scholarly journals Needs-Led Research: A Way of Employing User Involvement in Establishing Research Questions on the Trust Model Within Community Home-Based Health Care Services in Norway

2020 ◽  
Author(s):  
Ruth-Ellen Slåtsveen ◽  
Torunn Wibe ◽  
Liv Halvorsrud ◽  
Anne Lund

Abstract Background This article presents a user involvement process in Norway regarding the performance of the trust model within community home-based health care services. The process, referred to as needs-led research (NLR), is inspired by the James Lind Alliance (JLA) and focuses on bringing together service users, next of kin and clinicians, also referred to as stakeholders, on equal terms to explore research priorities in a priority-setting partnership.Method The following five-step process was followed, in which representatives from service users, next of kin and clinicians were involved in every step. Step 1: A meeting organised in the form of a workshop with service users, next of kin and clinicians to discuss and narrow the scope. Step 2: Steering group meeting. Step 3: Online survey to identify uncertainties regarding the scope. Step 4: Data review and interim prioritisation of research questions. Step 5: Online survey prioritising the final top 10 research questions.Results Almost 200 participants contributed during the five steps, 294 submissions were gathered, and 35 participants voted for the top 10 list. ConclusionThis NLR process was experienced as feasible, and the user involvement shows that it is appropriate and necessary to involve service users, next of kin and clinicians in creating research questions that are relevant to the field.

2021 ◽  
Vol 7 (1) ◽  
Author(s):  
Ruth-Ellen Slåtsveen ◽  
Torunn Wibe ◽  
Liv Halvorsrud ◽  
Anne Lund

Abstract Background This paper presents a user involvement process, called needs-led research, conducted as a part of a doctoral degree project aiming to explore research priorities and, ultimately, to develop a final top 10 list of questions relevant to the field of research. There is evidence of a mismatch between what user groups within a research field find relevant to study and what is actually being done. User involvement is a method that can accommodate this, and there is a growing attention and amount of research in this field based on an understanding that people who receive health care services, and their next of kin and clinicians, are uniquely positioned to contribute to research in order to understand their experiences better and improve the services. This paper presents a user involvement process in a small-scale study, referred to as needs-led research, which concerns the ‘performance of the trust model in community home-based health care services’. The process was conducted as part of a doctoral degree project. Method The needs-led research process is inspired by the James Lind Alliance (JLA), which focuses on bringing together service users, next of kin and clinicians on equal terms to explore research priorities. The process consisted of five-steps, each of which involved representatives from service users, next of kin and clinicians: 1) narrowing down the theme; 2) steering group meeting; 3) gathering input through a survey; 4) data processing and interim priority setting; and 5) final priority setting. Results Almost 200 participants contributed during the five steps, 294 inputs were gathered, and 35 participants voted for the top 10 list. The top 10 list is presented. Conclusion This paper provides an example of how user involvement can be employed to devise research questions that are relevant for clinicians, service users, next of kin and service providers concerning the ‘performance of the trust model in home-based health care’. It also outlines some strengths and limitations of the process. The needs-led research process shows that user involvement in research is feasible for developing research questions in small-scale studies. We hope that the top 10 list presented will encourage future research to address issues of importance regarding the performance of the trust model in community home-based health care services.


PLoS ONE ◽  
2021 ◽  
Vol 16 (9) ◽  
pp. e0257348
Author(s):  
Vivian Naidoo ◽  
Fatima Suleman ◽  
Varsha Bangalee

Background The implementation of Universal Health Coverage in SA has sought to focus on promoting affordable health care services that are accessible to all citizens. In this regard, pharmacists are expected to play a pivotal function in the revitalization of primary health care (PHC) during this transition by the expansion of their practice roles. Objectives To assess the readiness and perceptions of pharmacists to expand their roles in an integrated health care system. To determine the availability and pricing of primary health care services currently provided within a community pharmacy environment and to evaluate suitable reimbursement for the provision of such services by a community pharmacist. Methods Community pharmacists’ across SA were invited to participate in an online survey-based study. The survey consisted of both open- and closed-ended questions. Descriptive statistics for closed-ended questions were generated and analysed using Microsoft Excel® and Survey Monkey®. Responses for the open-ended questions were transcribed, analysed, and reported as emerging themes. Results Six hundred and sixty-four pharmacists’ responded to the online survey. Seventy-five percent of pharmacists’ reported that with appropriate training, a transition into a more patient-centered role might be beneficial in the re-engineering of the PHC system. However, in order to adopt these new roles, appropriate reimbursement structures are required. The current fee levied by pharmacists in community pharmacies that offered these PHC services was found to be lower to that recommended by the South African Pharmacy Council; this disparity is primarily due to a lack of information and policy standardisation. Therefore, in order to ensure that fees levied are fair, comprehensive service package guidelines are required. Conclusions This study provides baseline data for policy makers on pharmacists’ readiness to transition into expanded roles. Furthermore, it can be used as a foundation to establish appropriate reimbursement frameworks for pharmacists providing PHC services.


