Gambaran Kualitas Fungsi Penglihatan Pasien Systemic Lupus Erythematosus Berdasarkan Kuesioner NEI VFQ-25 Di Komunitas Odapus Lampung

2021 ◽  
Vol 1 (4) ◽  
pp. 453-460
Author(s):  
Firhat Esfandiari ◽  
Festy Ladyani Mustofa ◽  
Rina Kriswiastiny ◽  
Dianing Ayu Yustika Ratu
Keyword(s):  
Systemic Lupus Erythematosus ◽  
Lupus Erythematosus ◽  
Tertiary Education ◽  
Univariate Analysis ◽  
Systemic Lupus ◽  
Cross Sectional ◽  
Visual Functioning ◽  
Quality Of Vision ◽  
Vision Function

ABSTRACT: DESCRIPTION OF THE QUALITY OF VISION FUNCTION IN SYSTEMIC LUPUS ERYTHEMA PATIENTS BASED ON THE NEI VFQ-25 QUESTIONNAIRE IN THE ODAPUS COMMUNITY OF LAMPUNGBackground: Systemic Lupus Erythematosus /Systemic Lupus Erythematosus (SLE) is a multisystem autoimmune disease that has characteristic manifestations or symptoms and varied clinical behavior. Eye involvement can be found in about one-third of cases of SLE, and sometimes occurs early in the disease. To assess and measure the quality of vision function in patients with Systemic Lupus Erythematosus, a measuring instrument that can be used is the National Eye Institute Visual Functioning Questionnaire-25  (NEI VFQ-25) questionnaire. Objective: To describe the quality of vision function in patients with systemic lupus erythematosus based on the NEI VFQ-25 questionnaire in the ODAPUS community in Lampung 2020. Research Methods: This research is a descriptive survey with an approach cross-sectional using primary data in the form of a questionnaire. The sample of this study was all 40 patients who joined the ODAPUS community in Lampung. Data analysis used univariate analysis using tables and graphs in data presentation. Results: The results of the study were 40 patients who met the criteria for inclusion in the study. Of the 40 patients, the patient characteristics were obtained based on the quality of vision function, namely 26-45 years (65.0%), female (97.5%), tertiary education (65.0 %), IRT (42.5%), quality of vision function is not good (90 , 0%), low-dose corticosteroids (85.0%). Conclusion: Given picture quality visual functions of patients with systemic lupus erythematosus-based questionnaire NEI VFQ-25 in the community of Lampung odapus 2020 is not good. Keywords: Quality Vision Function, SLE  INTISARI: GAMBARAN KUALITAS FUNGSI PENGLIHATAN PASIEN SYSTEMIC LUPUS ERYTHEMATOSUS BERDASARKAN KUESIONER NEI VFQ-25 DI KOMUNITAS ODAPUS LAMPUNG Latar Belakang: Lupus Eritematosus Sistemic/Systemic Lupus Erythematosus (SLE) adalah suatu penyakit autoimun multisistem yang memiliki manifestasi atau gejala khas dan perilaku klinis yang sangat bervariasi. Keterlibatan mata dapat ditemukan pada kurang lebih satu per tiga kasus SLE,   dan  kadang  terjadi  pada  awal  penyakit. Untuk menilai dan mengukur kualitas fungsi penglihatan pada pasien Systemic Lupus Erythematosus,  alat ukur yang dapat digunakan yaitu dengan kuesioner National Eye Institute Visual Functioning Questionnaire-25 (NEI VFQ-25).Tujuan: Untuk mengetahui gambaran kualitas fungsi penglihatan pasien systemic lupus erythematosus berdasarkan kuesioner NEI VFQ-25 di komunitas ODAPUS Lampung 2020.Metode Penelitian: Jenis penelitian ini adalah survei deskriptif dengan pendekatan Cross- sectional menggunakan data primer berupa kuesioner. Sampel penelitian ini adalah seluruh pasien yang bergabung di komunitas ODAPUS Lampung sebanyak 40 orang. Analisis data menggunakan analisis univariat dengan menggunakan tabel dan grafik dalam penyajian data.Hasil: Hasil penelitian terdapat 40 pasien yang memenuhi kriteria untuk dimasukkan dalam penelitian. Dari 40 pasien tersebut didapatkan karakteristik pasien berdasarkan kualitas fungsi penglihatan yaitu terbanyak pada usia 26-45 tahun (65,0%), jenis kelamin perempuan (97,5%), pendidikan perguruan tinggi (65,0%), pekerjaan IRT (42,5%), kualitas fungsi penglihatan tidak baik (90,0%), dan penggunaan kortikosteroid dosis rendah (85,0%). Kesimpulan: Gambaran kualitas fungsi penglihatan pasien systemic lupus erythematosus berdasarkan kuesioner NEI VFQ-25 di komunitas ODAPUS Lampung 2020 yaitu tidak baik. Kata Kunci : Kualitas Fungsi Penglihatan, SLE

