scholarly journals Chronic Spontaneous Urticaria and Type 1 Diabetes Mellitus—Does Quality of Life Impairment Always Reflect Health Danger?

2020 ◽  
Vol 9 (8) ◽  
pp. 2505
Author(s):  
Zenon Brzoza ◽  
Katarzyna Nabrdalik ◽  
Lukasz Moos ◽  
Hanna Kwiendacz ◽  
Karina Badura-Brzoza ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Diabetes Mellitus ◽  
Social Functioning ◽  
Short Form ◽  
Well Being ◽  
Chronic Spontaneous Urticaria ◽  
The Mean ◽  
Being There

Background and aims: Chronic spontaneous urticaria (CSU) and diabetes mellitus type 1 (T1DM) may compromise the quality of life (QoL). We decided to compare the QoL of T1DM patients to those suffering from CSU. Materials and methods: Sixty-six patients with well-controlled T1DM (male 52%) in the mean age of (SD) 36.3 (11.09) years and 51 patients with CSU (male 33%) in the mean age of (SD) 35.8 (8.53) years were enrolled in this observational study. All the participants completed a Short-Form 36 (SF-36) QoL. Results: The QoL related to social functioning was significantly worse among CSU patients. There were differences related to gender found in the group of patients with T1DM—where men tended to declare a better quality of life than women (p = 0.015)—especially in the area of energy/fatigue and pain. It appeared that due to physical and emotional problems occurring in married patients, the QoL is lower in T1DM group in comparison to the CSU one. Conclusions: The patients with CSU presented significantly worse social functioning compared to the ones with T1DM. This fact proves the QoL impairment level is not always related to the level of health danger. The differences in the QoL related to gender and marital status found among T1DM patients point to the necessity for further exploration in a larger group of patients. Due to the fact that optimal disease management should ensure patient’s good emotional well-being, there is a need for additional psychological and social care for patients from those two groups.

The influence of a program of structured diabetes education on the glycemic control and quality of life during transition of the patients with type 1 diabetes mellitus to insulin pump therapy with continuous real-time monitoring blood glucose leve

2014 ◽  
Vol 60 (1) ◽  
pp. 39-45
Author(s):  
L I Ibragimova ◽  
Yu I Philippov ◽  
A Yu Mayorov
Keyword(s):  
Quality Of Life ◽  
Diabetes Mellitus ◽  
Type 1 Diabetes ◽  
Glycemic Control ◽  
Type 1 Diabetes Mellitus ◽  
Diabetes Education ◽  
Well Being ◽  
Control Group

Aim of the study. To estimate the effectiveness of the new program of structured diabetes education for the groups of the patients with type 1 diabetes mellitus (DM1) during their transition to sensor-augmented pump (SAP) therapy in terms of improvement of the glycemic control and quality of life (QL). Material and methods. The study included 35 patients presenting with DM1: 14 men, mean age 26.5 years (24; 36). The patients were divided into two groups. Those in the study group received a structured diabetes education (n=19), those in the control group were given conventional education (n=16). The patients of group 1 were transferred to SAP therapy in the framework of group education based on the specialized structured program. The education of control patients was carried out on an individual basis in the previous period at the places of residence. Quality of life and emotional well-being were estimated with the use of the validated Russian versions of the SF-36, ADDQoL, and WB-Q12 questionnaires. The effectiveness of glycemic control and QL were evaluated within 4 months after the completion of education and transition to SAP. Results. The patients of both groups were not initially different in the HbA1c level: 8.1 (8.0; 9.2) versus 8.8 (7.7; 9.0) (p>0.05). The HbA1c level: decreased in the two groups within 4 months after the initiation of SAP therapy: 7.3 (6.3; 7.8) versus 8.0 (6.3; 8.5) (p>0.05). The decrease was more pronounced in the group of the patients who received the structured diabetes education than in the control group (p=0.036). The patients transferred to SAP in the framework of the structured education program tended to have higher indices of QL and emotional well-being than the patients given the standard education. Conclusion. The use of the specialized structured program for the education for the groups of the patients with type 1 diabetes mellitus during transition to SAP therapy results not only in a more pronounced improvement of glycemic control indices but also in the positive changes of certain QL characteristics.

scholarly journals Illness Perception and Quality of Life in Type 2 Diabetes Mellitus Patients in Lampung, Indonesia

