Evaluating Human-Centred Design for Public Health: A Case Study on Developing a Healthcare App with Refugee Communities. (Preprint)

2021 ◽  
Author(s):  
Rebeccah Bartlett

BACKGROUND Australian women from migrant and refugee communities report less sexual and reproductive health (SRH) awareness. They experience reduced access to SRH-specific care as well as culturally-relevant support that could assist them to make evidence-based decisions about their own health and service utilisation. Addressing public health problems through human-centred design (HCD) is an ethical and effective approach to developing solutions with underserved populations that are more likely to experience significant disadvantage or social marginalisation. OBJECTIVE This study aimed to evaluate the HCD approach that Shifra, a small Australian-based not-for-profit focused on improving access to healthcare for refugees and new migrants, undertook in developing a web-based application to deliver local, evidence-based and culturally relevant SRH information to its users. The evaluation focused on the following three questions: 1. To what extent did Shifra complete all the steps of the design thinking process shown? 2. To what extent did the final Shifra app incorporate the contributions of all co-designers? 3. To what extent were the co-designers satisfied with the process? METHODS The primary data for the first question involved a thorough review of all of Shifra’s organisational documents. Since there is a notable lack of validated tools evaluate HCD projects a maturity rubric was designed to synthesise the findings from the document review. This rubric was developed through consultation and several iterations of feedback from the expert panel were used to improve the usability, completeness and level of detail of the rubric. RESULTS A co-design process was successfully applied to the development of a web-based app for refugee and migrant women in reproductive health. This evaluation also yielded several important recommendations for improving Shifra’s HCD approach moving forward, findings that can be applied to other projects seeking to undertake an authentic community co-design process. First, with so many people of diverse backgrounds contributing to the project, clear communication about roles and expectations is critical. Second, it is important to set realistic expectations and role clarifications with co-designers. Third, it is important not to view all end users as interchangeable. Finally, by setting aside adequate time to develop collaborative relationships amongst all co-design groups the HCD process is an opportunity to give power and control back to the end user population for whom one is designing the health intervention. CONCLUSIONS Improving refugees’ access to SRH is complex and multidimensional and requires innovative and thoughtful problem solving. HCD is one way to address complex problems in an ethical and effective way and it is how Shifra chose to approach the development of its solution to this problem. This evaluation of Shifra’s HCD approach provides a helpful and rigorous guide in reporting that may encourage other organisations undertaking HCD work to evaluate their own implementation. CLINICALTRIAL N/A

2017 ◽  
Vol 4 (4) ◽  
pp. e59 ◽  
Author(s):  
Marie BH Yap ◽  
Katherine A Lawrence ◽  
Ronald M Rapee ◽  
Mairead C Cardamone-Breen ◽  
Jacqueline Green ◽  
...  

Depression and anxiety disorders in young people are a global health concern. Various risk and protective factors for these disorders are potentially modifiable by parents, underscoring the important role parents play in reducing the risk and impact of these disorders in their adolescent children. However, cost-effective, evidence-based interventions for parents that can be widely disseminated are lacking. In this paper, we propose a multi-level public health approach involving a Web-based parenting intervention, Partners in Parenting (PIP). We describe the components of the Web-based intervention and how each component was developed. Development of the intervention was guided by principles of the persuasive systems design model to maximize parental engagement and adherence. A consumer-engagement approach was used, including consultation with parents and adolescents about the content and presentation of the intervention. The PIP intervention can be used at varying levels of intensity to tailor to the different needs of parents across the population. Challenges and opportunities for the use of the intervention are discussed. The PIP Web-based intervention was developed to address the dearth of evidence-based resources to support parents in their important role in their adolescents’ mental health. The proposed public health approach utilizes this intervention at varying levels of intensity based on parents’ needs. Evaluation of each separate level of the model is ongoing. Further evaluation of the whole approach is required to assess the utility of the intervention as a public health approach, as well as its broader effects on adolescent functioning and socioeconomic outcomes.


Author(s):  
Saiqa Mullick ◽  
Melanie Pleaner ◽  
Mopo Radebe ◽  
Chelsea Morroni

This chapter provides a high level overview of key sexual and reproductive health (SRH) issues in adolescent health with a focus on sub-Saharan Africa. The chapter begins by providing an overview of key targets and definitions relating to adolescent SRH and then goes on to describe the heterogenous nature of SRH needs of adolescents, highlighting their often overlapping and multiple needs as well as challenges and barriers to access. The chapter then provides a synopsis of selected SRH issues, including prevalence and public health relevance, as well as a summary of evidence-based interventions. The chapter ends with controversies and challenges, as well as recommendations for future areas for research. It should be read in conjunction with Chapter 31 on HIV in adolescents.


