scholarly journals The Primary Immunodeficiency Database in Japan

2022 ◽  
Vol 12 ◽  
Author(s):  
Kanako Mitsui-Sekinaka ◽  
Yujin Sekinaka ◽  
Akifumi Endo ◽  
Kohsuke Imai ◽  
Shigeaki Nonoyama
Keyword(s):  
Genetic Analysis ◽  
Primary Immunodeficiency ◽  
Epidemiological Studies ◽  
Autoinflammatory Diseases ◽  
Joint Research ◽  
Laboratory Findings ◽  
Web Based ◽  
Allergy And Immunology ◽  
Joint Research Project ◽  
Case Consultation

The Primary Immunodeficiency Database in Japan (PIDJ) is a registry of primary immunodeficiency diseases (PIDs) that was established in 2007. The database is a joint research project with research groups associated with the Ministry of Health, Labor and Welfare; the RIKEN Research Center for Allergy and Immunology (RCAI); and the Kazusa DNA Research Institute (KDRI). The PIDJ contains patient details, including the age, sex, clinical and laboratory findings, types of infections, genetic analysis results, and treatments administered. In addition, web-based case consultation is also provided. The PIDJ serves as a database for patients with PIDs and as a patient consultation service connecting general physicians with PID specialists and specialized hospitals. Thus, the database contributes to investigations related to disease pathogenesis and the early diagnosis and treatment of patients with PIDs. In the 9 years since the launch of PIDJ, 4,481 patients have been enrolled, of whom 64% have been subjected to genetic analysis. In 2017, the Japanese Society for Immunodeficiency and Autoinflammatory Diseases (JSIAD) was established to advance the diagnosis, treatment, and research in the field of PIDs and autoinflammatory diseases (AIDs). JSIAD promotes the analysis of the pathogenesis of PIDs and AIDs, enabling improved patient care and networking via the expansion of the database and construction of a biobank obtained from the PIDJ. The PIDJ was upgraded to “PIDJ ver.2” in 2019 by JSIAD. Currently, PIDJ ver.2 is used as a platform for epidemiological studies, genetic analysis, and pathogenesis evaluation for PIDs and AIDs.

eResearch

2018 ◽  
Vol 14 (4) ◽  
pp. 44-63
Author(s):  
Jan C. Thiele
Keyword(s):  
Lessons Learned ◽  
Software Systems ◽  
Functional Requirements ◽  
Joint Research ◽  
Management Tools ◽  
Web Based ◽  
Data Intensive ◽  
Digital Service ◽  
Joint Research Project ◽  
Scientific Framework

Joint research projects in ecology typically aim to integrate scientific knowledge from various disciplines. This raises the request for collaboration technologies. As ecological research is data-intensive, it requires the management and exchange of large datasets, often with spatial reference. The demand for collaboration, data, and information management tools in science is addressed by the creation of digital service infrastructures, so-called eResearch Infrastructures, which are collections of typically web-based software systems. Here, an example eResearch infrastructure implemented for a joint research project is presented. It is described by the user stories, the derived functional requirements, and their implementation in software systems. This infrastructure followed an open-source paradigm with only two exceptions. Based on the lessons learned, recommendations for the future development of eResearch infrastructures and their embedment in an organizational, project, and scientific framework are derived.

scholarly journals AFX Zeolite for Use as a Support of NH3-SCR Catalyst Mining through AICE Joint Research Project of Industries–Academia–Academia

Catalysts ◽  
2021 ◽  
Vol 11 (2) ◽  
pp. 163
Author(s):  
Masaru Ogura ◽  
Yumiko Shimada ◽  
Takeshi Ohnishi ◽  
Naoto Nakazawa ◽  
Yoshihiro Kubota ◽  
...  
Keyword(s):  
High Performance ◽  
Ionic Species ◽  
Research Project ◽  
Joint Research ◽  
Structure Directing Agent ◽  
Scr Catalyst ◽  
Organic Structure ◽  
Nh3 Scr ◽  
Joint Research Project ◽  
The One

