3. Learning Modules in a Support Group Context for Caregivers of Individuals with Alzheimer’s Disease and Related Dementias

2017 ◽  
Author(s):  
Wafa Nurdin ◽  
Aicha Wane
Keyword(s):  
Alzheimer’S Disease ◽  
Alzheimer's Disease ◽  
Support Groups ◽  
Support Group ◽  
Well Being ◽  
Community Dwelling ◽  
Daily Activities ◽  
Caregiver Support ◽  
Learning Modules ◽  
The Impact

The majority of community dwelling individuals with dementia have informal caregivers. With the risk of developing care related stress, it is important for community agencies, like the Alzheimer Society of Kingston (ASK), to provide support, resources, and information. The goal of this intervention was that caregivers of individuals with Alzheimer’s disease and related dementias (ADRD) would improve physical, social, and mental well-being. A search of the literature, as well as surveys of support group facilitators, forty caregivers, and consultation with ASK helped determine information relevant to the caregivers. The purpose of this project was to develop learning modules on: a) using a problem-based strategy to assist with daily activities of the person they are caring for; b) self-care strategies; c) positive coping strategies; d) assertive communication skills, and e) home environment safety to be delivered during caregiver support groups. The module on a problem-based strategy to assist with daily activities was pilot tested, utilizing five caregivers. It was found that the learning module was approximately 30 minutes over the stated timeframe and the case study component of the module was ineffective. Recommendations include implementing the module as two parts. Furthermore, additional research is needed on the impact of the modules on caregiver stress and burden.

scholarly journals O ETHOS DISCURSIVO EM INTERAÇÕES DE UM GRUPO DE APOIO A FAMILIARES DE PESSOAS COM A DOENÇA DE ALZHEIMER

2019 ◽  
pp. 195
Author(s):  
Fernanda Ferreira Gimenes ◽  
Caio César Costa Ribeiro Mira
Keyword(s):  
Alzheimer’S Disease ◽  
Alzheimer's Disease ◽  
Support Groups ◽  
Support Group ◽  
Family Members ◽  
Institutional Context ◽  
The Elderly ◽  
Daily Activities ◽  
Video Recordings

Resumo:No Brasil, o contingente da população acometida pela Doença de Alzheimer (DA), é responsável por cerca de 50-70% das demências em idosos (BURLA et al., 2013), fator que limita ou dificulta as atividades diárias e tem impactos diretos na qualidade de vida da pessoa acometida pela patologia e por seus familiares. Nesse contexto, os Grupos de Apoio (GA) constituem espaços importantes de socialização onde familiares e cuidadores podem compartilhar experiências de cuidado e de convívio com a pessoa acometida pela DA. Este artigo visa à análise da noção de ethos discursivo em interações ocorridas no contexto institucional de um Grupo de Apoio. O referencial teórico deste trabalho está fundamentando no campo Análise do Discurso, especificamente nos estudos acerca da noção de ethos desenvolvidos por Maingueneau (1997; 2011) e Amossy (2005). Analisamos um corpus proveniente de gravações de vídeo de reuniões do GA, que são mediadas por um médico neurogeriatra. Os resultados de nossas análises demonstram que ocorre uma alternância de imagens discursivas do médico, revelando a autoridade enunciativa do profissional de saúde e a aproximação com os interlocutores no contexto interacional do GA.Palavras chave: doença de alzheimer; ethos; grupo de apoio. DISCURSIVE ETHOS IN INTERACTIONS OF A SUPPORT GROUP FOR FAMILY OF PEOPLE WITH ALZHEIMER'S DISEASEAbstract:In Brazil, the contingent of the population affected by Alzheimer's disease, according Burlá et al (2013), accounts for about 50-70% of dementias in the elderly, a factor that limits or hinders daily activities and has direct impacts over the life’s quality of the person affected by the disease and his relatives. In this context, Support Groups are important spaces of socialization where family members and caregivers can share experiences of care in the search for a better acceptance. This article aims to demonstrate the notion of discursive ethos in interactions that occurred in the institutional context of a Support Group for family members and caregivers of people affected by Alzheimer 's disease. The theoretical reference of this work is based on the Discourse Analysis field, specifically in the ethos studies of Maingueneau (1997,2011) and Amossy (2005). We analyzed a corpus derived from video recordings of meetings of this group, mediated by a neurogeriatric. The analysis of GA interactions demonstrates the physician as an enunciator of authority through what is enunciated by him, as well as an approximation of the pre-discursive ethos which is revealed in the enunciation scene.Keywords: Alzheimer’s disease; ethos; support groups.

