scholarly journals Barriers to the provision of optimal care to dying patients in hospital: a cross-sectional study of nurses’ perceptions

2021 ◽  
Vol 38 (3) ◽  
Author(s):  
Jan Shepherd ◽  
Amy Waller ◽  
Rob Sanson-Fisher ◽  
Katherine Clark ◽  
Jean Ball
2021 ◽  
Vol 16 (1) ◽  
Author(s):  
Mercedes Guilabert ◽  
Alba Martínez-García ◽  
Marina Sala-González ◽  
Olga Solas ◽  
José Joaquín Mira

Abstract Objective To measure the experience of the person having a rare disease in order to identify objectives for optimal care in the health care received by these patients. Methods. A cross-sectional study was conducted in Spain involving patients associated with the Spanish Rare Diseases Federation [Federación Española de Enfermedades Raras] (FEDER). A modified version of the PREM IEXPAC [Instrumento para evaluar la Experiencia del Paciente Crónico] instrument was used (IEXPAC-rare-diseases). Scores ranged between 0 (worst experience) and 10 (best experience). Results A total of 261 caregivers (in the case of paediatric population) and patients with rare diseases (response rate 54.4%) replied. 232 (88.9%) were adult patients and 29 (11.1%) caregivers of minor patients. Most males, 227 (87%), with an average age of 38 (SD 13.6) years. The mean time since confirmation of diagnosis was 7.8 (SD 8.0) years. The score in this PREM was 3.5 points out to 10 (95%CI 3.2–3.8, SD 2.0). Caregivers of paediatric patients scored higher, except for coordination of social and healthcare services. Conclusions There are wide and important areas for improvement in the care of patients with rare diseases. This study involves a first assesment of the experience of patients with rare diseases in Spain.


Author(s):  
Edris Kakemam ◽  
Ahmed Hassan Albelbeisi ◽  
Samane Davoodabadi ◽  
Mina Azarmi ◽  
Fatemeh Zolghadr ◽  
...  

2020 ◽  
Author(s):  
Naval Heydari ◽  
Mahya Torkaman ◽  
Camellia Torabizadeh

Abstract Background and purpose: Caring is a central concept in nursing. It is essential that nurses adhere to ethics toward improving the quality of their performance as nurses. This study aims to explore the relationship between nurses' perceptions of caring behaviors and of nursing professional ethics.Methods: 210 nurses from hospitals in Shiraz, Iran, participated in this cross-sectional study. The participants were selected via stratified random sampling. The data collection tool consisted of demographics, Watson's caring dimensions inventory, and Petty's work ethics scale. The collected data were analyzed in SPSS v. 25 using descriptive and analytical statistics.Results: There was not a statistically significant relationship between the nurses' demographics on the one hand and their perceptions of caring behaviors or of nursing professional ethics on the other. The mean of the participants' perception of caring behaviors scores was 142.49±10.71 and the mean of their professional ethics scores was 102.21±5.32. A significant positive correlation was found to exist between the two variables under study (P<0.001, r=0.46).Conclusion: There is a positive correlation between nurses' perceptions of caring behaviors and of professional ethics. This finding can be used by nursing administrators and policy-makers to design interventions to improve the quality of nursing care.


2021 ◽  
pp. 003022282110048
Author(s):  
Senay Karadag Arli

The study aims to investigate the relationship between nurses’ attitudes towards caring for dying patients and compassion levels. This cross-sectional study was conducted with the volunteer participation of 130 nurses working in various clinics in a hospital located in eastern Turkey between March and June 2019. Data were collected through the Socio-demographic Form, the Frommelt Attitude toward Care of Dying Scale (FATCOD), and the Self-Compassion Scale (SCS). A statistically significant difference was found between nurses’ education level and compassion level (p < 0.01). A significant difference was found between the units where they were working and attitude towards caring for dying patients (p < 0.01). A positive, statistically significant relationship was found between the FATCOD total score and SCS total score (p < 0.01). A significant relationship between the compassion level and attitude toward caring for dying patients is an important finding for nurses, who encounter death frequently.


2019 ◽  
Vol 42 (1) ◽  
pp. 32-40 ◽  
Author(s):  
Yonghee Han ◽  
Ji-Su Kim ◽  
YeJi Seo

This study aims to examine the associations between nurses’ perceptions of patient safety culture, patient safety competency, and adverse events. Using convenience sampling, we conducted a cross-sectional study from February to May 2018 in two university hospitals. Furthermore, we performed multiple logistic regression to examine associations between patient safety culture, patient safety competency, and adverse events. Higher mean scores for “communication openness” in patient safety culture were significantly correlated with lower rates for pressure ulcers and falls; furthermore, higher mean scores for “working in teams with other health professionals” in patient safety competency were significantly correlated with reductions in ventilator-associated pneumonia. We recommend that a well-structured hospital culture emphasizing patient safety and continuation of in-service education programs for nurses to provide high-quality, clinically safe care is required. Moreover, further research is required to identify interventions to improve patient safety culture and competency and reduce the occurrence of adverse events.


2015 ◽  
Vol 24 (23-24) ◽  
pp. 3441-3448 ◽  
Author(s):  
Yingjuan Cao ◽  
Michelle DiGiacomo ◽  
Yenna Salamonson ◽  
Ye Li ◽  
Baosha Huai ◽  
...  

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