2021 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Johanna Kiili ◽  
Maritta Itäpuisto ◽  
Johanna Moilanen ◽  
Anu-Riina Svenlin ◽  
Kaisa Eveliina Malinen

Purpose Children are gradually attaining recognition as service users and their involvement in service development has been advanced in recent years. This study draws on empirical research in social and health-care services designed for children and families. The purpose of this paper is to analyse how professionals understand children’s involvement as experts by experience. The focus is on professionals’ views and intergenerational relations. Design/methodology/approach The research data comprise 25 individual and 10 group interviews with managers and professionals working in social and health-care services in one Finnish province. The data were analysed using qualitative thematic analysis. Findings The professionals recognised the value of children’s service user involvement. However, they concentrated more on the challenges than the possibilities it presents. Health-care professionals emphasised parental needs and children’s vulnerability. In turn, the professionals from social services and child welfare non-governmental organisations perceived children as partners, although with reservations, as they discussed ethical issues widely and foregrounded the responsibilities of adults in protecting children. In general, the professionals in both domains saw themselves as having ethical responsibility to support children’s service user involvement while at the same time setting limits to it. Originality/value This study confirmed the importance of taking intergenerational relations into account when developing children’s service user involvement. The results indicate that professionals also need to reflect on the ethical challenges with children themselves as, largely owing to the generational position of children as minors, they rarely perceive them as partners in ethical reflection.


Healthcare ◽  
2020 ◽  
Vol 8 (3) ◽  
pp. 240
Author(s):  
Agneta Malmgren Fänge ◽  
Björg Thordardottir ◽  
Metuge Ankhesnamon Ya-Nyonge ◽  
Connie Lethin

Informal caregivers have a leading role when implementing health care services for people with cognitive disorders living at home. This study aims to examine the current evidence for interventions with dual satisfaction with health care services for people with cognitive disorders and their caregivers. Original papers with quantitative and mixed method designs were extracted from two databases, covering years 2009–2018. Thirty-five original papers reported on satisfaction with health care services. The International Classification of Health Interventions (ICHI) was used to classify the interventions. Most interventions had a home-based approach (80%). Reduction in caregiver depression was the outcome measure with the highest level of satisfaction. Interventions to reduce depression or increase cognitive performance in persons with cognitive disorders gave the least satisfaction. Satisfaction of both caregivers and persons with cognitive disorders increased their use of services. In the ICHI, nearly 50% of the interventions were classified as activities and participation. A limited number of interventions have a positive effect on satisfaction of both the persons with cognitive disorders and the caregiver. It is important to focus on interventions that will benefit both simultaneously. More research is needed with a clear definition of satisfaction and the use of the ICHI guidelines.


2021 ◽  
Vol 31 (Supplement_2) ◽  
Author(s):  
Alexandre Cavaleiro ◽  
Joel Marouvo ◽  
Marina Saraiva ◽  
António Brito ◽  
Maria Castro

Abstract Background With the COVID-19 pandemic, the lack of information about this new virus, and its high transmissibility in humans, quarantine was declared to avoid spread. During early times of confinement, several health services closed or limited the patients' access. This study aims to analyze the impact of the first quarantine in health care services on the Portuguese population. Methods An online survey, approved by the IPC ethics committee, inquired about the health care services people attended before and during the quarantine period. 536 Portuguese with mean age 42.2 years (14.8) full-field the survey. The responses were gathered from the 18th of March till the 30th of April 2020. Differences between paired samples were established using the Wilcoxon test (P-value < 0.05), due to an abnormal sample distribution (t = 0.0515, P < 0.0001). Results The table shows the number of appointments that people attended before and after the quarantine and the statistics analysis (P) between the two moments. Conclusions There was a reduction in the number of appointments or treatments among all health care services. The total number of appointments decreased from 118 to 7 (P < 0.001).


