 ◽  
Vol 21 (8) ◽  
pp. e13022 ◽  
Author(s):  
Therese Scott Duncan ◽  
Sara Riggare ◽  
Sabine Koch ◽  
Lena Sharp ◽  
Maria Hägglund
Keyword(s):  
Health Care ◽  
Health Care System ◽  
Chronic Conditions ◽  
First Generation ◽  
Second Generation ◽  
Informal Caregivers ◽  
Self Care ◽  
Health Data ◽  
Web Based ◽  
Care System

Background Current health care systems are rarely designed to meet the needs of people living with chronic conditions. However, some patients and informal caregivers are not waiting for the health care system to redesign itself. These individuals are sometimes referred to as e-patients. The first generation of e-patients used the internet for finding information and for communicating with peers. Compared with the first generation, the second generation of e-patients collects their own health data and appears to be more innovative. Objective The aim of this study was to describe the second generation of e-patients through exploration of their active engagement in their self-care and health care. Methods Semistructured interviews were conducted with 10 patients with chronic conditions and 5 informal caregivers. They were all recruited through a Web-based advertisement. Data were analyzed according to the framework analysis approach, using the 3 concepts of the self-determination theory—autonomy, relatedness, and competence—at the outset. Results Study participants were actively engaged in influencing their self-care and the health care system to improve their own health, as well as the health of others. This occurred at different levels, such as using their own experience when giving presentations and lectures to health care professionals and medical students, working as professional peers in clinical settings, performing self-tracking, contributing with innovations, and being active on social media. When interaction with health care providers was perceived as being insufficient, the participants sought support through their peers, which showed strong relatedness. Competence increased through the use of technology and learning experiences with peers. Their autonomy was important but was sometimes described as involuntary and to give up was not an option for them. Conclusions Like the first generation of e-patients, the participants frequently searched for Web-based information. However, the second generation of e-patients also produce their own health data, which they learn from and share. They also engage in the innovation of digital tools to meet health-related needs. Utilizing technological developments comes naturally to the second generation of e-patients, even if the health care system is not prepared to support them under these new circumstances.

scholarly journals From Information Seekers to Innovators: Qualitative Analysis Describing Experiences of the Second Generation of E-Patients (Preprint)

2019 ◽  
Author(s):  
Therese Scott Duncan ◽  
Sara Riggare ◽  
Sabine Koch ◽  
Lena Sharp ◽  
Maria Hägglund
Keyword(s):  
Health Care ◽  
Health Care System ◽  
Chronic Conditions ◽  
First Generation ◽  
Second Generation ◽  
Informal Caregivers ◽  
Self Care ◽  
Health Data ◽  
Web Based ◽  
Care System

BACKGROUND Current health care systems are rarely designed to meet the needs of people living with chronic conditions. However, some patients and informal caregivers are not waiting for the health care system to redesign itself. These individuals are sometimes referred to as e-patients. The first generation of e-patients used the internet for finding information and for communicating with peers. Compared with the first generation, the second generation of e-patients collects their own health data and appears to be more innovative. OBJECTIVE The aim of this study was to describe the second generation of e-patients through exploration of their active engagement in their self-care and health care. METHODS Semistructured interviews were conducted with 10 patients with chronic conditions and 5 informal caregivers. They were all recruited through a Web-based advertisement. Data were analyzed according to the framework analysis approach, using the 3 concepts of the self-determination theory—autonomy, relatedness, and competence—at the outset. RESULTS Study participants were actively engaged in influencing their self-care and the health care system to improve their own health, as well as the health of others. This occurred at different levels, such as using their own experience when giving presentations and lectures to health care professionals and medical students, working as professional peers in clinical settings, performing self-tracking, contributing with innovations, and being active on social media. When interaction with health care providers was perceived as being insufficient, the participants sought support through their peers, which showed strong relatedness. Competence increased through the use of technology and learning experiences with peers. Their autonomy was important but was sometimes described as involuntary and to give up was not an option for them. CONCLUSIONS Like the first generation of e-patients, the participants frequently searched for Web-based information. However, the second generation of e-patients also produce their own health data, which they learn from and share. They also engage in the innovation of digital tools to meet health-related needs. Utilizing technological developments comes naturally to the second generation of e-patients, even if the health care system is not prepared to support them under these new circumstances.

scholarly journals P1546UK ANNUAL THERAPY COST OF DIALYSIS WITH THE QUANTA SC+ PERSONAL HAEMODIALYSIS SYSTEM

2020 ◽  
Vol 35 (Supplement_3) ◽  
Author(s):  
Thomas Ferguson ◽  
Paul Komenda ◽  
Gerard Harper ◽  
John Milad
Keyword(s):  
Health Care ◽  
Emergency Department ◽  
Health Care System ◽  
Self Care ◽  
Emergency Department Visits ◽  
Weekend Effect ◽  
Care At Home ◽  
The Uk ◽  
Care System ◽  
At Home

