scholarly journals Meneroka Cabaran yang Dihadapi oleh Ibu dalam Menguruskan Anak Berkeperluan Khas

2020 ◽  
Vol 4 (2) ◽  
pp. 63-75
Author(s):  
Manisah Mohd. Ali ◽  
Nur Farahana Ismail @ Mohd Ismail

Parents of children with special needs experience mental and physical challenges that can cause psychological stress. Mothers are more likely to experience higher stress than fathers as they closer to their children than father. This study aims to explore the challenges that can cause stress among mothers with special needs children. The research design of this study was a case study using an interview protocol to seek information from a group of mothers (n = 6) of children with special needs who are experiencing autism spectrum disorders, cerebral palsy and attention-deficit/hyperactive disorder. Data were transcribed verbatimly and analysed using the Thematic Analysis Method. This study found that there are five challenges faced by the study sample namely challenges in terms of lack of knowledge in the stages of identification of child disability, family acceptance, social stigma, emotional stress and career management in addition managing special needs children. Cooperation and collaboration between several parties such as counselors, hospitals and ministries are needed to ensure the well-being of mothers. Mothers need to be provided with detailed information on the management of children with special needs. This study has implications on Government agencies’ effort to design educational module on effective parenting. Abstrak Ibu bapa dengan anak berkeperluan khas mengalami cabaran dari segi mental dan fizikal yang boleh menyebabkan tekanan psikologikal. Golongan ibu lebih cenderung untuk mengalami tekanan yang lebih tinggi disebabkan mereka lebih mendampingi anak mereka berbanding bapa. Kajian ini bertujuan untuk meneroka cabaran yang boleh menyebabkan tekanan dalam kalangan ibu dengan anak berkeperluan khas. Reka bentuk kajian ini adalah kajian kes yang melibatkan protokol temubual untuk mendapatkan maklumat daripada kumpulan ibu (n=6) yang mempunyai anak berkeperluan khas dalam kategori gangguan spektrum autisme, palsi serebral dan sindrom kurang daya tumpuan dan hiperaktif. Data kajian ditranskrip secara verbatim dan dianalisis data dengan menggunakan kaedah Analisis Tematik. Kajian ini mendapati bahawa terdapat lima cabaran yang dihadapi oleh sampel kajian iaitu cabaran dari segi kurang pengetahuan pada peringkat pengenalpastian jenis ketidakupayaan anak, penerimaan keluarga, stigma masyarakat, tekanan emosi dan pengurusan kerjaya di samping menguruskan anak berkeperluan khas. Kerjasama dan kolaborasi antara beberapa pihak yang bertanggungjawab seperti kaunselor, pihak hospital dan kementerian diperlukan bagi memastikan kesejahteraan para ibu. Para ibu perlu disediakan maklumat yang terperinci berkenaan pengurusan anak berkeperluan khas. Kajian ini mempunyai implikasi kepada agensi kerajaan yang berwajib untuk merangka modul pendidikan keibubapaan yang berkesan.

Author(s):  
Ebrahim Rahbar Karbasdehi

Introduction: Emergency school closures are often used as public health interventions during infectious disease outbreaks to minimize the spread of infection. However, Over 80% of children in the world have had their education impacted by coronavirus. For children with special needs who receive special education services, access to face-to-face education and other resources at school is of particular importance. These services focus not only on academic achievement, but also on social, emotional, psychological and physical health and well-being. The American Academy of Pediatrics advocates for students to attend school in person. Students with special needs are divided into seven educational groups: hearing impairment, visual impairment, physical-motor disorders, intellectual disabilities, behavioral-emotional disorders, autism spectrum disorder, specific learning disorder, and severe and multiple disabilities. Each of these groups should have a different way of teaching and learning than other groups and normal students. For proper planning and accommodation of children with special needs, we must prioritize safety. In order for these students to be able to use rehabilitation services, face-to-face education conditions must be provided for them in accordance with health protocols.


1992 ◽  
Vol 59 (3) ◽  
pp. 151-158 ◽  
Author(s):  
Anita M. Unruh

Siblings of children with special needs have received little attention in the occupational therapy literature. However, siblings play an important role in the development of children with special needs. Siblings are also at risk for problems of emotional adjustment that have an impact on their own well-being as well as the well-being of the family. The research on siblings of special needs children is reviewed and followed by a description of the Ottawa Children's Treatment Centre sibling programme.


