A TRIO OF DISEASE, FAMILY AND ME

2021 ◽  
Vol 11 (2) ◽  
pp. 55
Author(s):  
KARIM KARISHMA ◽  
Keyword(s):  
2008 ◽  
Author(s):  
Ian Seymour ◽  
Silvia Casadei ◽  
Valentina Zampiga ◽  
Simonetta Rosato ◽  
Rita Danesi ◽  
...  

2021 ◽  
pp. 019394592110509
Author(s):  
Kelly E. Stacy ◽  
Joseph Perazzo ◽  
Rhonna Shatz ◽  
Tamilyn Bakas

Lewy body disease (LBD) is a devastating condition with cognitive and physical deficits that pose a challenge to family caregivers. The purpose of this study was to identify the needs and concerns of family caregivers of persons with LBD. A convenience sample of LBD caregivers were interviewed regarding their caregiving needs, concerns, strategies, and advice. A content analysis approach was used to organize data into themes from an existing needs and concerns framework. Findings included the need for more information about the disease, strategies for managing LBD-related emotions and behaviors, support and assistance with physical and instrumental care, and strategies for managing one’s own personal responses to caregiving. Findings highlight the need for a Lewy body specific caregiver assessment tool and future caregiver interventions.


2012 ◽  
Vol 20 (7) ◽  
pp. 565-573 ◽  
Author(s):  
Markus Donix ◽  
Linda M. Ercoli ◽  
Prabha Siddarth ◽  
Jesse A. Brown ◽  
Laurel Martin-Harris ◽  
...  

Dementia ◽  
2018 ◽  
Vol 19 (6) ◽  
pp. 1907-1926 ◽  
Author(s):  
Carla J Thompson ◽  
Nancy Bridier ◽  
Lesley Leonard ◽  
Steve Morse

More than 15 million Americans are providing care for a family member with Alzheimer’s disease. Family caregivers are faced with highly stressful experiences, using strong coping skills, and implementing critical decisions with little or no knowledge or information and with virtually no preparation or assistance. The need for research efforts to focus on caregiver stress, coping mechanisms, and informed decision-making skills spearheaded a theoretical framework to study the potential relationships between family caregivers’ types of stress, coping skills, and their decision-making efforts. Constructs of life event stress, role strain, self-concept stress, and coping stress were examined relative to 10 priority areas of decision-making identified by the national Alzheimer’s Association. A relational non-experimental research design was utilized. Caregivers completed four Likert-scale instruments with data analyzed using descriptive statistics and rank-order correlation procedures. Findings indicated varying levels of stress, strong family self-efficacy and high levels of coping skills contribute to critical decision-making.


2019 ◽  
Author(s):  
LIZETH CHAPARRO DEL PORTILLO ◽  
JÚLIA YONESHIGUE LARANJA DE OLIVEIRA ◽  
HANY KELLY ARAUJO CRUZ ◽  
BRUNO BORDALO CORRÊA ◽  
VIVIAN MABEL ORSI DORADO ◽  
...  

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