2018 ◽  
Vol 10 (7) ◽  
pp. 136
Author(s):  
Hasanul K. Al-Kayyis ◽  
Dyah A. Perwitasari
Keyword(s):  
Quality Of Life ◽  
Diabetes Mellitus ◽  
Type 2 Diabetes ◽  
Type 2 Diabetes Mellitus ◽  
Short Form ◽  
Illness Perception ◽  
Well Being ◽  
Sf 36

AIMS: The aim of this study was to determine the correlation between illness perception and QoL in Type 2 Diabetes Mellitus (T2DM) patients.MATERIAL & METHODS: We used cross-sectional design. The subjects were recruited from the Pringsewu Government Hospital in Lampung, Indonesia, and underwent T2DM treatment from May-July 2016. The subjects have met the inclusion and exclusion criteria. The inclusion criteria were patients age 15-65 with a diagnosis of T2DM with complications for more than 3 months prior and who consented to participate in the study. Participants used the self-reported questionnaire BIPQ (Brief Illness Perception Questionnaire) to measure illness perception and the SF-36 (Short Form-36) questionnaire to measure QoL. Statistical analysis used in this study were Pearson correlation and multivariate linear regression to test between illness perception and quality of life (QoL) domains. The correlation between variable were statistically significant if p value < 0.05.RESULTS: The domain of treatment management had the highest score among all BIPQ domains (mean: 8.55; SD: 1.99). Emotional well-being had the highest scores among the SF-36 domains (mean: 72.69; SD: 17.33). The energy domain in QoL was significantly predicted by consequence, personal management, and identity in the BIPQ illness perception components (p <0.0001). Moreover, the role limitation component was significantly predicted by emotional response, coherence and random blood glucose levels (p <0.0001).CONCLUSIONS: This study significantly showed weak positive correlations between illness perception and QoL in T2DM patients. An education strategy aimed at changing these negative emotional responses to improve patients’ role limitations due to emotional function should be considered.

scholarly journals Attitudes in patients with diabetes mellitus type 1 and type 2

2012 ◽  
Vol 15 (4) ◽  
pp. 51-58 ◽  
Author(s):  
Oleg Gennad'evich Motovilin ◽  
Olga Vital'evna Lunyakina ◽  
Elena Viktorovna Surkova ◽  
Yulia Andreevna Shishkova ◽  
Olga Georgievna Mel'nikova ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Diabetes Mellitus ◽  
Short Form ◽  
Depression Scale ◽  
Female Ratio ◽  
Emotional Acceptance ◽  
Sf 36

Aims. To compare disease attitudes in patients with type 1 and type 2 diabetes mellitus (T1DM and T2DM) and to evaluate relationship between attitudes and psychological welfare of these groups. Materials and Methods. We examined 140 patients with T1DM and 70 patients with T2DM on insulin therapy (mean age 22.6?3.2 and 60.1?7.8 years; male/female ratio 47/93 and 15/55; duration of diabetes 12.1?5.7 and 11.4?6.5 years, HbA1c 9.3?2.2 и 9.0?1.4%, respectively). Psychological parameters were assessed by following methods: Bekhterev Disease Attitude Typing (DAT), Colour Attitude Test (CAT), SF-36 (36-Item Short Form Health Survey), Spielberger Anxiety Inventory (SAI), CES-D Depression Scale, Dembo-Rubinstein (DR) technique for self-esteem assessment. Results. DAT showed increased sensitive attitude to their disease in patients with T1 and T2DM, being significantly higher in T2DM. According to CAT, T2DM patients perceive DM as a disease, associated with severe manifestations and complications, while T1DM patients tend to incorporate the notion of diabetes with lifestyle. Cluster analysis showed negative disease attitude to be associated independently of diabetes type with decrease in quality of life and emotional deterioration (higher anxiety and depression score, as measured by SF-36, SAI and CES-D). Conclusion. Disease attitude typing and correction is important in management of DM. Emotional acceptance allows improvement in quality of life and promotes psychological welfare. Also, despite the absence of direct relationship between HbA1c and disease attitudes (which, is plausibly non-linear), emotional acceptance may favour glycemic compensation due to increase in compliance.

scholarly journals The Influence of Family Factors on the Quality of Life of Children With Diabetes Mellitus Type 1 in West Java, Indonesia: A Cross-Sectional Analytic Study

2019 ◽  
Vol 11 (10) ◽  
pp. 34
Author(s):  
Hotma Rumahorbo ◽  
Atin Karjatin
Keyword(s):  
Quality Of Life ◽  
Diabetes Mellitus ◽  
Multivariate Analysis ◽  
Family Conflict ◽  
Cross Sectional ◽  
Number Of Children ◽  
The Family ◽  
The Mean

