scholarly journals Kan tjenestedesign bidra til økt medvirkning og involvering for pasienter og brukere på individnivå i helse- og omsorgstjenestene?

2021 ◽  
Vol 17 (1) ◽  
Author(s):  
Trude Fløystad Eines ◽  
Ingunn Pernille Mundal ◽  
Cecilie Katrine Utheim Grønvik
Keyword(s):  
Health Care ◽  
Professional Practice ◽  
Health Care Services ◽  
Healthcare Professionals ◽  
User Involvement ◽  
Service Design ◽  
User Participation ◽  
Patients Rights ◽  
Care Services ◽  
Paternalistic Approach

Pasient – og brukermedvirkning er en lovfestet rettighet som skal sikre pasienter og brukere økt innflytelse i helse og omsorgstjenesten. Forskning viser imidlertid at helsepersonell anvender en paternalistisk tilnærming i sin yrkesutøvelse, noe som truer pasienters rettigheter. Helsepersonell anbefales derfor å ta i bruk tjenestedesign som metodikk for å øke den reelle medvirkningen og involveringen av pasienter og brukere. Formålet med økt bruker- og pasientmedvirkning og involvering er å utvikle tjenester av høy kvalitet med utgangspunkt i brukernes behov. Behovsdrevne tjenester vil oppleves som nyttige og meningsfulle for brukerne. Det er derfor viktig at helsepersonell forstår verdien av brukermedvirkning i kvalitetsarbeid og tilegner seg kunnskap om tjenestedesign. Can service design promote expanding user participation and user involvement in health care services? Patient- and user participation is a legislative right intending to ensure service users involvement in health care services. However, research shows that healthcare professionals employ a paternalistic approach in their professional practice, which may threaten patients' rights. Healthcare professionals are recommended to use service design as a methodology to increase the genuine user participation and user involvement, aiming to develop high-quality services based on users' needs. Demand-driven services may be perceived as beneficial and meaningful for the patients. Therefore, the health professionals’ knowledge and comprehension of the value of user participation and service design are of importance.

Forwards or Backwards? New Directions in Danish Patients’ Rights Legislation

2011 ◽  
Vol 18 (4) ◽  
pp. 365-374
Author(s):  
Mette Hartlev
Keyword(s):  
Health Care ◽  
Health Care Services ◽  
Health Care Professions ◽  
Patients Rights ◽  
Care Services ◽  
New Directions ◽  
Recent Developments ◽  
Legislative Activity

AbstractThe Danish Patients’ Rights Act from 1998 was the first comprehensive piece of legislation addressing the basic legal values and principles governing the relation between patient and the health care services. Since the adoption of the Act there has been continuous legislative activity in the field, and the objective of the article is to discuss how recent developments in Danish patients’ rights legislation shall be interpreted in terms of balancing interests of patients towards interests of society and the health care professions.

scholarly journals Professionals’ views on children’s service user involvement

2021 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Johanna Kiili ◽  
Maritta Itäpuisto ◽  
Johanna Moilanen ◽  
Anu-Riina Svenlin ◽  
Kaisa Eveliina Malinen
Keyword(s):  
Health Care ◽  
Health Care Professionals ◽  
Service User ◽  
Health Care Services ◽  
User Involvement ◽  
Intergenerational Relations ◽  
Service Development ◽  
Service User Involvement ◽  
Content Type ◽  
Care Services

Purpose Children are gradually attaining recognition as service users and their involvement in service development has been advanced in recent years. This study draws on empirical research in social and health-care services designed for children and families. The purpose of this paper is to analyse how professionals understand children’s involvement as experts by experience. The focus is on professionals’ views and intergenerational relations. Design/methodology/approach The research data comprise 25 individual and 10 group interviews with managers and professionals working in social and health-care services in one Finnish province. The data were analysed using qualitative thematic analysis. Findings The professionals recognised the value of children’s service user involvement. However, they concentrated more on the challenges than the possibilities it presents. Health-care professionals emphasised parental needs and children’s vulnerability. In turn, the professionals from social services and child welfare non-governmental organisations perceived children as partners, although with reservations, as they discussed ethical issues widely and foregrounded the responsibilities of adults in protecting children. In general, the professionals in both domains saw themselves as having ethical responsibility to support children’s service user involvement while at the same time setting limits to it. Originality/value This study confirmed the importance of taking intergenerational relations into account when developing children’s service user involvement. The results indicate that professionals also need to reflect on the ethical challenges with children themselves as, largely owing to the generational position of children as minors, they rarely perceive them as partners in ethical reflection.