scholarly journals Monitoring of Osteonecrosis in Systemic Lupus Erythematosus: A Systematic Review and Metaanalysis

2018 ◽  
Vol 45 (10) ◽  
pp. 1462-1476 ◽  
Author(s):  
Sara Hussein ◽  
Manon Suitner ◽  
Sarah Béland-Bonenfant ◽  
Alexandra Baril-Dionne ◽  
Ben Vandermeer ◽  
...  
Keyword(s):  
Risk Factors ◽  
Systematic Review ◽  
Systemic Lupus Erythematosus ◽  
Lupus Erythematosus ◽  
Evaluation Method ◽  
Central Nervous System Disease ◽  
Systemic Lupus ◽  
Cross Sectional ◽  
Mesh Terms

Objective.Nontraumatic osteonecrosis (ON) is a well-recognized complication causing disability and affecting quality of life in patients with systemic lupus erythematosus (SLE). The aim of this study was to identify the risk factors for ON, and to identify the minimal investigation(s) needed to optimally monitor the risk of ON in patients with SLE.Methods.A systematic review was conducted using MEDLINE and EMBASE. These databases were searched up to January 2016 using the Medical Subject Heading (MeSH) terms “Osteonecrosis,” “Systemic lupus erythematosus,” and synonymous text words. Randomized controlled trials, case control, cohort, and cross-sectional studies were included. Risk factors for ON in patients with SLE were compiled. The quality of each study was assessed using the Newcastle-Ottawa scale for nonrandomized studies. The quality of evidence of each risk factor was assessed using the Grading of Recommendations, Assessment, Development, and Evaluation method.Results.Of the 545 references yielded, 50 met inclusion criteria. Corticosteroid (CS) use may be strongly associated with ON in patients with SLE. Other clinical variables were moderately associated, including hypertension, serositis, renal disease, vasculitis, arthritis, and central nervous system disease. However, the evidence was low to very low in quality.Conclusion.Based on the best evidence available, CS use may be strongly associated with ON in patients with SLE. Results of this review were considered in the development of recommendations for the diagnosis and monitoring of patients with SLE in Canada and will guide clinicians in their assessment of these patients.

scholarly journals Factors associated with the use of complementary therapies in Taiwanese patients with systemic lupus erythematosus: a cross-sectional study

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Ming-Chi Lu ◽  
Hui-Chin Lo ◽  
Hsiu-Hua Chang ◽  
Chia-Wen Hsu ◽  
Malcolm Koo
Keyword(s):  
Systemic Lupus Erythematosus ◽  
Lupus Erythematosus ◽  
Complementary Therapies ◽  
Complementary Therapy ◽  
Cross Sectional Study ◽  
Sectional Study ◽  
Systemic Lupus ◽  
Cross Sectional ◽  
Factors Associated

