scholarly journals Pediatric Patients Treated for Leukemia Back to School: A Mixed-Method Analysis of Narratives about Daily Life and Illness Experience

2020 ◽  
Vol 10 (7) ◽  
pp. 107
Author(s):  
Marta Tremolada ◽  
Livia Taverna ◽  
Sabrina Bonichini ◽  
Marta Pillon ◽  
Alessandra Biffi ◽  
...  
Keyword(s):  
Children And Adolescents ◽  
Mixed Method ◽  
Daily Life ◽  
Return To School ◽  
Structured Interviews ◽  
Hematopoietic Stem ◽  
Daily Routines ◽  
Illness Experiences ◽  
Social Difficulties

In the last few years, more children and adolescents healed from leukemia go back to their daily life, even if they can show some psycho-social difficulties. The study adopted semi-structured interviews and a mixed-method approach to examine the narratives of 75 children and adolescents about their return to school post 2-years treatment for leukemia. The aims are to collect their illness experiences, to understand how they feel about school and daily routines and to identify the best socio-demographic and illness predictors of a good re-adaptation to school and daily life. The results show that by increasing age and when the pediatric patient have received a hematopoietic stem cell transplantation, at the stop-therapy time, her/his perception about relationships at school and academic performance decrease, especially if his/her feelings about the disease and follow-up visits are negative.

scholarly journals GESTATIONAL LOSS: EMOTIONAL AND LEGAL ASPECTS

2021 ◽  
pp. 6-19
Keyword(s):  
Return To Work ◽  
Daily Life ◽  
Legal Aspects ◽  
Structured Interviews ◽  
Daily Routines ◽  
Professional Activities ◽  
Unequal Treatment ◽  
Mourning Process

This study attempts to verify the conditions of mothers who have gone through gestational loss. It is designed according to semi-structured interviews of affected mothers. Through semi-structured recorded interviews, directed questions were asked to ascertain perceptions that they were living through at that moment, about their adaptation to daily life, and about their mourning process and the quality of their professional activities. From the interviews, eight categorizations were created: symptoms of mourning; the time to return to work and daily routines; lack of societal recognition of mourning; mourning and spirituality; seeking of healthcare support; the fathers’ pain; the need of someone; who is this baby? And the following feelings were documented from the interviews: feelings of losing control of one’s life; broken dreams; feelings of incompleteness, guilt, and personal defeat; feelings of inferiority as a woman; subjective losses; losses in identity and eroticism; a woman’s role in society. Lastly, the study examines how gestational loss is unrecognized and unsupported by legislation, exposing a weakness in workers’ rights and unequal treatment regarding gender.

Attending school after treatment for a brain tumor: Experiences of children and key figures

2017 ◽  
Vol 24 (10) ◽  
pp. 1436-1447 ◽  
Author(s):  
Stephanie Vanclooster ◽  
Johan Bilsen ◽  
Lieve Peremans ◽  
Jutte Van der Werff Ten Bosch ◽  
Geneviève Laureys ◽  
...  
Keyword(s):  
Brain Tumor ◽  
School Performance ◽  
Personal Development ◽  
Healthcare Providers ◽  
Well Being ◽  
Adverse Outcomes ◽  
Return To School ◽  
Structured Interviews ◽  
Close Collaboration

Reintegration into school is a milestone for childhood brain tumor survivors, as well as for their parents, teachers, and healthcare providers. We explored their experiences following the school re-entry by conducting semi-structured interviews. Thematic analysis resulted in four main themes: “school performance,” “psychosocial well-being,” “support and approach,” and “communication and collaboration.” Children were pleased to return to school despite confrontation with adverse outcomes. Parents, teachers, and healthcare providers identified current and future concerns and challenges, as well as opportunities for academic and personal development. Their experiences highlight the importance of coordinated and systematic follow-up in close collaboration with healthcare providers.

I am more than just a TA!

2011 ◽  
Vol 25 (4) ◽  
pp. 163-174 ◽  
Author(s):  
Mahmoud Emira
Keyword(s):  
Decision Making ◽  
Mixed Method ◽  
Teaching Assistants ◽  
Structured Interviews ◽  
Leadership And Management ◽  
Mixed Method Approach ◽  
Funded Research ◽  
Method Approach ◽  
Funded Research Project

This article is based on the findings of a funded research project. It examines the perspectives of teaching assistants (TAs) and higher-level teaching assistants (HLTAs) on their responsibilities and their views on leadership and management to see how they might have a role in leadership and management. The sample ( N = 58) was drawn from schools in the English Midlands. The research followed a sequential mixed method approach which involved a survey and follow-up semi-structured interviews respectively. No major differences were found between the views of TAs and HLTAs. They believed leadership is centred on the support they get from their workplace/colleagues and their engagement in decision-making. They have a preference for the collaborative form of leadership. Although the findings show how TAs and HLTAs perceive leadership and management, which might illuminate some ideas about engaging them in this process, schools have to decide how to meet their own needs.

scholarly journals Subclinical hypothyroidism in children and adolescents after hematopoietic stem cells transplantation without irradiation

2014 ◽  
Vol 71 (12) ◽  
pp. 1123-1127 ◽  
Author(s):  
Tatjana Milenkovic ◽  
Dragana Vujic ◽  
Rade Vukovic ◽  
Zeljko Zecevic ◽  
Ivan Soldatovic ◽  
...  
Keyword(s):  
Stem Cells ◽  
Hematopoietic Stem Cells ◽  
Children And Adolescents ◽  
Subclinical Hypothyroidism ◽  
Thyroid Dysfunction ◽  
Hematopoietic Stem ◽  
Stem Cells Transplantation ◽  
Hematopoietic Stem Cells Transplantation ◽  
Tsh Levels