This paper introduces a joint industries–academia–academia research project started by researchers in several automobile companies and universities working on a single theme. Our first target was to find a zeolite for NH3-SCR, that is, zeolite mining. Zeolite AFX, having the same topology of SSZ-16, was found to be the one of the zeolites. SSZ-16 can be synthesized by using an organic structure-directing agent such as 1,1′-tetramethylenebis(1-azonia-4-azabicyclo[2.2.2]octane; Dab-4, resulting in the formation of Al-rich SSZ-16 with Si/Al below five. We found that AFX crystallized by use of N,N,N′,N′-tetraethylbicyclo[2.2.2]oct-7-ene-2,3:5,6-dipyrrolidinium ion, called TEBOP in this study, had the same analog as SSZ-16 having Si/Al around six and a smaller particle size than SSZ-16. The AFX demonstrated a high performance for NH3-SCR as the zeolitic support to load a large number of divalent Cu ionic species with high hydrothermal stability.

scholarly journals What sparks academic engagement with society? A comparison of incentives appealing to motives

2021 ◽  
pp. 095042222199406
Author(s):  
Eva Sormani ◽  
Thomas Baaken ◽  
Peter van der Sijde
Keyword(s):  
Higher Education ◽  
Academic Engagement ◽  
Career Advancement ◽  
Self Determination Theory ◽  
Self Determination ◽  
Third Mission ◽  
Research Support ◽  
Joint Research ◽  
Subject Design ◽  
Joint Research Project

The pressure on higher education institutions (HEIs) to realize third mission activities continues to grow, intensifying the search for incentives to motivate academics to engage with stakeholders outside their HEI. Previous studies have found limitations in intrinsically motivating academic engagement; therefore, this study investigates the extrinsic regulation of motivations via incentives. The authors identified a broad range of incentives for third mission activities, belonging to four motivation categories: pecuniary incentives, career advancement, appreciation and research support. Drawing on self-determination theory, incentives (nudges and rewards) are empirically compared in a between-subject design with a sample of 324 academics from the business and economics disciplines. The analysis showed that nudges affect business and economics academics’ intention to engage with society in a joint research project. Furthermore, these academics responded well to incentives concerned with the research support motivation category. The findings contribute to the literature by highlighting the relevance of marginal incentives—nudges—in implementing appropriate incentives in HEIs.

scholarly journals An Interactive Web Application for the Statistical Analysis of Continuous Glucose Monitoring Data in Epidemiological Studies

2021 ◽  
pp. 193229682098557
Author(s):  
Alysha M. De Livera ◽  
Jonathan E. Shaw ◽  
Neale Cohen ◽  
Anne Reutens ◽  
Agus Salim
Keyword(s):  
Continuous Glucose Monitoring ◽  
Web Application ◽  
Diabetes Management ◽  
Glucose Monitoring ◽  
Epidemiological Studies ◽  
Interactive Software ◽  
Web Based ◽  
Software Applications ◽  
Visualization Of Data ◽  
User Friendly

Motivation: Continuous glucose monitoring (CGM) systems are an essential part of novel technology in diabetes management and care. CGM studies have become increasingly popular among researchers, healthcare professionals, and people with diabetes due to the large amount of useful information that can be collected using CGM systems. The analysis of the data from these studies for research purposes, however, remains a challenge due to the characteristics and large volume of the data. Results: Currently, there are no publicly available interactive software applications that can perform statistical analyses and visualization of data from CGM studies. With the rapidly increasing popularity of CGM studies, such an application is becoming necessary for anyone who works with these large CGM datasets, in particular for those with little background in programming or statistics. CGMStatsAnalyser is a publicly available, user-friendly, web-based application, which can be used to interactively visualize, summarize, and statistically analyze voluminous and complex CGM datasets together with the subject characteristics with ease.

Corporate Finance in Germany and France. A Joint Research Project of the Deutsche Bundesbank and the Banque de France

1999 ◽  
Author(s):  
Hans Friderichs ◽  
Dieter Gerdesmeier ◽  
Elisabeth M. Kremp ◽  
Bernard Paranque ◽  
Annie Sauve ◽  
...  
Keyword(s):  
Corporate Finance ◽  
Research Project ◽  
Joint Research ◽  
Joint Research Project ◽  
Deutsche Bundesbank

Backbone for Escape, Evacuation and Rescue From Arctic Facilities: A Systematic Approach