BACKGROUND: Diabetes is a chronic disease that has a negative impact on the quality of life of children. Family should be a support system to help optimize the quality of life of children with type 1 diabetes mellitus (T1DM). PURPOSE: The study aims to analyze the influence of family conflict, number of children in the family, and depression in children on the quality of life of children with T1DM. METHOD: The study employed a cross-sectional analytic design with a sample of 51 T1DM children with inclusion criteria being aged 4&ndash;18 years and currently undergoing outpatient care at the hospital. The measurement of quality of life used the KINDLR instrument, which consists of versions for children and parents. Depression was measured using the Children&#39;s Depression Inventory and diabetes-specific family conflict using the Revised Diabetes Family Conflict Scale. Multivariate analysis with multiple linear regression was performed to obtain a prediction model for the quality of life of children with T1DM. RESULTS: The mean total scores of the quality of life for the children&rsquo;s and parents&rsquo;versionswere76.39 &plusmn; 13.27 and 78.64 &plusmn; 9.38, respectively. The mean score of diabetes-specific family conflictwas31.03 &plusmn; 9.28 with a min-max score of 19&ndash;50. Quality of life of children was not different between male and female (p = &gt; .05). As many as 40% of the children experienced depression with ameanscoreof 8.28 &plusmn; 5.02. The quality of life of children for the parent-rated version had a positive correlation with the quality of life of children with r = .463 at p= .002. Depression was negatively correlated with the quality of life of children with r = -.287 at p =.025. Multivariate analysis shows interactionsbetweenfamily conflict and number of children in the family (p = .017) and depression (p = .050), both as the main factors affecting the quality of life of children. CONCLUSIONS/IMPLICATIONS FOR PRACTICE: Family conflict and the number of children in the family and depression in children were predictors of quality of life in children with T1DM. The results of the study have implications for the importance of nursing interventions in improving the ability of families of children with T1DM in handling diabetes-specific family conflict and efforts to prevent depression in children so that children can have better quality of life.

scholarly journals AB0638 THE EFFECT OF VITAMIN D ON QUALITY OF LIFE AND SEVERITY OF PAIN IN PATIENTS WITH ANKYLOSING SPONDYLITE

2020 ◽  
Vol 79 (Suppl 1) ◽  
pp. 1614.3-1614
Author(s):  
E. Komarova ◽  
I. Blaginina ◽  
N. Bludova ◽  
P. Bakhtoyarov ◽  
I. Pokryshka
Keyword(s):  
Quality Of Life ◽  
Vitamin D ◽  
Disease Activity ◽  
Social Functioning ◽  
Psychological Health ◽  
Morning Stiffness ◽  
Short Form ◽  
Well Being ◽  
Sf 36

Background:The high incidence of ankylosing spondylite (AS) in people of working age, as well as the negative impact of the disease on the quality of life of patients, determine the need for adjuvants to reduce the severity of pain and thereby achieve the physical, psychological and emotional well-being of patients.Objectives:To study the effect of vitamin D (colecalciferol) on the quality of life and the severity of pain in patients with ankylosing spondylite.Methods:The study included 69 patients with AS, who studied the quality of life indicators according to the Medical Outcomes Study Short Form (SF-36); pain syndrome and stiffness in the spine were assessed by a visual analogue scale by patients, and by a physician - by counting the number of painful joints (NPJ), the disease activity index (BASDAI) and the Functional Index (BASFI). All patients were receiving a basic therapy in a stable dose for at least 10 months. They were divided into 2 groups, comparable in age, disease activity; Group 1 (n = 33) additionally received colecalciferol 1500 МЕ during 6 months of observation.Results:At the end of the observation period when evaluating data on SF-36: in the 1st group, the physical health component has improved - the increase in physical functioning (PF) and bodily pain (BP) by 51.4% and 37.8% from the baseline; vital activity, psychological health, and social functioning due to emotional state have also increased by 37.6%, 33.4% and 42.5%, respectively. In the 2nd group above mentioned parameters have not changed. In the 1st group the indexes of BASDAI and BASFI have decreased by 16% and 22% (p = 0.0079, p = 0.0022, respectively), and their dynamics in the 2nd group were less significant (p = 0.013, p = 0.017, respectively) Also, in patients of the 1st group have decreased the severity of morning stiffness and the pain in the spine a highly reliable (p < 0.001), and in the 2nd group they were less significant (p = 0.043, p = 0.016, respectively). Positive dynamics of NPJ in the 1st group was more significant (p = 0.003) than it was in the 2nd group (p = 0.033).Conclusion:In the group of patients treated with colecalciferol was noted improvement in indicators of quality of life (the parameters of the physical component of health, vitality and social functioning) and also more significant decrease of the intensity of pain and of morning stiffness duration, of NPJ, than in not received to colecalciferol patients. Inclusion of vitamin D in the comprehensive AS therapy promotes not only reduction the severity of the chronic pain manifestations, but also improves the quality of life of patients with this pathology.Disclosure of Interests:None declared

