Gaps Between Parent and Therapist Perspectives on Family-Centered Care as a Factor of Service Setting

2021 ◽  
Vol 75 (Supplement_2) ◽  
pp. 7512510272p1-7512510272p1
Author(s):  
Liat Gafni-Lachter ◽  
Ayelet Ben-Sasson ◽  
Shaimaa Alsaaed

Abstract Date Presented Accepted for AOTA INSPIRE 2021 but unable to be presented due to online event limitations. The purpose of this study was to evaluate gaps between parent and provider perceptions of the family-centeredness of services and the contribution of the service setting (outpatient versus schools) to these gaps. Findings indicated significant gaps between parents and providers, and between practice settings, in all assessed domains. These gaps suggest areas of opportunity for OTs to enhance their practice in order to foster more effective partnerships with parents. Primary Author and Speaker: Liat Gafni-Lachter Additional Authors and Speakers: Ayelet Ben-Sasson, Shaimaa Alsaaed

2021 ◽  
Vol 75 (Supplement_2) ◽  
pp. 7512505109p1-7512505109p1
Author(s):  
Tamera Keiter Humbert ◽  
Abigail Sanders ◽  
Courtney Wood ◽  
Esther Cargill

Abstract Date Presented 04/13/21 The value of family-centered care is identified in the literature, highlighting the need for therapists to use a variety of approaches. However, there is limited evidence as to how to best provide care with families dealing with complex contexts such as language, cultural, and socioeconomic differences. This session will provide the perspectives of eight OTs who identified strategies to support the primary caregiver and ways in which to build therapeutic alliances. Primary Author and Speaker: Tamera Keiter Humbert Additional Authors and Speakers: Patricia A. Henton Contributing Authors: Shelley Dean


2015 ◽  
Vol 36 (1) ◽  
pp. 98-103 ◽  
Author(s):  
Daniela Doulavince Amador ◽  
Fernanda Ribeiro Baptista Marques ◽  
Adriana Maria Duarte ◽  
Flavia Simphronio Balbino ◽  
Maria Magda Ferreira Gomes Balieiro ◽  
...  

The aim of this study was to comprehend the meaning of using illness narratives to raise awareness among nursing students and healthcare professionals toward the family-centred care model. The adopted methodological framework was Qualitative Content Analysis based on the philosophy of Family-Centered Care. Data were collected by means of assessments provided by 29 participants at an event in 2013, in São Paulo. The resulting analytical category was "transformed by the family narrative", which consisted of three sub-categories: Favours a better understanding of the family's experience; facilitates learning of family issues; and triggers thought on family-centered care. Results showed that hearing the family narrative on experiences with illness and hospitalization raises awareness among nursing students and healthcare professionals toward the family-centered care model, and facilitates learning of this model of care.


2021 ◽  
Vol 10 (3) ◽  
pp. 125-134
Author(s):  
Ismail Cetintas ◽  
Melahat Akgun Kostak ◽  
Remziye Semerci ◽  
Esra Nur Kocaaslan

Aim: This study was conducted to determine the relationship between the perceptions of parents whose children are hospitalized about family-centered care provided in the hospital and their health care satisfaction and the factors affecting them. Methods: This descriptive study was conducted with parents (n=169) of children who were hospitalized in a university hospital in Turkey between May and July 2019. Data were collected with "Child and Family Information Form", "Family-Centered Care Scale" and "PedsQL Health Care Satisfaction Scale". Data were analyzed with descriptive statistics, Mann Whitney U, and Spearman correlation tests. Results: The mean age of the children was 6.86±5.63, 51.5% were male, 56.2% were hospitalized before and 88.2% of parents received information about the care and treatment of their children. There was a positive correlation between the parents’ Family-Centered Care Scale and PedsQL Health Care Satisfaction Scale scores and between the age of the children and age of the mother and the PedsQL Health Care Satisfaction Scale scores, the number of children and Family-Centered Care Scale scores of parents. A statistically significant difference was found between the child's previous hospitalization and median scores of the Family-Centered Care Scale, and between whether parents receive information about the care and treatment of their children and the median scores of the PedsQL Health Care Satisfaction Scale. Conclusion: In this study, as the family-centered care that parents expect was met, their health care satisfaction increased. As the age of children and mothers increased, parents' health care satisfaction increased. Health care satisfaction of parents who received information about treatment and care was found higher. Keywords: family-centered care, patient satisfaction, child, parents


