scholarly journals Status and Recommendations of Technological and Data-Driven Innovations in Cancer Care: Focus Group Study (Preprint)

2020 ◽  
Author(s):  
Haridimos Kondylakis ◽  
Cristian Axenie ◽  
Dhundy (Kiran) Bastola ◽  
Dimitrios G Katehakis ◽  
Angelina Kouroubali ◽  
...  
Keyword(s):  
Focus Group ◽  
Patient Engagement ◽  
Cancer Care ◽  
Data Driven ◽  
Practical Implementation ◽  
Focus Group Study ◽  
Patient Journey ◽  
Horizon 2020 ◽  
Cancer Management ◽  
The Status

BACKGROUND The status of the data-driven management of cancer care as well as the challenges, opportunities, and recommendations aimed at accelerating the rate of progress in this field are topics of great interest. Two international workshops, one conducted in June 2019 in Cordoba, Spain, and one in October 2019 in Athens, Greece, were organized by four Horizon 2020 (H2020) European Union (EU)–funded projects: BOUNCE, CATCH ITN, DESIREE, and MyPal. The issues covered included patient engagement, knowledge and data-driven decision support systems, patient journey, rehabilitation, personalized diagnosis, trust, assessment of guidelines, and interoperability of information and communication technology (ICT) platforms. A series of recommendations was provided as the complex landscape of data-driven technical innovation in cancer care was portrayed. OBJECTIVE This study aims to provide information on the current state of the art of technology and data-driven innovations for the management of cancer care through the work of four EU H2020–funded projects. METHODS Two international workshops on ICT in the management of cancer care were held, and several topics were identified through discussion among the participants. A focus group was formulated after the second workshop, in which the status of technological and data-driven cancer management as well as the challenges, opportunities, and recommendations in this area were collected and analyzed. RESULTS Technical and data-driven innovations provide promising tools for the management of cancer care. However, several challenges must be successfully addressed, such as patient engagement, interoperability of ICT-based systems, knowledge management, and trust. This paper analyzes these challenges, which can be opportunities for further research and practical implementation and can provide practical recommendations for future work. CONCLUSIONS Technology and data-driven innovations are becoming an integral part of cancer care management. In this process, specific challenges need to be addressed, such as increasing trust and engaging the whole stakeholder ecosystem, to fully benefit from these innovations.

scholarly journals Status and Recommendations of Technological and Data-Driven Innovations in Cancer Care: Focus Group Study

10.2196/22034 ◽  
2020 ◽  
Vol 22 (12) ◽  
pp. e22034
Author(s):  
Haridimos Kondylakis ◽  
Cristian Axenie ◽  
Dhundy (Kiran) Bastola ◽  
Dimitrios G Katehakis ◽  
Angelina Kouroubali ◽  
...  
Keyword(s):  
Focus Group ◽  
Patient Engagement ◽  
Cancer Care ◽  
Data Driven ◽  
Practical Implementation ◽  
Focus Group Study ◽  
Patient Journey ◽  
Horizon 2020 ◽  
Cancer Management ◽  
The Status

Background The status of the data-driven management of cancer care as well as the challenges, opportunities, and recommendations aimed at accelerating the rate of progress in this field are topics of great interest. Two international workshops, one conducted in June 2019 in Cordoba, Spain, and one in October 2019 in Athens, Greece, were organized by four Horizon 2020 (H2020) European Union (EU)–funded projects: BOUNCE, CATCH ITN, DESIREE, and MyPal. The issues covered included patient engagement, knowledge and data-driven decision support systems, patient journey, rehabilitation, personalized diagnosis, trust, assessment of guidelines, and interoperability of information and communication technology (ICT) platforms. A series of recommendations was provided as the complex landscape of data-driven technical innovation in cancer care was portrayed. Objective This study aims to provide information on the current state of the art of technology and data-driven innovations for the management of cancer care through the work of four EU H2020–funded projects. Methods Two international workshops on ICT in the management of cancer care were held, and several topics were identified through discussion among the participants. A focus group was formulated after the second workshop, in which the status of technological and data-driven cancer management as well as the challenges, opportunities, and recommendations in this area were collected and analyzed. Results Technical and data-driven innovations provide promising tools for the management of cancer care. However, several challenges must be successfully addressed, such as patient engagement, interoperability of ICT-based systems, knowledge management, and trust. This paper analyzes these challenges, which can be opportunities for further research and practical implementation and can provide practical recommendations for future work. Conclusions Technology and data-driven innovations are becoming an integral part of cancer care management. In this process, specific challenges need to be addressed, such as increasing trust and engaging the whole stakeholder ecosystem, to fully benefit from these innovations.

scholarly journals Recommendations for patient engagement in guideline development panels: A qualitative focus group study of guideline-naïve patients

PLoS ONE ◽  
2017 ◽  
Vol 12 (3) ◽  
pp. e0174329 ◽  
Author(s):  
Melissa J. Armstrong ◽  
C. Daniel Mullins ◽  
Gary S. Gronseth ◽  
Anna R. Gagliardi
Keyword(s):  
Focus Group ◽  
Patient Engagement ◽  
Guideline Development ◽  
Focus Group Study

scholarly journals Are We on the Same Page? Patient and Provider Perceptions About Exercise in Cancer Care: A Focus Group Study