Background/Aim. Although total body irradiation (TBI) was considered to be the primary cause of thyroid dysfunction following hematopoietic stem cells transplantation (HSCT), a significant prevalence of subclinical hypothyroidism after HSCT with chemotherapy-only conditioning regimens has been observed in several studies. The aim of this study was to assess changes in thyroid stimulating hormone (TSH) levels in children after HSCT, without the use of irradiation at any time in the course of the treatment. Methods. Our cohort consisted of 41 children and adolescents who underwent autologous or allogeneic HSCT and were available for follow-up for at least one year after transplantation. Irradiation was not performed in any of the subjects, neither during pretransplatation therapy, nor during conditioning. The median duration of follow-up was 2.9 years. The indications for HSCT were hematologic malignancy (41.5%), solid malignant tumor (34.1%), and other disorders (24.4%). The thyroid status of all the subjects was assessed prior to HSCT and after follow-up period. Results. Thyroid dysfunction after HSCT was present in 27 (65.8%) subjects. Subclinical hypothyroidism was the most common abnormality, presenting in 23 (56.1%) patients, primary hypothyroidism was present in one (2.4%) patient, while 3 (7.3%) subjects had low free T4 with normal TSH values. Significantly (p < 0.01) higher elevations in TSH levels were present in the patients who received chemotherapy for the underlying disease prior to HSCT. Conclusion. Our findings emphasize the need for long-term monitoring of thyroid function following HSCT, regardless of whether or not irradiation was used.

scholarly journals Children with congenital colorectal malformations during the UK Sars-CoV-2 pandemic lockdown: an assessment of telemedicine and impact on health

2021 ◽  
Author(s):  
E. Stathopoulos ◽  
C. Skerritt ◽  
G. Fitzpatrick ◽  
E. Hooker ◽  
A. Lander ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Children And Adolescents ◽  
Health Anxiety ◽  
Bowel Function ◽  
Bowel Dysfunction ◽  
Life Questionnaire ◽  
Structured Interviews ◽  
The Uk

Abstract Purpose This pilot study was designed to assess bowel function and quality of life (QoL) in children and adolescents with congenital colorectal malformations (CCM) during the first UK COVID lockdown period. Methods Changes in health were assessed through semi-structured interviews, gastrointestinal functional outcomes using Krickenbeck scoring and QoL by the modified disease-specific HAQL (Hirschsprung’s disease anorectal malformation quality of life questionnaire). The State-Trait Anxiety Inventory (STAI)™ for adults was used to assess parental anxiety. Results Thirty-two families were interviewed; 19 (59%) reported no change in their child’s health during the lockdown, 5 (16%) a deterioration and 8 (25%) an improvement. Neither the severity of the CCM, nor the degree of bowel dysfunction, correlated with any deterioration. The HAQL score was not correlated to a change in health. Anxiety scores ranged from no anxiety to clinical concerns. Telemedicine was well accepted by 28/32 parents (88%); however, in-person appointments were preferred if there were clinical concerns. Conclusion In the follow-up of children and adolescents with CCM during the first UK lockdown using telemedicine we found that over half had stable health conditions. Patients needing additional care could not be predicted by the severity of their disease or their bowel function alone.

Counseling Adolescents With Hearing Loss Using a Narrative Therapy Approach

2009 ◽  
Vol 19 (2) ◽  
pp. 72-78
Author(s):  
Rebecca L. Nelson Crowell ◽  
Julie Hanenburg ◽  
Amy Gilbertson
Keyword(s):  
Hearing Loss ◽  
Process Evaluation ◽  
Narrative Therapy ◽  
Daily Life ◽  
Hearing Aid ◽  
Self Esteem ◽  
Therapy Approach ◽  
Self Worth ◽  
Counseling Adolescents

Abstract Audiologists have a responsibility to counsel patients with auditory concerns on methods to manage the inherent challenges associated with hearing loss at every point in the process: evaluation, hearing aid fitting, and follow-up visits. Adolescents with hearing loss struggle with the typical developmental challenges along with communicative challenges that can erode one's self-esteem and self-worth. The feeling of “not being connected” to peers can result in feelings of isolation and depression. This article advocates the use of a Narrative Therapy approach to counseling adolescents with hearing loss. Adolescents with hearing loss often have problem-saturated narratives regarding various components of their daily life, friendships, amplification, academics, etc. Audiologists can work with adolescents with hearing loss to deconstruct the problem-saturated narratives and rebuild the narratives into a more empowering message. As the adolescent retells their positive narrative, they are likely to experience increased self-esteem and self-worth.

Concussion in sports in children and adolescents – to play or not to play?

2017 ◽  
Vol 65 (3) ◽  
Keyword(s):  
Gender Differences ◽  
Children And Adolescents ◽  
Return To Sport ◽  
Consensus Conference ◽  
Return To School ◽  
The Novel ◽  
International Consensus ◽  
Persistent Symptoms ◽  
New Findings

A lot has been published on the topic concussion in sports during the last years, conscience was sharpened, much was structured and defined more precisely, help tools were developed and rules changed. This article summarizes the fifth edition of the recently published guidelines of the “International Consensus Conference on Concussion in Sport”. In addition, new findings regarding gender differences and recovery will be presented, as well as the modified “return-to-sport” and the novel “return-to-school” protocols. Despite increased knowledge many questions remain such as the therapy of persistent symptoms or long-term sequelae of recurrent concussions.

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