Deciding My Future: Experiences of Adults With IDD and Family Members Using Supported Decision Making

2021 ◽  
Vol 75 (Supplement_2) ◽  
pp. 7512505201p1-7512505201p1
Author(s):  
Evan Dean ◽  
Brad Linnenkamp
Keyword(s):  
Decision Making ◽  
Developmental Disabilities ◽  
Family Members ◽  
Self Determination ◽  
Intellectual And Developmental Disabilities ◽  
Primary Author

Abstract Date Presented Accepted for AOTA INSPIRE 2021 but unable to be presented due to online event limitations. Supported decision making is an emerging practice that OTs can use to promote participation, positive transition, and self-determination for people with intellectual and developmental disabilities (IDD). This presentation will report research studying the experiences of adults with IDD using supported decision making and discuss opportunities for OT intervention. Primary Author and Speaker: Evan Dean Additional Authors and Speakers: Brad Linnenkamp

Family Role in the Development of Self-Determination for Youth With Intellectual and Developmental Disabilities: A Scoping Review

2021 ◽  
Vol 59 (4) ◽  
pp. 315-334
Author(s):  
Evan E. Dean ◽  
Anne V. Kirby ◽  
Mayumi Hagiwara ◽  
Karrie A. Shogren ◽  
Deniz Tekin Ersan ◽  
...  
Keyword(s):  
Developmental Disabilities ◽  
Scoping Review ◽  
Self Determination ◽  
Future Research ◽  
Knowledge Gap ◽  
Intellectual And Developmental Disabilities ◽  
Family Role ◽  
Research And Practice ◽  
Family Perspectives ◽  
Home Context

Abstract The development of self-determination is promoted by supportive contexts during adolescence; families are a key part of this context. In adolescent populations, research suggests families can support self-determination in a number of ways, yet less is known about how self-determination is promoted within families of youth with intellectual and developmental disabilities (IDD). To address this knowledge gap, we conducted a scoping review to examine the existing evidence pertaining to the role families of youth with IDD play in supporting the development of self-determination. A review of 24 publications revealed that existing research has focused on understanding family perspectives on self-determination, but there is a lack of studies investigating how families provide supports for self-determination in the home context for youth with IDD. Additionally, little intervention work has focused on supporting families to promote self-determination. Based on the findings, implications for future research and practice are provided.

Self-Determination and Choice

2013 ◽  
Vol 51 (5) ◽  
pp. 399-411 ◽  
Author(s):  
Michael L. Wehmeyer ◽  
Brian H. Abery
Keyword(s):  
Developmental Disabilities ◽  
Research And Development ◽  
Best Practice ◽  
Self Determination ◽  
Intellectual And Developmental Disabilities ◽  
The Past

Abstract Promoting self-determination and choice opportunities for people with intellectual and developmental disabilities has become best practice in the field. This article reviews the research and development activities conducted by the authors over the past several decades and provides a synthesis of the knowledge in the field pertaining to efforts to promote self-determination and choice.

Recommendations of the Self-Determination and Self-Advocacy Strand From the National Goals 2015 Conference

Inclusion ◽  
2015 ◽  
Vol 3 (4) ◽  
pp. 205-210 ◽  
Author(s):  
Karrie A. Shogren ◽  
Brian Abery ◽  
Anthony Antosh ◽  
Ricky Broussard ◽  
Barbara Coppens ◽  
...  
Keyword(s):  
Developmental Disabilities ◽  
The Self ◽  
Self Determination ◽  
Intellectual And Developmental Disabilities ◽  
Policy And Practice ◽  
Self Advocacy ◽  
Collective Self ◽  
Research Initiatives

Abstract This article reports the recommendations of the Self-Determination and Self-Advocacy Strand from the National Goals 2015 conference. The recommendations provide direction on research goals to advance policy and practice related to self-advocacy and self-determination over the next 10 years. Seven recommendations and multiple subrecommendations were developed over a 2-day meeting by leaders in the field of intellectual and developmental disabilities. The recommended goals provide direction for research initiatives related to collective self-advocacy and personal self-determination. Implications for the field are discussed.