Development of Patients' Rights Legislation

1999 ◽  
Vol 6 (1) ◽  
pp. 71-81
Author(s):  
◽  
Keyword(s):  
Health Care ◽  
Health Care Reform ◽  
Health Care Services ◽  
Major Step ◽  
Patients Rights ◽  
Care Services ◽  
Reform Legislation ◽  
Practice Of Medicine ◽  
Hospital Patients

AbstractIn the period up to 1992, patients' rights in Greece were indirectly addressed through relevant provisions in Civil, Penal, Administrative and Disciplinary Law, as well as in the Code on the Practice of Medicine and the Regulation of Medical Deontology. In 1992, broader health care reform legislation contained provisions directly addressing the rights of hospital patients. In 1997, again as part of broader health care reform legislation, further provisions extended the rights of patients granted in 1992 to the entire population, and in addition provided for the implementation of the legislative provisions. The immediate implementation of the patients' rights provisions of the 1997 legislation represents a major step forward with respect to improving the quality of health care services provided.

scholarly journals Needs-Led Research: A Way of Employing User Involvement in Establishing Research Questions on the Trust Model Within Community Home-Based Health Care Services in Norway

2020 ◽  
Author(s):  
Ruth-Ellen Slåtsveen ◽  
Torunn Wibe ◽  
Liv Halvorsrud ◽  
Anne Lund
Keyword(s):  
Health Care ◽  
Health Care Services ◽  
Online Survey ◽  
User Involvement ◽  
Trust Model ◽  
Service Users ◽  
Next Of Kin ◽  
Care Services ◽  
Home Based ◽  
Research Questions

Abstract Background This article presents a user involvement process in Norway regarding the performance of the trust model within community home-based health care services. The process, referred to as needs-led research (NLR), is inspired by the James Lind Alliance (JLA) and focuses on bringing together service users, next of kin and clinicians, also referred to as stakeholders, on equal terms to explore research priorities in a priority-setting partnership.Method The following five-step process was followed, in which representatives from service users, next of kin and clinicians were involved in every step. Step 1: A meeting organised in the form of a workshop with service users, next of kin and clinicians to discuss and narrow the scope. Step 2: Steering group meeting. Step 3: Online survey to identify uncertainties regarding the scope. Step 4: Data review and interim prioritisation of research questions. Step 5: Online survey prioritising the final top 10 research questions.Results Almost 200 participants contributed during the five steps, 294 submissions were gathered, and 35 participants voted for the top 10 list. ConclusionThis NLR process was experienced as feasible, and the user involvement shows that it is appropriate and necessary to involve service users, next of kin and clinicians in creating research questions that are relevant to the field.

scholarly journals Access to Health Care Services by Individuals Who Are Deaf or Hard of Hearing (Dhh) in Botswana: Francistown and Tati

2020 ◽  
Author(s):  
Gorgeous Sarah Chinkonono ◽  
Vivian Namuli ◽  
Catherine Atuhaire ◽  
Hamida Massaquoi ◽  
Sourav Mukhopadhyay ◽  
...  
Keyword(s):  
Health Care ◽  
Hard Of Hearing ◽  
Access To Health Care ◽  
Health Care Services ◽  
Healthcare Professionals ◽  
Healthcare Services ◽  
Structured Interview ◽  
Care Services ◽  
Main Challenge ◽  
The Impact