2021 ◽  
Vol 17 (1) ◽  
Author(s):  
Trude Fløystad Eines ◽  
Ingunn Pernille Mundal ◽  
Cecilie Katrine Utheim Grønvik

Pasient – og brukermedvirkning er en lovfestet rettighet som skal sikre pasienter og brukere økt innflytelse i helse og omsorgstjenesten. Forskning viser imidlertid at helsepersonell anvender en paternalistisk tilnærming i sin yrkesutøvelse, noe som truer pasienters rettigheter. Helsepersonell anbefales derfor å ta i bruk tjenestedesign som metodikk for å øke den reelle medvirkningen og involveringen av pasienter og brukere. Formålet med økt bruker- og pasientmedvirkning og involvering er å utvikle tjenester av høy kvalitet med utgangspunkt i brukernes behov. Behovsdrevne tjenester vil oppleves som nyttige og meningsfulle for brukerne. Det er derfor viktig at helsepersonell forstår verdien av brukermedvirkning i kvalitetsarbeid og tilegner seg kunnskap om tjenestedesign. Can service design promote expanding user participation and user involvement in health care services? Patient- and user participation is a legislative right intending to ensure service users involvement in health care services. However, research shows that healthcare professionals employ a paternalistic approach in their professional practice, which may threaten patients' rights. Healthcare professionals are recommended to use service design as a methodology to increase the genuine user participation and user involvement, aiming to develop high-quality services based on users' needs. Demand-driven services may be perceived as beneficial and meaningful for the patients. Therefore, the health professionals’ knowledge and comprehension of the value of user participation and service design are of importance.


2021 ◽  
pp. 1-9
Author(s):  
Eldré W. Beukes ◽  
Joy Onozuka ◽  
Torryn P. Brazell ◽  
Vinaya Manchaiah

Purpose The COVID-19 pandemic disrupted normal operations of health care services, broad sectors of the economy, and the ability to socialize freely. For those with tinnitus, such changes can be factors in exacerbating tinnitus. The purpose of this study was to determine tinnitus help-seeking behavior, which resources individuals utilized to cope during the pandemic, and what additional support is desired. Method An exploratory cross-sectional study design including 1,522 adults with tinnitus living in North America (Canada and the United States) was used. Data were collected through an online survey distributed by the American Tinnitus Association via e-mail. Free text from open-ended questions was analyzed using the automated content analysis. The responses to the structured questionnaire were analyzed using descriptive and nonparametric statistics. Results Significantly less tinnitus support was sought during the pandemic, and very few respondents utilized tinnitus support networks during the pandemic at the time the survey was conducted. Nonetheless, seeking support during the pandemic was significantly associated with significantly less tinnitus distress. The most frequently utilized resources for coping during the pandemic were contacting family and friends, spending time outdoors or in nature, relaxation, and exercise. Such tools for coping were associated with significantly less tinnitus distress. The support requested and advice provided by participants to health care services had overlap. The main support needs related to managing tinnitus included addressing hearing loss, providing peer support, finding cures, and accessing trained and understanding health care providers to help. The advice for professionals related to tinnitus management included the need for cures, personalized support, addressing hearing loss, targeting the tinnitus percept, and providing more information about the condition. Conclusions These findings provide suggestions on how to better support those with tinnitus at a time when health care is undergoing rapid changes. Findings can be used by stakeholders, clinical practitioners, and tinnitus support services to devise ways to work more effectively together to improve access to patient-driven, suitable, accessible, and evidence-based support. Supplemental Material https://doi.org/10.23641/asha.14558514


2021 ◽  
Vol 4 (1) ◽  
pp. 21
Author(s):  
Maria Sekartaji ◽  
Resty Puspita Sari ◽  
Muhammad Irsan ◽  
Muhammad Adnan ◽  
Labitta Pachira Aquaira ◽  
...  

During the COVID-19 pandemic, there is an increase in anxiety disorder towards the general population, including those clinical clerkship students who are associated with health care services. There has been limited study conducted regarding to the topic, especially during the COVID-19 pandemic. This study was aimed to know the prevalence of anxiety and insomnia, as well as the correlation between them, in clinical clerkship students during COVID-19 pandemic. An online survey was conducted using a cross-sectional approach to 229 clinical clerkship students batch 2015 at the Faculty of Medicine, Public Health, and Nursing Universitas Gadjah Mada. This study used the Insomnia Severity Index (ISI) and General Anxiety Disorder-7 (GAD-7), administered using Google Forms. Data were analysed using the Chi-Square test. We collected 101 responses. There were 41.6% of males and 58.4% of females with ages ranging from 21 to 26. The result shows 26.7% (95% CI: 8.1-35.4%) of students undergo anxiety and 44.6% (95% CI: 34.9-54.3%) of students experienced insomnia throughout the COVID-19 pandemic. There is a correlation between anxiety and insomnia on clinical clerkship students during the COVID-19 pandemic. Clinical clerkship students with an anxiety disorder have 2.62 times greater risk of experiencing insomnia (p<0.001). The correlation between insomnia and anxiety during COVID-19 pandemic is vital because clinical clerkship students are directly involved in health care services and could risk the safety of patients. Thus, it is important to conduct the course of actions to reduce the risk of mental health problems during pandemic conditions. Also, further research is needed to have a better understanding of the impact on learning performance.


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