Abstract Background and Aims The number of patients receiving dialysis is increasing in the United Kingdom, costing the National Health Service (NHS) over 500 million GBP annually. New personal haemodialysis systems are being developed, such as the Quanta SC+, that are smaller and simpler to use by patients while providing the clearances of conventional systems. Increasing uptake of lower intensity assistance and full self-care dialysis may provide economic benefits to the public health payer. In addition, promotion of every other day dialysis (3.5x weekly) may improve costs to the health system by helping to close the “post-weekend effect” with increased emergency department use and hospitalisations following the long interdialytic gap. As such, we aimed to describe the annual therapy costs of using SC+ in the UK for 3x weekly and 3.5x weekly dialysis regimens, both for self-care haemodialysis provided in-centre and at home in comparison to dialysis provided with conventional machines from the perspective of the health care system. Method Cost minimisation approach. Costs for human resources, equipment, and consumables were sourced from the dialysis machine developer (Quanta Dialysis Technologies). Other costs, such as facility expenses, dialysis-related drugs, avoided emergency department and hospitalisation events, and utilities were taken from a review of the literature. Costs are provided in 2018 GBP. Results Therapy provided as self-care in-centre or full self-care at home were found to have similar costs (£33,721 in-centre versus £33,836 at home for the 3x weekly regimen). Costs increased to £37,238 for self-care in-centre and £35,557 at home for the 3.5x weekly regimen. A comparator cost of £39,416 was established for dialysis provided with conventional machines in-hospital 3x weekly. For each dialysis patient, the health care system is anticipated to save £3,666 in costs associated with excess hospital stays and £2,176 in costs associated with excess emergency department visits. Conclusion In the UK, SC+ offers cost savings when used both for self-care in-centre and full self-care at home in comparison to dialysis provided in the clinic using conventional machines.

scholarly journals The Impact on a Health Care System of a Program to Facilitate Self-Care

1998 ◽  
Vol 163 (3) ◽  
pp. 139-144 ◽  
Author(s):  
Kenneth K. Steinweg ◽  
Richard E. Killingsworth ◽  
Ricardo J. Nannini ◽  
Jessica Spayde
Keyword(s):  
Health Care ◽  
Health Care System ◽  
Self Care ◽  
The Impact ◽  
Care System

The Challenge of Comprehensive Care

2015 ◽  
Vol 8 (1) ◽  
pp. 84-86
Author(s):  
Dawn Bucher
Keyword(s):  
Health Care ◽  
Health Care System ◽  
Nurse Practitioners ◽  
Chronic Conditions ◽  
Nursing Practice ◽  
Comprehensive Care ◽  
Multiple Chronic Conditions ◽  
Independent Practice ◽  
Doctor Of Nursing Practice ◽  
Care System

Adults are living longer with multiple chronic conditions. There are many challenges to providing comprehensive care to patients around the country in today’s system. This article, although personal, discusses some challenges seen by the writer but witnessed by many. It also looks at some challenges nurse practitioners have when practicing in multiple states across the country. Lastly, I offer my opinion on certification as a Diplomate of Comprehensive Care for all Doctor of Nursing Practice clinicians who provide comprehensive care in independent practice settings. It is time to provide safe, quality, comprehensive care to our patients in a reputable health care system.

Privacy protection laws and public perception of data privacy

2018 ◽  
Vol 25 (6) ◽  
pp. 1883-1902 ◽  
Author(s):  
Jawahitha Sarabdeen ◽  
Immanuel Azaad Moonesar
Keyword(s):  
Health Care ◽  
Content Analysis ◽  
Health Care System ◽  
Data Protection ◽  
Privacy Protection ◽  
Data Privacy ◽  
Health Data ◽  
Content Type ◽  
Care System ◽  
Laws And Regulations

