scholarly journals Den familiære relasjonens betydning for pårørendes behov i møte med helsetjenesten

2015 ◽  
Vol 10 (2) ◽  
pp. 62 ◽  
Author(s):  
Helene Hanssen ◽  
Rita Sommerseth

<p>The Significance of Family relations to Informal Carers’ Needs in interaction with Health Services</p><p>This article is based on a study aiming to explore informal carers’ needs and experiences in their contact with health services. The study was accomplished in 2011 and consisted of two sub-studies: a survey addressing informal carers in general and a focus-group study, where the participants were informal carers to one or more family members. In this article, the qualitative data from both studies are emphasised: the open written statements in the questionnaires and the focus-group interviews. The results show a similarity in informal carers’ needs and experiences independent of the patients’ diagnoses. However, we find that the needs are related to the family relation between the informal carer and patient. Particularly, there is a difference between the needs of those who are informal carers to their partner and those who care for their own parent(s) or grown children. The value of informal carers’ support also is clearly pointed out in the results. Our findings highlight the importance of professional health workers paying attention to both the informal carer and the patient, individually as well as relationally.</p>

2015 ◽  
Vol 117 (3) ◽  
pp. 1122-1135 ◽  
Author(s):  
Fredrik Fernqvist ◽  
Annika Olsson ◽  
Sara Spendrup

Purpose – The purpose of this paper is to explore consumer views on different aspects of packaging, exemplified by a common product in the fruit and vegetable category and to identify advantages and disadvantages perceived by consumers purchasing packaged or unpackaged products. Design/methodology/approach – Three focus group interviews were conducted. Thematic analysis based on theory was performed. The findings were categorised into nine themes. Findings – Consumer views on packaging aspects were revealed, covering: packaging material; pack size; protection and preservation; convenience; price; communication and information; ethical perspectives; novelty and innovation; and advantages and disadvantages of packaged and unpackaged products. Research limitations/implications – The study adds to present knowledge on the role of packaging in consumers’ food choices. The qualitative analysis identified areas for further research through quantitative methods. Practical implications – Challenges in communicating the consumer benefits of packaging and ways to improve the attractiveness of items in the fresh produce category were identified. The results can potentially assist in improving food packaging design practice to the mutual benefit of consumers and suppliers. Originality/value – Fruit and vegetables is generally a category with weak branding and low levels of packaging. This study examined the role of packaging in a category with substantial opportunities for differentiation and increasing consumer value. The results can be applied in immediate practice and/or serve as a basis for further research.


2017 ◽  
Vol 47 (1) ◽  
pp. 70-77 ◽  
Author(s):  
Aase Aamland ◽  
Irene Øyeflaten ◽  
Silje Maeland

Background: Norwegian politicians have proposed the use of an independent medical evaluation (IME) as a possible solution for reducing long-term sick leave. The use of an IME implies that a new doctor interferes in the relationship between sick-listed workers and their general practitioner (GP). The aim of the current study was to explore experiences of IME doctors from an ongoing randomized controlled trial (the NIME trial evaluating the effect of IME in Norway). Methods: Two focus group interviews were conducted with eight of the nine IME doctors employed in the NIME trial. The discussions were audio-taped and transcribed. Systematic text condensation was used for analysis. Results: The participants reported that the IME provides important second opinions, which they felt empowered the sick-listed workers and provided new insights into their condition. Beneficial IME working conditions and enhanced insight into different sick leave measures were crucial to this perceived usefulness. Some of the participants expressed disappointment with GPs acting as passive conductors and struggled to provide feedback politely. Some adjustments were proposed as necessary for the IME to be implemented nationwide. Conclusions: The participants seemed to have gained a different stakeholder identity by sometimes seeing GPs, their peers, as obstacles to return to work and welcomed the use of IME on a regular basis.


Author(s):  
Mads P. Sørensen ◽  
Tine Ravn ◽  
Ana Marušić ◽  
Andrea Reyes Elizondo ◽  
Panagiotis Kavouras ◽  
...  

AbstractThe widespread problems with scientific fraud, questionable research practices, and the reliability of scientific results have led to an increased focus on research integrity (RI). International organisations and networks have been established, declarations have been issued, and codes of conducts have been formed. The abstract principles of these documents are now also being translated into concrete topic areas that Research Performing organisations (RPOs) and Research Funding organisations (RFOs) should focus on. However, so far, we know very little about disciplinary differences in the need for RI support from RPOs and RFOs. The paper attempts to fill this knowledge gap. It reports on a comprehensive focus group study with 30 focus group interviews carried out in eight different countries across Europe focusing on the following research question: “Which RI topics would researchers and stakeholders from the four main areas of research (humanities, social science, natural science incl. technical science, and medical science incl. biomedicine) prioritise for RPOs and RFOs?” The paper reports on the results of these focus group interviews and gives an overview of the priorities of the four main areas of research. The paper ends with six policy recommendations and a reflection on how the results of the study can be used in RPOs and RFOs.


