scholarly journals Early intervention services to children with developmental delay in resource poor settings in India

2013 ◽  
Vol 2 (2) ◽  
pp. 149-155 ◽  
Author(s):  
R Lakhan ◽  
A Mario ◽  
FN Qureshi ◽  
ML Hall

Background: Early intervention has been proven to be effective in facilitating development in children with developmental delay (DD). However, such service, subject of this study, is not available to DD children in most of India. Against the odds, therefore, one non-government organization (NGO) in the country, Ashagram Trust (AGT), decided to establish a service unit in a resource-poor geographical setting. This study aimed to examine the impact of early intervention provided to children with DD by Community Based Rehabilitation Workers (CBRWs) under supervision of professionals. Methods: Data analysis of pre- and -post scores on an early intervention tool (EIT). A total of 67 children (male 38, female 29), ages 6 through 36 months, ranging in DD from borderline (IQ<80) to a high level of DD, received early intervention services provided by community-based rehabilitation workers (CBRWs) under the supervision of professionals. A total of 46 children who stayed in compliance were analyzed. Results: A paired t-test was conducted. Overall results indicated significant improvement (pre-mean 22, sd – 3.9, post-mean 39, - 4.3, t-value – 6.40, p<0.0002, Pearson correlation 0.873, p<0.05) in children with DD in all four areas of development, motor, communication, cognitive and social. Conclusion: The study demonstrated positive outcome of early intervention in areas of motor, communication, cognitive and social development of children with DD. Early intervention services may be successfully provided by CBRWs under the supervision of trained professionals in resource-poor tribal areas of India, using low cost locally prepared therapeutic materials. Nepal Journal of Medical Sciences | Volume 02 | Number 02 | July-December 2013 | Page 149-155 DOI: http://dx.doi.org/10.3126/njms.v2i2.8966  

Author(s):  
Alison Body

Following a decade of radical change in policy and funding in children’s early intervention services and with the role of the third sector under increased scrutiny, this timely book assesses the shifting interplay between state provision and voluntary organisations delivering interventions for children, young people and their families. Using one-hundred voices from charities and their partners on the frontline, this book provides vivid accounts of the lived experiences of charitable groups, offering key insights into the impact of recent social policy decisions on their work. Telling the story of how the landscape of children’s early intervention services has changed over the last decade, it provides crucial lessons for future policy whilst demonstrating the immeasurable value of voluntary organisations working in this challenging terrain.


2017 ◽  
Vol 37 (1) ◽  
pp. 51-58 ◽  
Author(s):  
Sandhya Chauhan ◽  
Prem Lochan Prasad ◽  
Preeti Lata Rai ◽  
Bhawana Khurana

Introduction: Early intervention services play a pivotal role in the management of children with developmental delays but the utilization of these is quite low. This study aims to explore the influence of parental perceptions on the utilization of these services.Material and Methods: This is a hospital based qualitative study of 31 parents having children with developmental delay in 2 or more domains who presented for the first time for diagnostic evaluation. A semi-structured questionnaire was used in the interviews, exploring various aspects of parental perceptions regarding the child’s disability and the services required for them.Results: Apart from factors like educational and socioeconomic status of parents, accessibility of the services there are other factors involved at the level of parents which influence their readiness and motivation to utilize a service, viz understanding of the total spectrum of a child’s disability by parents and how well their child care needs are fulfilled.Conclusion: The parents’ long term motivation for utilizing the services depends upon how well their idea of a futuristic goal for their child is being addressed.


2015 ◽  
Vol 207 (2) ◽  
pp. 135-142 ◽  
Author(s):  
Anna Lavis ◽  
Helen Lester ◽  
Linda Everard ◽  
Nicholas Freemantle ◽  
Tim Amos ◽  
...  

BackgroundEarly intervention services (EIS) comprise low-stigma, youth-friendly mental health teams for young people undergoing first-episode psychosis (FEP). Engaging with the family of the young person is central to EIS policy and practice.AimsBy analysing carers' accounts of their daily lives and affective challenges during a relative's FEP against the background of wider research into EIS, this paper explores relationships between carers' experiences and EIS.MethodSemi-structured longitudinal interviews with 80 carers of young people with FEP treated through English EIS.ResultsOur data suggest that EIS successfully aid carers to support their relatives, particularly through the provision of knowledge about psychosis and medications. However, paradoxical ramifications of these user-focused engagements also emerge; they risk leaving carers' emotions unacknowledged and compounding an existing lack of help-seeking.ConclusionsBy focusing on EIS's engagements with carers, this paper draws attention to an urgent broader question: as a continuing emphasis on care outside the clinic space places family members at the heart of the care of those with severe mental illness, we ask: who can, and should, support carers, and in what ways?


2011 ◽  
Vol 33 (suppl 2) ◽  
pp. s213-s224 ◽  
Author(s):  
Elisa Brietzke ◽  
Ary Gadelha Araripe Neto ◽  
Álvaro Dias ◽  
Rodrigo Barbachan Mansur ◽  
Rodrigo Affonseca Bressan

OBJECTIVE: This article aims to review Latin America's early intervention services in psychosis and to shed light into their challenges and particularities. METHOD: An internet-based search comprising medical societies' websites, published articles, and major universities' websites was conducted and the results were critically discussed. RESULTS: Latin American countries are profoundly deficient in specialized early intervention services. Our search found seven target services, four of which are based in urban areas of Brazil, inside tertiary hospitals or universities. Among the initiatives advanced by these centers, there are partnerships with the public educational system and other community-based efforts toward knowledge transfer. On the other hand, several challenges remain to be overcome, especially in relation to their expansion, which is necessary to match the existing demand.


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