Quality of life of patients with Sjogren’s disease with ongoing therapy with diseasemodifying antirheumatic drugs

2020 ◽  
pp. 33-38
Author(s):  
E. Yu. Gan ◽  
L. P. Evstigneeva
Keyword(s):  
Quality Of Life ◽  
Short Form ◽  
Life Quality ◽  
Well Being ◽  
Disease Modifying Antirheumatic Drugs ◽  
Antirheumatic Drugs ◽  
Sf 36 ◽  
Disease Modifying ◽  
Sjögren’S Disease

Purpose of the study. Assessing the association between the life quality of patients with Sjogren’s Disease and ongoing therapy with various disease-modifying antirheumatic drugs.Material and methods. The study was conducted on the basis of the regional rheumatology center of the consultative diagnostic clinic of the Sverdlovsk Regional Clinical Hospital No. 1. This work is based on the results of a simultaneous study of 74 patients with primary Sjogren’s Disease (SD), distributed in three comparison groups receiving various disease-modifying antirheumatic drugs chlorambucil, methotrexate and hydroxychloroquine. The diagnosis of SD was carried out according to European-American criteria AECGC (2002) [18]. In order to analyze the quality of life of patients with SD, the 36-Item Short Form Health Survey (SF‑36) was used. Statistical data processing was carried out using Statistica 7.0 program.Results. Assessment of the quality of life of patients with SD, which is an integrative criterion of human health and well-being, revealed the absence of statistically significant differences (p > 0.05) on eight scales and two health components of the SF‑36 questionnaire in the analyzed groups that differ in the treatment of disease-modifying antirheumatic drugs chlorambucil, methotrexate and hydroxychloroquine.Conclusions. The obtained data indicate an equivalent quality of life in SD patients treated with different disease-modifying antirheumatic drugs methotrexate, chlorambucil and hydroxychloroquine, and therefore hydroxychloroquine can be considered as an alternative basic therapy in patients with SD with certain limitations and contraindications methotrexate and chlorambucil.

scholarly journals Comparison of the Quality of Life of Patients with Breast or Colon Cancer with an Arm Vein Port (TIVAD) Versus a Peripherally Inserted Central Catheter (PICC)

2021 ◽  
Vol 28 (2) ◽  
pp. 1495-1506
Author(s):  
Brent Burbridge ◽  
Hyun Lim ◽  
Lynn Dwernychuk ◽  
Ha Le ◽  
Tehmina Asif ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cancer Patients ◽  
Well Being ◽  
Venous Access ◽  
Peripherally Inserted Central Catheter ◽  
Central Catheter ◽  
Access Device ◽  
The Mean ◽  
Venous Access Device

Introduction: Venous access is a crucial element in chemotherapy delivery. It remains unclear whether cancer patients prefer a port to a peripherally inserted central catheter (PICC). Our study aimed to assess cancer patients’ satisfaction with their venous access device and to compare the quality of life (QoL) of subjects with a PICC to those with a port. Methods: In this prospective cohort study, EORTC QLQ-C30, and a locally developed quality of life survey (QLAVD), designed to assess satisfaction with venous access devices, were administered to breast or colorectal cancer patients over a one-year period following the device insertion. Mixed effects models were used to assess changes on mean scores at different time points. Results: A total of 101 patients were recruited over a three-year period, (PICC group, n = 50; port group, n = 51). Survey response rates for months one and three were 72% and 48%, respectively. Overall, no significant differences were noted between the two groups in relation to EORTC QOL. At three months, the mean pain scores were 3.5 ± 2.3 for the port and 1.3 ± 0.75 for PICC (<0.001). The mean score for a negative effect of the venous access device on psychosocial well-being was 6.0 ± 4.1 for PICC and 3.0 ± 2.7 for the port (p = 0.005). Complications related to PICCs occurred in 38% patients versus 41% with a port (p > 0.24). Conclusions: Although subjects with a port experienced more pain during the device insertion or access for chemotherapy, it had a smaller negative impact on psychosocial scores than the PICC. No significant differences in complications rates were observed between the two devices.

