scholarly journals Work Experiences, Accommodations, and Information in the Context of Fibromyalgia: A Literature Review and Conceptual Synthesis

2019 ◽  
Vol 3 (3) ◽  
Author(s):  
Annie T. Chen ◽  
Holly Carpenter ◽  
Mary Grace Flaherty
Keyword(s):  
Health Care Providers ◽  
Information Science ◽  
Underlying Disease ◽  
Chronic Widespread Pain ◽  
Legal Rights ◽  
Work Experiences ◽  
Care Providers ◽  
Self Advocacy ◽  
Information Awareness ◽  
Work Accommodations

This paper explores the challenges that individuals with fibromyalgia may experience in navigating the workplace. Fibromyalgia is a syndrome characterized by chronic widespread pain, stiffness, sleep disruption, and other symptoms, without a well-defined underlying disease. At work, patients can struggle with various problems, including fluctuating symptoms, exhaustion, skepticism, questions about whether to disclose, and finding ways to adjust work situations. Individuals often lack information concerning how to manage their health, as well as different aspects of their lives, including work. Work accommodations such as extended health benefits, modified schedules, and work-at-home arrangements could help. However, individuals may need to learn how to advocate for themselves, which can include finding information on legal rights and accommodation options. Differences in information awareness and seeking skills can lead to inequities in the management of chronic health conditions in the workplace. We explore extant literature in three parts. First, we review research on the experience of work among individuals with fibromyalgia, and to a lesser extent, other conditions and disabilities. Then, we consider work accommodations, and third, we conclude with a conceptual synthesis. In our analysis, we first identify a need for clearer conceptualization of the role of information to facilitate workplace self-advocacy. Then, we identify gaps in the literature concerning information and information behavior related to work accommodations. Last, we emphasize the need for involvement of stakeholders over time. This paper may be of interest to researchers, health care providers, library and information science professionals, and health policy researchers striving to achieve health equity.

The Supreme Court Confronts HIV: Reflections on Bragdon v. Abbott

1998 ◽  
Vol 26 (3) ◽  
pp. 225-240 ◽  
Author(s):  
Wendy E. Parmet
Keyword(s):  
Public Health ◽  
Supreme Court ◽  
Health Care Providers ◽  
Legal Rights ◽  
Health Providers ◽  
Care Providers ◽  
The Supreme Court ◽  
Antidiscrimination Law ◽  
Public Health Officials ◽  
Immunodeficiency Syndrome

The most remarkable thing about the U.S. Supreme Court's 1998 decision in Bragdon v. Abbott was that it was necessary at all. Seventeen years into the epidemic of the acquired immunodeficiency syndrome (AIDS), the Supreme Court, by a mere 5-4 majority, finally affirmed what most public health officials, health providers, and lawyers working with people with human immunodeficiency virus (HIV) believed all along: that individuals with HIV infection are entitled to the protections of antidiscrimination law, and that health care providers must respond to a patient's infection based on reason and science, not fear and prejudice. For individuals with HIV, and for those with other disabilities, the Court's ruling was a critical victory. But the very fact that the issues had to be decided by the Supreme Court and that only five justices joined the majority, shows the fragility of legal rights pertaining to HIV as well as the wide gulf between the perspectives of public health and those of public law.

Although unseen, chronic pain is real–A phenomenological study

2015 ◽  
Vol 6 (1) ◽  
pp. 33-40 ◽  
Author(s):  
Tapio Ojala ◽  
Arja Häkkinen ◽  
Jaro Karppinen ◽  
Kirsi Sipilä ◽  
Timo Suutama ◽  
...  
Keyword(s):  
Health Care ◽  
Chronic Pain ◽  
Health Care Providers ◽  
Phenomenological Study ◽  
Mental Health Problems ◽  
Holistic Approach ◽  
Spinal Pain ◽  
Underlying Disease ◽  
Pain Patient ◽  
Care Providers