Abstract Background This study aimed to investigate the prevalence of and the factors associated with the regular use of complementary therapies for Taiwanese patients with systemic lupus erythematosus (SLE). Methods In this cross-sectional study, 351 patients with SLE were consecutively recruited from a regional hospital in southern Taiwan from April to August 2019. Demographic and clinical information, including the use of different types of complementary therapies, was ascertained using a self-constructed questionnaire. Disease-specific quality of life was measured using the Lupus Quality of Life (LupusQoL) questionnaire. SLE disease activity was assessed using the rheumatologist-scored Systemic Lupus Erythematosus Disease Activity Index 2000 (SLEDAI-2 K). Factors associated with the regular use of complementary therapies were evaluated using multiple logistic regression analyses. Results Of the 351 patients with SLE, 90.3% were female, and 60.1% were ≥ 40 years of age. The prevalence of the regular use of any type of complementary therapy was 85.5%. The five most popular types of complementary therapy used were (1) fitness walking or strolling, (2) Buddhist prayer or attending temple, (3) vitamin consumption, (4) calcium supplementation, and (5) fish oil supplementation. Multiple logistic regression analyses revealed that the significant and independent factors associated with the regular use of complementary therapies in patients with SLE were age ≥ 40 years (adjusted odds ratio [aOR] 2.76, p = 0.013), nonoverweight or nonobesity (aOR 0.29, p = 0.004), engagement in vigorous exercise in the past year (aOR 4.62, p = 0.002), a lower SLEDAI-2 K score (aOR 0.90, p = 0.029), and a lower score in the physical health domain of the LupusQoL (aOR 0.57, p = 0.001). Conclusions A high prevalence of complementary therapy use in Taiwanese patients with SLE was observed. Rheumatologists should routinely ask patients about their use of supplements to minimize the risk of interaction with medical therapy.

scholarly journals Schizophrenia among patients with systemic lupus erythematosus: population-based cross-sectional study

2016 ◽  
Vol 26 (4) ◽  
pp. 424-429 ◽  
Author(s):  
S. Tiosano ◽  
A. Farhi ◽  
A. Watad ◽  
N. Grysman ◽  
R. Stryjer ◽  
...  
Keyword(s):  
Systemic Lupus Erythematosus ◽  
Multivariate Analysis ◽  
Lupus Erythematosus ◽  
Univariate Analysis ◽  
Positive Association ◽  
Cross Sectional Study ◽  
Sectional Study ◽  
Medical Database ◽  
Systemic Lupus ◽  
Cross Sectional

Aims.Systemic lupus erythematosus (SLE) is a prototypic autoimmune disease involving multiple organs, including the central nervous system. Evidence of immune dysfunction exists also in schizophrenia, a psychiatric illness involving chronic or recurrent psychosis. The aim of our study was to investigate if there is an epidemiological association between SLE and schizophrenia.Method.A cross-sectional study was conducted comparing patients with SLE with age and gender-matched controls regarding the proportion of patients with comorbid schizophrenia. χ2- and t-tests were used for univariate analysis, and interaction of schizophrenia with SLE across strata of covariates was checked. A logistic regression model was used for multivariate analysis. The study was performed utilising the medical database of Clalit Health Services in Israel.Results.The study included 5018 patients with SLE and 25 090 controls. SLE patients had a female predominance, and a higher proportion of smoking compared with age and sex-matched controls. In multivariate analysis, SLE was found to be independently associated with schizophrenia while controlling for age, gender, socioeconomic status (SES) and smoking (OR 1.33, p = 0.042).Conclusions.We found a positive association between SLE and schizophrenia across patients of different age, gender and SES. This association can contribute to understanding the pathophysiology of the two disorders and may also have clinical implications for earlier as well as better diagnosis and treatment.

scholarly journals Correlation of Anxiety Disorder and Quality of Life in Systemic Lupus Erythematosus Patients

