scholarly journals Choosing Impairment: conflicting interests

2019 ◽  
Vol 18 (2) ◽  
pp. 229
Author(s):  
Selina Carolyne Metternick-Jones
Keyword(s):  
Genetic Testing ◽  
Case Studies ◽  
Moral Obligation ◽  
Clinical Care ◽  
Genetic Diagnosis ◽  
Future Generations ◽  
Parental Responsibility ◽  
Number Of Children ◽  
Conflicting Interests ◽  
The Relationship

The integration of reproductive genetic testing into clinical care presents both opportunities and challenges to parents in regards to shaping the lives of their future children. The relationship between parents and their future children has become more complex and new questions are being raised in relation to the extent of parental responsibility to future generations. This paper explores the ethical permissibility of using pre-implantation genetic diagnosis (PGD) to select for impairment, through the use of two case studies involving identify affecting decisions. Through analysing harm through both a personal and impersonal approach it is concluded that if a couple, or single reproducer, have a choice between an impaired and healthy embryo, and that the same number of children would result from selection, there is a moral obligation for parents to select the ones which will have an acceptable level of interest fulfilment and a normal opportunity for health.

scholarly journals Choosing Impairment: Conflicting Interests

2019 ◽  
Vol 18 (2) ◽  
pp. 229
Author(s):  
Selina Metternick-Jones
Keyword(s):  
Genetic Testing ◽  
Case Studies ◽  
Moral Obligation ◽  
Clinical Care ◽  
Genetic Diagnosis ◽  
Future Generations ◽  
Parental Responsibility ◽  
Number Of Children ◽  
Conflicting Interests ◽  
The Relationship

The integration of reproductive genetic testing into clinical care presents both opportunities and challenges for parents in regards to shaping the lives of their future children. The relationship between parents and their future children has become more complex and new questions are being raised in relation to the extent of parental responsibility to future generations. This paper explores the ethical permissibility of using pre-implantation genetic diagnosis (PGD) to select for impairment, through the use of two case studies involving identity-affecting decisions. Through analysing harm using both a personal and impersonal approach, it is concluded that if a couple, or single reproducer, have a choice between an impaired and healthy embryo, and that the same number of children would result from selection, there is a moral obligation for parents to select the ones which will have an acceptable level of interest fulfilment and a normal opportunity for health.

Ethical Labour

2016 ◽  
Author(s):  
Katharine Dow
Keyword(s):  
Career Aspirations ◽  
Future Generations ◽  
Parental Responsibility ◽  
Staff Members ◽  
Stable Environment ◽  
The People ◽  
Charity Work ◽  
The Relationship ◽  
Practical Sense

This chapter examines people's ideas about good parenting by focusing on how those who do not have children plan for parenthood by creating a stable environment for their future children. The people of Spey Bay shared the sense that future generations will inherit the environments that they create. This is encapsulated, in a practical sense, by their assumption that parental responsibility begins with planning and creating a “stable environment” for children to be born into. This chapter considers the plans for future parenthood of those staff members who did not have children, both of which can be seen as forms of ethical labor. It also analyzes the connection between career aspirations and planning for parenthood by tracing the relationship between the professional and parental ethics of the people with no children who live and work in Spey Bay. Finally, it discusses charity work alongside women's aspirations for future motherhood.

scholarly journals Genetic diagnosis in hypertrophic cardiomyopathy: two steps forward, one step back

2021 ◽  
Vol 51 (2) ◽  
pp. 109-117
Author(s):  
Lidia Hategan ◽  
Beáta Csányi ◽  
János Borbás ◽  
Eszter Dalma Pálinkás ◽  
Hedvig Takács ◽  
...  
Keyword(s):  
Genetic Testing ◽  
Hypertrophic Cardiomyopathy ◽  
Expert Panel ◽  
Clinical Care ◽  
Genetic Diagnosis ◽  
Cardiovascular Disorder ◽  
Chain Gene ◽  
Web Based ◽  
Inherited Cardiomyopathy ◽  
Next Generation Sequencing Ngs

Hypertrophic cardiomyopathy (HCM) is the most common genetic cardiovascular disorder worldwide which exhibits considerable genetic heterogeneity. Widespread utilization of next-generation sequencing (NGS) in HCM has uncovered substantial genetic variation and highlighted the importance of a standardized approach to variant interpretation. According to this, accurate and consistent interpretation of sequence variants is essential for effective clinical care for individuals and their families with HCM. With this regard, the 2015 guidelines from the American College of Medical Genetics and Genomics and the Association for Molecular Pathology (ACMG/AMP) were widely applicable, but several elements lacked specificity for given genes or diseases. The latter guideline was adapted for the most frequent causative HCM gene, the beta myosin heavy chain gene (MYH7) by the ClinGen (Clinical Genome Resource) expert panel, the Inherited Cardiomyopathy Expert Panel. Due to the adaptation, the guideline became gene-specific, with general considerations which are widely adaptable for most of the causative genes in HCM. Based on the modified guideline, web-based interpretation algorithms have been developed which integrate data from population databases and define pathogenicity of different variants independent of the observer, therefore aiding standardized clinical interpretation of genetic testing. The latter approach serves as a basis for recommendation for genetic testing in the recent ACC/AHA HCM guideline published in 2020. The current review is meant to compile the latest advances in HCM genetic testing in clinical practice, while bringing into focus some of the ongoing challenges clinical geneticists are still facing. Although nowadays the interpretation of genetic findings is two steps closer to a more accurate approach due to gene adaptation and automatization, the multitude of putative causative genes have been once again reduced to the 8 sarcomere genes, a backward step.

