scholarly journals Parents’ Self Esteem of Children with Cleft Lip and Palate

2018 ◽  
Vol 1 (2) ◽  
Author(s):  
Gadis Pratiwi Priyono ◽  
Imas Rafiyah ◽  
Ikeu Nurhidayah

Cleft lip and palate are congenital abnormalities that occur in children. Success in the management and treatment of this disorder requires the role of parents. However, often parents are embarrassed and have low self-esteem, so it would interfere with the success process of treatment and child care with clefts. This study aimed to determine the parents’ self-esteem of children with cleft lip and palate in the Yayasan Pembina Penderita Celah Bibir dan Langit-langit  (YPPCBL) Bandung. This research was a descriptive quantitative study. The study population was parents of children with cleft lip and palate. A total of 30 respondents participated in this study which was chosen with total sampling method. Parental self-esteem was measured using modified instruments based on Coopersmith's theory, with validity values of r = 0.977 and Cronbach's α = 0.989. Data were analyzed using frequency distribution. The results showed 18 respondents (60%) had high self esteem and 12 respondents (40%) with low self esteem. This research would be an evaluation material for YPPCBL Bandung in maintaining and improving parents' self-esteem of children having clefts. With high self-esteem, it is potential for nurses to increase parental participation as a primary caregiver of children with clefts, it would also improve the success of care and children’s quality of life.

2019 ◽  
Vol 7 (2) ◽  
pp. 58
Author(s):  
James Ochieng Sika

The role of parents was seen as the missing link in provision of infrastructural facilities leading to achievement of desirable performance as the government fulfilled her mandate of providing free education through the Free Day Secondary Education funds. Descriptive survey design was used. The study population included 20 principals, 184 teachers, 776 parents and 776 students. The respondents who were sampled through purposive, incidental and random sampling method included principals, parents, teachers’ and form four students. The study shows there was a significant relationship between Provision of Infrastructural Facilities and students’ performance (R = .594; p < .001). The results of the regression indicated that parents’ participation in provision of Infrastructural Facilities explained 35.2% of the variance in students’ performance (R2 =.352, F (1, 239) = 130.105, p < .001). It was found that parents’ participation in provision of Infrastructural Facilities significantly predicted performance of MFIs (B = .376; p < .001). By replacing the significant coefficients into the equation connecting parents’ participation in provision of Infrastructural Facilities with students’ performance, the equation becomes Y=24,768+ 0.376X2 +:έ. Library, toilets and laboratory in day secondary schools were found to be inadequate hence affecting their performance. The study recommends that parents should be involved in infrastructure development secondary schools as this could influence academic achievement.


2021 ◽  
Vol 9 (07) ◽  
pp. 882-906
Author(s):  
Payel Basu ◽  
◽  
Rani Somani ◽  
Deepti Jawa ◽  
Shipra Jaidka ◽  
...  

Cleft lip and palate is one of the most common congenital anomalies requiring multidisciplinary care. Such anomaly is associated with many problems such as impaired feeding, defective speech, hearing difficulties, malocclusion, dental abnormalities, gross facial deformity as well severe psychological problems. Cleft of the lip and palate is one of the complex conditions that occur at a functionally potential area in the orofacial region and also at such a crucial time that strategic interventions at the right age by the concerned specialists becomes the need of the hour. Pediatric dentist is an integral part of the cleft rehabilitative process right from the neonatal period upto the phase of permanent dentition. Being well versed with a childs growth and development, both physical and mental, a Pedodontist helps in restoring function and esthetics in a cleft child, in a most empathetic way. This article describes the enormous challenges faced by these innocent souls and the vital role played by a Pedodontist, to provide comprehensive cleft care, be it preventive, restorative, or interventional care, in order to achieve the best possible outcome and meaningfully improve their quality of life.


2015 ◽  
Vol 156 (37) ◽  
pp. 1483-1490 ◽  
Author(s):  
Kitti Sólya ◽  
Csilla Dézsi ◽  
Melinda Vanya ◽  
János Szabó ◽  
János Sikovanyecz ◽  
...  

The cleft lip and palate deformity is one of the most common type of congenital abnormalities. The aim of this paper is to summarise the literature knowledge about cleft lip and/or palate. The authors review and discuss international literature data on the prevention, genetic and environmental predisposing factors, anatomical and embryological features, as well as pre- and post-natal diagnosis and treatment of these deformities. The aetiology is multifactorial, driven by both genetic and environmental factors which lead to multifaceted phenotypes and clinical features of these malformations. The lack of the multidisciplinary knowledge about prenatal diagnosis, prevention, genetic aspects and treatment strategy could result in serious diagnostic errors, hence clinical teamwork is critically important to solve the problems of this pathology. Only the professional teamwork and multidisciplinary cooperation can guarantee the optimal level of health care and better quality of life for these patients and their families. Orv. Hetil., 2015, 156(37), 1483–1490.