Cognitive Decline and the Changing Self in Relationship

2015 ◽  
pp. 61-75
Author(s):  
Darby Morhardt ◽  
Marcia Spira
Keyword(s):  
Alzheimer’S Disease ◽  
Alzheimer's Disease ◽  
Cognitive Decline ◽  
Family Member ◽  
Family Members ◽  
Well Being ◽  
Family Roles ◽  
The Family ◽  
Person With Dementia ◽  
The Impact

When a member of a family is diagnosed with Alzheimer's disease, the impact of the disease reverberates throughout the relationships within the family. This paper explores the challenges and strengths within one family as members manage and cope with Alzheimer's disease. The person with dementia and his family members are individually interviewed and each person explores the consequences of the disease on personal well-being as well as the relationships within the family. The family demonstrates how dementia in one family member demands flexibility in family roles as they navigate life through the challenges of living with dementia.

scholarly journals NOTEWORTHY: THE IMPACT OF A CHOIR FOR OLDER ADULTS WITH DEMENTIA ON THE WELL-BEING AND QUALITY OF LIFE OF CAREGIVERS

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S752-S752
Author(s):  
Debra J Sheets ◽  
Stuart W MacDonald ◽  
Andre Smith ◽  
Mary Kennedy
Keyword(s):  
Quality Of Life ◽  
Older Adults ◽  
Health Indicators ◽  
Well Being ◽  
Community Dwelling ◽  
Caregiver Support ◽  
Economic Implications ◽  
Health Quality ◽  
The Impact

Abstract Informal caregivers provide 80% of the care needed to support community-dwelling older adults with dementia. Over time caregivers often face adverse effects on their health, quality of life and well-being; particularly those caring for someone with dementia. This study examines the impact of participation in the Voices in Motion (ViM) choir on caregiver burden, mood and quality of life. A measurement burst approach was used to investigate intraindividual variability on key psychosocial and health indicators. Results indicate that choir participation significantly improves caregiver well-being (e.g. mood, burden) and quality of life. Findings suggest that choirs offer significant caregiver support and respite. The discussion focuses the public policy and on the potential economic implications which suggests a shift is needed in the services available to older adults with dementia and their caregivers.

Potentially modifiable factors associated with agitation and aggression in Alzheimer’s disease: results of the ICTUS study

2019 ◽  
Vol 31 (10) ◽  
pp. 1509-1516 ◽  
Author(s):  
Adelaide de Mauleon ◽  
Maria Soto ◽  
Pierre Jean Ousset ◽  
Fati Nourhashemi ◽  
Benoit Lepage ◽  
...  
Keyword(s):  
Alzheimer’S Disease ◽  
Alzheimer's Disease ◽  
Affective Disorder ◽  
Positive Impact ◽  
Neuropsychiatric Symptoms ◽  
Cognitive Status ◽  
Community Dwelling ◽  
Factors Associated ◽  
Modifiable Factors ◽  
The Impact

