Patients' experiences of using My Hip Journey an eHealth program to enhance hip replacement recovery: A qualitative study (Preprint)

2020 ◽  
Author(s):  
Rosemary Saunders ◽  
Karla Seaman ◽  
Laura Emery ◽  
Debra Crompton ◽  
Chantelle Lynch ◽  
...  

BACKGROUND Patients undergoing surgery require pre- and post-operative education. eHealth programs can facilitate the delivery of information, individualised rehabilitation plans and communication with health professionals for surgical patients to promote overall patient recovery. My Hip Journey was an eHealth program designed to provide pre- and postoperative education for patients undergoing a total hip arthroplasty. OBJECTIVE The aim of this study was to explore patient experiences of using the eHealth program “My Hip Journey”. METHODS A descriptive, qualitative design was used to explore patient experiences of the eHealth program using semi-structured individual telephone interviews. An inductive thematic analysis was undertaken of the transcribed interviews. RESULTS Nine interviews were conducted. Participants found the program easy to use and three themes emerged from the analysis: (a) Information supported recovery; (b) Program motivated recovery and (c) Using technology for recovery. The participants found the eHealth program as a useful means of providing pre- and post-operative education and it built self- confidence in their recovery. CONCLUSIONS eHealth programs can prepare patients for surgical procedures and support them in their recovery and rehabilitation enabling them to feel some control of the surgical journey.

2021 ◽  
pp. bmjinnov-2020-000498
Author(s):  
Stephanie Aboueid ◽  
Samantha B Meyer ◽  
James R Wallace ◽  
Shreya Mahajan ◽  
Teeyaa Nur ◽  
...  

ObjectiveSymptom checkers are potentially beneficial tools during pandemics. To increase the use of the platform, perspectives of end users must be gathered. Our objectives were to understand the perspectives and experiences of young adults related to the use of symptom checkers for assessing COVID-19-related symptoms and to identify areas for improvement.MethodsWe conducted semistructured qualitative interviews with 22 young adults (18–34 years of age) at a university in Ontario, Canada. Interviews were audio-recorded, transcribed, and analysed using inductive thematic analysis.ResultsWe identified six main themes related to the decision of using a symptom checker for COVID-19 symptoms: (1) presence of symptoms or a combination of symptoms, (2) knowledge about COVID-19 symptoms, (3) fear of seeking in-person healthcare services, (4) awareness about symptom checkers, (5) paranoia and (6) curiosity. Participants who used symptom checkers shared by governmental entities reported an overall positive experience. Individuals who used non-credible sources reported suboptimal experiences due to lack of perceived credibility. Five main areas for improvement were identified: (1) information about the creators of the platform, (2) explanation of symptoms, (3) personalised experience, (4) language options, and (5) option to get tested.ConclusionsThis study suggests an increased acceptance of symptom checkers due to the perceived risks of infection associated with seeking in-person healthcare services. Symptom checkers have the potential to reduce the burden on healthcare systems and health professionals, especially during pandemics; however, these platforms could be improved to increase use.


2020 ◽  
pp. 135910532090987
Author(s):  
Georgia Louise Wilson ◽  
Sarah Grogan ◽  
Susan Powell ◽  
Ivan Gee ◽  
Lorna Porcellato ◽  
...  

This study explored smokers’ and non-smokers’ accounts of E-cigarettes. A total of 51 UK-based participants, 20 men and 31 women, responded to open-ended questions online. Inductive thematic analysis identified that the factors that influence E-cigarette behaviour and opinion in adult smokers and non-smokers are related to social context, informative sources, practical aspects and health implications. Participants presented varying accounts of E-cigarettes, suggesting that individual narratives regarding E-cigarettes are multi-faceted. This is important information for health professionals and policy makers tasked with advising on E-cigarette use.


2021 ◽  
Vol 47 (1) ◽  
pp. 59-65
Author(s):  
Abhinand Thaivalappil ◽  
Mariola Mascarenhas ◽  
Lisa A Waddell ◽  
Ian Young

Background: The Publicly Available International Foodborne Outbreak Database (PAIFOD) is a regularly updated repository that contains international outbreak data collected from multiple surveillance systems and sources. As of February 2020, the database contained more than 13,000 entries spanning over 20 years. PAIFOD is the only known database that captures international foodborne outbreak data. Objective: To explore user perceptions and identify potential directions for PAIFOD and make recommendations for databases with food safety information. Methods: Between January and March 2020, 16 semistructured telephone interviews were conducted with 24 previous, current and potential PAIFOD users. Interviewees were asked about their knowledge of and experience of using PAIFOD as well as about its strengths and limitations and recommendations for the database. An inductive thematic analysis approach was used to analyze qualitative data and generate themes. Results: Four main themes were generated based on the 24 interviewees’ accounts of their experience with and recommendations for PAIFOD: participants viewed PAIFOD as a useful tool; they weren’t familiar with its contents or purpose; they stated it should become an open-access platform or linked with another information-sharing initiative; and they considered that PAIFOD had the potential to enhance the Agency’s reputation by becoming widely recognized and used. Conclusion: This work, along with the ever-changing landscape of foodborne surveillance, supports the need to ensure that PAIFOD is updated to meet the modern-day demands of food safety experts.