Author(s):  
Ujang Khiyarusoleh

ABSTRAK Penelitian ini dilatarbelakangi oleh adanya pendidikan yang diperuntukkan bagi semua anak, termasuk anak berkebutuhan khusus. Anak berkebutuhan khusus memiliki karakter yang berbeda-beda, khususnya slow learner dalam pembelajaran mengalami keterlambatan dalam memahami materi. Oleh karena itulah diperlukan peran orangtua dan guru pembimbing khusus untuk membantu memberikan pendidikan yang lebih baik sesuai dengan karakternya. Rumusan masalah penelitian ini yaitu bagaimana peran orangtua dan guru pembimbing khusus kepada slow learner di SD Negeri 5 Arcawinangun. Tujuan penelitian ini yaitu untuk mengetahui peran orangtua dan guru pembimbing khusus kepada slow learner di SD Negeri 5 Arcawinangun. Jenis penelitian ini yaitu penelitian kualitatif dengan pendekatan studi kasus. Teknik pengumpulan data yang digunakan adalah observasi, wawancara, dokumentasi dan triangulasi sumber. Hasil penelitian ini menunjukan bahwa terdapat beberapa peran orangtua yaitu meliputi: orangtua sebagai pendamping utama, orangtua sebagai advokat, orangtua sebagai guru, orangtua sebagai diagnostian. Serta peran guru pembimbing khusus yang meliputi: merancang dan melaksanakan program kekhususan, melakukan identifikasi, asesmen dan menyususn program pembelajaran individual, memodifikasi bahan ajar, melakukan evaluasi, dan membuat laporan program dan perkembangan anak berkebutuhan khusus. Dengan peran peran tersebut, maka sebagian besar anak berkebutuhan khusus di SD Negeri 5 Arcawinangun dapat memberikan layanan dengan baik. Saran untuk penelitian ini orangtua senantiasa mendorong anaknya untuk belajar bersungguh-sungguh di rumah dan di skolah, serta menyediakan fasilitas belajar yang mendukung perkembangan pendidikan bagi anaknya. Kata Kunci: peran guru pembimbing khusus, peran orangtua, slow learner   ABSTRACT Background of the study was the existence of education aimed at all children, including children with special needs. Children with special needs have different characters, thus affecting their learning achievement. Therefore, the role of parents and special tutors were needed to help them improve learning achievement. The research question of this research was how the role of parents and special guidance teachers towards learning achievement of children with special needs in SD Negeri 5 Arcawinangun. The focus of this research was the role of parents and special guidance teachers on learning achievement of children with special needs in grades 1, 2 and 3 of SD Negeri 5 Arcawinangun. The purpose of this study was to determine the role of parents and special guidance teachers on the learning achievement of children with special needs in Arcawinangun 5 Public Elementary School. This type of research was qualitative research with a case study approach. Technique of data collection was observation, interviews, documentation and source triangulation. The results of this research indicated that there were several roles of parents, namely: parents as the main companion, parents as advocates, parents as teachers, parents as diagnostics. As well as the role of a special mentor teacher which includes: designing and implementing specific programs, identifying, assessing and arranging individual learning programs, modifying teaching materials, evaluating, and making program reports and development of children with special needs.With this role, most of the children with special needs in SD Negeri 5 Arcawinangun can improve their learning achievement well.Suggestions of this research were parents always encourage their children to study seriously at home and at school, and provide learning facilities that support the development of education for their children. Keywords: role of parents, role of special guidance teachers, slow learner


Healthcare ◽  
2021 ◽  
Vol 9 (4) ◽  
pp. 410
Author(s):  
Valendriyani Ningrum ◽  
Abu Bakar ◽  
Tzong-Ming Shieh ◽  
Yin-Hwa Shih