ABSTRACTObjectives:To study potentially modifiable factors associated with the severity of agitation or aggression (A/A) symptoms among Alzheimer’s disease (AD) patients.Design:Data from the Impact of Cholinergic Treatment Use (ICTUS) study, European longitudinal prospective observational study.Setting:Community dwelling outpatients included in 29 European memory clinics.Participants:1375 participants with probable AD (Mini-Mental State Examination score of 10–26) with an informal caregiver.Measurements:At baseline and twice yearly over the two-year follow-up, patients underwent comprehensive clinical and neuropsychological assessments: sociodemographic data, cognitive status, functional impairment, and assessment of neuropsychiatric symptoms based on Neuro-Psychiatric Inventory (NPI). The ZARIT scale assessed the caregiver’s burden. The variable of interest was the severity of the item of A/A of the NPI. To study factors associated to the severity of A/A symptoms six months later, a multivariate mixed regression model was used.Results:Frequency of A/A symptom varied from 30% to 34% at each visit. Two factors were found to be independently associated with the severity of A/A: (1) the presence of affective disorder (anxiety, depression, and/or irritability) that increased the severity of the A/A by 0.89 point (coefficient:0.89; 95% Confidence Interval (CI) = [0.48,1.30], p < 0.001), and (2) a severe caregiver burden that increased the severity of the A/A by 1.08 point (coefficient:1.08; 95% CI = [0.69,1.47], p < 0.001).Conclusion:Research should evaluate whether the identification and treatment of an affective disorder along with the evaluation and optimal management of the caregiver would have a positive impact on the course of A/A in mild to moderate AD patients.

scholarly journals Impact of Alzheimer’s disease on the quality of life and daily activities of the elderly

2021 ◽  
Author(s):  
Daniele Sutherland W. Rizziolli ◽  
Ana Maria Ramos Miranda ◽  
Andressa Schimidt do Nascimento ◽  
Cristiane dos Santos Lima ◽  
Jade Menezes Maia ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Alzheimer’S Disease ◽  
Alzheimer's Disease ◽  
The Elderly ◽  
Daily Activities ◽  
Strong Impact ◽  
Mesh Terms ◽  
Final Sample ◽  
The Impact

Introduction: With the increase in life expectancy, there is an increase in Alzheimer’s Disease (AD). Characterized by being a degenerative and irreversible neurological disease, that leads to developing a dependence for daily activities. Objective:To analyze the impact of AD on the quality of life and daily activities of the elderly. Methodology:Integrative literature review, with bibliographic survey carried out on an international basis (PUBMED). Criteria for the selection of articles was: be published in English, in the period 2018-2020, available in full, whose theme was “Impacts on the quality of life that AD causes in the elderly”. Results: For the sample of this review 59 articles were selected, of which 48 articles were not specific to the topic, leaving a final sample of 11 articles included in the review. Identifying that AD has a strong impact on patient’s quality of life, such as reduced autonomy and dependence on daily activities. Conclusion: It was observed that there is a reduction in the quality of life of patients with AD, related to loss of autonomy and dependence in daily activities. Mesh- Terms: Degenerative Disease, Aged, Insanity.

scholarly journals The Perceived Impact of Diabetes Support Groups

2011 ◽  
Author(s):  
Rebecca Garofalo
Keyword(s):  
Support Groups ◽  
Support Group ◽  
Subjective Experience ◽  
Well Being ◽  
Lifestyle Behaviors ◽  
Positive Health ◽  
Practice Nurses ◽  
Group Problem Solving ◽  
Perceived Impact ◽  
The Impact

<p>A dearth o f research exists describing the perceived impact o f diabetes support groups from the perspective o f support group participants. This study examined the subjective experience of being a participant in a diabetes support group upon a person's physical and emotional well being. Participants were recruited from a diabetes support group and interviewed individually through a series of open ended interview questions. The participants reported various physical and emotional challenges related to their diabetes. The support group was a source of information, hope, shared experience and group problem solving as individuals strived to maintain lifestyle behaviors required to manage their diabetes. This support group was a positive source of support for these participants. More studies, with larger sample sizes, examining support group interventions or strategies would be beneficial in order to gain an understanding of which aspects of a support group promote positive client outcomes. Advanced practice nurses play a pivotal role in designing further studies that examine the impact of support groups. This will enhance our understanding of a support group's role in sustaining and promoting positive health behaviors and well being. In order to continue this form of support in the community, health policy needs to address the funding of this resource to sustain it as a tertiary intervention in the future.</p>

Impact of opioid initiation on antipsychotic and benzodiazepine and related drug use among persons with Alzheimer's disease