Author(s):  
Ari Damayanti Wahyuningrum

Collaborative action between families and health professionals, in this case nurses, doctors, nutritionists, pharmacies in forming harmonious support is the philosophy of family centered nursing care which aims to involve families as the main focus in care. The aim of this literature review is to identify family-centered family member care: a literatu review. This language method uses literature reviews which are summaries of 10 articles in the publication years of 2020-2021 on search 4 databased electronic searches containing namely Scopus, ProQuest, Pubmed, and Scient Direct. This review used prisms. The eligibility of these studies were from its title, abstract, research methodology, results and discussion. The results of the review were presented in narrative form. The results of a review of 10 articles found that the form family centered care Conclusion: The family is considered a partner in the care of other family members. The concept of family centered care is a philosophy in nursing where the role of the family is very important in caring for family members who are sick.


2019 ◽  
Vol 10 (1) ◽  
pp. 68-74
Author(s):  
Hajar Sadeghi ◽  
Fatemeh Mehrabi ◽  
Pouriya Darabiyan ◽  
Yazdan Shabani ◽  
Masoud Bahrami

 Backgrounds and Objectives: About 30% of children hospitalized at least once during childhood, and about 5 percent hospitalized several times. The family is the most important source for support child patients so the family centered care is necessary. One of the main sources of stress and anxiety for the family is the crisis by the hospitalization ill children. Attention to the needs of mothers and reducing the anxiety from hospitalization is so important.   The purpose of the study was to investigate the effects of family-centered care and meeting the need to learn how much of global anxiety in parents of hospitalized children. Materials and Methods: In the present Randomized clinical trial study, 70 parents of children suffering from UTI   randomly divided in two groups: control (35) and intervention groups (35). family-centered care done by researcher and participating mothers. Control group received normal care. The data gathering tool was a three-part questionnaire: personal characteristics, Krastinzdottir questionnaire and Spiel Berger’s questionnaire. Information were analyzed by using of SPSS software and chi-squared and t test. Results: The result of this study showed that the anxiety of the both group are the same and both of them are at the midrange. Range of meet information need in intervention and control group had statistically significant differences (p<0.435). Conclusions: The family-centered care is effective at range of meet information needs of hospitalized children parent’s and increase their satisfaction. Keywords: Parent, Family Centered Nursing, Hospitalized Children; anxiety, Urinary Tract Infection


2016 ◽  
Vol 28 (1) ◽  
pp. 61-68 ◽  
Author(s):  
Maria Veronica Svetaz ◽  
Diego Garcia-Huidobro ◽  
Ghaffar Ali Hurtado ◽  
Laura Trebs ◽  
Stephanie Hernandez ◽  
...  

Abstract Background: Parenting adolescents poses challenges that are exacerbated by immigration. Aqui Para Ti [Here for You] (APT) is a clinic-based, healthy youth development program that provides family-centered care for Latino youth and their families who are mostly immigrants from Mexico and Latin America. Objectives: To present the APT model of care and report the experiences of youth and their parents. Subjects: APT patients between 11 and 24 years (n=30) and parents (n=15). Most youth patients were female, between 11 and 17 years, and from Mexico. Most parents were female, 40 years or younger, and from Mexico. Methods: Youth participants completed a survey and participated in an individual semi-structured interview, and parent participants attended focus groups. Descriptive statistics summarized survey data. Interviews and focus groups were transcribed and analyzed in Spanish using content analysis by two independent coders. Quantitative and qualitative findings were integrated using side-by-side comparisons. Researchers not involved in the coding process contributed with the interpretation of the findings. Results: Youth and parents were satisfied with the services received at APT. Youth felt listened to by their providers (100%), felt they could trust them (100%) and valued comprehensive care. Eighty-seven percent reported that their experiences at APT were better than at other clinics. Parents valued the family parallel care, confidentiality, family-centeredness, and the cultural inclusivity of the APT services. Conclusion: Patients and parents were satisfied with the services offered at APT. Family parallel care could be a positive alternative to deliver confidential and family-centered services to immigrant families.


PEDIATRICS ◽  
2006 ◽  
Vol 118 (Supplement 2) ◽  
pp. S108-S114 ◽  
Author(s):  
Anne M. Johnston ◽  
Candice E. Bullock ◽  
Jean E. Graham ◽  
Maureen C. Reilly ◽  
Colleen Rocha ◽  
...  

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