scholarly journals The Importance of Self-Determination to the Quality of Life of People with Intellectual Disability: A Perspective

2020 ◽  
Vol 17 (19) ◽  
pp. 7121
Author(s):  
Michael L. Wehmeyer
Keyword(s):  
Quality Of Life ◽  
Intellectual Disability ◽  
Developmental Disabilities ◽  
Self Determination ◽  
Intellectual And Developmental Disabilities ◽  
Theoretical Frameworks ◽  
The Core ◽  
Important Means

There is both an intuitive and theoretical link between self-determination and quality of life for people with intellectual and developmental disabilities. Theoretically, definitions of self-determination have framed the construct with regard to its contribution to a person’s overall quality of life, while theoretical frameworks of quality of life have included self-determination among the core dimensions contributing to enhanced quality of life. These theoretical linkages have been supported by research on the quality of life and self-determination of people with intellectual and developmental disabilities and the relationships between these constructs. This article provides an overview of theoretical frameworks of self-determination, their relationship with theoretical frameworks of quality of life, and research pertaining to these constructs with people with intellectual and developmental disabilities. It is concluded that self-determination and quality of life are important constructs in designing supports that enable people with intellectual and developmental disabilities and that an important means to enhance the quality of life of people with intellectual and developmental disabilities is to promote and enable people to be self-determined.

Self-Determination Skills and Opportunities of Adolescents With Severe Intellectual and Developmental Disabilities

2009 ◽  
Vol 114 (3) ◽  
pp. 179-192 ◽  
Author(s):  
Erik W. Carter ◽  
Laura Owens ◽  
Audrey A. Trainor ◽  
Ye Sun ◽  
Beth Swedeen
Keyword(s):  
Developmental Disabilities ◽  
Problem Behavior ◽  
Problem Behaviors ◽  
Social Skill ◽  
The Self ◽  
Self Determination ◽  
Intellectual And Developmental Disabilities ◽  
Behavior Ratings ◽  
Limited Knowledge ◽  
Teachers And Parents

Abstract We asked teachers and parents to assess the self-determination prospects of 135 youth with severe intellectual and developmental disabilities. Teachers typically reported that youth evidenced limited knowledge about self-determined behavior, ability to perform these behaviors, and confidence regarding the efficacy of their self-determination efforts. Parents and teachers diverged in their evaluations of the self-determination capacities of youth but agreed that opportunities to engage in self-determined behavior were available both at school and home. Although social skill and problem behavior ratings both were significant predictors of teachers' ratings of students' self-determination capacity, opportunities at school, opportunities at home, and problem behaviors were negatively correlated with ratings of students' self-determination capacities and opportunities.

College-Based Transition Services' Impact on Self-Determination for Youth With Intellectual and Developmental Disabilities

2021 ◽  
Vol 59 (4) ◽  
pp. 269-282
Author(s):  
Rebecca S. Schillaci ◽  
Caroline E. Parker ◽  
Meg Grigal ◽  
Maria Paiewonsky
Keyword(s):  
Developmental Disabilities ◽  
College Transition ◽  
Transition Services ◽  
Self Determination ◽  
Intellectual And Developmental Disabilities ◽  
College Courses ◽  
University Campus ◽  
Alternative Approach ◽  
Post Test ◽  
Quasi Experimental

Abstract Most youth in transition services with labels of intellectual and developmental disabilities (IDD) have poorer employment outcomes than their peers with other or without disabilities. One alternative approach to address this challenge provides youth with IDD access to transition services in the context of a college or university campus. College-based transition services (CBTS) provide students with IDD access to college courses, internships, and employment during their final 2 to 3 years of secondary education. A quasi-experimental design evaluation of one college-based transition services model, Think College Transition, found that, after controlling for student baseline scores, the college-based transition services had a significant effect on students' scores of self-determination at post-test. Implications for further refining the model are discussed.

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