Flesh Searches in China

Asian Survey ◽  
2016 ◽  
Vol 56 (2) ◽  
pp. 325-347 ◽  
Author(s):  
Patrick Gorman
Keyword(s):  
Case Studies ◽  
Communist Party ◽  
Chinese Communist Party ◽  
Social Space ◽  
Contemporary China ◽  
Chinese State ◽  
The Chinese Communist Party ◽  
The Relationship

This article explores the relationship between netizens and the Chinese Communist Party by investigating examples of “flesh searches” targeting corrupt officials. Case studies link the initiative of netizens and the reaction of the Chinese state to the pattern of management of social space in contemporary China.

Gender and belief factors on attitude towards Social and Environmental Accounting (SEA)

2009 ◽  
Vol 6 (2) ◽  
pp. 51
Author(s):  
Salina Abdullah ◽  
Ern Chen Loo
Keyword(s):  
Natural Resources ◽  
Undergraduate Students ◽  
Environmental Issues ◽  
Environmental Accounting ◽  
Future Generations ◽  
Business And Society ◽  
Four Dimensions ◽  
Sustain Ability ◽  
The Relationship

Research on social and environmental accounting (SEA) has mainly concentrated on disclosure of SEA by corporate bodies, where investigations on ones attitude towards SEA are rarely discussed. SEA is a medium that develops relationships between business and society, community and nature. In addition, SEA involves a concept of sustain ability; where natural resources need to be sustained for the needs of future generations (Alhabshi et al., 2003). SEA also tries to recognise the role of accounting in sustainable development and the use of environmental resources. There are arguments that the young generations today are not fully aware of preserving these natural resources as well as handling social and environmental issues wisely. This perhaps link closely to their belief and cultural background. Hence, this paper examines the influence of gender and belief factors on the undergraduate students’ attitude towards SEA. Four dimensions of belief (fixed ability, quick learning, simple knowledge and certain knowledge) proposed by Schommer (2005) were adapted to analyse how belief factors have influence on their attitude towards SEA. An independent sample t-test was used to examine the relationship between gender and students’ attitude towards SEA. Spearmen’s correlation was employed to show the relationship between belief and attitude towards SEA. The results revealed that gender differences did not show influences on their attitude towards SEA. It was found that there is a significant relationship between belief and students’ attitude towards SEA. Students who believe on the importance of SEA tend to report positive attitude towards SEA. Perhaps findings of this study may provide some information on the SEA education and further be incorporated in the syllabus.

MAKOTO AS THE INITIAL PRINCIPLE OF THE ETHICAL AND AESTHETIC BELIEFS OF THE JAPANESE

2020 ◽  
pp. 126-138
Author(s):  
M. P. Gerasimova ◽  
Keyword(s):  
Moral Obligation ◽  
Driving Factors ◽  
Chinese Characters ◽  
Spiritual Values ◽  
Conceptual Apparatus ◽  
Hieroglyphic Writing ◽  
The Aesthetic ◽  
The Relationship ◽  
Aesthetic Ideal

Makoto (まこと, lit.: truth, genuineness, reality, “realness”) is an element of the conceptual apparatus of the traditional worldview of the Japanese. In Japan, it is generally accepted that makoto is a philosophical and aesthetic concept that underlies Japanese spirituality, involving among other principles understanding of the order and laws of the truly existing Universum (shinrabansho̅; 森羅万象) and the universal interconnectedness of things (bambutsu ittai; 万物一体), the desire to understand the true essence of everything that person meets in life, and, unlike other spiritual values, is purely Shinto in origin. After getting acquainted with the Chinese hieroglyphic writing three Chinese characters were borrowed for the word makoto. Each of these characters means truthfulness, genuineness, but has its own distinctive nuances: 真 means truth, authenticity, truthfulness, 実 signifies truth, reality, essence, content, and 誠 again means truthfulness, sincerity, and truth. Makoto (“true words”) and makoto (“true deeds”) imply the highest degree of sincerity of words and honesty, correctness of thoughts, actions, and deeds. The relationship “true words — true deeds” can be seen as one of the driving factors of moral obligation, prompting everyone in their field, as well as in relations between people, to strive to be real. This desire contributed to the formation of a heightened sense of duty and responsibility among the Japanese, which became a hallmark of their character. However, makoto has not only ethical connotation, but aesthetic one as well, and can be considered as the basis on which were formed the concept of mono no aware (もののあ われ、 物の哀れ) and the aesthetic ideal of the same name, that became the first link in the chain of japanese perceptions of beauty. Each link in this chain is an expression of a new facet of makoto, which was revealed as a result of certain elements of the worldview that came to the fore in the historical era.

