scholarly journals Siblings’ and parents’ perspectives on the future care for their family member with profound intellectual and multiple disabilities: A qualitative study

2021 ◽  
pp. 1-11
Author(s):  
Kasper Kruithof ◽  
Lisa IJzerman ◽  
Appolonia Nieuwenhuijse ◽  
Sylvia Huisman ◽  
Alice Schippers ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Family Member ◽  
Multiple Disabilities ◽  
The Future ◽  
Future Care

scholarly journals Anticipating the future of the child and family in pediatric palliative care: a qualitative study into the perspectives of parents and healthcare professionals

2020 ◽  
Author(s):  
Lisa M. Verberne ◽  
Jurrianne C. Fahner ◽  
Stephanie F. V. Sondaal ◽  
Antoinette Y. N. Schouten–van Meeteren ◽  
Chris C. de Kruiff ◽  
...  
Keyword(s):  
Palliative Care ◽  
Qualitative Study ◽  
Ad Hoc ◽  
Healthcare Professionals ◽  
Pediatric Palliative Care ◽  
Open Approach ◽  
Future Scenarios ◽  
Short Term ◽  
The Future ◽  
Future Care

Abstract Preparing for future scenarios in pediatric palliative care is perceived as complex and challenging by both families and healthcare professionals. This interpretative qualitative study using thematic analysis aims to explore how parents and healthcare professionals anticipate the future of the child and family in pediatric palliative care. Single and repeated interviews were undertaken with 42 parents and 35 healthcare professionals of 24 children, receiving palliative care. Anticipating the future was seen in three forms: goal-directed conversations, anticipated care, and guidance on the job. Goal-directed conversations were initiated by either parents or healthcare professionals to ensure others could align with their perspective regarding the future. Anticipated care meant healthcare professionals or parents organized practical care arrangements for future scenarios with or without informing each other. Guidance on the job was a form of short-term anticipation, whereby healthcare professionals guide parents ad hoc through difficult situations. Conclusion: Anticipating the future of the child and family is mainly focused on achievement of individual care goals of both families and healthcare professionals, practical arrangements in advance, and short-term anticipation when a child deteriorates. A more open approach early in disease trajectories exploring perspectives on the future could allow parents to anticipate more gradually and to integrate their preferences into the care of their child. What is Known:• Anticipating the future in pediatric palliative care occurs infrequently and too late. What is New:• Healthcare professionals and parents use different strategies to anticipate the future of children receiving palliative care, both intentionally and unwittingly. Strategies to anticipate the future are goal-directed conversations, anticipated care, and guidance on the job.• Parents and healthcare professionals are engaged to a limited extent in ongoing explorative conversations that support shared decision-making regarding future care and treatment.

Gendered differences in emigration and mobility perspectives among European researchers working abroad

2014 ◽  
Vol 7 (1) ◽  
pp. 33-41 ◽  
Author(s):  
Elisabeth Scheibelhofer
Keyword(s):  
United States ◽  
Qualitative Research ◽  
Qualitative Study ◽  
Social Relations ◽  
The United States ◽  
Research Strategy ◽  
The Future ◽  
Highly Skilled

This paper focuses on gendered mobilities of highly skilled researchers working abroad. It is based on an empirical qualitative study that explored the mobility aspirations of Austrian scientists who were working in the United States at the time they were interviewed. Supported by a case study, the paper demonstrates how a qualitative research strategy including graphic drawings sketched by the interviewed persons can help us gain a better understanding of the gendered importance of social relations for the future mobility aspirations of scientists working abroad.