2014 ◽  
Author(s):  
Mark Longrée ◽  
Sven Hoog
Keyword(s):  
Energy Demand ◽  
Oil And Gas ◽  
Tourism Industry ◽  
The Arctic ◽  
Joint Research ◽  
Operating Personnel ◽  
Gas Industry ◽  
Joint Research Project ◽  
Arctic Ice ◽  
The Impact

In turn of the global warming and driven by the constant need for resources an increasing number of commercial and scientific activities conquer the Arctic in order to benefit from almost untouched resources like oil and gas but also from the overwhelming nature. These activities are accompanied by a steadily increasing number of vessels transporting goods but also operating personnel, scientists or tourists. Especially the number of tourists visiting the Arctic can reach far more than 1000 per vessel, resulting in growing headaches for the responsible safety and security authorities in the Arctic surrounding countries. Up to now no suitable Escape, Evacuation and Rescue (EER) concept is in place to cope with these challenges when it comes to hazardous situations. In this context IMPaC ([1]) developed a new and appropriate EER concept for the Arctic, exceeding the currently dominant small and isolated settlements along the coastlines in Denmark (Greenland), Norway, Russia, Canada and the US. One question seems to be central: Is there any requirement and benefit beyond the currently used small rescue station? Yes, we strongly believe that there is a growing demand for suitable infrastructure coming from various industries. Beyond rescue objectives there is a demand for people working and living in this area all year long, for a few days, weeks or months using these settlements for their specific needs. This led us to the idea of the provision of a common-use infrastructure for multiple industries. The commonly used infrastructure maximizes the use of the remote and very expensive infrastructure and minimizes the impact on the environment in this part of the world. Potential users of this infrastructure would be: • Oil & Gas Industry, driven by the increased world energy demand • Marine Transport & Tourism Industry, driven by declined arctic ice and new sea routes via the Arctic sea • Fishery Industry • Scientific community Any EER concept for the Arctic has to cope with several specific environmental and spatial challenges as addressed by the EU joint research project ACCESS ([2]), where IMPaC participates. The paper introduces the new EER concept and focuses especially on its beneficial, efficient and safe operability in the Arctic recording an increasing number of commercial and scientific activities.

Migration to the Gulf States and China: Local Perspectives from Cameroon

2009 ◽  
Vol 2 (2) ◽  
pp. 229-244 ◽  
Author(s):  
Peter Tatah ◽  
Michaela Pelican
Keyword(s):  
International Migration ◽  
Far East ◽  
African Countries ◽  
Joint Research ◽  
Migration Internationale ◽  
Joint Research Project ◽  
The Family ◽  
Gulf States ◽  
Majeure Partie ◽  
Local Perspectives

Abstract This contribution discusses local perspectives on international migration with a focus on South-South and South-East migration, namely from Cameroon to the Gulf States and to China. The report is based on a joint research project involving anthropologists and students of the Universities of Zurich, Yaoundé and Douala. As in many African countries, international migration has become a major concern for large parts of the population of Cameroon. While western countries still feature as preferred destinations, many Cameroonians have turned to other, more easily accessible options within the South. Popular destinations are countries within Africa as well as the Near and Far East. In all these migration enterprises the family plays a crucial role, both in the preparation of the journey and with regard to transnational exchange relations. For Muslim migrants, religion may be a significant factor influencing their choice of destination besides other considerations, such as economic and educational incentives. Cette contribution examine les perspectives locales sur la migration internationale avec un accent sur la migration Sud-Sud et sur la migration Sud-Est, à savoir du Cameroun aux Etats du Golfe et à la Chine. Le rapport est basé sur un projet de recherche impliquant des anthropologues et des étudiants des universités de Zurich, Yaoundé et Douala. Comme dans beaucoup de pays africains, la migration internationale est devenue un souci majeur pour la majeure partie de la population camerounaise. Tandis que les pays occidentaux figurent toujours comme les destinations préférées, beaucoup de Camerounais se tournent vers des pays plus accessibles dans le Sud. Les destinations populaires sont les pays africains et l'Extrême et Proche Orient. Dans toutes ces stratégies de migration la famille joue un rôle crucial, tant dans la préparation du voyage qu'en ce qui concerne les relations d'échange transnationales. Pour les migrants musulmans, la religion peut être un facteur significatif influençant le choix de la destination en plus d'autres considérations, comme des motivations économiques et éducatives.

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