2017 ◽  
Vol 15 (5) ◽  
pp. 588-594 ◽  
Author(s):  
Agnes Smaradottir ◽  
Angela L. Smith ◽  
Andrew J. Borgert ◽  
Kurt R. Oettel
Keyword(s):  
Focus Group ◽  
Cancer Care ◽  
Focus Group Study ◽  
Provider Perceptions

scholarly journals Evaluating Implementation of the Diabetes Perioperative Passport: A qualitative focus group study

2020 ◽  
Author(s):  
Funke Akiboye ◽  
Emma Page ◽  
Krish Nirantharakumar ◽  
Gerry Rayman ◽  
Antje Lindenmeyer
Keyword(s):  
Focus Group ◽  
Focus Groups ◽  
Elective Surgery ◽  
District General Hospital ◽  
Working Environment ◽  
Practical Implementation ◽  
Care Needs ◽  
Focus Group Study ◽  
Factors Affecting ◽  
Implementation Tool

Abstract Background and AimsA perioperative passport was developed to improve care of people with diabetes undergoing elective surgery by equipping patients with a hand-held summary of their care needs. Two surgical nursing groups were approached to be involved in developing and piloting this novel technology with contrasting results.This study aims to examine the factors affecting implementation of an empowerment tool for patients with diabetes among nursing staff in two surgical groups within a single district general hospitalDesignA qualitative study using focus groups to examine factors affecting staff engagement in implementing the diabetes perioperative passport.MethodsTwo focus group were conducted in 2017 with pre-operative assessment nurses in the departments of orthopaedics and general surgery of an NHS trust (N= 8). Audio-taped group discussions were transcribed, and the data coded and analysed to identify themesFindingsThe general surgical nurse group generally supported each other’s views and comments. They were enthused about the passport throughout. In contrast, the orthopaedic specialist nurse group had initial reservations about implementing the passport, but as the focus group unfolded, they moved from sharing individual views to finding commonalities and became more engaged and motivated to use the passport.ConclusionFocus groups are a practical and efficient tool to conduct within the usual working environment of an NHS hospital. In addition to capturing information about the challenges to implementation they may serve as a crucial implementation tool where evidence-based practice has not been adopted.ImpactThis is the first study carried out in the NHS setting highlighting the benefit of focus groups as a practical implementation tool.

scholarly journals Evaluating Implementation of The Diabetes Perioperative Passport: A Qualitative Focus Group Study

2020 ◽  
Author(s):  
Funke Akiboye ◽  
Emma Page ◽  
Krish Nirantharakumar ◽  
Gerry Rayman ◽  
Antje Lindenmeyer
Keyword(s):  
Focus Group ◽  
Focus Groups ◽  
Elective Surgery ◽  
District General Hospital ◽  
Working Environment ◽  
Practical Implementation ◽  
Care Needs ◽  
Focus Group Study ◽  
Factors Affecting ◽  
Implementation Tool

Abstract Aims To examine the factors affecting implementation of an empowerment tool for patients with diabetes in two surgical groups within a single district general hospitalBackground A perioperative passport was developed to improve care of people with diabetes undergoing elective surgery by equipping patients with a hand-held summary of their care needs. Two surgical groups were approached to be involved in developing and piloting this novel technology with contrasting results. Design A qualitative study using focus groups to examine factors affecting staff engagement in implementing the diabetes perioperative passport.Methods Two focus group were conducted in 2017 with pre-operative nurses in the departments of orthopaedics and general surgery of an NHS trust (N= 8). Audio-taped group discussions were transcribed, and the data coded and analysed to identify themes.Results The general surgical nurse group generally supported each other’s views and comments. They were enthused about the passport throughout. In contrast, the orthopaedic specialist nurse group had initial reservations about implementing the passport, but as the focus group unfolded, they moved from sharing individual views to finding commonalities and became more engaged and motivated to use the passport. Conclusion Focus groups are a practical and efficient tool to conduct within the usual working environment of an NHS hospital. In addition to capturing information about the challenges to implementation they may serve as a crucial implementation tool where evidence-based practice has not been adopted. Impact This is the first study carried out in the NHS setting highlighting the benefit of focus groups as a practical implementation tool.

scholarly journals When Translation Competence Is Not Enough: A Focus Group Study of Medical Translators

2017 ◽  
Vol 62 (2) ◽  
pp. 396-414 ◽  
Author(s):  
Matilde Nisbeth Brøgger
Keyword(s):  
Focus Group ◽  
Empirical Studies ◽  
Communication Process ◽  
Focus Group Study ◽  
Patient Information Leaflets ◽  
Information Leaflets ◽  
The Status ◽  
Controlled Environments ◽  
Previous Empirical Study

Functionalist approaches to translation brought about a shift in the status and role of the translator: the translator is now considered to be an active, responsible agent in the communication process, which increases the importance of translation expertise and translation competence. Translation competence has thus attracted mounting research interest; however, empirical studies have primarily been conducted in controlled environments, omitting the translation context that professional translators usually work within. This study offers empirical evidence of the importance of the translation context when investigating translation competence. Based on a previous empirical study of translated Patient Information Leaflets, which showed a lack of translation competence, this study includes the translators’ perception using the focus group methodology. Results show the strong influence of contextual constraints on medical translators’ processes and thus products. The study concludes that an analysis of translation products alone may give a skewed picture of translators’ competence.

