scholarly journals Using Patient and Family Engagement Strategies to Improve Outcomes of Health Information Technology Initiatives: Scoping Review (Preprint)

2019 ◽  
Author(s):  
Kevin Leung ◽  
Drew Lu-McLean ◽  
Craig Kuziemsky ◽  
Richard G Booth ◽  
Sarah Collins Rossetti ◽  
...  
Keyword(s):  
Health Care ◽  
Health Information ◽  
Scoping Review ◽  
Health Care Organizations ◽  
Family Engagement ◽  
Family Members ◽  
It Adoption ◽  
Health It ◽  
Gray Literature ◽  
Engagement Strategies

BACKGROUND Many health care organizations around the world have implemented health information technologies (ITs) to enhance health service efficiency, effectiveness, and safety. Studies have demonstrated that promising outcomes of health IT initiatives can be obtained when patients and family members participate and engage in the adoption, use, and evaluation of these technologies. Despite knowing this, there is a lack of health care organizations using patient and family engagement strategies to enhance the use and adoption of health ITs, specifically. OBJECTIVE This study aimed to answer the following three research questions (RQs): (1) what current frameworks or theories have been used to guide patient and family engagement in health IT adoption, use, implementation, selection, and evaluation?, (2) what studies have been done on patient and family engagement strategies in health IT adoption, use, implementation, selection, and evaluation?, and (3) what patient and family engagement frameworks, studies, or resources identified in the literature can be applied to health IT adoption, use, implementation, selection, and evaluation? METHODS This scoping review used a five-step framework developed by Arksey and O’Malley and adapted by Levac et al. These steps include the following: (1) identifying the RQ, (2) identifying relevant studies, (3) selecting studies, (4) charting relevant data, and (5) summarizing and reporting the result. Retrieved academic and grey literature records were evaluated using a literature review software based on inclusion and exclusion criteria by two independent reviewers. If consensus was not achieved, two reviewers would resolve conflicts by discussion. Research findings and strategies were extracted from the studies and summarized in data tables. RESULTS A total of 35 academic articles and 23 gray literature documents met the inclusion criteria. In total, 20 of the 35 included studies have been published since 2017. Frameworks found include the patient engagement framework developed by Healthcare Information and Management Systems Society and the patient and family engagement framework proposed by Carman et al. Effective strategies include providing patients with clear expectations and responsibilities and providing reimbursement for time and travel. The gray literature sources outlined key considerations for planning and supporting engagement initiatives such as providing patients with professional development opportunities, and embedding patients in existing governance structures. CONCLUSIONS Several studies have reported their findings regarding successful strategies to engage patients and family members in health IT initiatives and the positive impact that can emerge when patients and family members are engaged in such initiatives in an effective manner. Currently, no framework has consolidated all of the key strategies and considerations that were found in this review to guide health care organizations when engaging patients and family members in a health IT–specific project or initiative. Further research to evaluate and validate the existing strategies would be of value.

scholarly journals Using Patient and Family Engagement Strategies to Improve Outcomes of Health Information Technology Initiatives: Scoping Review

10.2196/14683 ◽  
2019 ◽  
Vol 21 (10) ◽  
pp. e14683 ◽  
Author(s):  
Kevin Leung ◽  
Drew Lu-McLean ◽  
Craig Kuziemsky ◽  
Richard G Booth ◽  
Sarah Collins Rossetti ◽  
...  
Keyword(s):  
Health Care ◽  
Health Information ◽  
Scoping Review ◽  
Health Care Organizations ◽  
Family Engagement ◽  
Family Members ◽  
It Adoption ◽  
Health It ◽  
Gray Literature ◽  
Engagement Strategies