2021 ◽  
Author(s):  
Rebeccah Bartlett ◽  
Jacqueline Boyle ◽  
Jessica Simons Smith ◽  
Nadia Khan ◽  
Tracy Robinson ◽  
...  

Abstract Background: Australian women from migrant and refugee communities experience reduced access to sexual and reproductive healthcare. Human-centred design is an ethical and effective approach to developing health solutions with underserved populations that are more likely to experience significant disadvantage or social marginalisation. This study aimed to evaluate how well Shifra, a small Australian-based not-for-profit, applied human-centred design when developing a web-based application that delivers local, evidence-based and culturally relevant health information to its non-English speaking users. Methods: This study undertook a document review, survey and semi-structured interviews to evaluate how well Shifra was able to achieve its objectives using a human-centred design approach. Results: A co-design process successfully led to the development of a web-based health app for refugee and migrant women. This evaluation also yielded several important recommendations for improving Shifra’s human-centred design approach moving forward. Conclusions: Improving refugees’ access to sexual and reproductive health is complex and requires innovative and thoughtful problem solving. This evaluation of Shifra’s human-centred design approach provides a helpful and rigorous guide in reporting that may encourage other organisations undertaking human-centred design work to evaluate their own implementation. Keywords: human-centred design; design thinking; refugee health; evaluation Plain language summary: Australian women from non-English speaking migrant and refugee communities face reduced access to sexual and reproductive healthcare and many then go on to experience poor health outcomes as a result. There is an urgent need for new approach to improve access to healthcare for underserved communities, one that centres these women in the process of finding, developing and disseminating the solutions themselves. Human-centred design is an ethical and effective methodology to working with communities to develop these health solutions. This study aimed to evaluate how well Shifra, a small Australian-based not-for-profit focused on improving access to healthcare for refugees and new migrants, undertook human-centred design approach when developing a Smartphone app that deliver local, safe and culturally relevant health information to non-English speaking Australians. The authors interviewed refugees, health and social sector experts and computer programmers involved in creating Shifra to evaluate how well they used human-centred design to achieve its goals. This evaluation found that Shifra’s approach was successful whilst also highlighting several important recommendations for improving collaborative efforts with refugee communities. These findings could help other projects also seeking to undertake an authentic community co-design process.


2017 ◽  
Author(s):  
Marie BH Yap ◽  
Katherine A Lawrence ◽  
Ronald M Rapee ◽  
Mairead C Cardamone-Breen ◽  
Jacqueline Green ◽  
...  

UNSTRUCTURED Depression and anxiety disorders in young people are a global health concern. Various risk and protective factors for these disorders are potentially modifiable by parents, underscoring the important role parents play in reducing the risk and impact of these disorders in their adolescent children. However, cost-effective, evidence-based interventions for parents that can be widely disseminated are lacking. In this paper, we propose a multi-level public health approach involving a Web-based parenting intervention, Partners in Parenting (PIP). We describe the components of the Web-based intervention and how each component was developed. Development of the intervention was guided by principles of the persuasive systems design model to maximize parental engagement and adherence. A consumer-engagement approach was used, including consultation with parents and adolescents about the content and presentation of the intervention. The PIP intervention can be used at varying levels of intensity to tailor to the different needs of parents across the population. Challenges and opportunities for the use of the intervention are discussed. The PIP Web-based intervention was developed to address the dearth of evidence-based resources to support parents in their important role in their adolescents’ mental health. The proposed public health approach utilizes this intervention at varying levels of intensity based on parents’ needs. Evaluation of each separate level of the model is ongoing. Further evaluation of the whole approach is required to assess the utility of the intervention as a public health approach, as well as its broader effects on adolescent functioning and socioeconomic outcomes.