Anti-Politics, Depoliticization, and Governance

2017 ◽  
Keyword(s):  
Case Studies ◽  
Political Process ◽  
Common Interest ◽  
Collective Agency ◽  
Nation State ◽  
Growing Body ◽  
Varied Range ◽  
The Relationship

There is a growing body of evidence pointing towards rising levels of public dissatisfaction with the formal political process. Depoliticization refers to a more discrete range of contemporary strategies politicians employ that tend to remove or displace the potential for choice, collective agency, and deliberation. This book examines the relationship between these trends of dissatisfaction and displacement, as understood within the broader shift towards governance. It brings together a number of contributions from scholars who have a varied range of concerns but who nevertheless share a common interest in developing the concept of depoliticization through their engagement with a set of theoretical, conceptual, methodological, and empirical questions. The contributions in this volume explore these questions from a variety of different perspectives by using a number of different empirical examples and case studies from both within the nation state and from other regional, global, and multilevel arenas. In this context, this volume examines the limits and potential of depoliticization as a concept and its contribution to the larger and more established literatures on governance and anti-politics.

Humanism and Music

2020 ◽  
Author(s):  
Christopher M. Driscoll
Keyword(s):  
Artificial Intelligence ◽  
Popular Culture ◽  
Popular Music ◽  
Case Studies ◽  
Contemporary Music ◽  
Theoretical Relationship ◽  
Rock Band ◽  
Historical Developments ◽  
The Relationship

This chapter explores the relationship between humanism and music, giving attention to important theoretical and historical developments, before focusing on four brief case studies rooted in popular culture. The first turns to rock band Modest Mouse as an example of music as a space of humanist expression. Next, the chapter explores Austin-based Rock band Quiet Company and Westcoast rapper Ras Kass and their use of music to critique religion. Last, the chapter discusses contemporary popular music created by artificial intelligence and considers what non-human production of music suggests about the category of the human and, resultantly, humanism. These case studies give attention to the historical and theoretical relationship between humanism and music, and they offer examples of that relationship as it plays out in contemporary music.

Fixing Improvisation

2014 ◽  
Author(s):  
Anthea Kraut
Keyword(s):  
Twentieth Century ◽  
African American ◽  
Intellectual Property ◽  
Case Studies ◽  
Copyright Law ◽  
Property Law ◽  
Intellectual Property Law ◽  
Tap Dance ◽  
American Vernacular ◽  
The Relationship

This chapter juxtaposes brief case studies of African American vernacular dancers from the first half of the twentieth century in order to reexamine the relationship between the ideology of intellectual property law and the traditions of jazz and tap dance, which rely heavily on improvisation. The examples of the blackface performer Johnny Hudgins, who claimed a copyright in his pantomime routine in the 1920s, and of Fred and Sledge, the class-act dance duo featured in the hit 1948 musical Kiss Me, Kate, whose choreography was copyrighted by the white modern dancer Hanya Holm, prompt a rethinking of the assumed opposition between the originality and fixity requirements of copyright law and the improvisatory ethos of jazz and tap dance. Ultimately, the chapter argues that whether claiming or disavowing uniqueness, embracing or resisting documentation, African American vernacular dancers were both advantaged and hampered by copyright law.

scholarly journals Do Spousal Intimate Relationships Affect Fertility Intentions and Preferences?

2021 ◽  
pp. 0192513X2110160
Author(s):  
Amir Erfani ◽  
Roya Jahanbakhsh
Keyword(s):  
Intimate Relationships ◽  
Mate Selection ◽  
Risk Profile ◽  
Fertility Intentions ◽  
Low Fertility ◽  
Social Forces ◽  
Number Of Children ◽  
Ideal Number ◽  
Using Data ◽  
The Relationship

The fertility influence of spousal intimate relationships is unknown. Drawing on the Giddens’s theory of transformation of intimacy, this study proposed a hypothesis that couples supporting egalitarian intimate relationships, with a greater risk profile attached to the relationship, and having less attachments to the external normative pressures shaping marital relations, are more likely to have low-fertility intentions and preferences. Using data from a self-administered pilot survey ( n = 375 prospective grooms and brides) designed by the authors, and employing multivariate regression models, we found that the lower attachment to external social forces in mate selection was associated with the lower ideal number of children, and those with a greater spousal relational egalitarianism and a higher risk profile attached to their relationships preferred lower number of children and were less likely to intend to have children after marriage. The study sheds new light on the determinants of low fertility.

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