Background Many health care organizations around the world have implemented health information technologies (ITs) to enhance health service efficiency, effectiveness, and safety. Studies have demonstrated that promising outcomes of health IT initiatives can be obtained when patients and family members participate and engage in the adoption, use, and evaluation of these technologies. Despite knowing this, there is a lack of health care organizations using patient and family engagement strategies to enhance the use and adoption of health ITs, specifically. Objective This study aimed to answer the following three research questions (RQs): (1) what current frameworks or theories have been used to guide patient and family engagement in health IT adoption, use, implementation, selection, and evaluation?, (2) what studies have been done on patient and family engagement strategies in health IT adoption, use, implementation, selection, and evaluation?, and (3) what patient and family engagement frameworks, studies, or resources identified in the literature can be applied to health IT adoption, use, implementation, selection, and evaluation? Methods This scoping review used a five-step framework developed by Arksey and O’Malley and adapted by Levac et al. These steps include the following: (1) identifying the RQ, (2) identifying relevant studies, (3) selecting studies, (4) charting relevant data, and (5) summarizing and reporting the result. Retrieved academic and grey literature records were evaluated using a literature review software based on inclusion and exclusion criteria by two independent reviewers. If consensus was not achieved, two reviewers would resolve conflicts by discussion. Research findings and strategies were extracted from the studies and summarized in data tables. Results A total of 35 academic articles and 23 gray literature documents met the inclusion criteria. In total, 20 of the 35 included studies have been published since 2017. Frameworks found include the patient engagement framework developed by Healthcare Information and Management Systems Society and the patient and family engagement framework proposed by Carman et al. Effective strategies include providing patients with clear expectations and responsibilities and providing reimbursement for time and travel. The gray literature sources outlined key considerations for planning and supporting engagement initiatives such as providing patients with professional development opportunities, and embedding patients in existing governance structures. Conclusions Several studies have reported their findings regarding successful strategies to engage patients and family members in health IT initiatives and the positive impact that can emerge when patients and family members are engaged in such initiatives in an effective manner. Currently, no framework has consolidated all of the key strategies and considerations that were found in this review to guide health care organizations when engaging patients and family members in a health IT–specific project or initiative. Further research to evaluate and validate the existing strategies would be of value.

Engagement of Families in the Care of Hospitalized Pediatric Patients: A Scoping Review

2021 ◽  
pp. 107484072110488
Author(s):  
Teresa A. Jerofke-Owen ◽  
Natalie S. McAndrew ◽  
Karen S. Gralton ◽  
Joan P. Totka ◽  
Marianne E. Weiss ◽  
...  
Keyword(s):  
Health Care ◽  
Scoping Review ◽  
Child Outcomes ◽  
Family Engagement ◽  
Health Care Team ◽  
Future Research ◽  
Professional Behaviors ◽  
Team Members ◽  
Engagement Strategies ◽  
Parent Outcomes

This scoping review was conducted to examine the range, nature, and extent of the published family engagement literature specific to the pediatric acute care setting to highlight future research and practice development opportunities. Included studies ( N = 247) revealed global relevance. Engagement strategies ranged from more passive such as allowing/encouraging families to be present at the bedside to more active strategies aimed at promoting mutual and reciprocal nurse–patient interactions. Family engagement is distinguished by a mutually beneficial partnership of families with health care team members and care organizations. Future research in the area of family engagement in pediatric nursing should focus on determining the core engaging health professional behaviors and engaged parent outcomes; extending the knowledge base related to mutually beneficial partnerships between families and health care teams; developing effectiveness studies to determine the optimal engaging actions by teams to achieve parent engagement; and measuring the influence of engagement on parent and infant/child outcomes.

Developing and Measuring the Business Case for Health Information Technology

2017 ◽  
pp. 262-290 ◽  
Author(s):  
Duncan Wade Unwin ◽  
Louis Sanzogni ◽  
Kuldeep Sandhu
Keyword(s):  
Health Care ◽  
Information Technology ◽  
Information Systems ◽  
Care Delivery ◽  
Health Care Systems ◽  
Business Case ◽  
It Adoption ◽  
Health It ◽  
Adoption Of Technology ◽  
Care Systems

This chapter examines the adoption of information technology and information systems to support the clinical process. It explores popular models of information systems adoption and success, and relates these to the health it context. The end result of successful adoption of technology should be the improvement in performance of health care delivery, yet measurement of performance is complex. The various approaches to performance measurement are discussed. As one of the challenges in predicting the outcomes of adoption is the lack of consistent taxonomy, a solution to which is proposed. The chapter then looks at evaluation of it projects and considers what special factors may affect health it adoption and benefits in developing health care systems.

Analyzing the Role of Health Information Technology in Global Health Care

2017 ◽  
pp. 694-714
Author(s):  
Kijpokin Kasemsap
Keyword(s):  
Health Care ◽  
Information Technology ◽  
Global Health ◽  
Patient Care ◽  
Health Information Technology ◽  
Health Information ◽  
Health Care Providers ◽  
Health It ◽  
Design Development ◽  
Global Health Care

This chapter explains the perspectives on global health, the overview of health information technology (health IT), the applications of electronic health record (EHR), and the importance of health IT in global health care. Health IT is the area of IT involving the design, development, creation, utilization, and maintenance of information systems for the health care industry. Health IT makes it possible for health care providers to better manage patient care through the secure use and sharing of health information. Effective health IT can lower costs, improve efficiency, and reduce medical error, while providing better patient care and service. The chapter argues that utilizing health IT has the potential to enhance health care performance and reach strategic goals in global health care.