Abstract Background: Individuals who are Deaf or hard of hearing (DHH) face a lot of challenges when accessing health care services. The main barrier that they face is communication. Despite this, not much research had been carried out in Africa to understand how individuals who are DHH access healthcare services. This study sought to explore experiences of individuals who are DHH in Botswana when accessing healthcare services to propose recommendations towards improving their situation.Methods: This is a qualitative research study using phenomenological approach. Participants were observed at one point in time. Face-to-face in-depth interviews were conducted with 22 DHH individuals living in Francistown and Tati, using a semi-structured interview guide and an interpreter. Participants age range was between 18years to 40years. Purposive sampling and snowballing sampling techniques were used to select the participants.Results: The main challenge that individuals who are DHH in Botswana face is communication barrier which has culminated in their reception of poor healthcare services as the healthcare professionals fail to effectively attain to their health needs. This is evident through wrong prescriptions and treatment; poor counselling services, lack of confidentiality; poor maternal health services especially during child delivery; and limited health information. However, individuals who are DHH in Botswana continues to utilise healthcare services.Conclusion: Poor communication between healthcare professionals and individuals who are DHH act as an impediment to acquiring proper healthcare services by individuals who are DHH. This can lead to poor health outcomes for the DHH population as they are not well informed about health issues that they are at risk of and at times do not know where to seek specific healthcare services pertaining to the health problems they are experiencing. Therefore, there is a need to provide sign language interpreters in the healthcare centres to reduce the impact of this problem.

Your Morality, My Mortality

2015 ◽  
Vol 24 (2) ◽  
pp. 214-230 ◽  
Author(s):  
BEN A. RICH
Keyword(s):  
Health Care ◽  
Advance Directives ◽  
Medical Staff ◽  
Health Care Services ◽  
Healthcare Professionals ◽  
Professional Standards ◽  
Care Services ◽  
Exponential Increase ◽  
Patient Morbidity ◽  
Patients Experience

Abstract:Recently the scope of protections afforded those healthcare professionals and institutions that refuse to provide certain interventions on the grounds of conscience have expanded, in some instances insulating providers (institutional and individual) from any liability or sanction for harms that patients experience as a result. With the exponential increase in the penetration of Catholic-affiliated healthcare across the country, physicians and nurses who are not practicing Catholics are nevertheless required to execute documents pledging to conform their patient care to the Ethical and Religious Directives for Health Care Services as a condition of employment or medical staff privileges. In some instances, doing so may result in patient morbidity or mortality or violate professional standards for respecting advance directives or surrogate decisionmaking. This article challenges the ethical propriety of such institutional mandates and argues that legal protections for conscientious refusal must provide redress for patients who are harmed by care that falls below the prevailing clinical standards.

scholarly journals Caregivers’ interactions with health care services – Mediator of stress or added strain? Experiences and perceptions of informal caregivers of people with dementia – A qualitative study

Dementia ◽  
2018 ◽  
Vol 18 (7-8) ◽  
pp. 2526-2542 ◽  
Author(s):  
Despina Laparidou ◽  
Jo Middlemass ◽  
Terence Karran ◽  
A Niroshan Siriwardena
Keyword(s):  
Health Care ◽  
Health Care Services ◽  
Process Model ◽  
Healthcare Professionals ◽  
Informal Caregivers ◽  
Well Being ◽  
Care Recipient ◽  
Stress Process ◽  
Care Services ◽  
People With Dementia

Background There are an estimated 46.8 million people worldwide living with dementia in 2015, being cared for usually by family members or friends (informal caregivers). The challenges faced by informal caregivers often lead to increased levels of stress, burden and risk of care-recipient institutionalisation. Aim The overarching aim of this study was to explore the experiences and perceptions of informal caregivers of people with dementia when interacting with the health care system, and whether the support received acted as a mediator of caregiver stress. The secondary aim was to investigate healthcare professionals’ views and current practice regarding people with dementia and their interactions with informal caregivers. Method We employed a qualitative research design, using focus groups and one face-to-face interview with a purposive sample of informal caregivers and healthcare professionals in Lincolnshire, UK. Data were collected between March and July 2015. We used the stress-process model of stress in caregivers as a theoretical framework. Results We interviewed 18 caregivers and 17 healthcare professionals. Five themes, mapped to the stress-process in caregivers’ model, captured the main challenges faced by caregivers and the type of support they wanted from health care services. Primary stressors included the challenge of diagnosing dementia; caregivers’ needs and expectations of an in-depth knowledge and understanding of dementia from healthcare professionals; and need for carer education. Secondary role strain included lack of support and mismatch of communication and expectations. Caregiver involvement in monitoring care and disease was a potential mediator tool. Conclusions Fragmentation of dementia care services, lack of training for healthcare professionals and the dearth of information for caregivers means health care services are only partially fulfilling a support role. In turn, lack of support may be intensifying caregiver stress leading to worsening in their health and well-being; thus, potentially increasing the risk of institutionalisation of their care-recipient.