AbstractBackgroundResearch has emphasised the essential role of psychosocial risk factors in chronic pain. In practice, pain is usually verified by identifying its physical cause. In patients without any distinct pathology, pain is easily defined as imaginary pain. The aim of this qualitative study was to explore the invisibility of chronic pain, from the patients’ perspective.MethodsThirty-four participants with chronic pain were interviewed. The mean age of the participants was 48 years, and 19 of them were women. For 21 of the participants, the duration of pain was more than five years, and most of the participants had degenerative spinal pain. The transcribed interviews were analysed using Giorgi’s four-phase phenomenological method.ResultsThe participants’ chronic pain was not necessarily believed by health care providers because of no identified pathology. The usual statements made by health care providers and family members indicated speculation, underrating, and denial of pain. The participants reported experience of feeling that they had been rejected by the health care and social security system, and this feeling had contributed to additional unnecessary mental health problems for the participants.As a result from the interviews, subthemes such as “Being disbelieved”, “Adolescents’ pain is also disbelieved”, “Denying pain”, “Underrating symptoms”, “The pain is in your head”, “Second-class citizen”, “Lazy pain patient”, and “False beliefs demand passivity” were identified.ConclusionsIn health care, pain without any obvious pathology may be considered to be imaginary pain. Despite the recommendations, to see chronic pain as a biopsychosocial experience, chronic pain is still regarded as a symptom of an underlying disease. Although the holistic approach is well known and recommended, it is applied too sparsely in clinical practice.ImplicationsThe Cartesian legacy, keeping the mind and body apart, lives strong in treatment of chronic pain despite recommendations. The biopsychosocial approach seems to be rhetoric.

scholarly journals Presentation of COVID-19 infection with bizarre behavior and encephalopathy: a case report

2021 ◽  
Vol 15 (1) ◽  
Author(s):  
Zahra Teimouri-Jervekani ◽  
Mehrzad Salmasi
Keyword(s):  
Health Care Providers ◽  
Underlying Disease ◽  
Cerebrovascular Diseases ◽  
Care Providers ◽  
Chain Reaction ◽  
Positive Polymerase Chain Reaction ◽  
Case Presentation ◽  
Polymerase Chain ◽  
Tomography Scan ◽  
Bizarre Behavior

Abstract Background Current studies show that patients with severe coronavirus disease 2019 (COVID-19) have neurological symptoms manifesting as acute cerebrovascular diseases, impaired consciousness, and skeletal muscle symptoms. Bizarre behavior is an unusual and unique presenting symptom of COVID-19 infection in our patient. Case presentation We report a case of COVID-19 infection in a middle aged Iranian man without underlying disease who presented with bizarre behavior. Results of brain imaging were normal, but COVID-19 pneumonia was detected on chest computed tomography scan. Given the respiratory problem and positive polymerase chain reaction (PCR) test for COVID-19, treatment with hydroxychloroquine was administered, and after 2 days all of the symptoms resolved. Conclusions Encephalopathy and encephalitis may be a possible presentation of COVID-19. Clinicians and health care providers should consider the presence of COVID-19 with bizarre behavior during this COVID-19 pandemic.

scholarly journals Chinese Vaccine Providers’ Perspectives on the HPV Vaccine

2020 ◽  
Vol 7 ◽  
pp. 2333794X2096759
Author(s):  
Mengdi Ji ◽  
Zhuoying Huang ◽  
Jia Ren ◽  
Xiaodong Sun ◽  
Abram L. Wagner
Keyword(s):  
Health Care Providers ◽  
Work Experience ◽  
Hpv Vaccine ◽  
Transmitted Disease ◽  
Vaccine Uptake ◽  
Work Experiences ◽  
Care Providers ◽  
Sexually Transmitted ◽  
Working Length ◽  
Expanded Program On Immunization

China approved a human papillomavirus (HPV) vaccine in 2018. Recommendations from health care providers can positively impact vaccine receipt. This study characterized vaccine providers’ attitudes toward the HPV vaccine and contrasted attitudes by the providers’ demographic characteristics. In total, 120 vaccine providers in Shanghai, China, completed a questionnaire. Associations between essential characteristics of the HPV vaccine and providers’ urbanicity and working length were explored using the Kruskal-Wallis test. Doctors with ≤5 years’ work experience were more likely to think it important to emphasize that HPV is a sexually transmitted disease compared to doctors with longer work experiences ( P = .0231). More suburban than urban providers thought that China should include the HPV vaccine into the publicly funded Expanded Program on Immunization ( P = .0315). Differences in attitudes toward HPV could lead to variation in how providers talk to parents and adolescents about the HPV vaccine, with disparities in vaccine uptake as a result.