2019 ◽  
Vol 29 (Supplement_4) ◽  
Author(s):  
N Skhvitaridze ◽  
A Gamkrelidze ◽  
T Lobjanidze

Abstract Improvement of reproductive health is a worldwide priority. Maternal and perinatal mortality and morbidity are frequently used as measure of quality of the healthcare. Thus, reduction of maternal morbidity and mortality are important goal for the SDGs. Hence, maternal and new-borns health are crucial to report accurately. The key requirement for progress is to have as much precise data as it is possible. Several tools are developed for quality surveillance; among them is the medical birth registry. Georgia is a developing country which recently had healthcare in transition. Over the last decade, Georgia’s health sector has improved quality and embraced evidence-based medicine. Transformation and progress attributed reproductive healthcare. Country elaborated strategic plan and set achievable target for maternal and children’s mortality ratios for 2030. Georgia developed national maternal surveillance system. However, country has been lacking precise, comprehensive, and longitudinal data dealing with the reproductive health. Thus far, data on associated health services mainly derived from the sporadic on-demand surveys. Routine info on mortality and morbidity were available as aggregated data with a lack of epidemiological analysis. In order to provide proper reproductive health profile, Georgia created a nationwide medical birth registry (GBR). GBR has made it possible to create a precise epidemiological analysis and to ensure the evidence-based reporting. To improve epidemiological research capacity, PhD projects were implemented a year after the GBR started operation, in the frame of cooperation of Norwegian and Georgian Universities. Moreover, universities initiated tracks for master students to have internship and graduate thesis in GBR related topics. Overarching goals of the GBR are numerous. Although compilations of statistics and ensuring scientific bases for advice through generated researches are beneficial for universities and country as well. Key messages Studies, based on transparency of highly accurate medical statistics gives possibility for effective implementation of evidence-based public health interventions. Recommendations provided by registry based studies have a pivotal role in formulation and revision of relevant public health strategies.


2021 ◽  
Vol 7 (1) ◽  
Author(s):  
Rebeccah Bartlett ◽  
Jacqueline A. Boyle ◽  
Jessica Simons Smith ◽  
Nadia Khan ◽  
Tracy Robinson ◽  
...  

Abstract Background Australian women from migrant and refugee communities experience reduced access to sexual and reproductive healthcare. Human-centred design can be a more ethical and effective approach to developing health solutions with underserved populations that are more likely to experience significant disadvantage or social marginalisation. This study aimed to evaluate how well Shifra, a small Australian-based not-for-profit, applied human-centred design when developing a web-based application that delivers local, evidence-based and culturally relevant health information to its non-English speaking users. Methods This study undertook a document review, survey, and semi-structured interviews to evaluate how well Shifra was able to achieve its objectives using a human-centred design approach. Results A co-design process successfully led to the development of a web-based health app for refugee and migrant women. This evaluation also yielded several important recommendations for improving Shifra’s human-centred design approach moving forward. Conclusions Improving refugees’ access to sexual and reproductive health is complex and requires innovative and thoughtful problem solving. This evaluation of Shifra’s human-centred design approach provides a helpful and rigorous guide in reporting that may encourage other organisations undertaking human-centred design work to evaluate their own implementation.


Author(s):  
Leanne SOBEL ◽  
Katrina SKELLERN ◽  
Kat PEREIRA

Design thinking and human-centred design is often discussed and utilised by teams and organisations seeking to develop more optimal, effective or innovative solutions for better customer outcomes. In the healthcare sector the opportunity presented by the practice of human-centred design and design thinking in the pursuit of better patient outcomes is a natural alignment. However, healthcare challenges often involve complex problem sets, many stakeholders, large systems and actors that resist change. High-levels of investment and risk aversion results in the status quo of traditional technology-led processes and analytical decision-making dominating product and strategy development. In this case study we present the opportunities, challenges and benefits that including a design-led approach in developing complex healthcare technology can bring. Drawing on interviews with participants and reflections from the project team, we explore and articulate the key learning from using a design-led approach. In particular we discuss how design-led practices that place patients at the heart of technology development facilitated the project team in aligning key stakeholders, unearthing critical system considerations, and identifying product and sector-wide opportunities.


Author(s):  
Adam M. Messinger

Many nations today recognize intimate partner violence (IPV) in romantic-sexual relationships as a major public health threat, yet not all victims are treated equally. Contrary to myths, lesbian, gay, bisexual, trans*, and queer (LGBTQ) people are more likely to experience IPV than heterosexual-cisgender people. Unfortunately, LGBTQ victims face major barriers to reaching safety in a world that too often stigmatizes their identities and overlooks their relationships when forming victim services and policies. Offering a roadmap forward, LGBTQ Intimate Partner Violence: Lessons for Policy, Practice, and Research is the first book to synthesize nearly all existing research from the past forty years on this pressing issue. At once highly organized and engaging, it provides evidence-based tips for academic and nonacademic audiences alike.


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