scholarly journals Needs-led research: a way of employing user involvement when devising research questions on the trust model in community home-based health care services in Norway

2021 ◽  
Vol 7 (1) ◽  
Author(s):  
Ruth-Ellen Slåtsveen ◽  
Torunn Wibe ◽  
Liv Halvorsrud ◽  
Anne Lund
Keyword(s):  
Health Care ◽  
Health Care Services ◽  
User Involvement ◽  
Trust Model ◽  
Small Scale ◽  
Service Users ◽  
Next Of Kin ◽  
Care Services ◽  
Home Based ◽  
Research Questions

Abstract Background This paper presents a user involvement process, called needs-led research, conducted as a part of a doctoral degree project aiming to explore research priorities and, ultimately, to develop a final top 10 list of questions relevant to the field of research. There is evidence of a mismatch between what user groups within a research field find relevant to study and what is actually being done. User involvement is a method that can accommodate this, and there is a growing attention and amount of research in this field based on an understanding that people who receive health care services, and their next of kin and clinicians, are uniquely positioned to contribute to research in order to understand their experiences better and improve the services. This paper presents a user involvement process in a small-scale study, referred to as needs-led research, which concerns the ‘performance of the trust model in community home-based health care services’. The process was conducted as part of a doctoral degree project. Method The needs-led research process is inspired by the James Lind Alliance (JLA), which focuses on bringing together service users, next of kin and clinicians on equal terms to explore research priorities. The process consisted of five-steps, each of which involved representatives from service users, next of kin and clinicians: 1) narrowing down the theme; 2) steering group meeting; 3) gathering input through a survey; 4) data processing and interim priority setting; and 5) final priority setting. Results Almost 200 participants contributed during the five steps, 294 inputs were gathered, and 35 participants voted for the top 10 list. The top 10 list is presented. Conclusion This paper provides an example of how user involvement can be employed to devise research questions that are relevant for clinicians, service users, next of kin and service providers concerning the ‘performance of the trust model in home-based health care’. It also outlines some strengths and limitations of the process. The needs-led research process shows that user involvement in research is feasible for developing research questions in small-scale studies. We hope that the top 10 list presented will encourage future research to address issues of importance regarding the performance of the trust model in community home-based health care services.

scholarly journals “We belong to nature”: Communicating mental health in an indigenous context

2020 ◽  
pp. 147332502093237
Author(s):  
Rita Sørly ◽  
Vår Mathisen and ◽  
Siv Kvernmo
Keyword(s):  
Mental Health ◽  
Health Care ◽  
Mental Health Care ◽  
Health Care Services ◽  
User Involvement ◽  
Raising Children ◽  
Care Services ◽  
Culturally Adapted ◽  
Majority Population ◽  
The Right

The approach to standardized services in Norwegian mental health care is tailored to the needs of the majority population, focusing on diagnoses and overshadows an approach that understands, values and emphasizes Sámi storytelling and everyday life. This study aims to contribute knowledge regarding the promotion of user involvement in mental health care from the perspectives of Sámi mental health care users. A narrative approach offers an opportunity to unravel an indigenous approach to mental health care and user involvement. People organize their storytelling according to culturally available narratives. This paper focuses on 9 Sámi men’s and women’s stories related to user involvement in mental health care services. Through a thematic analysis of personal stories, we emphasize how the participants make sense of their needs as patients in a culturally adapted mental health context and their experiences living in Sámi core areas. The following four themes are identified as prerequisites for user involvement in services: (1) the expectation of raising children to be independent, (2) the importance of accepting and recognizing the Sámi identity, (3) the need to live in close relations with nature and family, and 4) the right to be in the Sámi mode. Based on the results of our analysis, we find that user involvement among Sámi mental health care users is related to important Sámi values and norms within the culture and that treatment without these important values ​​could adversely affect user involvement in mental health services.

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