Purpose The move toward e-health care in various countries is envisaged to reduce the cost of provision of health care, improve the quality of care and reduce medical errors. The most significant problem is the protection of patients’ data privacy. If the patients are reluctant or refuse to participate in health care system due to lack of privacy laws and regulations, the benefit of the full-fledged e-health care system cannot be materialized. The purpose of this paper is to investigate the available e-health data privacy protection laws and the perception of the people using the e-health care facilities. Design/methodology/approach The researchers used content analysis to analyze the availability and comprehensive nature of the laws and regulations. The researchers also used survey method. Participants in the study comprised of health care professionals (n=46) and health care users (n=187) who are based in the Dubai, United Arab Emirates. The researchers applied descriptive statistics mechanisms and correlational analysis to analyze the data in the survey. Findings The content analysis revealed that the available health data protection laws are limited in scope. The survey results, however, showed that the respondents felt that they could trust the e-health services systems offered in the UAE as the data collected is protected, the rights are not violated. The research also revealed that there was no significance difference between the nationality and the privacy data statements. All the nationality agreed that there is protection in place for the protection of e-health data. There was no significance difference between the demographic data sets and the many data protection principles. Originality/value The findings on the users’ perception could help to evaluate the success in realizing current strategies and an action plan of benchmarking could be introduced.

scholarly journals PREDICTORS OF GOOD GLYCEMIC CONTROL AMONG TYPE II DIABETES PATIENTS IN PALESTINE

2017 ◽  
Vol 10 (9) ◽  
pp. 341
Author(s):  
Rami Salem Mosleh ◽  
Noorizan Abd Aziz ◽  
Salmiah Mohd Ali ◽  
Mohamed Mansor Manan ◽  
Sa'ed Zyoud ◽  
...  
Keyword(s):  
Health Care ◽  
Glycemic Control ◽  
Health Care System ◽  
Type Ii Diabetes ◽  
Care Management ◽  
Self Care ◽  
Type Ii ◽  
Good Glycemic Control ◽  
System Factors ◽  
Care System

  Objectives: The aim of this study is to assess glycemic control and its relationship with patient characteristics, health-care system factors, and self-care management in type II diabetes patients.Methods: A retrospective cross-sectional study was conducted among 330 type II diabetes patients who met the inclusion criteria and whose medical records covered a period of 1 year. Data concerning patient characteristics, health-care system factors, self-care management, and available last reading of hemoglobin A1c (HbA1c) were collected through personal interviews and a medical records’ review using structured questionnaires and data collection forms. Good glycemic control was defined as HbA1c ≤7%. To assess the results, the Statistical Package for Social Sciences (version 16) was used to undertake descriptive, univariate, and multivariate analyses.Results: The mean±standard deviation age was 60±9.7 years. More than half of the participants were male (51.2%), and the majority had additional chronic diseases (88.5%). Of the total 271 participants whose HbA1c levels have been monitored, 16.7% had good glycemic control. Multivariate analysis showed that unemployment was significantly related to a decreased odds of good glycemic control (odds ratio=0.34; 95% confidence interval=0.12-0.98; p<0.05).Conclusion: The study noted that the proportion of patients with good glycemic control was low, a result comparable to studies from many countries. Further investigation and improvement of inappropriate health-care system factors and self-care management together with educational programs that emphasize the importance of self-care management and the health-care providers’ role would be of great benefit in glycemic control.

scholarly journals People Centeredness, Chronic Conditions and Diversity Sensitive eHealth: Exploring Emancipation of the ‘Health Care System’ and the ‘Patient’ in Health Informatics

Life ◽  
2020 ◽  
Vol 10 (12) ◽  
pp. 329
Author(s):  
Lars Botin ◽  
Pernille S. Bertelsen ◽  
Lars Kayser ◽  
Paul Turner ◽  
Sidsel Villumsen ◽  
...  
Keyword(s):  
Health Care ◽  
Health Care System ◽  
Health Informatics ◽  
Chronic Conditions ◽  
Access To Health Care ◽  
Health Care Services ◽  
Health Care Systems ◽  
User Engagement ◽  
Care Systems ◽  
Care System

Health care systems struggle to consistently deliver integrated high-quality, safe, and patient-centered care to all in an economically sustainable manner. Inequity of access to health care services and variation in diagnostic and treatment outcomes are common. Further, as health care systems become ever more complex, iatrogenesis and counter productivity have emerged as real dangers. In exploring this paradox, this paper considers a subset of those in society living with chronic conditions. Their attributes and circumstances have led to them being marginalized or excluded from ‘end-user’ engagement and/or from their requirements being incorporated into technology supported chronic disease management initiatives. Significantly, these citizens are often the most vulnerable and socially disadvantaged and tend to achieve poorer results and cost more per capita than the ‘average patient’ in their interactions with the health care system. Critically, this paper argues that a truly people-centered technology supported chronic care system can only be designed by understanding and responding to the needs, attributes and capabilities of the most vulnerable in society. This paper suggests innovative ways of supporting interactions with these ‘end-users’ and highlights how reflection on these approaches can contribute to emancipating the health system to move towards more socially inclusive eHealth solutions.

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