scholarly journals Epilepsy and quality of life in Iranian epileptic patients

2021 ◽  
Vol 5 (1) ◽  
Author(s):  
Bahareh Honari ◽  
Seyed Mehran Homam ◽  
Maryam Nabipour ◽  
Zahra Mostafavian ◽  
Arezou Farajpour ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Negative Relationship ◽  
Well Being ◽  
Subscale Score ◽  
Social Consequences ◽  
Contributing Factors ◽  
Epileptic Patients ◽  
The Mean ◽  
Spss Software

Abstract Background Epilepsy is one of the most common neurological disorders with physical, emotional, and social consequences. Previous studies indicate that epilepsy symptoms can highly affect the epileptic patients’ satisfaction in life. The aim of the present study is to investigate the QOL of People with Epilepsy (PWE) in Khorasan Razavi province, Iran. Methods In this study, 100 patients were randomly selected. After confirmation of the diagnosis of epilepsy by neurologists and fulfilling the entrance criteria, patients completed the Quality of Life in Epilepsy-31 inventory (QOLIE-31) questionnaire. Finally, data was analyzed statistically by SPSS software. Results The study sample comprised 100 PWE, aged 18–74 years (34 ± 13), of whom 58 (58%) were females. Tonic-colonic seizure was the most common (60%) type of seizure. The obtained score of each subscale and the range of the QOLIE-31 total score was 16.40–79.18 with the mean of 50 (SD = 16). The energy-fatigue subscale score was significantly higher in patients younger than 35 (p = 0.018). The data analysis showed that the seizure worry subscale was significantly higher in single patients (p = 0.04). Duration of epilepsy had a positive correlation with QOLIE-31 total score (p = 0.038), and a negative relationship with energy-fatigue subscale (p = 0.018). In contrast with previous studies, which reported the frequency of the epileptic episodes as the most important predictor of QOL, our results showed no significant correlation between the number of the episodes and overall QOL score (p = 0.063). However, the number of episodes was significantly correlated with emotional well-being and cognition subscales. Furthermore, the results indicated that poor QOL score is correlated with depressed mood. Conclusion In fact, the ultimate and preferred outcome of all treatments and care interventions is the patient’s QOL. Thus, improvement of the QOL by means of obtaining more information about its contributing factors, in PWE should be one of the main goals in the patients’ treatment.

Psychosocial well-being and quality of life in siblings of children with congenital heart disease: A systematic review

2021 ◽  
pp. 136749352110129
Author(s):  
Alice S Schamong ◽  
Hannah Liebermann-Jordanidis ◽  
Konrad Brockmeier ◽  
Elisabeth Sticker ◽  
Elke Kalbe
Keyword(s):  
Quality Of Life ◽  
Cystic Fibrosis ◽  
Congenital Heart Disease ◽  
Heart Disease ◽  
Associated Factors ◽  
Congenital Heart ◽  
Negative Impact ◽  
Well Being

Congenital heart disease (CHD) is a major global health problem. Until recently, the siblings of this group did not receive much attention. This review, conducted from November 2019 to October 2020, aims to summarize knowledge about psychosocial well-being and quality of life (QoL), associated factors, and interventions for siblings of children with CHD. Systematic searches were conducted in PubMed, PsycINFO, PsycARTICLES, Web of Science via EBSCOhost, and CENTRAL. Twelve articles were included. Results showed that psychosocial well-being was impaired in 14% to 40% of siblings. Negative impact of illness was highest for CHD siblings compared to siblings of children with cancer, cystic fibrosis, or diabetes. QoL was impaired in up to one-third. Siblings of children with CHD and cancer rated their QoL lower than those of siblings of children with cystic fibrosis or type-1 diabetes. Associated factors were sibling age, gender, socioeconomic status, miscarriage, previous sibling death, visibility of illness, and severity of condition. Only one of two interventions focused on siblings of CHD children. Although data are scarce and inhomogeneous, it indicates that siblings of CHD children suffer from lower psychosocial well-being and QoL than siblings of children with other chronic conditions. Interventions to improve their situation should be developed.

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