scholarly journals Foudroyant Course of an ExtensiveClostridium septicumGas Gangrene in a Diabetic Patient with Occult Carcinoma of the Colon

2013 ◽  
Vol 2013 ◽  
pp. 1-5 ◽  
Author(s):  
Maximilian Hartel ◽  
Asad Kutup ◽  
Axel Gehl ◽  
Jozef Zustin ◽  
Lars G. Grossterlinden ◽  
...  
Keyword(s):  
Multiple Organ Failure ◽  
Organ Failure ◽  
Health Care Providers ◽  
Vital Signs ◽  
Underlying Disease ◽  
Multiple Organ ◽  
Care Providers ◽  
Laboratory Findings ◽  
Carcinoma Of The Colon ◽  
Surgical Measures

Background. Spontaneous gas gangrene is a rare disease in whichClostridium septicumfrequently can be detected. After an incubation period of 5–48 hours, a very painful swelling is accompanied by a rapidly spreading toxic-infectious clinical picture ultimately leading to septic shock and multiple organ failure. We present a case of a completely documented rare infectious disease with triage findings including initial vital signs, initial medical findings, and the emergency lab., radiological, intraoperative, histopathological, microbiological, and postmortem results. After initial diagnosis of the underlying disease, the patient has been immediately transferred to the operating theatre. The laboratory findings reflect the devastating effect of toxinαwhich is a toxin typically produced byC. septicum.The patient presented both an anaemia and a manifest coagulopathy as well as an onset of multiple organ failure. Despite the aggressive medical and surgical measures that have been taken, this patient could not be saved.Discussion. The case presented vividly emphasises the difficulty to identify these cases early enough to save a patient. This documentation may help health care providers to identify this life threatening disease as early as possible in future cases.

scholarly journals Collaboration between health sciences librarians and faculty as reflected by articles published in the Journal of the Medical Library Association

2018 ◽  
Vol 106 (4) ◽  
Author(s):  
Katherine G. Akers ◽  
Molly Higgins ◽  
Jennifer A. DeVito ◽  
Sally Stieglitz ◽  
Robert Tolliver ◽  
...  
Keyword(s):  
Health Care Providers ◽  
Information Seeking ◽  
Health Informatics ◽  
Information Science ◽  
Clinical Information ◽  
Health Sciences ◽  
Library And Information Science ◽  
Care Providers ◽  
Faculty Collaboration ◽  
Medical Library

A recent study by Higgins and colleagues reports that the Journal of the Medical Library Association (JMLA) had the highest percentage of articles with both librarian and faculty coauthors out of 13 peer-reviewed journals in science, technology, engineering, and medicine librarianship and education between 2005 and 2014. A deeper and updated analysis of JMLA research articles and case studies published between 2008 and 2017 revealed that 29% of articles had both librarian and faculty coauthors. The main topics of librarian-faculty collaboration, as described in these articles, were related to patient and consumer health information and clinical information-seeking and decision-making by health care providers. Most faculty coauthors came from the disciplines of biomedical or health informatics and biostatistics and library and information science. The publication of these articles in the JMLA provides evidence of health sciences librarians’ and information specialists’ ability to collaborate with faculty members to advance the knowledgebase and practice of librarianship and the health sciences.

Pharmacologic Options for the Management of Multiple Sclerosis Symptoms

2002 ◽  
Vol 16 (3) ◽  
pp. 223-231 ◽  
Author(s):  
Randall T. Schapiro
Keyword(s):  
Multiple Sclerosis ◽  
Health Care Providers ◽  
Psychosocial Support ◽  
Symptom Control ◽  
Disease Process ◽  
Disease Status ◽  
Underlying Disease ◽  
Care Providers ◽  
Successful Control