2019 ◽  
Vol 11 (1) ◽  
Author(s):  
Kemala Emrizal ◽  
Laniyati Hamijoyo ◽  
Lynna Lidyana
Keyword(s):  
Quality Of Life ◽  
Systemic Lupus Erythematosus ◽  
Anxiety Disorder ◽  
Lupus Erythematosus ◽  
Anxiety Scale ◽  
Systemic Lupus ◽  
Cross Sectional ◽  
Self Rating ◽  
Sf 36

Background: Systemic Lupus Erythematosus (SLE), an autoimmune disease, can cause damage and impairment in the nervous system. Patients who had any manifestation of neurology can be classified as patients with Neuropsychiatric Systemic Lupus Erythematosus (NPSLE). One of the most frequent NPSLE manifestation is anxiety disorder. The presence of anxiety disorder is believed to be correlated with their ability to carry out daily activities. This study aims to see the correlation between anxiety disorder and quality of life (QOL) in patients with SLE. Method: an analitic cross-sectional study was done. The data were collected by distributing validated questionnaires to patients diagnosed with SLE in the outpatient clinic of dr. Hasan Sadikin General Hospital. Quality of life and anxiety disorder was measured using Short From-36 (SF-36) and Zung Self-Rating Anxiety Scale (Zung-SAS), respectively. Normality test was done before correlating the variables using Pearson method. Result: Forty-six SLE patients fitted with the inclusion criteria were participated in the study. The assessment using Zung-SAS showed that 9 (19.56%) correspondents had mild–moderate anxiety, and 1 (2.17%) had severe anxiety. The analysis of SF-36 showed the means of Physical Component Summary (PCS) and Mental Component Summary (MCS) which were 45.18 ± 8.23 and 47.11± 9.78, in order. The correlation test of Zung-SAS with PCS and MCS showed the result of r= -0.651 (p < 0,01) and -0.654 (p < 0,01), respectively. Conclusion: There is a significant negative correlation between anxiety disorder and QOL in patients with SLE. The result of this study showed that the high degree of ones anxiety was in a parallel line with their low level of QOL, so it is important to do an early detection and prevention of anxiety disorder in SLE patients. Keywords: Anxiety disorder, quality of life, Systemic Lupus Erythematosus, Zung Self Rating Anxiety Scale.

Discordance of patient and physician health status concerns in systemic lupus erythematosus

Lupus ◽  
2017 ◽  
Vol 27 (3) ◽  
pp. 501-506 ◽  
Author(s):  
V Golder ◽  
J J Y Ooi ◽  
A S Antony ◽  
T Ko ◽  
S Morton ◽  
...  
Keyword(s):  
Systemic Lupus Erythematosus ◽  
Health Status ◽  
Lupus Erythematosus ◽  
Systemic Lupus ◽  
Cross Sectional ◽  
Physician Health ◽  
Healthcare Communication ◽  
Patient Concerns ◽  
Disease Specific

Objectives To compare the health status concerns of patients with systemic lupus erythematosus (SLE) and of their physicians. Methods Cross-sectional questionnaire study of SLE patients and their treating physicians at a tertiary disease-specific outpatient clinic. Patients and physicians completed a questionnaire regarding their concern about specific disease manifestations and impact on quality of life. For each item, degree of concern was rated on a five-point Likert scale and summarized as median (interquartile range). Ratings between patients and physicians were compared using Mann–Whitney U tests. Results A total of 84 patients and 21 physicians participated. Patients’ predominant concerns centred on function and fatigue, whereas physicians’ concerns focused on SLE-related organ complications. Of the 10 highest ranked patient concerns, only two were common to the 10 highest ranked physician concerns, while physicians rated seven significantly differently; all 10 highest ranked physician concerns were rated significantly lower by patients. The three highest ranked patient concerns (fatigue, pain and feeling worn out) were routinely assessed by 47.6%, 42.9% and 9.5% of physicians, respectively. Conclusion There was significant discordance between SLE patient and physician health status concerns. Items which were ranked highly by patients were not assessed consistently by physicians, highlighting a significant gap in healthcare communication.

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