scholarly journals Problems, Stressors and Needs of Children and Adolescents with Cancer

Children ◽  
2021 ◽  
Vol 8 (12) ◽  
pp. 1173
Author(s):  
Anna Lewandowska ◽  
Barbara Zych ◽  
Katalin Papp ◽  
Dana Zrubcová ◽  
Helena Kadučáková ◽  
...  

Background: Cancer diseases in children and adolescents are considered to be one of the most serious health problems in the world. It is estimated that about 151,435 cases are diagnosed in children annually. Children with cancer experience many comorbid symptoms related to diagnosis and treatment that can profoundly affect their lives. They experience physical and emotional suffering, which affects their well-being and physical fitness, influencing the prognosis and deteriorating their physical, mental and social functioning. Given the limited data, an attempt was made to assess the problems of the biopsychosocial sphere of need and stressors among children and adolescents treated for cancer. Accurate symptom assessment is essential to ensure high-quality care and effective treatment. Patients and Methods: The qualitative study was conducted in pediatric oncology of hospitals in Poland. Children diagnosed with cancer were invited to participate in the study to assess their problems, stressors and needs. Results: The study included 520 people, where female sex constituted 48% and male 52%. The mean age of the children is 13.2 SD = 2.5. Negative experiences related to the disease are experienced by 82% of children. Among the surveyed children, the most experienced were anxiety (61%). The conducted research shows that as many as 69% of all respondents experienced states that indicate severe depression. The most common somatic problems reported by children were pain (58%). The most dominant areas of life that had a negative impact was body image (85%). Conclusions: Children and adolescents diagnosed with neoplastic disease experience many problems and stressors in every sphere of life, which undoubtedly affects a high level of unmet needs. The main category of needs concerning the challenges faced by children with cancer was psychological and care problems. In the youth group, the needs were mainly related to education and social support.

Author(s):  
Ben Y. F. Fong ◽  
Martin C. S. Wong ◽  
Vincent T. S. Law ◽  
Man Fung Lo ◽  
Tommy K. C. Ng ◽  
...  

In Hong Kong, social distancing has been adopted in order to minimise the spread of COVID-19. This study aims to examine the changes in physical health, mental health, and social well-being experienced by local residents who were homebound during the pandemic. An online questionnaire in both Chinese and English versions was completed by 590 eligible participants from 24 April to 13 May 2020. The questionnaire found that individuals aged 18 to 25 years spent more time resting and relaxing but experienced more physical strain. Working status was associated with social contact, with participants working full-time jobs scoring higher in “maintaining social communication via electronic means” and “avoiding social activities outside the home”. Additionally, approximately one third of the participants (29.7%) had moderate to severe depression, and participants aged 18 to 25 were found to have higher scores in PHQ-9. Changes in physical health and social contact were significantly associated with developing depressive symptoms. From the results, it is clear that the COVID-19 pandemic has the potential to exert a negative impact on the mental health status of individuals.


2021 ◽  
pp. 135910532199080
Author(s):  
Y. H. Luo ◽  
W. H. C. Li ◽  
A. T. Cheung ◽  
L. L. K. Ho ◽  
W. Xia ◽  
...  

A child suffering from cancer can be considerably stressful for parents, exerting a negative impact on their psychological well-being and quality of life. This study explored the relationships between resilience and quality of life in parents of children with cancer. We recruited 146 parents of children with cancer in two tertiary hospitals in mainland China. The results revealed that greater parental resilience was associated with better quality of life. It is essential to develop interventions that can enhance resilience for parents of children with cancer, thereby improving their quality of life. ClinicalTrials.gov ID: NCT03631485


2010 ◽  
Vol 29 (1) ◽  
pp. 51-66 ◽  
Author(s):  
Karin Enskär ◽  
Elisabeth Hamrin ◽  
Marianne Carlsson ◽  
Louise von Essen

2020 ◽  
Vol 21 (1) ◽  
Author(s):  
Jasem Y. Al-Hashel ◽  
Ismail Ibrahim Ismail

