scholarly journals Barriers and Facilitators to Seeking Sleep Solutions for Children With Cerebral Palsy: A Qualitative Study

2021 ◽  
Vol 12 ◽  
Author(s):  
Sacha Petersen ◽  
Dinah S. Reddihough ◽  
Sally Lima ◽  
Adrienne Harvey ◽  
Fiona Newall
Keyword(s):  
Cerebral Palsy ◽  
Qualitative Study ◽  
Sleep Disturbance ◽  
Thematic Analysis ◽  
Sleep Problems ◽  
Qualitative Interviews ◽  
Barriers And Facilitators ◽  
School Aged Children ◽  
Published Evidence ◽  
Children With Cerebral Palsy

Background: Published evidence to date suggests that sleep problems are common in children with cerebral palsy (CP). This qualitative study is a follow up to a previously published quantitative phase on the experience and impact of sleep problems in this population.Aims: The aim of this study was to explore the experience and impact of sleep disturbance and seeking of sleep solutions for parents of school aged children with CP.Materials and Methods: Semi-structured 19 qualitative interviews were conducted with parents of children with CP aged 6–12 years. Interview data were transcribed verbatim and the thematic analysis techniques by Braun and Clarke was used to identify themes.Results: Thematic analysis identified 7 themes: (1) My Child Doesn't Fit into the Box, (2) A Mother's Ears are Always On, (3) Sleep Disturbance is like Water Torture, (4) Sleep is One of Many Spot Fires, I Put it on the Backburner, (5) Luck, Money or Jumping Up and Down, (6) There is Never One Silver Bullet and (7) Help: The Earlier the Better. The key finding was that parents of children with CP often described their child's needs being distinct from what is provided by systems and services.Conclusion: Parents face significant challenges sourcing effective sleep solutions for their child with CP. Sleep is often not a priority for either the parent or the clinician as other health problems take precedence. Parents reflected that early sleep intervention for their child was or would have been helpful. The barriers and facilitators to sleep care identified in this study should be used to inform clinical change in care for children with CP. Sleep needs to be prioritized in healthcare for children.

Prevalence of sleep problems and sleep-related characteristics in preschool- and school-aged children with cerebral palsy

2018 ◽  
Vol 50 ◽  
pp. 1-6 ◽  
Author(s):  
Linda Horwood ◽  
Elise Mok ◽  
Patricia Li ◽  
Maryam Oskoui ◽  
Michael Shevell ◽  
...  
Keyword(s):  
Cerebral Palsy ◽  
Sleep Problems ◽  
School Aged Children ◽  
Children With Cerebral Palsy

scholarly journals Use of symptom checkers for COVID-19-related symptoms among university students: a qualitative study

2021 ◽  
pp. bmjinnov-2020-000498
Author(s):  
Stephanie Aboueid ◽  
Samantha B Meyer ◽  
James R Wallace ◽  
Shreya Mahajan ◽  
Teeyaa Nur ◽  
...  
Keyword(s):  
Young Adults ◽  
Qualitative Study ◽  
Thematic Analysis ◽  
Health Professionals ◽  
Qualitative Interviews ◽  
Healthcare Services ◽  
Healthcare Systems ◽  
Positive Experience ◽  
Perceived Credibility ◽  
Inductive Thematic Analysis

ObjectiveSymptom checkers are potentially beneficial tools during pandemics. To increase the use of the platform, perspectives of end users must be gathered. Our objectives were to understand the perspectives and experiences of young adults related to the use of symptom checkers for assessing COVID-19-related symptoms and to identify areas for improvement.MethodsWe conducted semistructured qualitative interviews with 22 young adults (18–34 years of age) at a university in Ontario, Canada. Interviews were audio-recorded, transcribed, and analysed using inductive thematic analysis.ResultsWe identified six main themes related to the decision of using a symptom checker for COVID-19 symptoms: (1) presence of symptoms or a combination of symptoms, (2) knowledge about COVID-19 symptoms, (3) fear of seeking in-person healthcare services, (4) awareness about symptom checkers, (5) paranoia and (6) curiosity. Participants who used symptom checkers shared by governmental entities reported an overall positive experience. Individuals who used non-credible sources reported suboptimal experiences due to lack of perceived credibility. Five main areas for improvement were identified: (1) information about the creators of the platform, (2) explanation of symptoms, (3) personalised experience, (4) language options, and (5) option to get tested.ConclusionsThis study suggests an increased acceptance of symptom checkers due to the perceived risks of infection associated with seeking in-person healthcare services. Symptom checkers have the potential to reduce the burden on healthcare systems and health professionals, especially during pandemics; however, these platforms could be improved to increase use.

‘What if it were like this?’ Perception of mothers of children with cerebral palsy about the ankle‐foot orthosis of their children: A qualitative study

2020 ◽  
Author(s):  
Mariana Ribeiro Volpini Lana ◽  
Joana Pimenta Maia ◽  
Anderson Antônio Horta ◽  
Sérgio Teixeira da Fonseca ◽  
Marcella Guimarães Assis
Keyword(s):  
Cerebral Palsy ◽  
Qualitative Study ◽  
Ankle Foot Orthosis ◽  
Children With Cerebral Palsy ◽  
Foot Orthosis

scholarly journals Improving nutritional status of children with Cerebral palsy: a qualitative study of caregiver experiences and community-based training in Ghana

2018 ◽  
Vol 7 (1) ◽  
pp. 35-43 ◽  
Author(s):  
Claudia Mary Donkor ◽  
Jackie Lee ◽  
Natasha Lelijveld ◽  
Melanie Adams ◽  
Marjolein Meande Baltussen ◽  
...  
Keyword(s):  
Cerebral Palsy ◽  
Qualitative Study ◽  
Nutritional Status ◽  
Community Based ◽  
Children With Cerebral Palsy ◽  
Caregiver Experiences ◽  
Nutritional Status Of Children

scholarly journals MOTHERS CARING FOR CHILDREN LIVING WITH CEREBRAL PALSY: SUGGESTIONS FOR PSYCHO-SOCIAL SUPPORT

2021 ◽  
Vol 57 (3) ◽  
Author(s):  
Phumudzo Raphulu ◽  
Modjadji Linda Shirindi ◽  
Mankwane Daisy Makofane
Keyword(s):  
Social Support ◽  
Cerebral Palsy ◽  
Data Analysis ◽  
Qualitative Study ◽  
Social Workers ◽  
Health Professionals ◽  
Snowball Sampling ◽  
Structured Interviews ◽  
Children With Cerebral Palsy ◽  
Thematic Data

Caring for children with cerebral palsy presents numerous circumstances which may contribute to mothers’ inability to cope with the demands of meeting their children’s needs. A qualitative study supported by explorative, descriptive and contextual designs was undertaken. Purposive and snowball sampling facilitated the identification of twelve participants who were interviewed through semi-structured interviews. The enquiry was based on the ecosystems approach. Thematic data analysis was followed through Tesch’s eight steps and Guba’s model was used for data verification. The findings highlighted the necessity to enhance the psycho-social functioning of mothers through collaboration of social workers, health professionals and various organisations.

Health status of school-aged children with cerebral palsy: information from a population-based sample

2002 ◽  
Vol 44 (04) ◽  
pp. 240 ◽  
Author(s):  
Janneke Kennes ◽  
Peter Rosenbaum ◽  
Steven E Hanna ◽  
Stephen Walter ◽  
Dianne Russell ◽  
...  
Keyword(s):  
Cerebral Palsy ◽  
Health Status ◽  
Population Based ◽  
School Aged Children ◽  
Children With Cerebral Palsy
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