A Qualitative Study on Traumatic Experiences of Suicide Survivors

2021 ◽  
pp. 003022282110244
Author(s):  
Júlia Camargo Contessa ◽  
Carolina Stopinski Padoan ◽  
Jéssica Leandra Gonçalves da Silva ◽  
Pedro V. S. Magalhães
Keyword(s):  
Qualitative Study ◽  
Family Member ◽  
Traumatic Experience ◽  
Traumatic Experiences ◽  
Suicide Survivors ◽  
Loved One ◽  
The Family

The suicide of a loved one can be a traumatic experience. The objective of this study was to investigate trauma-related experiences of suicide survivors. This is a qualitative study with people who had recently lost a family member or a close one to suicide, conducted at least two months after the event. Forty-one participants agreed to take part in the study and were interviewed. The interviewees' perception was that suicide brought harm, symptoms, and suffering. Traumatic experiences can begin immediately after the event, with many reporting symptoms lasting many months and persistent impact, both personal and to the family. Postvention models after suicide should incorporate such findings, and investigate trauma consistently.

scholarly journals A qualitative study on patients' and physicians' visions for the future management of overweight or obesity

2011 ◽  
Vol 29 (1) ◽  
pp. 103-109 ◽  
Author(s):  
C. Heintze ◽  
U. Sonntag ◽  
A. Brinck ◽  
M. Huppertz ◽  
J. Niewohner ◽  
...  
Keyword(s):  
Qualitative Study ◽  
The Future ◽  
Overweight Or Obesity ◽  
Future Management

scholarly journals Control, uncertainty, and expectations for the future: a qualitative study of the impact of drought on a rural Australian community

2008 ◽  
Author(s):  
Gina-Maree Sartore ◽  
Brian Kelly ◽  
Helen Stain ◽  
Glenn Albrecht ◽  
Nick Higginbotham
Keyword(s):  
Qualitative Study ◽  
The Future ◽  
Australian Community ◽  
The Impact

scholarly journals Linguistic identity among new speakers of Basque

2015 ◽  
Vol 2015 (231) ◽  
pp. 85-105 ◽  
Author(s):  
Ane Ortega ◽  
Jacqueline Urla ◽  
Estibaliz Amorrortu ◽  
Jone Goirigolzarri ◽  
Belen Uranga
Keyword(s):  
Qualitative Study ◽  
Focus Groups ◽  
Language Policy ◽  
Language Use ◽  
Evidence Based ◽  
Linguistic Identity ◽  
The Future ◽  
New Speakers ◽  
High Degree ◽  
Family Transmission

Abstract The increase in Basque speakers in the last 30 years has been due in large part to ‘new speakers’ or euskaldunberri, a term that will be used here to refer to those who have learned the language by means other than family transmission. While very significant in numbers, to date this group has not been the object of much study. Little is known about their attitudes and motivations, how they perceive themselves as Basque speakers, or their language use and transmission patterns. Acquiring answers to these questions is of strategic importance for developing an effective evidence-based language policy for the future. This article presents the results of a qualitative study of new speakers. Drawing on data from focus groups and interviews, the central goal of the article is to examine how new speakers of differing profiles perceive and locate themselves with respect to the popularly used labels for “new” and “native” Basque speakers and the ideologies of authenticity and legitimacy that seem to shape these perceptions. The analysis shows that learning the language alone, even to a high degree of competence, does not guarantee a view of themselves as true and genuine speakers of Basque.

Saving as a Path for Female Empowerment and Entrepreneurship in Rural Peru

2021 ◽  
pp. 146499342110352
Author(s):  
Marianne Daher ◽  
Antonia Rosati ◽  
Andrea Jaramillo
Keyword(s):  
Social Support ◽  
Qualitative Study ◽  
Well Being ◽  
Support Networks ◽  
Financial Inclusion ◽  
Female Empowerment ◽  
Social Support Networks ◽  
Considerable Advantage ◽  
The Future ◽  
Women's Lives

Much research has identified the difficulties of promoting women’s empowerment using microcredit, but there has been little research on the potential for empowerment from promoting women’s savings. We address this gap through a qualitative study of three women’s savings programmes in the Highlands of Peru. The results reveal changes in several domains of women’s lives (economic, personal and relational), emphasizing that these programmes enable them to think about the future, expand their social support networks, and become entrepreneurs. We conclude that savings interventions have considerable advantage over microcredit programmes for facilitating female empowerment and that the merits of these interventions go far beyond financial inclusion with significant impacts on women’s psychosocial well-being and broader empowerment.

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