Pathway map development as an approach to identifying priority areas for quality improvement in Ontario.

2016 ◽  
Vol 34 (7_suppl) ◽  
pp. 108-108 ◽  
Author(s):  
Helen Mackay ◽  
Jasmin Soobrian ◽  
Joan Murphy ◽  
Lorraine Elit ◽  
Michael F. Milosevic ◽  
...  
Keyword(s):  
Cervical Cancer ◽  
Quality Improvement ◽  
Cancer Care ◽  
Development Process ◽  
Cancer Control ◽  
Evidence Based ◽  
Patient Journey ◽  
Screening Programs ◽  
Priority Areas ◽  
Cancer Management

108 Background: Disease Pathway Management (DPM) is the unifying approach to the way in which Cancer Care Ontario (CCO) sets priorities for cancer control, plans cancer services and improves the quality of care in Ontario. In 2014 DPM began developing a cervical cancer pathway map (CCPM) to map the patient journey along the cervical cancer care continuum. Objective: to report on the CPPM development process as a tool to identify key priorities for cervical cancer management in Ontario. Methods: DPM convened a multidisciplinary/multi-stakeholder cervical cancer working group with regional and specialty representation from across Ontario. Over 12 months, 33 individuals participated in an in-person meeting and monthly teleconferences. The CCPM was drafted using guidelines developed by CCO’s Program in Evidence Based Care (PEBC) and considering clinical guidance documents from several jurisdictions. Throughout the development process the team were asked to discuss and reach consensus on key priorities for improving care. Results: Twenty-two priority areas were identified across the continuum in: prevention, diagnosis, treatment, follow-up and survivorship. Opportunities were identified for: development/endorsement of evidence based guidelines; patient-centered approaches to screening; quality improvement; survivorship; drug funding implementation and a CPPM Knowledge Translation strategy. Potentially actionable items were aligned with relevant internal and external stakeholders including organized screening programs, the PEBC, provincial drug reimbursement programs and other quality improvement teams within CCO. Conclusions: The process of bringing multidisciplinary experts together in order to develop the CPPM successfully identified key priorities across the spectrum of care in Ontario and allowed identification of potential opportunities for quality improvement, development of practice guidelines and new models of care. In turn, the CCPM provides a patient-centred disease focused framework from which stakeholders can approach and evaluate new initiatives in the context of the cervical cancer continuum.

Latina Adolescents' Plans, Barriers, and Supports: A Focus Group Study

2008 ◽  
Author(s):  
Ellen H. McWhirter ◽  
Marina Valdez ◽  
Alisia R. Caban ◽  
Christina L. Aranda
Keyword(s):  
Focus Group ◽  
Focus Group Study ◽  
Latina Adolescents

THE NATURE OF LEGAL RESTRICTIONS IN ENVIRONMENTAL LAW

2019 ◽  
pp. 142-150
Author(s):  
Galyna Moroz
Keyword(s):  
Environmental Law ◽  
Functional Results ◽  
Environmental Safety ◽  
Educational Process ◽  
Practical Significance ◽  
Practical Implementation ◽  
The Status ◽  
Environmental Requirements ◽  
Content System ◽  
Legal Restrictions

Purpose. The article is aimed at analyzing the general theoretical principles and the essential characteristics of legal restrictions in environmental law; defining category of “environmental legal restrictions”, their content, system and the status of the respective legislation. Methodology. The methodology consists in carrying out a comprehensive analysis of the provisions of environmental legislation and formulating relevant conclusions on this basis. During the research, the following methods of scientific research were used: terminological, systemic and structural, comparative legal, structural and functional. Results. The objectively determined necessity of unconditional adherence to the legally established environmental requirements, prohibitions and restrictions as well as their potential scientifically substantiated enhancement in order to achieve environmentally significant goals oriented towards the priorities of sustainable development is substantiated. Restrictive mechanisms are scattered across statutory and regulatory acts of different legal force and even different branches of law, therefore, the need for their systematization and unification as well as generalization of the experience of their practical implementation in order to establish a comprehensive system of environmental restrictions is discussed. In our opinion, the conceptual basis and general essential characteristics of public environmental requirements and restrictions should be reflected in the future Environmental Code of Ukraine. Scientific novelty. In the course of the research, the author defines restrictions in environmental law as a specific sectoral imperative mechanism for regulating relations in the field of environmental safety, which consists in systematically introducing legislation on imperative provisions of environmental law as well as establishing specific legal regimes and mechanisms for their application and implementation. Practical significance. The main conclusions can be used in law-making and law-enforcing activities, as well as in further theoretical and legal research and in the educational process.

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