Influence of Self-care on Burnout in Primary Family Caregiver of Person with Dementia

2021 ◽  
Vol 51 (2) ◽  
pp. 217
Author(s):  
Jeong Hwa Kwon ◽  
Gwi-Ryung Son Hong
Author(s):  
Elaine Wittenberg ◽  
Joy V. Goldsmith ◽  
Sandra L. Ragan ◽  
Terri Ann Parnell

There is little evidence for caregiver assessment and interventions based on unique social and contextual factors of caregiving. Current approaches to caring for the family caregiver involve a “one size fits all” approach where caregiver assessment may or may not occur, and there is no link between identification of caregiver needs and recommended resources. When caregiver assessment does occur, it does not involve unique caregiving characteristics that positively impact communication and health literacy. Caring for the Family Caregiver, a communication and health literacy framework, is introduced and consists of teaching healthcare providers to address caregiving types by finding disease information, assessing and integrating information, partnering with the caregiver, finding support, talking with the caregiver, and planning for caregiver self-care. Directions for future research are also summarized.


2020 ◽  
Author(s):  
MS Giménez Campos ◽  
Villaverde P Flors ◽  
Melchor E Soriano ◽  
Mulió A Bahamontes ◽  
Martinez B Valdivieso ◽  
...  

2019 ◽  
Vol 40 (11) ◽  
pp. 2429-2447 ◽  
Author(s):  
Sonja Jameson ◽  
Lynne Parkinson ◽  
Annie Banbury

AbstractWhile the burden of caring for people living with dementia has been well documented, considerably less is known about how carers transition into post-care life. This study aimed to understand the experiences of primary family care-givers of people with dementia after the person with dementia has died. A specific focus of the research was understanding the barriers to transitioning into a positive post-care life, and facilitators that help sustain carers as they move forward after their care journey has ended. A qualitative exploratory, descriptive study was undertaken with nine primary carers for a family member who died with dementia (five spouses and four adult children). Semi-structured face-to-face or telephone interviews were conducted with carers between July and August 2016. Interview transcripts were analysed using a thematic approach. A number of factors that can act as barriers or facilitators to transition for carers were identified. Contextualising loss, restructuring identity, psychological health issues and the influence of social attitudes seemed to have a strong influence on carer outcomes. The findings highlight the need for further systematic social and informational support for carers to moderate post-care trajectories and improve carer transition.


Author(s):  
Kwua-Yun Wang ◽  
Pei-Yi Sung ◽  
Sheng-Tzu Yang ◽  
Chi-Huei Chiang ◽  
Wann-Cherng Perng

CHEST Journal ◽  
2011 ◽  
Vol 140 (4) ◽  
pp. 1051A
Author(s):  
Betty Ferrell ◽  
Marcia Grant ◽  
Marianna Koczywas ◽  
Arti Hurria ◽  
Matthew Loscalzo ◽  
...  

2019 ◽  
Vol 10 (2) ◽  
Author(s):  
Jamil Michel Miranda Do Vale ◽  
Antônio Corrêa Marques Neto ◽  
Lucialba Maria Silva Dos Santos ◽  
Mary Elizabeth De Santana

Objetivo: analisar de que forma é desenvolvida pelo enfermeiro a educação em saúde ao familiar cuidador de adoecidos em cuidados paliativos oncológicos domiciliares. Método: pesquisa descritiva com abordagem qualitativa realizada com 10 familiares cuidadores de adoecidos pelo câncer cadastrados no Serviço de Assistência Domiciliar do Hospital Ophir Loyola. Resultados: emergiram duas categorias denominadas: Experiência da educação em saúde para o familiar cuidador e Educação em saúde no domicílio: atuação do enfermeiro no ensino do cuidado ao adoecido e autocuidado para o familiar cuidador. Conclusão: o presente estudo constatou uma fragilidade na assistência de enfermagem acerca da realização da educação em saúde voltada para o autocuidado do referido cuidador. Identificamos que o mesmo tem procurado executar assistência necessária ao enfermo, ensinando ao familiar cuidador os cuidados básicos a serem dispensados ao adoecido, porém, não orientam o autocuidado ao cuidador.Descritores: Educação em saúde; Cuidados Paliativos; Assistência Domiciliar.HEALTH EDUCATION TO THE FAMILY CAREGIVER OF DISEASED CANCER PATIENTS IN PALLIATIVE HOME CAREObjective: analyze how the nurse develops the health education to the familiar caregiver of patients with palliative oncological domiciliary care. Method: descriptive research with a qualitative approach performed with 10 family caregivers of cancer patients registered in the Ophir Loyola Hospital Home Care Service. Results: two categories emerged called: Experience of health education for the family caregiver and Health education at home: nurse’s role in teaching care for the sick and self-care for the family caregiver. Conclusion: the present study found a fragility in nursing care about the accomplishment of health education aimed at self-care of the referred caregiver. We have identified that the latter has sought to perform the necessary assistance to the patient, teaching the family caregiver the basic care to be given to the sick person, but they do not guide the self-care of the caregiver.Descriptors: Health Education; Palliative Care; Home Nursing.EDUCACIÓN EN SALUD AL CUIDADOR FAMILIAR DE LOS ENFERMOS EN CUIDADOS PALIATIVOS ONCOLOGICOS DOMICILIARIOSObjectivo: analizar cómo se desarrolla por el enfermero la educación en salud a los cuidadores familiares de los enfermos en cuidados paliativos domiciliarios. Método: investigación descriptiva con enfoque cualitativo realizada con 10 cuidadores familiares de enfermos por lo cáncer registrados en el Servicio de Atención Domiciliaria del Hospital Ophir Loyola. Resultados: Dos categorias surgieron, denominadas: Experiencia de la educación en salud para el cuidador familiar y Educación en salud en el domicilio: la actuación del enfermero en la enseñanza del cuidado al enfermo y autocuidado de los cuidadores familiares. Conclusión: El presente estudio encontró una debilidad en la asistencia de enfermería en cuanto la realización de la educación en salud orientada al autocuidado del cuidador. Identificamos que los mismos han tratado de realizar la asistencia necesaria a los enfermos enseñando al cuidador familiar la atención básica que debe darse al enfermo, pero no enseñan el autocuidado a los cuidadores.Descriptores: Educación en salud; Cuidados paliativos; Asistencia Domiciliaria.


2011 ◽  
Vol 29 (15_suppl) ◽  
pp. e19606-e19606
Author(s):  
B. R. Ferrell ◽  
M. Grant ◽  
M. Koczywas ◽  
A. Hurria ◽  
M. Loscalzo ◽  
...  

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