Abstract Background Since the declaration COVID-19 as a pandemic, healthcare systems around the world have faced a huge challenge in managing patients with chronic diseases. Patients with migraine were specifically vulnerable to inadequate medical care. We aimed to investigate the “real-world” impact of COVID-19 pandemic on migraine patients, and to identify risk factors for poor outcome. Methods We administered an online, self-reported survey that included demographic, migraine-related, COVID-19-specific and overall psychosocial variables between July 15 and July 30, 2020. We recruited a sample of patients with migraine from headache clinic registry and via social media to complete an anonymous survey. Outcomes included demographic variables, change in migraine frequency and severity during the lockdown period, communication with treating physician, compliance to migraine treatment, difficulty in getting medications, medication overuse, symptoms of anxiety and/or depression, sleep and eating habits disturbance, screen time exposure, work during pandemic, use of traditional medicine, effect of Botox injection cancellation, and overall worries and concerns during pandemic. Results A total of 1018 patients completed the survey. Of the respondents, 859 (84.3%) were females; 733 (71.9%) were aged 20 to 40 years, 630 (61.8%) were married, and 466 (45.7%) reported working during the pandemic. In comparison to pre-pandemic period, 607 respondents (59.6%) reported increase in migraine frequency, 163 (16%) reported decrease in frequency, and 105 (10.3%) transformed to chronic migraine. Severity was reported to increase by 653 (64.1%) respondents. The majority of respondents; 626 (61.5%) did not communicate with their neurologists, 477 (46.9%) reported compliance to treatment, and 597 (58.7%) reported overuse of analgesics. Botox injections cancellation had a negative impact on 150 respondents (66.1%) from those receiving it. Forty-one respondents (4%) were infected with COVID-19; 26 (63.4%) reported worsening of their headaches amid infection period. Sleep disturbance was reported by 794 (78.1%) of respondents, and 809 (79.5%) reported having symptoms of anxiety and/or depression. Conclusions and relevance COVID-19 pandemic had an overall negative impact on patients with migraine. Several risk factors for poor outcome were identified. Long-term strategies should be validated and implemented to deliver quality care for patients with migraine, with emphasis on psychosocial well-being.


2021 ◽  
Vol 42 (6) ◽  
pp. 111-120
Author(s):  
F. O. Semenova ◽  
◽  
D. Kitova ◽  
O. V. Runets ◽  
◽  
...  

The article notes that the current spread of coronavirus infection creates difficult conditions for the life of society, having a negative impact on many social spheres. It is shown that the labor crisis caused by the COVID-19 pandemic can increase global unemployment, and as a result, have a negative impact on the development of the economy as a whole, which increases the relevance of the research problem. The authors analyzed publications devoted to studies of unemployment in various branches of science, which made it possible to identify different social levels of its negative impact (global, national and regional). A separate group includes works on the socio-psychological problems of unemployment. It was revealed that the socio-economic or personal characteristics of the experience of unemployment in the context of the coronavirus pandemic have not yet become a significant subject of fundamental research. In particular, the scientific literature does not present facts that reflect the structure of user experiences. Analysis of messages from forums of the unemployed and from social networks allowed the authors to state a high level of reasoning related to unemployment as a social phenomenon, genuine regret about the high level of education of many of them and painful feelings about the low standard of living. Frequency and semantic analysis of messages also made it possible to demonstrate ideas about the factors causing unemployment, which are most often associated with the conditions of the social environment. The analysis of the emotional background of the messages carried out in the work showed the absence of neutral or positive assessments of unemployment (all assessments are negative). High emotional tension in assessing unemployment and its consequences indicates a pronounced decrease in the psychological well-being of users, which becomes the basis for negative judgments, including political content. In conclusion, it is noted that the study of “digital traces” seems to be a very promising direction in the study of macropsychological processes.


2021 ◽  
Vol 9 ◽  
Author(s):  
Sara Ajanovic ◽  
Jon Garrido-Aguirre ◽  
Bàrbara Baro ◽  
Núria Balanza ◽  
Rosauro Varo ◽  
...  

Background: During the COVID-19 pandemic, lockdown strategies have been widely used to contain SARS-CoV-2 virus spread. Children and adolescents are especially vulnerable to suffering psychological effects as result of such measures. In Spain, children were enforced to a strict home lockdown for 42 days during the first wave. Here, we studied the effects of lockdown in children and adolescents through an online questionnaire.Methods: A cross-sectional study was conducted in Spain using an open online survey from July (after the lockdown resulting from the first pandemic wave) to November 2020 (second wave). We included families with children under 16 years-old living in Spain. Parents answered a survey regarding the lockdown effects on their children and were instructed to invite their children from 7 to 16 years-old (mandatory scholar age in Spain) to respond a specific set of questions. Answers were collected through an application programming interface system, and data analysis was performed using R.Results: We included 1,957 families who completed the questionnaires, covering a total of 3,347 children. The specific children's questionnaire was completed by 167 kids (7–11 years-old), and 100 adolescents (12–16 years-old). Children, in general, showed high resilience and capability to adapt to new situations. Sleeping problems were reported in more than half of the children (54%) and adolescents (59%), and these were strongly associated with less time doing sports and spending more than 5 h per day using electronic devices. Parents perceived their children to gain weight (41%), be more irritable and anxious (63%) and sadder (46%). Parents and children differed significantly when evaluating children's sleeping disturbances.Conclusions: Enforced lockdown measures and isolation can have a negative impact on children and adolescent's mental health and well-being. In future waves of the current pandemic, or in the light of potential epidemics of new emerging infections, lockdown measures targeting children, and adolescents should be reconsidered taking into account their infectiousness potential and their age-specific needs, especially to facilitate physical activity and to limit time spent on electronic devices.