Multiple sclerosis (MS) is a disease with a wide-ranging impact on physical functioning. Although pharmacotherapy plays an indispensable role in the management of MS symptoms, optimal disease management requires a multidisciplinary approach that combines medication, rehabilitation, and patient education. Successful control of symptoms is critical to quality of life for MS patients. Immunomodulating drugs provide a means of controlling the underlying disease process, but they are not a cure. This places responsibility on health care providers to control a patient’s MS-related symptoms to limit disability and delay impairment in the activities of daily living. Owing to the importance of symptom control, comprehensive patient evaluations should be performed at regular intervals to determine the extent of neurological damage and disease progression and to address changing patient needs. The goal of interventions should be not only to treat the primary and secondary symptoms of MS but also to provide access to the psychosocial support that will help MS patients and their families continue to cope as disease status changes.

scholarly journals Ruthless Utilitarianism? COVID-19 State Triage Protocols May Subject Patients to Racial Discrimination and Providers to Legal Liability

2021 ◽  
Vol 47 (2-3) ◽  
pp. 264-290
Author(s):  
Miriam F. Weismann ◽  
Cheryl Holder
Keyword(s):  
Health Care ◽  
Civil Rights ◽  
Health Care Providers ◽  
Access To Health Care ◽  
Health Care Services ◽  
Human Life ◽  
The United States ◽  
Legal Rights ◽  
Care Providers ◽  
Care Services

As the coronavirus pandemic intensified, many communities in the United States experienced shortages of ventilators, intensive care beds, and other medical supplies and treatments. Currently, there is no single national response to provide guidance on allocation of scarce health care resources. Accordingly, states have formulated various “triage protocols” to prioritize those who will receive care and those who may not have the same access to health care services when the population demand exceeds the supply. Triage protocols address general concepts of “fairness” under accepted medical ethics rules and the consensus is that limited medical resources “should be allocated to do the greatest good for the greatest number of people.”1 The actual utility of this utilitarian ethics approach is questionable, however, leaving many questions about what is “fair” unanswered. Saving as many people as possible during a health care crisis is a laudable goal but not at the expense of ignoring patients’s legal rights, which are not suspended during the crisis. This Article examines the triage protocols from six states to determine whose rights are being recognized and whose rights are being denied, answering the pivotal question: If there is potential for disparate impact of facially neutral state triage protocols against Black Americans and other ethnic groups, is this legally actionable discrimination? This may be a case of first impression for the courts to resolve.“[B]lack Americans are 3.5 times more likely to die of COVID-19 than [W]hite Americans … . Latinx people are almost twice as likely to die of the disease, compared with [W]hite people.” 2 “Our civil rights laws protect the equal dignity of every human life from ruthless utilitarianism … . HHS is committed to leaving no one behind during an emergency, and this guidance is designed to help health care providers meet that goal.” — Roger Severino, Office of Civil Rights Director, U.S. Department of Health and Human Services. 3

Barriers to healthcare for people on the autism spectrum

2016 ◽  
Vol 2 (1) ◽  
pp. 2-11 ◽  
Author(s):  
Sebastian Dern ◽  
Tanja Sappok
Keyword(s):  
Health Care ◽  
Health Care Providers ◽  
Access To Health Care ◽  
Health Care Services ◽  
Autism Spectrum ◽  
Care Providers ◽  
Self Advocacy ◽  
Content Type ◽  
Special Value ◽  
Autistic Adults

Purpose – Adults on the autism spectrum experience difficulties in receiving health care, and health care providers face difficulties in offering health care to adults on the autism spectrum. The purpose of this paper is first, to assess the various difficulties and second, to provide strategies to overcome them. Design/methodology/approach – In this qualitative research project, current barriers and facilitators to health care services were sampled from a collaboration of autistic self-advocates and autism professionals in Berlin, Germany. The findings were complemented by a review of practical guidelines and research about the service accessibility of patients on the autism spectrum. Findings – A comprehensive list of barriers to health care was compiled and structured according to various aspects, such as “making appointments”, “waiting area”, “communication”, and “examination”. Strategies considering the perceptual and communicative peculiarities of autism were found to improve access to health care for autistic adults. Practical implications – Providing access to the health care system may improve the diagnosis and treatment of mental and somatic illnesses, and thereby, the health status and quality of life for people on the autism spectrum. This recognition of the needs of adults on the autism spectrum may serve as a model for other areas in society, such as education and employment. Originality/value – Data acquisition in this project is of special value because it resulted from collaboration between an autistic self-advocacy organization and professionals working in the field of intellectual developmental disabilities considering the experiences of autistic adults in the entire range of intellectual functioning.

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