Analyzing the Role of Health Information Technology in Global Health Care

2017 ◽  
pp. 287-307 ◽  
Author(s):  
Kijpokin Kasemsap
Keyword(s):  
Health Care ◽  
Information Technology ◽  
Global Health ◽  
Patient Care ◽  
Health Information Technology ◽  
Health Information ◽  
Health Care Providers ◽  
Health It ◽  
Design Development ◽  
Global Health Care

This chapter explains the perspectives on global health, the overview of health information technology (health IT), the applications of electronic health record (EHR), and the importance of health IT in global health care. Health IT is the area of IT involving the design, development, creation, utilization, and maintenance of information systems for the health care industry. Health IT makes it possible for health care providers to better manage patient care through the secure use and sharing of health information. Effective health IT can lower costs, improve efficiency, and reduce medical error, while providing better patient care and service. The chapter argues that utilizing health IT has the potential to enhance health care performance and reach strategic goals in global health care.

A Novel Health Informatics Tool to Improve Caregiver Activation: Findings from Pediatric BMT in a Hospital-Based Setting

Blood ◽  
2016 ◽  
Vol 128 (22) ◽  
pp. 2382-2382 ◽  
Author(s):  
Lyndsey Runaas ◽  
Evan Bischoff ◽  
Flora Hoodin ◽  
Rachel Kentor ◽  
Lauren Ostarello ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Health Care ◽  
Health Information ◽  
Trait Anxiety ◽  
Care Provider ◽  
Health Informatics ◽  
Care Delivery ◽  
Health It ◽  
Caregiver Quality

Abstract Background: The rapid adoption of mobile technology by the public and increased emphasis on patient engagement yields an opportune time to leverage health information technology (IT). Yet, a knowledge deficit exists on the use of health IT tools for high-risk populations. Pediatric blood and marrow transplant (BMT) is a medically complex and intense intervention. We have previously shown that BMT patients and caregivers have significant information needs. As such, caregiver activation on behalf of the patient may play an important role in fostering an effective patient-caregiver-provider partnership, which is increasingly recognized as the optimal model for health care delivery. Anxiety over outcomes, compounded by information overload may limit successful activation. Health IT tools offer the potential to overcome constraints in health care delivery limited by provider time and complex health information. We hypothesized that a tablet-based tool displaying personalized health information, including real-time data from the electronic health record, could provide a platform to promote caregiver activation. The implementation and evaluation of our health IT tool (BMT Roadmap) was based on generation of user-centered needs and in collaboration with a trans-disciplinary team, including experts in BMT, health communications, psychology/health behavior, biostatistics, health informatics, and human-computer interaction research. BMT Roadmap included the following domains: 1) laboratory results; 2) medications; 3) clinical trial enrollment; 4) health care provider directory; 5) phases of transplant; and 6) interactive discharge checklist with professionally produced videos on central line care. Methods: Caregivers of pediatric BMT patients were recruited and enrolled on this IRB-approved study. They were instructed to use BMT Roadmap freely throughout the patient's admission. Data collection included mixed methods approaches. System log-use data were recorded, including number of log-ins, domains frequented, and duration of use. Quantitative survey measurements were obtained at baseline (admission), discharge, and day 100 after BMT. These validated surveys measured activation, mood, anxiety, satisfaction, quality of life, and caregiver distress. In depth qualitative interviews were performed at baseline, weekly during admission, at discharge, and at day 100. Both inductive and deductive analysis was used to identify themes for further study. Results: Ten caregivers participated in the study: 80% female, 90% white, median age 36 years (25-54 years). Transplants were 50% autologous and 50% allogeneic. Median time of use was 104.1 minutes (6.4-256.2 minutes) over 29.5 days (21-68 days). Minutes used and days used were strongly inter-correlated (r=.90, p=0.001) and correlated with inpatient days (r=.70, p=0.05; and r=.81, p=0.01 respectively). The most time spent was in the laboratory module, followed by health care provider directory, medication, and phases of care modules (Table 1). Quantitative survey results showed that trait anxiety (STAI-T) was decreased, caregiver quality of life (CQOL) was improved, and caregiver activation (C-PAM) was increased at discharge compared with baseline (Table 2). The highest level of self-rated activation, as assessed by the C-PAM survey increased from 40% (admission) to 50% (discharge), and reached 85.7% (day 100). Total C-PAM score showed a strong trend toward increased activation from admission to day 100 (p=0.08). Caregivers with higher engagement had less trait anxiety at day 100 (r=.82, p=0.02), but engagement was unrelated to minutes of iPad use, days of iPad use, inpatient days, and caregiver quality of life. Caregivers described the iPad as easy to use and all used it for some portion of their stay (Table 3). Conclusions: Our findings indicate that health IT tools adapted to specific clinical conditions have potential to increase caregiver activation. BMT Roadmap was highly useful and easy to use. Validated survey measurements indicated that trait anxiety was decreased, caregiver quality of life was improved, and caregiver activation was increased at discharge compared with baseline. Higher activation was associated with less anxiety at day 100, but unrelated to iPad use (time), inpatient days, caregiver depression, distress or quality of life. We are now expanding BMT Roadmap into the Adult BMT population. Disclosures No relevant conflicts of interest to declare.

