scholarly journals Daily Life and Planning for the Future of Ageing People with Down Syndrome: Results from a National Study on Caregivers

2020 ◽  
Vol 09 (06) ◽  
pp. 95-115
Author(s):  
Venusia Covelli ◽  
Erika Guastafierro ◽  
Matilde Leonardi
Author(s):  
Roberto Alesii ◽  
Fabio Graziosi ◽  
Stefano Marchesani ◽  
Claudia Rinaldi ◽  
Marco Santic ◽  
...  
Keyword(s):  

2021 ◽  
Vol 19 (2) ◽  
pp. 121-129
Author(s):  
Raffaella Biagioli

In the intersection with other dimensions such as ethnic, religious and social, the gender difference leads to dwell on aspects often neglected and to bring out the role of mothers in places of confinement that, together with their children, represent a population at risk for the difficulties inherent in the condition of restriction. The research is interested in understanding a mother-child relationship highly disturbed by some risk factors and the educational actions to be activated in the daily life of penitentiary institutions to support and accompany these women towards autonomy, to offer them possibilities of social inclusion and avoid marginalization that in the future could lead their children to seek radicalized insertion within groups.


1976 ◽  
Vol 47 (5) ◽  
pp. 615
Author(s):  
Philip G. Altbach ◽  
Alexander W. Astin ◽  
Helen S. Astin ◽  
Alan E. Bayer ◽  
Ann S. Bisconti
Keyword(s):  

Author(s):  
Cecelia Henderson ◽  
Douglas J. Gillan

As automation becomes increasingly common in daily life the importance of understanding how we interact with automated systems increases, especially attribution of blame for accidents involving a human-automation team. The current research project looks at how humans attribute blame in an accident involving a human operator and a robot worker and is based on a previous study (Furlough et al., 2019). Participants will read two scenarios detailing an accident while being shown both the operator and robot. The robot’s appearance is manipulated to imply varying levels of automation, ranging from a simple robot to one with a human appearance. Results showed no significant effects, however, this research still has the potential to contribute to the understanding of interactions between humans and automated systems and could inform design in the future to facilitate a positive working environment with robots and humans.


Dermatology ◽  
2020 ◽  
Vol 236 (6) ◽  
pp. 571-592 ◽  
Author(s):  
Christina Bergqvist ◽  
Khaled Ezzedine

Vitiligo, a common depigmenting skin disorder, has an estimated prevalence of 0.5–2% of the population worldwide. The disease is characterized by the selective loss of melanocytes which results in typical nonscaly, chalky-white macules. In recent years, considerable progress has been made in our understanding of the pathogenesis of vitiligo which is now clearly classified as an autoimmune disease. Vitiligo is often dismissed as a cosmetic problem, although its effects can be psychologically devastating, often with a considerable burden on daily life. In 2011, an international consensus classified segmental vitiligo separately from all other forms of vitiligo, and the term vitiligo was defined to designate all forms of nonsegmental vitiligo. This review summarizes the current knowledge on vitiligo and attempts to give an overview of the future in vitiligo treatment.


2019 ◽  
Vol 29 (3) ◽  
pp. 681-703
Author(s):  
Giuliana Mandich

This paper is aimed at understanding how we engage with the future in different ways in everyday life. Many empirical studies have emphasised that what we usually call ‘imagination’ of the future takes diverse forms and meanings. Varied narratives of the future that are possible coexist in daily life in a bumpy, semi-conscious and occasionally tense dialogue with one another. To understand this variation of narratives, a thorough exploration of the different modes of engaging with the future that various forms of agency bring into play is required, together with a sensitive empirical analysis. I use Thévenot’s theory of regimes of engagement as a starting point to at least partially explain this variety. Thévenot’s idea that different types of individual involvement in relation to different definitions of the relevant reality (e.g. familiarity, plans and the public domain of justification and exploration) contain interesting implications for the analysis of what I define as modes of engagement with the future. As involved as we are with social reality through specific formats, so are we with the future. As the ‘relevant reality’ is different according to the regime of engagement that we are involved in, the nature of anticipation also varies. The future is ‘made and measured’ within the logic of probability in the regime of plans; of possibility in the regime of justification; of practical anticipation in the regime of familiarity; and of discovery in the regime of exploration. This perspective helps to avoid a reification of the future as something that is ‘there’ and that we simply discover and avoids easy dichotomisation of forms of anticipation of the future as realistic or unrealistic.


2018 ◽  
Vol 15 (3) ◽  
pp. 167-186 ◽  
Author(s):  
Lindh Inga-Britt ◽  
Blomqvist Kerstin

Objectives To derive improved understanding of the implicit meanings of challenges in daily life from the perspective of persons with type 2 diabetes. Methods A meta-synthesis was conducted with an interpretive and constructivist approach. Four databases were searched for articles published between 2007 and 2011, producing 37 articles for analysis. Van Deurzen’s life world theory was applied as an analytic grid. Results Challenges in daily life with type 2 diabetes could be understood as living in a tension between opposing forces, implying a struggle with inevitable paradoxes: living in the present and for the future, trusting oneself while relying on others, and being normal while feeling changed and different. Discussion This synthesis adds knowledge to previous understanding of living with type 2 diabetes, revealing the complexity of daily life when struggling with a lifelong illness. Person-centred care could be used to understand what challenges diabetes may cause in family and working life and the ambivalent feelings the illness can lead to. Future research is needed to implement and evaluate a person-centred care in practice. Since new qualitative research is continuously added to this topic, metasyntheses should be undertaken regularly.


2018 ◽  
Vol 29 (1) ◽  
pp. 91-102
Author(s):  
Gao Niu ◽  
Jeyaraj Vadiveloo ◽  
Cary Lakenbach

Families that have a child with Down syndrome (DS) are facing financial challenges due to the increased life expectancy and daily life dependencies that he or she experiences. This article uses pediatric findings to supplement child mortality impairment assumptions and proposes a combination annuity pricing model to explore an annuity solution for families that have a child with DS. A Markov chain Monte Carlo simulation model is constructed with features such as a fixed death benefit, return of premium, different premium payment patterns, and the widowhood effect factor. The results indicate that such a product is generally affordable for families that have a child with DS to cover their child’s longevity risk and increased dependency needs.


2006 ◽  
Vol 14 (6) ◽  
pp. 907-914
Author(s):  
Maria Salete Bessa Jorge ◽  
Getúlio Vasconcelos Fiúza ◽  
Maria Veraci Oliveira Queiroz

The research had as objective to comprehend the sense of pregnancy to the teenager pregnant trying to get the way of being and having be pregnant. It was done four in-deep interviews, using the core question: How do you feel being pregnant? The speeches and their meanings were analysed by the light of Heidegger's Phenomenology. In getting closer to the phenomena we get the way impersonal and not authentic of teenagers, the co-presence in relation to the boyfriend and family. They shown, still the dread by the child and by his health, worrying with the future that around the care, due they deem themselves not to have the ability to this, which causes the anguish and anxiety of daily life, in the new way of being. The comprehension of this phenomena is fundamental in the care to the teenager pregnant to a full and humanized action.


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