2021 ◽  
pp. 105566562098769
Author(s):  
Mecheala Abbas Ali ◽  
Alwaleed Fadul Nasir ◽  
Shaza K. Abass

Objective: This study compared the oral health-related quality of life (OHRQoL) among children with a cleft lip with or without a cleft palate (CL±P) and a group of their peers. The reliability of the Arabic version of the Child Oral Health Impact Profile Questionnaire (COHIP) was also assessed. Design: A cross-sectional study. Settings: Cleft clinic in a private dental college in Omdurman City, Sudan. Patients: In all, 75 children (mean age 11.3 ± 2.5 years) with a history of CL±P and a group of 150 school children without CL±P (mean age 11.4 ± 2.6 years). Main Outcome Measures: Overall and subscale scores on the Arabic version of the COHIP. Results: Test–retest reliability of COHIP in Arabic was high with an interclass correlation coefficient >0.8. Cronbach α value internal consistency was 0.8 for the total scale and between 0.7 and 0.8 for the subscales. The COHIP score was 89.41 ± 19.97 in children with CL±P and 122.82 ± 9.45 for the control group. Children with CL±P had significantly lower scores on the overall and all subscales when compared to children without CL±P ( P ≤ .001). Among the children with CL±P, there were no statistically significant differences on the COHIP based on age and/or gender ( P ≥ .05). Conclusions: Children with CL±P had a relatively high OHRQoL, which was lower than that of their peers without CL±P in both the overall scale and all subscales. Gender and age differences had no significant impact on the OHRQoL. The COHIP Arabic version showed appropriate reliability.


Author(s):  
Jessica Bowie ◽  
Oliver Brunckhorst ◽  
Robert Stewart ◽  
Prokar Dasgupta ◽  
Kamran Ahmed

Abstract Purpose Body image, self-esteem, and masculinity are three interconnected constructs in men with prostate cancer, with profound effects on quality of life. This meta-synthesis aimed to evaluate all known qualitative studies published studying the effect of prostate cancer on these constructs. Methods A systematic review utilising PubMed, Embase, MEDLINE, and PsycINFO databases up to May 2020 was conducted in line with PRISMA and ENTREQ guidelines. All qualitative studies of men’s experiences with body image, self-esteem, and masculinity whilst living with prostate cancer were included. A thematic meta-synthesis was conducted to identify emergent descriptive and analytical themes under the main study constructs. Results Of 2188 articles identified, 68 were included. Eight descriptive themes were identified under two analytical themes: ‘Becoming a Prostate Cancer Patient’ and ‘Becoming a Prostate Cancer Survivor’. These described the distress caused by changes to body image, sexual functioning, sense of masculinity, and self-esteem, and the subsequent discourses men engaged with to cope with and manage their disease. A key element was increased flexibility in masculinity definitions, and finding other ways to re-affirm masculinity. Conclusions Prostate cancer has an important effect on men’s health post-diagnosis, and we identified strong relationships between each construct evaluated. The role of hegemonic masculinity is important when considering men’s coping mechanisms and is also a key factor when addressing these constructs in counselling post-treatment. Implications for Cancer Survivors This meta-synthesis provides key topics that uniquely affect prostate cancer survivors, enabling these patients to be effectively counselled, and have their concerns recognised by clinicians.


2005 ◽  
Vol 42 (4) ◽  
pp. 355-361 ◽  
Author(s):  
Klaus Sinko ◽  
Reinhold Jagsch ◽  
Verena Prechtl ◽  
Franz Watzinger ◽  
Karl Hollmann ◽  
...  

Objective Evaluation of esthetic, functional, and health-related quality-of-life (HRQoL) outcomes in adult patients with a repaired cleft lip and palate. The treatment for all patients was based on the so-called Vienna concept. Patients/Design Seventy adult patients with a repaired complete cleft lip and palate, ranging in age from 18 to 30 years, were included in the study. Esthetic and functional outcomes were assessed by the patients themselves and by five experts using a visual analog scale. Patients also completed the MOS Short-Form 36 questionnaire to evaluate health-related quality of life. Results Patients rated their esthetic outcome significantly worse than the experts did. No significant differences were observed in the ratings for function. Female patients, especially, were dissatisfied with their esthetic outcomes. In a personal interview, nearly 63% of them asked for further treatment, particularly for upper-lip and nose corrections. The health-related quality-of-life questionnaire revealed low scores for only two subscales, namely social functioning and emotional role. In most subscales of health-related quality of life, patients who desired further treatment had significantly lower scores than did patients who desired no further treatment. Conclusion Surgery of the lip and nose appears to be of prime importance for patients with a cleft lip and palate. Cleft patients who do not request secondary treatment are not always satisfied with the treatment. Patients with realistic expectations in regard to further treatment should be treated by specialists, whereas those with unrealistic expectations should be referred to a clinical psychologist.


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