Innovative Power of Health Care Organisations Affects IT Adoption: A bi-National Health IT Benchmark Comparing Austria and Germany

2017 ◽  
Vol 41 (2) ◽  
Author(s):  
Jens Hüsers ◽  
Ursula Hübner ◽  
Moritz Esdar ◽  
Elske Ammenwerth ◽  
Werner O. Hackl ◽  
...  
Keyword(s):  
Health Care ◽  
National Health ◽  
It Adoption ◽  
Health It

Client and family engagement in rehabilitation research: a framework for health care organizations

2017 ◽  
Vol 40 (7) ◽  
pp. 859-863 ◽  
Author(s):  
James Anderson ◽  
Laura Williams ◽  
Amir Karmali ◽  
Lori Beesley ◽  
Nadia Tanel ◽  
...  
Keyword(s):  
Health Care ◽  
Health Care Organizations ◽  
Family Engagement ◽  
Rehabilitation Research

scholarly journals Survey of health informatics education in Finland in 2017

2017 ◽  
Vol 9 (2-3) ◽  
pp. 217 ◽  
Author(s):  
Johanna Tolonen ◽  
Alpo Värri
Keyword(s):  
Health Care ◽  
Information Technology ◽  
Information Systems ◽  
Technology Education ◽  
Health Information ◽  
Health Care Professionals ◽  
Health It ◽  
Health Care Workforce ◽  
Information Technology Education ◽  
It Education

The European Union and the USA collaborate in developing the skills of the application of information technology in the health care workforce. A part of this activity is a project which studies the gaps in the present education and proposes methods of filling these gaps. The objective of this paper is to identify the existing IT related education to the health care work force in Finland. A secondary objective was to get an impression of the experience and attitudes of the members of this workforce about health IT education. This paper presents the results of the survey of how information technology is educated to the students of the health care professions in Finland in the year 2017. In addition to literature search including also the study guides of many major health care professional education organizations, 24 telephone interviews of health care professionals in different fields in Finland were made. The results show that although basic information technology education is often available at every level of education, it is expected that the health care professionals learn to use the health information systems during their training periods or later in working life. The interviews showed that the given education varied considerably and some of the personnel had received no or only a little education on IT during studies. As the amount and quality of on-the-job information technology education varies, many health care professionals are not able to fully benefit from the information systems if their general feeling is that they just “survive” from daily activities with them. The results lead to suggest that the health professional degrees should contain at least a minimal amount of relevant health IT education which is tested with an exam and that the present health care workforce should receive ear-marked in-service training in the use of health information technology based on the needs of the individual.

scholarly journals Self-Assessment Tool to Promote Organizational Health Literacy in Primary Care Settings in Switzerland

2020 ◽  
Vol 17 (24) ◽  
pp. 9497
Author(s):  
Saskia Maria De Gani ◽  
Daniela Nowak-Flück ◽  
Dunja Nicca ◽  
Dominique Vogt
Keyword(s):  
Primary Care ◽  
Health Care ◽  
Health Literacy ◽  
Health Information ◽  
Health Care Organizations ◽  
Assessment Tool ◽  
Action Plan ◽  
Organizational Health ◽  
The Self ◽  
Self Assessment

Dealing with health information and taking care of one’s own health are key aspects of health literacy and a difficulty for nearly half of the population in Europe. Limited health literacy often results in poorer health outcomes. Health literacy is a fundamental health determinant, and its improvement provides great potential for addressing public health challenges. Health care organizations play an important role in improving population’s health literacy. Health literate health care organizations facilitate access, understanding and use of health information and decrease the demands and complexities of the health care system. Few efforts have been taken so far to promote organizational health literacy, especially in German-speaking countries. This project aimed at developing a self-assessment tool, which enables primary care organizations to assess and improve their level of health literacy. The self-assessment tool was developed and evaluated with general practitioners and community care organizations in Switzerland. Here the participative development process, outcomes and the three modules of the self-assessment tool are presented: (1) manual with detailed introduction and instruction, (2) checklist for self-assessment of organizational health literacy and (3) handbook with measures for improvement. The aim of this tool is that organizations are able to identify the need for action, plan and implement improvement measures.

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