scholarly journals Lewenskwaliteit te midde van ‘n erge stressor: ‘n studie van bejaardes met alzheimer se siekte of rumatoïede artritis

2004 ◽  
Vol 9 (1) ◽  
Author(s):  
Pieter M Heyns ◽  
Michelle Viljoen ◽  
Dirk C Odendaal

This study addresses the role of psychofortigenic factors in maintaining quality of life in elderly people diagnosed with either rheumatoid arthritis or Alzheimer's disease. Opsomming Hierdie studie handel oor die rol wat psigofortigene faktore speel in die handhawing van lewenskwaliteit deur bejaardes wat gediagnoseer is met rumatoïede artritis of Alzheimer se siekte. *Please note: This is a reduced version of the abstract. Please refer to PDF for full text.

2020 ◽  
Vol 19 (2) ◽  
pp. 390-420
Author(s):  
Patricia Luque-Carrillo ◽  
Ignacio Morales-Cané ◽  
Juan Manuel Carmona-Torres ◽  
Roberto Manfredini ◽  
Mª Aurora Rodríguez Borrego ◽  
...  

Objetivo: Conocer la relación existente entre la tarea de cuidar a pacientes con Enfermedad de Alzheimer, el Género de los cuidadores y su nivel de formación académica. Método: Estudio descriptivo, como sujetos de estudio 69 personas diagnosticadas de Enfermedad de Alzheimer y sus respectivos cuidadores familiares. En los cuidadores se analizó: la edad, el género, el nivel de estudios, carga, depresión, nivel de ansiedad, calidad de vida y soledad social. En los pacientes se valoró la edad, género, nivel de dependencia y estado neuropsicológico. La recogida de datos se realizó en 2016. Entre otros análisis se realizó análisis de regresión logística.Resultados: Se obtuvo que los cuidadores con estudios superiores sufrían mayor carga, siendo mujeres en su mayoría. Mujeres con más probabilidad de presentar soledad social, altos niveles de ansiedad y peor calidad de vida que los hombres. La carga puede ser debida al gran número de responsabilidades y a la imposibilidad de combinarlas con el papel de cuidador. Se puede concluir que las mujeres llegan a ser víctimas del cuidado de personas con Enfermedad de Alzheimer. The aim of this job is to know the existing relationship between the task of caring patients with Alzheimer's disease, caregivers' gender and their level of academic studies. Descriptive study, 69 persons diagnosed with Alzheimer’s disease and their respective familiar caregivers as subjects of the study. Age, gender, academic level, burden, depression, anxiety level, quality of life and social loneliness have been measured in caregivers. Age, gender, dependency level and neuropsychological state have been measured in patients. Data collection was done in 2016. Logistic regression analysis was performed. Caregivers with high levels of academic studies suffer more burden, being women in their majority. They are more likely to present social loneliness and higher levels of anxiety and a worse quality of life than men. The burden may be due to a greater number of responsibilities to respond to, and to the inability to combine it with the role of caregiver. We can conclude that women become victims of caring Alzheimer' patients.


Author(s):  
Thamires Ineu de Oliveira ◽  
Bruna Rodrigues Maziero ◽  
Daniela Buriol ◽  
Paloma Horbach da Rosa ◽  
Silomar Ilha

Objective: The study’s main purpose has been to analyze the QOL of family members/caregivers of elderly people bearing Alzheimer's disease, as well as to assess during this process the influence of the group named Integrated Multidisciplinary Assistance to Caregivers of people bearing Alzheimer's disease (IMACA). Methods: It is a descriptive-exploratory study with a qualitative approach that was performed with six family members/caregivers, who were participants in the aforementioned group. Data collection took place from April to May 2016, through data sharing between the focus group, semi-structured questionnaire and the assessment of the 36-Item Short Form Health Survey questionnaire (SF-36) for quality of life. Results: The independent data were subjected to content analysis resulting in two categories, as follows: IMACA group: sharing knowledge and experiences in favor of the quality of life; IMACA group: (re)thinking about everyday life, helping with the quality of life. By analyzing the SF-36 evaluation scale, the found objective data pointed out the following factors as the most impaired ones: Limitations due to physical, emotional and vital aspects. Conclusions: It was possible to observe that the Integrated Multidisciplinary Assistance to Caregivers of people bearing Alzheimer's disease has shown significant relevance and influence on the participating family members’/caregivers’ quality of life.