2020 ◽  
Vol 26 (6) ◽  
pp. 3017-3036
Author(s):  
Tamarinde Haven ◽  
H. Roeline Pasman ◽  
Guy Widdershoven ◽  
Lex Bouter ◽  
Joeri Tijdink

AbstractThe research climate plays a key role in fostering integrity in research. However, little is known about what constitutes a responsible research climate. We investigated academic researchers’ perceptions on this through focus group interviews. We recruited researchers from the Vrije Universiteit Amsterdam and the Amsterdam University Medical Center to participate in focus group discussions that consisted of researchers from similar academic ranks and disciplinary fields. We asked participants to reflect on the characteristics of a responsible research climate, the barriers they perceived and which interventions they thought fruitful to improve the research climate. Discussions were recorded and transcribed at verbatim. We used inductive content analysis to analyse the focus group transcripts. We conducted 12 focus groups with 61 researchers in total. We identified fair evaluation, openness, sufficient time, integrity, trust and freedom to be mentioned as important characteristics of a responsible research climate. Main perceived barriers were lack of support, unfair evaluation policies, normalization of overwork and insufficient supervision of early career researchers. Possible interventions suggested by the participants centered around improving support, discussing expectations and improving the quality of supervision. Some of the elements of a responsible research climate identified by participants are reflected in national and international codes of conduct, such as trust and openness. Although it may seem hard to change the research climate, we believe that the realisation that the research climate is suboptimal should provide the impetus for change informed by researchers’ experiences and opinions.


2006 ◽  
Vol 12 (3) ◽  
pp. 94 ◽  
Author(s):  
Anne E Johnson ◽  
Barbara Beacham ◽  
Cecilia Moretti ◽  
John Wishart

Community and consumer participation is strongly advocated as a way to help shape health systems and health services to become more inclusive, accountable, responsive to community and consumer needs, and to improve health outcomes. Involving consumer representatives on committees is one partnership-style method of bringing a consumer perspective into health system and health services decision-making processes. Many consumer organisations are invited to provide consumer representatives to be members of committees. A study was conducted to identify the concerns of health consumers when they are required to take on the role of being a consumer representative on committees. Focus group interviews were conducted using a series of scenarios and questions as a discussion guide. Forty-eight participants were involved in eight focus group interviews in metropolitan and regional South Australia. General concerns covering seven key areas emerged, as well as more specific concerns relating to particular roles representatives may be required to undertake. This study highlighted particular areas of concern for consumer representatives that can be utilised in developing supports to increase consumers' effectiveness, capacity and confidence to fulfil the representative role. It also highlighted that the capacity building process for consumer participation needs to be a joint partnership between the health sector and consumer organisations, rather than be seen as solely the responsibility of individual consumer representatives.


Author(s):  
John Aspler

In this chapter, the author reflects on challenges associated with conducting focus group interviews with adults with fetal alcohol spectrum disorder (FASD)—a complex neurodevelopmental disability caused by alcohol exposure in utero. Given the heterogeneity of this diagnosis, people with FASD have different strengths and weaknesses. Therefore, for effective and ethical research inclusion, each person with FASD may need unique accommodations, which can help to both minimize concerns about unjust research exclusion and mitigate sources of vulnerability. To explore these issues, the author describes the focus group study, presents anticipated risks and challenges, explores critical stakeholder feedback, and addresses ethical tensions arising from the resulting protocol adjustments. This chapter demonstrates the importance of researchers remaining open to criticism and being willing to work through their moral discomfort.


BMJ Open ◽  
2020 ◽  
Vol 10 (11) ◽  
pp. e041997
Author(s):  
Gunnar Husabø ◽  
Inger Lise Teig ◽  
Jan C Frich ◽  
Gunnar Tschudi Bondevik ◽  
Einar Hovlid

ObjectiveInspections and other forms of external assessment may contribute to positive changes in the health services, but the mechanisms of such change remain unclear. We did a study to explore how external inspections may foster clinical improvement in hospitals.DesignFocus group study.SettingStatutory inspections of sepsis treatment in hospital emergency departments in Norway.ParticipantsClinicians, managers and inspection teams involved with the inspections of sepsis treatment in emergency departments at four different hospitals. Twelve focus group interviews were carried out, with a total of 47 participants.ResultsThree themes emerged as central for understanding how the inspections could contribute to clinical improvement in the emergency departments: (1) increasing awareness about the need to improve the quality of care by providing data on clinical performance, (2) building acceptance for improvement through professional credibility and focus on clinical practice, and (3) fostering leadership commitment.ConclusionOur findings suggest that the inspections have the potential to enhance hospital management and staff’s understanding of complicated care processes and help strengthen the organisational commitment to bring about systemic quality improvements.


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