2022 ◽  
Author(s):  
Viviane Richard ◽  
Roxane Dumont ◽  
Elsa Lorthe ◽  
Helene Baysson ◽  
Maria-Eugenia Zaballa ◽  
...  

Background Various studies showed the negative impact of COVID-19-related lockdowns and school closures on the well-being of children and adolescents. However, the prevalence and consequences of occasional short-term school disruptions due to COVID-19-related quarantine or isolation remain unknown. This study evaluated their impact on the well-being and stress level of children and adolescents. Methods In June/July 2021, we conducted a survey selecting a representative sample of children and adolescents of a Swiss canton population. Parents of school-aged children reported information about them missing school because of COVID-19, from August 2020 to June 2021, as well as about their health-related quality of life (HRQoL) measured with the KINDL® scale and their stress level. Results Among the 538 participants, 216/538 (40.1%) pupils missed school at least once for COVID-19-related causes, with a total of 272 absences. We observed no relationship between the frequency of COVID-19-related absences and the HRQoL or stress level, even when stratifying by the type of absence or socio-demographic factors. Discussion Overall, these findings are reassuring in that quarantines and related school disruptions, which we know are a common and effective way of controlling SARS-CoV-2 transmission, did not seem to meaningfully impact children and adolescent's wellbeing and stress. Finding the right balance between SARS-CoV-2 control and young populations' well-being is challenging, and the current results provide additional information for decision makers.


2018 ◽  
Vol 11 ◽  
pp. 29-37
Author(s):  
Purva G. Sharma ◽  
Gopal Krishna Sharma

Unlike past, preteens and teens today lead a mentally and emotionally charged life along with the exacting physical rigors of their daily life. Apart from sports, academics, parents and peers the mentioned age group is also spending a considerable amount of time in the virtual, digital world of social media connectivity along with its various appendages. Unregulated social media exposure often makes life a tightrope existence for these children and adolescents. Studies have shown that the increasing use of social media and technology is having a negative impact on the physical and mental health of children and teenagers by making them more prone to anxiety, depression, and other psychological disorders, as well as by making them more susceptible to future health problems. In this light of increased stress and health problems with growing social media usage, this paper reviews studies and proposes yoga as a mind-body alternative medicine intervention to improve physical and mental health conditions. It also highlights the efficacy of yoga as a complementary therapy enhancing overall wellbeing of children. After reviewing relevant available literature, we conclude that Yoga has the potential to be a promising complementary therapy for children and adolescents but more efforts are required to find most effective application and implementation methods for the same.


Author(s):  
Susan Kay-Flowers

This chapter describes childhood experiences of parental conflict and examines how this impacted on their accommodation of parental separation. Using respondents’ accounts, it describes the negative impact of parental conflict on children’s social and emotional well being. In some cases, where domestic violence was present this included ‘feeling frightened’. When conflict ended following parental separation, the feeling of relief was universal and children showed a high level of accommodation. Their experiences were in marked contrast to those who continued to experience their parents’ conflict who described the distress it caused them and showed a low level of accommodation. The positive role of family support in enabling children to adjust was highlighted in some accounts.


2021 ◽  
Vol 21 (1) ◽  
pp. 84-96
Author(s):  
A. V. Kuchenkova

Employment conditions (form of labor relations, social security, (un)stability of wages, informal payments, etc.) are a key factor of the social-economic differentiation in the contemporary Russian society, which determines the need to clarify the relationship between the workers position in the labor market and ones earnings. There are many empirical assessments of wage losses for various types of non-standard employment (informal, temporary, part-time, casual, etc.); however, each type is just one manifestation of precarization (as non-guaranteed and unstable employment), which does not present this phenomenon in general. The author considers the relationship between precarization and wages. Based on the data of the all-Russian survey of the working population (2018), the author argues that not all but some features of precarization (lack of indefinite term employment agreement, sick leave and vacation pay) are associated with a lower salary; only a high level of precarization (three or more its features together) significantly reduces wages. Despite the fact that this relationship is partly mediated by the level of education of the employee, precarization still has an independent negative impact on wages. Groups of workers with a high and low level of precarization are heterogeneous in wages which can compensate for the disadvantages of the unstable and non-guaranteed employment situation. Thus, workers can be divided into four groups according to their employment precarization and salaries, which determine their social well-being. The unstable group with wages below average shows the lowest level of subjective well-being and social optimism both in life in general and in assessing the labor sphere. The unstable group with wages above the average declares a lower level of social well-being than the stable group with wages below the average, i.e., higher wages do not compensate for the negative consequences of precarious employment which worsens social well-being even provided wages above the average.


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