2019 ◽  
pp. 1-11 ◽  
Author(s):  
P. T. Murphy ◽  
L. Clogher ◽  
A. van Laar ◽  
R. O’Regan ◽  
S. McManus ◽  
...  

ObjectivesOur principle objective was to examine the personal and professional impact of service user (SU) suicide on mental health professionals (MHPs). We also wished to explore putative demographic or clinical factors relating to SUs or MPHs that could influence the impact of SU suicide for MHPs and explore factors MHPs report as helpful in reducing distress following SU suicide.MethodsA mixed-method questionnaire with quantitative and thematic analysis was utilised.ResultsQuantitative data indicated SU suicide was associated with personal and professional distress with sadness (79.5%), shock (74.5%) and surprise (68.7%) particularly evident with these phenomena lasting less than a year for more than 90% of MHPs. MHPs also reported guilt, reduced self-confidence and a fear of negative publicity. Thematic analysis indicated that some MHPs had greater expertise when addressing SU suicidal ideation and in supporting colleagues after experiencing a SU suicide. Only 17.7% of MHPs were offered formal support following SU suicide.ConclusionSU suicide impacts MHPs personally and professionally in both a positive and negative fashion. A culture and clear pathway of formal support for MHPs to ascertain the most appropriate individualised support dependent on the distress they experience following SU suicide would be optimal.


2019 ◽  
Vol 56 (9) ◽  
pp. 1181-1186 ◽  
Author(s):  
Ella Guest ◽  
Bruna Costa ◽  
Gillian McCarthy ◽  
Claire Cunniffe ◽  
Nicola Marie Stock

Objective: The birth of a child with a cleft lip and/or palate (CL/P) can have a significant emotional and social impact on parents. Yet, the impact on the wider family is rarely investigated. Grandparents are becoming increasingly involved in the care of their grandchildren and may therefore have support needs of their own. The aim of the current study was to explore the experiences and support needs of grandparents of children born with CL/P. Design: Individual semistructured telephone interviews were carried out with 12 grandparents of children born with CL/P and were analyzed using inductive thematic analysis. Results: Five themes were identified (1) emotional impact of CL/P on grandparents, (2) grandparents’ social experiences, (3) grandparents’ involvement, (4) grandparents’ information needs, and (5) grandparents’ support needs. Participants experienced difficult emotions around the time of diagnosis and were concerned about the child’s treatment and future experiences. Participants played a significant role in supporting the whole family, but received little information or support themselves. Conclusions: Grandparents reported experiences comparable to published literature on parents. Clinicians and charitable organizations could consider how existing resources could be made more accessible to and/or adapted for wider family members, including grandparents.


BMJ Open ◽  
2017 ◽  
Vol 7 (8) ◽  
pp. e017073 ◽  
Author(s):  
Jennifer Liddle ◽  
Roisin Bartlam ◽  
Christian D Mallen ◽  
Sarah L Mackie ◽  
James A Prior ◽  
...  

ObjectivesClinical management of giant cell arteritis (GCA) involves balancing the risks and burdens arising from the disease with those arising from treatment, but there is little research on the nature of those burdens. We aimed to explore the impact of giant cell arteritis (GCA) and its treatment on patients’ lives.MethodsUK patients with GCA participated in semi-structured telephone interviews. Inductive thematic analysis was employed.Results24 participants were recruited (age: 65–92 years, time since diagnosis: 2 months to >6 years). The overarching themes from analysis were: ongoing symptoms of the disease and its treatment; and ‘life-changing’ impacts. The overall impact of GCA on patients’ lives arose from a changing combination of symptoms, side effects, adaptations to everyday life and impacts on sense of normality. Important factors contributing to loss of normality were glucocorticoid-related treatment burdens and fear about possible future loss of vision.ConclusionsThe impact of GCA in patients’ everyday lives can be substantial, multifaceted and ongoing despite apparent control of disease activity. The findings of this study will help doctors better understand patient priorities, legitimise patients’ experiences of GCA and work with patients to set realistic treatment goals and plan adaptations to their everyday lives.