2010 ◽  
Vol 51 (02) ◽  
pp. 72 ◽  
Author(s):  
Oscar Rosas Carrasco ◽  
Laura del Pilar Torres Arreola ◽  
María de Guadalupe Guerra Silla ◽  
Sara Torres Castro ◽  
Luis Miguel Gutiérrez Robledo

2015 ◽  
Vol 12 (4) ◽  
pp. 427-437 ◽  
Author(s):  
Sandrine Andrieu ◽  
Nicola Coley ◽  
Yves Rolland ◽  
Christelle Cantet ◽  
Catherine Arnaud ◽  
...  

2002 ◽  
Vol 18 (3) ◽  
pp. 497-507 ◽  
Author(s):  
Andrew Clegg ◽  
Jackie Bryant ◽  
Tricia Nicholson ◽  
Linda McIntyre ◽  
Sofie De Broe ◽  
...  

Objectives: Systematic review of the clinical and cost-effectiveness of donepezil, rivastigmine, and galantamine for people suffering from Alzheimer's disease.Methods: Sixteen electronic databases (including MEDLINE, the Cochrane Library, and Embase) and bibliographies of related papers were searched for published/unpublished English language studies, and experts and pharmaceutical companies were consulted for additional information. Randomized controlled trials (RCTs) and economic studies were selected. Clinical effectiveness was assessed on measurement scales assessing progression of Alzheimer's disease on the person's global health, cognition, functional ability, behavior and mood, and quality of life. Cost-effectiveness was presented as incremental cost per year spent in a nonsevere state (by Mini Mental Health State Examination) or quality-adjusted life-year.Results: Twelve of 15 RCTs included were judged to be of good quality. Although donepezil had beneficial effects in Alzheimer's patients on global health and cognition, rivastigmine on global health, and galantamine on global health, cognition, and functional scales, these improvements were small and may not be clinically significant. Measures of quality of life and behavior and mood were rarely assessed. Adverse effects were usually mild and transient. Cost-effectiveness base case estimates ranged from £2,415 savings to £49,476 additional cost (1997 prices) per unit of effect for donepezil and a small savings for rivastigmine. Estimates were not considered robust or generalizable.Conclusions: Donepezil, rivastigmine, and galantamine appear to have some clinical effect for people with Alzheimer's disease, although the extent to which these translate into real differences in everyday life remains unclear. Due to the nature of current economic studies, cost-effectiveness remains uncertain and the impact on different care sectors has been inadequately investigated. Further research is needed to establish the actual benefits of acetylcholinesterase inhibitors (AChEls) for people with Alzheimer's disease and their caregivers, the relationship of these changes to clinical management, and careful prospective evaluation of resource and budgetary consequences.


2010 ◽  
Vol 18 (1) ◽  
pp. 26-32 ◽  
Author(s):  
Keika Inouye ◽  
Elisete Silva Pedrazzani ◽  
Sofia Cristina Iost Pavarini ◽  
Cristina Yoshie Toyoda

This paper aimed to compare the reports of patients and caregivers about how they perceive quality of life (QoL) in general and each of its dimensions in elderly with Alzheimer’s Disease (AD). The participants were elderly diagnosed with AD (n=53) attended by the Exceptional Medication Program in a city in the interior of Sao Paulo; and their respective family caregivers. The QoL measures were obtained through the Quality of Life Assessment Scale on Alzheimer’s Disease. The results showed statistically significant differences in the “memory” (p<0.05) and “you in general” (p<0.005) dimensions. Regarding the final score, the average in the patient’s version was 29.32 points (sd=6.27), against 28.33 points (sd=5.58) in the family version, p>0.100. Although the relative and patient reports were not identical, the results pointed to a high level of consistency among information.


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