This meta-analysis aimed to analyze the oral health inequalities among special needs children during 2004–2019 in Asia to reveal the importance and the needs of establishing integrated and equitable special needs dentistry care system in Indonesia. PubMed, Scopus, Cochrane Library, Web of Science, and Wiley Online Library were systematically searched for full-text observational studies published from 1 January 2004 to 15 January 2020, in English in Asia. Studies that included children under 18 years of age with special needs and compared them to healthy controls were selected. Study quality was assessed using the Joanna Briggs Institute 2017 Critical Appraisal Checklist. Risk of bias was assessed using the ROBINS-E tool. The decayed, missing, and filled permanent teeth (DMFT) index indicated that special needs children who suffer from intellectual disability or autism spectrum disorder had significantly more caries than normal children (p < 0.001). The special needs children who had more caries than normal children lived in countries that had a high average DMFT value among 12 years old children (p < 0.001), and these two variables showed a positive correlation in meta-regression analysis (p < 0.001). Having an integrated and equitable care system and elevating children’s oral health are important to maintain special needs children’s oral health.


Author(s):  
Naiara Berasategi Sancho ◽  
Nahia Idoiaga Mondragon ◽  
Maria Dosil Santamaria ◽  
Maitane Picaza Gorrotxategi

2021 ◽  
Author(s):  
Mor Keleynikov ◽  
Joy Benatov ◽  
Noga Cohen

The coronavirus (COVID-19) outbreak has been declared a global pandemic. The consequences of this pandemic, among them changes in routine, quarantine, school closures and more, place children with special needs and their families at risk of severe emotional distress. Therefore, the present study used an online survey to measure stress, anxiety and depression levels as well as concerns related to the COVID-19 outbreak among 94 parents of children with special needs (mean age = 41.6 years, SD = 6.59; 83% female) and 79 parents raising a typically developing child (mean age = 40.85 years, SD = 7.40; 85% female). We also examined whether the use of adaptive and maladaptive emotion regulation (ER) strategies (reappraisal and suppression, respectively) predicts emotional distress among the two parent groups. The results indicate that compared to parents of TD children, parents of children with special needs reported more concerns about the COVID19 outbreak and more symptoms of emotional distress (depression, anxiety and stress). The use of adaptive and maladaptive emotion regulation strategies moderated the association between concerns arising from the COVID-19 outbreak and emotional distress. In addition, the habitual use of emotion regulation strategies predicted distress only among parents of children with special needs but not among parents of TD children. These findings highlight the role played by emotion regulation in maintaining well-being at times of crisis among vulnerable populations, such as families raising children with special needs.


2021 ◽  
Vol 6 (2) ◽  
pp. 244-262
Author(s):  
Fatma Laili Khoirun Nida

The phenomenon of the poor quality of parental care for children with disabilities makes resilience one of the psychological capital that contributes to improving the quality of care. This study describes how through a muhasabah intervention in Blimbingrejo Village, Nalumsari District, Jepara Regency. The purpose of this study was to provide information for parents of children with special needs about muhasabah interventions in developing the resilience abilities of parents when carrying out their care. The urgency of this research is to reduce parenting stress experienced by parents because of the developmental barriers of their children. This research is qualitative with a case study approach through in-depth interviews and observation techniques. The study results explain that the condition of children with special needs is often a stressor for their parents. However, parents can live with complete steadfastness as a form of their resilience. The pattern of resilience formed is supported mainly by thinking about what they are trying to do. There are indications of the meaning of resilience factors in the practice of muhasabah in the form of the ability to regulate emotions, develop optimism and empathy, control impulses and causal analysis, good self-efficacy and take wisdom as an indication of aspects of the reaching out process. The results of this study are helpful information in developing the concept and practice of caring for children with special needs.


Author(s):  
Ong Chin Ann ◽  
Lau Bee Theng ◽  
Henry Lee Seldon ◽  
Fernando Anddie Putra

This research studies ways to prevent physical injury for children with special needs, or specifically children with Autism Spectrum Disorder (ASD). The prevention is achievable by monitoring child behavior in the classroom from time to time. A Critical Behavior Monitoring model was developed for this purpose. The model is integrated with a Kinect sensor (by Microsoft) to process the signal acquired for human activities recognition. Currently, the model manages to identify 17 different human activities and notify parents or teachers via SMS and/or email if any unusual or critical activities are detected (i.e. falling down or asking for help). This will ensure immediate action is taken to prevent injuries or the situation from getting worse.


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