2009 ◽  
Vol 15 (7) ◽  
pp. 876-884 ◽  
Author(s):  
A Bogosian ◽  
R Moss-Morris ◽  
L Yardley ◽  
L Dennison

Background Partners of people with multiple sclerosis are known to experience a heavy physical and psychological burden. However, little research has explored, in detail, the partners’ experience in the first years after diagnosis. The aim of this study was to explore and describe the experiences of partners of people who are in the relatively early stages of multiple sclerosis. Methods Fifteen semi-structured telephone interviews were conducted to assess partners’ concerns and difficulties. Data were audio-taped, transcribed, and analysed using an inductive thematic analysis. Results Key themes were being unsure of what the future might hold and feeling helpless and out of control. Furthermore, partners reported that other people could not understand and support them, which led to a feeling of social isolation. Conclusion The research illustrates the disruptive impact that MS has on partners’ lives and highlights the need for support to focus on partners’ needs even in early stages of the disease.


2019 ◽  
Vol 5 ◽  
pp. 205520761984554
Author(s):  
Angus Watt ◽  
Katherine Swainston ◽  
Gemma Wilson

Objective Wearable technologies for health monitoring are becoming increasingly mainstream. However, there is currently limited evidence exploring use from the perspective of healthcare professionals. This study aimed to explore health professionals’ attitudes toward their patients’ use of wearable technologies. Methods A convenience sample of health professionals was recruited to participate in this study. Qualitative semi-structured interviews were carried out either face-to-face, via Skype or telephone. Interviews were recorded using a Dictaphone, transcribed verbatim and analysed using thematic analysis. Results Four themes emerged from the qualitative findings: ‘opportunities for wearable technology’, ‘usability and understanding’, ‘privacy and surveillance’ and ‘cost’. Conclusions The findings portray health professionals’ ambivalence to the use of wearable technology, and it was apparent that whilst the participants considered the technology as being beneficial to patients, they still had concerns for its use.


2020 ◽  
pp. BJGP.2020.0795
Author(s):  
Emily Donovan ◽  
Miriam Santer ◽  
Gavin Daker-White ◽  
Sara Morgan ◽  
Merlin Luke Willcox

Background: Doctors can be victim-survivors of domestic abuse (DA) but it is not well understood how this impacts on their work and wellbeing, and whether they face barriers to seeking help. Aim: To understand single doctor mothers’ lived experience of DA, barriers to seeking help and impact on their work. Design and setting. Individual qualitative interviews with female doctors who had left an abusive relationship. Methods: Participants were invited via a closed online forum for female doctors who are single parents. 114 women expressed interest and 21 participated. In-depth semi-structured telephone interviews were audio-recorded and transcribed. Transcripts were uploaded to NVivo and analysed using inductive thematic analysis. Results: The internalised stigma of DA affected participants’ sense of identity and belonging as a doctor, causing social and professional isolation. Many participants felt that the acute stress of DA had an impact on their work, yet were often felt unable to take time off. Barriers to seeking help included lack of confidentiality especially where the abusive partner was also a doctor (sometimes accusing the victim-survivor of mental illness or threatening to report them to the GMC). Participants found peer support helpful, as well as consulting health professionals (HPs) who were empathic towards them. After they had left the abusive relationship victim-survivors felt better equipped to support patients going through DA.


2020 ◽  
Vol 6 (1) ◽  
pp. e000888
Author(s):  
Dane Vishnubala ◽  
Katherine Rose Marino ◽  
Margaret Kathryn Pratten ◽  
Andy Pringle ◽  
Steffan Arthur Griffin ◽  
...  

ObjectivesTo explore the services National Health Service (NHS)-based sport and exercise medicine (SEM) clinics can offer, and the barriers to creating and integrating SEM services into the NHS.MethodsSemi-structured interviews were undertaken to collect data from identified ‘stakeholders’. Stakeholders were identified as individuals who had experience and knowledge of the speciality of SEM and the NHS. An inductive thematic analysis approach was taken to analyse the data.ResultsN=15 stakeholder interviews. The management of musculoskeletal (MSK) injuries (both acute and chronic) and concussion were highlighted as the two key services that SEM clinics can offer that would most benefit the NHS. MSK ultrasound was also mentioned by all stakeholders as a critical service that SEM clinics should provide. While exercise medicine is an integral part of SEM, SEM clinics should perhaps not have a heavy exercise medicine focus. The key barriers to setting up SEM clinics were stated to be convincing NHS management, conflict with other specialities and a lack of awareness of the speciality.ConclusionThe management of acute MSK injuries and concussion should be the cornerstone of SEM services, ideally with the ability to provide MSK ultrasound. Education of others on the speciality of SEM, confirming consistent ‘unique selling points’ of SEM clinics and promoting how SEM can add value to the NHS is vital. If the successful integration of SEM into the NHS is not widely achieved, we risk the NHS not receiving all the benefits that SEM can provide to the healthcare system.


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