2018 ◽  
Vol 30 (7) ◽  
pp. 947-956 ◽  
Author(s):  
Aleksi Hamina ◽  
Piia Lavikainen ◽  
Antti Tanskanen ◽  
Anna-Maija Tolppanen ◽  
Jari Tiihonen ◽  
...  
Keyword(s):  
Alzheimer’S Disease ◽  
Alzheimer's Disease ◽  
Interrupted Time Series ◽  
Community Dwelling ◽  
Opioid Use ◽  
Percentage Points ◽  
Related Drug ◽  
Time Series Analyses ◽  
The Impact

ABSTRACTBackground:We analyzed the impact of opioid initiation on the prevalence of antipsychotic and benzodiazepine and related drug (BZDR) use among community-dwelling persons with Alzheimer's disease (AD).Methods:We utilized the register-based Medication use and Alzheimer's disease (MEDALZ) cohort for this study. We included all community-dwelling persons diagnosed with AD during 2010–2011 in Finland initiating opioid use (n = 3,327) and a matched cohort of persons not initiating opioids (n = 3,325). Interrupted time series analyses were conducted to compare the prevalence of antipsychotic and BZDR use in 30-day periods within six months before opioid initiation to 30-day periods six months later.Results:Before opioid initiation, prevalence of antipsychotic use among opioid initiators was 13.3%, 18.3% at opioid initiation, and 17.3% six months later. Prevalences of BZDR use were 27.1% six months prior, 28.9% at opioid initiation, and 26.9% six months later. After opioid initiation, antipsychotic and BZDR use declined by 0.3 percentage points (pps, 95% confidence interval 0.1–0.5) and 0.4 pps (0.2–0.7) per month, respectively, until the end of the follow-up. Compared to persons not initiating opioid use, opioid initiation immediately resulted in an increase in prevalence of 1.9 pps (0.9–2.8) for antipsychotics and of 1.6 pps (0.9–2.2) for BZDR use. However, in total there was a comparative decrease of 0.5 pps (0.3–0.8) per month for antipsychotics and of 0.4 pps (0.2–0.6) for BZDR use until the end of the follow-up.Conclusion:Our results suggest that opioid initiation may reduce antipsychotic and BZDR use among persons with AD.

The Effect of Receiving a Diagnosis of Alzheimer’s Disease and Related Dementias on Social Relationships of Older Adults

2021 ◽  
pp. 1-6
Author(s):  
Takashi Amano ◽  
Addam Reynolds ◽  
Clara Scher ◽  
Yuane Jia
Keyword(s):  
Social Support ◽  
Alzheimer’S Disease ◽  
Alzheimer's Disease ◽  
Social Networks ◽  
Social Relationships ◽  
Social Engagement ◽  
Well Being ◽  
Dementia Diagnosis ◽  
New Diagnosis ◽  
The Impact

<b><i>Introduction:</i></b> Although early diagnosis has been recognized as a key strategy to improve outcomes of Alzheimer’s disease and related dementias (ADRD), the effect of receiving a diagnosis on patients’ well-being is not well understood. This study addresses this gap by examining if receiving a dementia diagnosis influences social relationships. <b><i>Methods:</i></b> Data from the 3 waves (2012, 2014, and 2016) of the Health and Retirement Study were utilized as part of this study. This study examined whether receiving a new diagnosis of ADRD changed subsequent social relationships (social networks, social engagement, and social support). Regression analyses with inverse probability weighting were performed to estimate the impact of receiving a dementia diagnosis on changes in social relationships. <b><i>Results:</i></b> Receiving a new diagnosis of ADRD reduced both informal and formal social engagement. We found no statistically significant impacts of receiving a diagnosis of ADRD on social networks and social support. <b><i>Conclusions:</i></b> Results suggest that receiving a new diagnosis of ADRD may have unintended impacts on social relationships. Practitioners and policymakers should be aware of these consequences and should identify strategies to alleviate the negative impact of receiving a diagnosis of ADRD and methods to mobilize support networks after receiving a diagnosis.

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